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Hep C Discussion Forum -> Post Treatment -> How long for relapse window to close?
Post Info TOPIC: How long for relapse window to close?
RudiRoo


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RE: How long for relapse window to close?
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Hi Tess,

First, CONGRATULATIONS!!!! It must feel so wonderful and amazing to say so long hep C!  

Second I finished S/O back in Jan. and for the first few weeks sneezed so often and hard it felt like I was losing a bit of frontal lobe!

I've never had allergies to anything except demerol in my entire life so I feel certain it has to do with TX. I also had other histamine type issues. They have been resolving, bit by bit. I only had one sneeze-a-thon last week. I tried some benedryl and it helped, but I hate how it makes me feel.

Hopefully it will begin to ease up for you as well and you can truly enjoy your new SVR status! ! Rudi



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Hep C since 1982, GT IL28b CC, tx naive, VL 2.5M, normal liver panel, Hepascore F-0, A-1. Sjogren's, Hashimoto's, Raynaud's, etc. SOT S/O 12 wk tx on 10.28.14. EOT 1.19.15. HEP C FREE AT LAST! 4.29.15
Josh Haynie


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 i hear SVR 12 is the magic number.. 

that equals 3 months......

that mens if you can no stuuf during or after treatment for at least 3 months if not longer.....

 

 but yes the magical and deffinitive SVR 12 i hear is the gold standard



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genotype 1  HCV 4,958,318 iu/ml    HCV Log updated soon  iu/ml------5'10 135lbs 9-15-83  genotype 1 since 2002----Pendleton,Oregon
Tig


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Tess, I agree, it's time to put the coveted SVR in your signature line!

Mike, only 19 days til you are tested for the good news! Let the exciting anticipation begin, WOOT!! Good luck buddy, hope things are improving every day!

Tig    



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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wmlj1960


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 Congratulations Tess!!! I'm 54 and I was also on sovaldi/ribavirin but for 24 weeks that ended 1-5-15 and had some skin stuff and horrible heartburn and depression in my case for the latter part of the 24 weeks. I had a lot of other health problems the last 2 months of treatment (which I'm still dealing with) that made me feel even worse but through it all I can definitely tell that the issues caused by ribavirin are wearing off. I feel better every day but it's a slow process like Tig said, 6 months is not uncommon. So hang in there, enjoy being Hep C free, and put a big fat red SVR in your signature. LOL



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Tess1971


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Thankyou Thankyou Thankyou All !!!

I do feel different these days for sure.will not be having VL checked again until sometime this summer or fall.



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Type 2b, 3485370 IU/mL VL, sovaldi/ribavirin-12weeks, treatment end 11/15/14 SVR-UD, SVR-5-UD, SVR-14 & 32-UD. (64 yr old with hepc since 1970s)

 
Tig


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Congratulations Tess!! BIG WOOT!! I knew you would be successful. I know how special it is to hear that news, almost mind numbing. But you can believe it, SVR is yours!! Now get out there and enjoy the spoils of your achievement. That feeling in your abdomen is your liver doing the "Happy Dance"! 

Tig    



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Cinnamon Girl


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Fantastic result, Tess, congrats on SVR13..you`ve done it!! Wow indeed!   biggrin

At this point it`s extremely unlikely you would relapse which is why an UND result at 12 weeks is now considered to be SVR and equivalent to being cured.  Something else to bear in mind on that subject is that the relapse statistics almost certainly include a percentage of people who become reinfected one way or another post SVR.

The new drug coming along sounds like GS 5816 from Gilead, which looks very promising and will be effective across all genotypes. Thanks for mentioning that. 

Very happy for you, onwards and upwards with your recovery, and enjoy being free from HCV!! 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
pl1952


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Congrats Tess!!!



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Me: 62 yr. old female, GT 1b, fibroscan 4.5; VL 650,975 as of 2/4/14;started Harvoni 3/6/15; SVR


Hubby: 59 yrs.; GT1b; fibroscan 25-cirrhotic; S/O for 12 weeks started tx 3/20/14; SVR56; fibroscan done 7-7-15 = 8.5
Tess1971


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All is good, blood work 13 weeks post treatment is excellent and still Undetectable     YAY!!!!!

Good feeling after all these years, wow.

Also been told that there is new drug down the pike that treats all genos cross the board which I wanted to pass along.  As for all the itching I still feel it.  It is histamines going crazy, immune response is highly sensitive I guess as it is truly going though a change since I have had hcv since my early 20s.



-- Edited by Tess1971 on Sunday 15th of March 2015 07:04:42 PM



-- Edited by Tess1971 on Sunday 15th of March 2015 07:05:47 PM

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Type 2b, 3485370 IU/mL VL, sovaldi/ribavirin-12weeks, treatment end 11/15/14 SVR-UD, SVR-5-UD, SVR-14 & 32-UD. (64 yr old with hepc since 1970s)

 
Rubye


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Thanks Tig - that's really good to hear.

Tess, looking forward to hearing how it goes with the doctor .



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
Tess1971


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Thanks all.I guess I should feel lucky as I do not have any joint pain aside from the occasional that I had prior to treatment.  I actually have less tun ever these days.  Only complaint is  the allergy and skin stuff and heartburn type issues.

Well. I am on my way to dr appt now and will post what I find out later today.



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Type 2b, 3485370 IU/mL VL, sovaldi/ribavirin-12weeks, treatment end 11/15/14 SVR-UD, SVR-5-UD, SVR-14 & 32-UD. (64 yr old with hepc since 1970s)

 
Tig


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Hi Rubye,

Just wanted to mention something about the joint pain. I suffered from joint pain after treatment. My hips were so painful I could barely get up and down from a chair without grimacing from pain. I couldn't lay on my sides because it hurt so bad and then my shoulders started to hurt as well. I started taking 500mg of Naproxen twice a day. Didn't like that because it's hard on the liver, but it helped a lot. Now after a year+ EOT the pain is getting better and better. I would say it has improved 75%! So there is hope ahead. I'm able to now take the Naproxen as needed, which makes my liver happy!  I'm hopeful that this is a sign that following SVR, things do improve. But like everything, it takes time. I wish you the best!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Rubye


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Hi Tess,

I don't really worry about relapse, figuring the odds are extremely against it happening. What I do have concern about is after effects from the treatment. For me it is joint/bone pain. I had arthritis before treatment but now 8 weeks after the end of treatment my joint pain has probably doubled pain-wise and there are more places where it hurts. I'm just 3 years older than you and I hate to think of arthritic stuff as putting an end to living a good life. I kind of think my "stuff" is permanent. Still, I would do it again. 

I think Tig is right about the after effects taking a long time to go away. At least we no longer have the virus! That is cause for celebration for the rest of forever. 



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
Tig


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Hi Tess,

While the relapse window never truly closes, it does appear less and less likely to occur the longer you maintain SVR. After SVR12, reports state your rate of relapse falls to 0.5% or less. If reports continue to support evidence that it remains that low and perhaps continues to drop further, the odds of a relapse are remote. 

It's not uncommon for you to experience lingering effects of Tx for up to a year following EOT. Riba can take 6 months to clear completely, it did for me. I continued to have rashes, sun sensitivity and moodiness for every bit of 6 months afterwards. It takes some time and should diminish soon. 

So I wouldn't worry. Let yourself bask in the glory that is SVR!! Good luck!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Tess1971


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Does anyone know at what point the relapse window closes?  3 months, 6 months, 12 months.  I have a doctors appt tomorrow and will find out the results of my 3month blood work.  I am being positive, but, still have some fears lurking in the back of my mind.  Since I am geno 2 I have no other options available and that is another issue.

I still have flair ups with my skin, as well as, acid indigestion.  It is like I have become sensitive to things since treatment, I have allergy symptoms this fall and I never used to sneeze and itch like this before and I have lived in the country for years.  Anyway, I just hope it is not permanent because of my age - lol.

Hoping for the best I am.

 



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Type 2b, 3485370 IU/mL VL, sovaldi/ribavirin-12weeks, treatment end 11/15/14 SVR-UD, SVR-5-UD, SVR-14 & 32-UD. (64 yr old with hepc since 1970s)

 
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