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Hep C Discussion Forum -> Post Treatment -> SVR 12 Reached
Post Info TOPIC: SVR 12 Reached
RudiRoo


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RE: SVR 12 Reached
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You did it! Congratulations and Happy Day!!!

I don't have acid reflux [GERD], but I do have SIBO which is sometimes caused by Hep C infection. In my case it was probably from intestinal surgery and adhesions and just exacerbated by Hep C, but it can be caused, they think indirectly, from Hep C, either by a damaged liver not able to do it's job or a malfunctioning pancreas causing insulin resistance/diabetes which leads to trouble downstream. This comes to mind because many people who have it, also suffer from GERD and use lots of PPI's like Zantac. Here is just one book on it:http://digestivehealthinstitute.org/2014/07/08/what-really-causes-acid-reflux-gerd/

Also the Fodmap diet from Monash University seems to be helping lots of people. It's one I've used and like, as well as the Specific Carbohydrate Diet. They will say it's for SIBO or IBS but it has been working and is recommended for folks with GERD who often test positive for SIBO.

Sorry for that mouthful. It's a bit complex.

Anyway, I'm hopeful for us both, that as we continue to heal, our digestive troubles will disappear. I think not having a boat load of viscous viruses doing a non stop assault on your body has got to help!

Here's to healing!

Hugs,

Rudi



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Hep C since 1982, GT IL28b CC, tx naive, VL 2.5M, normal liver panel, Hepascore F-0, A-1. Sjogren's, Hashimoto's, Raynaud's, etc. SOT S/O 12 wk tx on 10.28.14. EOT 1.19.15. HEP C FREE AT LAST! 4.29.15
basser


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am really pleased for you. you can now relax and start enjoying life free of that virus.all the very best to you                                                                                                                                                                                                                     william



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 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16
skewedButNotBroken


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4L, I had horrible digestive issues before treatment. I mean I could eat one big meal and it literally felt like it would just sit in my stomach for a couple of days! Now, I can workout very hard with dumbbells and eat all day long with little or no digestive issues, BUT I do take probiotics at least a couple of times a week and now, I'm back eating mostly healthy foods.



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Diag. with hep c in 1992; A3:F2;  GT 1a; IL28B CT; VL 900k, ALT 150, AST 100 on 8/5/2014; SOT 9/5/2014  S/O ---VL 127 after 6 days; VL detected on day 18 but < 15.; --> UND @ EOT+ 1 year SVR!
fourlocos


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Yes I had on and off again gastritis prior to even knowing I had Hep C.  I just found out I had in this past November and started treatment a month later.  My stomach felt great during treatment.  I was able to drink coffee which normally causes me some troubles.  As soon as I stopped Harvoni it got super bad within two days.  Worse or different that I had before.  I never blamed anything on Hep  C because I didn't know I had it for 40 years!  Looking back (hindsight is 20/20 afterall) I think many things probably were suspect because of the virus.  Either way I am happy to be free of it.



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GT 1b first time treating with Harvoni 8 weeks.  4 weeks UND 8 week UND.  8 weeks after treatment UND.

 12 weeks SVR.  Reached 24 weeks SVR!
RAGDOLL


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CONGRADULATIONS SVR12.  I wanted to share that up to 13 years ago i blamed all my problems on HEP C.  I had stomach trouble which started when I was 40.   They put me on Previcid and said it was acid reflux. The meds really never helped.  2002 new doctor did a bunch of tests and said I had a gluten intolerance.  Along with the stomach, I had skin complexion issues, weakness and fatigue and no energy.  After 90 days of absolutely no wheat or gluten products I was off all meds and feeling much better.  I had never heard of wheat and Gluten Intolerance but it was exactly what was going on for me.  It might be worth an evaluation.    Good Luck!  and welcome to SVR12!



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F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104! 1-21-18 SVR 3 years ,2020 5 years, 2022 7 years!
Stormy


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Yay! So happy for you.

Stormy



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lilbit


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That is so exciting fourlocos. I have been waiting to hear your results because you were so worried. I understand that as I was too but it worked for both of us. Now I am waiting on +24 and that doesn't seem as nerve wrecking. I sure hope they find the cause of your tummy problems. Once that is fixed you can start feeling fantastic like you have earned.



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64 yo Diagnosed in 1991 with Hep C, Genotype 1a, VL close to 16,000,000, Tx Abbvie Topaz II 9/5/14, Wk 2 and 4 und. End of treatment 11/27/14 undetected.  EOT+4 und  EOT+12 und.  EOT+24 und CURED, EOT +52 now I feel really cured.
Fireman Rob


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Congrats 4L!

i wouldn't worry about your doctor's misunderstanding of your situation. The important thing is that you're SVR 12! There are many GI specialists out there that don't even know about the 12 week eot standards after tx. I know it's frustrating but you did it!

Be well!

-Rob



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Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!
Scruffy


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Great news 4L. Best of luck to you and your HVC free life.

Open the flood gates and let the SVR's flow.



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
steelfire453


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Great news and a great feeling Enjoy life now without that on your mind all the time 

Congrats



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Tess


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Congrats Fourlocos!!! You beat the dragon!!!  biggrin Good for you for sticking with the treatment and keeping fit with exercise.  Those hikes with your dog are so worth it.

Sorry to hear that you're still having stomach trouble.  I remember you were having those problems before treatment too.  Do you think it could be from something other than HCV and treatment?  Just wondering if your doc should be checking for another cause.  Though HCV and the treatment could possibly have effects like that. Hopefully you will feel better soon.

Best wishes to you.  On with your HCV-free life!!!

- Tess

 



-- Edited by Tess on Saturday 2nd of May 2015 06:42:46 AM

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HCV Gen 1a diagnosed 2001; Labs 11/13/14: VL 1.2 million IU/mL, ast 88, alt 111. Harvoni TX 12 weeks.  EOT - 2/18/15, VL UND & normal ast/alt.

4 wks after EOT, VL = UND; normal AST/ALT at 4, 8 and 14 weeks after EOT.  15 weeks after EOT = Undetectable!
Beacon


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Congratulations fourlocos!!!!That's the news we all want to hear!!

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GT 1a, was tx naïve, cirrhotic(Fibrosure), 64 y.o. Started Harvoni 12/12/14 for 12 wks. EOT weeks 4, 13, and 24 HCV not detected! HVC not detected EOT plus one year.

A smooth sea doesn't make for a skillful sailor.

 
fourlocos


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Thank you all so much.  Only this group understood what it took to DO IT!  Friends and family just didn't get it.  Heck even my GI doctor doesn't get it.  When he called me today with the news I was shocked since I literally spent ten minutes with this man once.  When I told him that I was elated to hear the news but wasn't feeling well he didn't say much.  I told him I wasn't alone in this after treatment funk.  I told him about a forum I relied on for support and he asked me if others were feeling unwell also.  I told him yes.  He said nothing.... he was like let's see how you are in Nov when I test you again.  I mean he is a GI doctor.  I told him I was living on Zantac and he didn't say come in and see me etc.  It was sort of weird to me.  If the stomach thing doesn't resolve I will take my primary doctors offer to find another liver specialist to see.  He told me in another phone call earlier on in treatment they would do another liver ultrasound after six months and now he said there was no reason to do one since I was SVR.  Oh well......



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GT 1b first time treating with Harvoni 8 weeks.  4 weeks UND 8 week UND.  8 weeks after treatment UND.

 12 weeks SVR.  Reached 24 weeks SVR!
skewedButNotBroken


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Congratulations 4L. Try working out and getting lots of sunshine. This has helped me immensely. 



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Diag. with hep c in 1992; A3:F2;  GT 1a; IL28B CT; VL 900k, ALT 150, AST 100 on 8/5/2014; SOT 9/5/2014  S/O ---VL 127 after 6 days; VL detected on day 18 but < 15.; --> UND @ EOT+ 1 year SVR!
Groupergetter


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Soooooo happy for you 4L.  Glad you made it.  SVR! YES!   :)



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Matt Chris


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YAHOO! FL's

12 weeks SVR EOT is the gold standard for declaring in cure of HCV,

Thanks Fourlocos for all your posts and encouragment to other members, welcome to the rest of your life.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Rubye


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This is such wonderful news FL. Congratulations!
At 16 weeks since eot I feel so free. It took me 12 weeks to get back to normal, so hang in there. I am so happy for you.

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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
Tig


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Hey 4L,

WOOT!!! I'm so happy to hear the great news. You had your moments but handled them like a champ. Now you can relax and get back to living the Hep C free life! I hope you stay in touch, your experiences and support for so many others has been very helpful. Good luck!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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bassetgirl


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Congratulations!!!!!!!I hope you feel better soon- Enjoy your new life without Hep C !

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 Female. When treated: age 63, gt 1a, compensated cirrhosis, platelets 67,S/O 12 week treatment,EOT July 30 2014

Oct. 23 2014 EOT + 12 SVR !!!!!! Thank you God and Medical Science.

Jan 19 2015  EOT + 24 results: still SVR
Bills


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Wow

That was quick  I'm so happy for you. Wishing you a happy and healthy recovery and a nice summer 

BillS



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Greg D


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You made my day 4L. Boy, you really battled and even though you were nose to nose with adversity and doubt, you kept at it and prevailed. Very proud of you and your four legged companion too!



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60 yo (2013), genotype 2b, started 28 week tx Sept.14, 2013. Triple Therapy (ribavirin, victrelis, peginterferon), VL 235k prior to tx, UND right through. EOT March 29, 2014. EOT24 Sept. 15, 2014 and EOT + ONE YEAR April 1, 2015 UND.... SVR!

 
Gator Man


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Hi 4L,

It's your day for good news and I'm glad that it has arrived. Outstanding!! You fought through tx issues and can now declare victory. I hope your path to feeling better is a speedy one!

john



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Geno 1b, compensated cirrhotic, 54 yo, prior null responder. Pre tx VL approx 595,000, tx with Sovaldi/Olysio (no Riba) started 1/8/14. VL 40 @ 2 weeks, UND @ 4 weeks. Still UND @ EOT + 1 year.

Gator Man SVR12, Dragon 0, Final Score.
Alaska Fred


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Congrats on SVR!! You earned it and now it's yours!

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Fred lambert
fourlocos


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I am grateful it worked!  Hopefully others on the 8 week plan will see it does work!  Checking again in November.  Now hoping I will feel better by then.  Thanks to everyone who helped me get to this point. 



-- Edited by fourlocos on Friday 1st of May 2015 06:12:33 PM

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GT 1b first time treating with Harvoni 8 weeks.  4 weeks UND 8 week UND.  8 weeks after treatment UND.

 12 weeks SVR.  Reached 24 weeks SVR!
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