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Hep C Discussion Forum -> On Treatment -> Fourth Time is going to be a charm
Post Info TOPIC: Fourth Time is going to be a charm
Groupergetter


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RE: Fourth Time is going to be a charm
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Hey Steve, hoping this works for you. I finished 24 weeks and was und at eot.  Tried to get my doc to prescribe Riba with Harvoni but she wouldn't do it.  Hope it was the right move.  As Jill said, the viral load result is the key. Like you, I've had the brain fog but it seems to be a bit better after ending tx.  Please keep us posted on you vl report.   Take care.



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
carp0056


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Thank you for the positive advice.  the last  3 weeks have been real tough.  I've had a cough since 4-21-15. I was  weezing so doc percribed  me some antibiotics and steroids.  Been in real bad brain fog for the last week.  Started back walking today.  just one more week to go. Still not clear why only 12 week with Harvoni and Rib.  saving money I guess.  Told doctor I wanted to do 24 weeks per protocol.  But he insisted 12 weeks.  Need to stat positive. But it sure is hard sometimes. 



-- Edited by carp0056 on Wednesday 13th of May 2015 05:03:55 AM

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Steve C
Cinnamon Girl


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Hi Steve, don`t be too alarmed, there could be various reasons why your liver enzymes have risen and those numbers do fluctuate anyway.

Just wait for your viral load result, that`s the important one.  smile

Let us know when you hear, good luck!

 

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
carp0056


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Ten weeks results are coming in.  I so confused now.  my AST has risen from 24 to 46 and my ALT has risen from 29 to 61.  Still waiting on viral load. What does this mean ?  4 week viral load was undetectable.

 

( 4 weeks) Still waiting on viral load results. Alt came back @29U/L down from 96U/L 2 months ago.  AST came back @ 24U/L down from 68U/L 2 months ago.  I couldn't believe it.  I'm so excited and can't wait for viral load results.



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Steve C



-- Edited by carp0056 on Tuesday 12th of May 2015 08:26:32 PM



-- Edited by carp0056 on Tuesday 12th of May 2015 08:29:12 PM

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Steve C
carp0056


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Thanks everyone for the uplifting comments. Keep on Truckin and lets all get rid of this terrible virus. Remember to stay positive.

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Steve C
Zlikster


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Congrats Steve!

UND4EVER :)



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
mallani


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Hi Steve,

Congrats. Stay Undetected buddy.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
justme50


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You are quite the Warrior!!  So happy to hear your news!  Such a feeling of relief, I know.  On SVR, Warrior!



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G1A, F3, prev. tx 2012 for 28 weeks vic/riba/int. Started Harvoni Oct. 29, 2014 for 24 weeks, 1.5 mil., und at 4 weeks. EOT: 4/14/15.  One week EOT labs: und; 4 wk EOT und, 7wk EOT labs: und
Tig


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Steve,

This is my first good news of the day too. Congrats are certainly in order! These new treatments are so different than those of the recent past. I smile each time I hear a story like this. Hopefully it will help spread the news that the treatment for HCV is no longer to be avoided. The harsh option is coming to an end.

Your numbers are excellent and absolutely indicate the treatment is busy taking care of business! I won't be surprised to hear the virus is gone or teetering on the edge of the abyss.

I'm happy for you and your family. You've all traveled a long and difficult road to get to this point. I think the journey is about over. Time to start planning your new Hep C free future!Good luck and let us know when you get the test results back. Good luck...

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Groupergetter


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Great way to start the morning, reading of another UND. :)  Congratulations Steve, a lot of folks here smiling with you.



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Cinnamon Girl


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Oh Steve, huge congrats, I`m so happy for you!!      (You`ve made my day...tears of joy in my eyes too!)

You`re doing all the right things and you have your wonderful family by your side, this is your time and your turn!

Great to see your ALT and AST levels have gone down so well too!

It`s all good...keep going! 

 

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
carp0056


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4th week check up and lab results. Today was one of the happiest days of my life.  Virus is GONE.  Wife and I shared tears of Joy.  I could feel that the treatment was working.  Was staying positive and eating right, walking and drinking lots of water.  I'm keeping all negativity out of my life. Well most of it.  it was so awesome to tell my family.  My family has been by my side through 3 interferon treatments and they could see I was hurting.   WOW I still can't believe it.



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Steve C
carp0056


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Still waiting on viral load results. Alt came back @29U/L down from 96U/L 2 months ago.  AST came back @ 24U/L down from 68U/L 2 months ago.  I couldn't believe it.  I'm so excited and can't wait for viral load results.



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Steve C
Matt Chris


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Hey Steve

Your week four lab results will be a very happy day for you, I have not heard anyone that did not reduce to either UND or less than 200 on their test results for 4 weeks into treatment with Harvoni.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Gator Man


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Hi Steve,

Exercise, good diet and plenty of water are the three things that will help through the next 8 weeks. I'l add in the positive attitude that you have with tx is as important as the other items. You're on the right path and await seeing your 4 week results! Good luck!

john



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Geno 1b, compensated cirrhotic, 54 yo, prior null responder. Pre tx VL approx 595,000, tx with Sovaldi/Olysio (no Riba) started 1/8/14. VL 40 @ 2 weeks, UND @ 4 weeks. Still UND @ EOT + 1 year.

Gator Man SVR12, Dragon 0, Final Score.
Tig


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Hi Steve,

Thats great news! I hope things have been going well for you. Let us know when you hear some results! Good luck!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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carp0056


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Going for 4th week labs tomorrow.  I feel real good about this.



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Steve C
carp0056


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Thanks Cinnamon Girl. Yea the Riba gets me every time during my past treatmens also. Just going to keep on Truckin

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Steve C
Cinnamon Girl


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Hello again, Steve, welcome back!  Wow, it has been a long time!  smile

Great to hear you`re on treatment with Harvoni and riba now, that`s excellent news.

Riba can irritate the stomach and cause heartburn, among other delightful side effects, so make sure you take it with food.

I`m really impressed with your walking!  Exercise can be very beneficial while on treatment, especially when you`re already in a good routine with it, and getting out in the fresh air too.  You may find have to cut down a bit as you go through the 12 weeks so listen to what your body`s telling you.

All the best of luck, this is your time I`m sure! 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
carp0056


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Tig, Thank You all the great advice.  Thanks for removing post. 



-- Edited by carp0056 on Wednesday 11th of March 2015 08:28:25 AM

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Steve C
carp0056


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Thank  You Tim.  Feeling great after 2 weeks.



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Steve C
carp0056


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Had A great 14th day. Heart burn off and on all day but manageable.  Drinking  lots of water and eating right.  I've never been a walker so I started slow and I'm up to 1.7 Miles and it's mostly up hill.  Thanks for all your support .



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Steve C
carp0056


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The Dragon is going down this time.



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Steve C
hrsetrdr


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Steve, best of luck to you, this time will be the one!



posting from my iPad

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Groupergetter


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Hey Steve, glad to see you on the H train.  You should see real improvement in your labs.  Congrats on getting started.  We all need to kick some dragon butt.   Take care.



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Loopy Lisa


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Good luck, anyone that has gone through the old treatments deserve a happy ever after. I can't wait for the day when the old treatments are buried to rest :)



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Tig


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Hi Steve,

Welcome back! It has been awhile but I'm glad you're back and starting treatment again. This will be very different than your last experience with Victrelis! I did the same protocol and remember it well. As Gator Man mentioned, it's likely the Riba causing your issues. I hope that improves, but Riba is a thing all of its own. If the runs dont let up, ask your doctor if it's okay to use Imodium. It will help control that. The headaches came frequently for me and my doc approved Tylenol or the occasional Ibuprofen. 

I hope time goes by quickly for you. It will be far quicker than your last. just like last time, get your rest, eat a good diet, but above all, hydrate! Increase your water intake to 3-4 liters per day. Many here have mentioned a decrease or end to their headaches after increasing their water intake. It's worth remembering anyway! Good luck, let us know how things are progressing.

Tig

PS: I removed your double post in the New Members section.



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Gator Man


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Hi Steve,

You are probably correct about the Ribavirin being the cause of your sx. The good news is that you are only on the combo for 12 weeks, and generally well tolerated compared to prior txs.  You have an excellent chance of success this time around!

Good luck and keep us posted!

 



-- Edited by Gator Man on Tuesday 10th of March 2015 01:00:34 PM

__________________

Geno 1b, compensated cirrhotic, 54 yo, prior null responder. Pre tx VL approx 595,000, tx with Sovaldi/Olysio (no Riba) started 1/8/14. VL 40 @ 2 weeks, UND @ 4 weeks. Still UND @ EOT + 1 year.

Gator Man SVR12, Dragon 0, Final Score.
carp0056


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 Started Harvoni and Ribivirin on 3/25/2015 for 12 weeks  1200mg Ribivirin per day. Things went real well the first week. 2nd week headaches and the runs.  Most likely from my experience it's the Ribivirin. 



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Steve C
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