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Hep C Discussion Forum -> Post Treatment -> EOT + 2.4 year followup
Post Info TOPIC: EOT + 2.4 year followup
Brian1412


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RE: EOT + 2.4 year followup
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So i can eat steaks? Sweet!

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BigPharma


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mallani wrote:

 less sugar, less fat but plenty of fruit, steak and fish. Gallstones can shrink and even disappear.

 I'll make a poster and I'll attach it to my fridge 

thanks , Malcolm !



__________________

Treatment experienced, Hepc about 15 years , 41YO

2014 , 26JUL started treatment with daclatasvir and sofosbuvir (China ) 19DEC2014 -EOT

ALT/AST at start 60/50, now -19/19, VL at start 2,300,000 IU, UND @ weeks 4,8,12,17; SVR24 (11JUNE2015)

 

 

 
Terry


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 Hi Malcolm   It is great to read about you test results. You platelet counts are outstanding and you sound like you have recovered very well after you treatment. And whether you believe the fibroscan readings or not it sounds like your liver has improved dramatically . Have you ever looked at a product like Chanka Piedra for your gall stones ? It is all natural and you might want to read up on it.



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Geno Type 1a stage 4 cirrhosis EOT 52 weeks SVR !!
mallani


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BigPharma: 18 months ago, my gallbladder was packed with gallstones, with the largest being 1.8cm in diameter. Yesterday my gallbladder was about 25% full of stones, with the largest measuring 8mm in diameter. My diet has changed somewhat over the last 3 years- less sugar, less fat but plenty of fruit, steak and fish. Gallstones can shrink and even disappear.

Mark: My followup Fibroscan after 1.5 years post-Rx showed a reading of 8.8 kPa (down from 30.1 in 2008). I don't believe it as I have stated in other posts. I don't regard a biopsy as invasive- I've had 3 and performed several hundred (if not thousands). Performed properly and assessed by a competent pathologist, for me they remain the only true way to assess the liver. Many will disagree.

JoAnneh: Thanks mate. I know you don't want another biopsy, but if you could get a Fibroscan it would be well under 10. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


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Great news! I go back in October for ultra sound and blood work.
I want to post my results, I will ask for my test results!
Thank you for all the info you provide.



-- Edited by JoAnneh on Friday 19th of June 2015 12:30:32 PM

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Marktq1


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Great results have you had another fibroscan ? wound would not be keen on a biopsy it is invasive and surely only justified if it is to determine treatment  rather than confirm progression of recoveryCongratulations again you are living proof that cirrhotics can improve after treatment an inspiration for many I still remember when I was first diagnosed cirrhotic the nurse telling me it would never improve and that I would not expect to ever feel any better that the aim now was to slow progression  it was a depressing prognosis and you are proof that she was clearly wrong gives hope to me and many others I am sure

 

 



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60 yo male cirrhotic fibroscan 23 base VL 105000 G2 alt250 ast 200 bil high started trial nov. 6 week results alt 32 ast 30 VL blinded other tests normal range
BigPharma


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mallani wrote:

Just as an aside, my gallstones are much smaller. I have seen gallstones disappear in other patients. I'm not claiming this has anything to do with SVR, but it's just a suggestion to ignore gallstones unless they are causing trouble. Avoid surgeons if possible!

 Wow! What have you been doing to decrement your gallstones?  My last US in July2014 showed my gallbladder is filled by 2/3 with stones. confuse

I hope they diminish too biggrin  



__________________

Treatment experienced, Hepc about 15 years , 41YO

2014 , 26JUL started treatment with daclatasvir and sofosbuvir (China ) 19DEC2014 -EOT

ALT/AST at start 60/50, now -19/19, VL at start 2,300,000 IU, UND @ weeks 4,8,12,17; SVR24 (11JUNE2015)

 

 

 
coolheat


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Happy for U 2 Malcolm !!!! Amazing

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65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
Rubye


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This is great news Malcolm! I also am in awe of your platelets. smile

That's good to know that ultrasounds have gotten better. Part of me prefers a MRI but more of me likes the simplicity of an ultrasound.

 



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
Matt Chris


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Hey Malcolm

Wow! Great report and seeing that your liver and your spleen have responded in such a great way is real proof that a healthy active live style after SVR can do outstanding healing to the post SVR body. Thanks again for encouraging all the members and setting a excellent example.

matt    



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
mallani


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Thanks guys.

For me, liver ultrasound was not my favored imaging modality. I mostly had MRI or CT checks from 2000 to 2010, as I was difficult to scan.

For some reason, it is now easy to see my whole liver. The latest Ultrasound machines/probes have helped. I am now confident I can see any liver lesion up to ~5mm and this is good enough for me.

My longstanding 12mm lesion in Segment 2 was very easy to see. It had been called an atypical haemangioma for the last 10 years, but yesterday we could see normal liver passing through it, so it is almost certainly an odd regenerating nodule.

I am fortunate that I can get the same Sonographer to do my scans. Measurement of the liver and spleen is very subjective and 10 Sonographers would give 10 different readings. This is why I can say my liver is 2cm smaller since 2011.

Just as an aside, my gallstones are much smaller. I have seen gallstones disappear in other patients. I'm not claiming this has anything to do with SVR, but it's just a suggestion to ignore gallstones unless they are causing trouble. Avoid surgeons if possible!

Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
basser


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brilliant news mate.gives this cirrohtic hope. im still early days in svr and know there is a lot of healing to be done.the virus leaves its mark but as you are proving there is a great life to be had. best of health to you                                                                                                                                                                                                                                                            william smile



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 william.61 yo.lives in uk.geno 1b.started sol/dac/riba sept 2014 12wks.am now svr and now had liver transplant on 19/07/ 16
bubble


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X2 on that Malcom. What terrific news! This is looking like your liver is very well regenerating new cell growth. 290 0n the platelets is amazing.  Congrats.



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60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.
BigPharma


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Malcolm, wonderful news!

 Look at your platelets - 290,000!!! Liver is working just fine biggrin 



__________________

Treatment experienced, Hepc about 15 years , 41YO

2014 , 26JUL started treatment with daclatasvir and sofosbuvir (China ) 19DEC2014 -EOT

ALT/AST at start 60/50, now -19/19, VL at start 2,300,000 IU, UND @ weeks 4,8,12,17; SVR24 (11JUNE2015)

 

 

 
Cinnamon Girl


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That is so fantastic, Malcolm, you must be over the moon with these results! 

I can well understand why you`re considering having another biopsy done, that would seem to make good sense.

Very happy for you, this is a very well deserved turn around in your liver health!  smile

 

 

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Gracie


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Oh yes, a biopsy would be a great indication of reversal of cirrhosis and a boost to all of us in the same boat. I'd be excited to know the result. Great job Malcolm.



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Tig


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Hi Malcolm,

 That's great news mate! I would be interested to know the results of a Bx too. I have the feeling you will continue to see improvements. Congrats, this is well deserved and welcome news for all with advanced fibrosis. 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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MzmiffY


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Agreed! Fantastic news. Very very cool!



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42yrs/ f3-f4, gen 1a, 48 wks of Interferon,Ribaviran and Boceprevir. 

VL pre tx-384303, VL @ 4 wks 11095, 8wks- UND.

UND@ EOT, SVR 24!

 
Liamc


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Well Done Malcolm.;)



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GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!
mallani


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Hi all,

EOT was Feb 2013, so just had another 6 monthly labs and Ultrasound followup. Bloods all normal (ALT-31, Platelets 290k).

Very happy to see my liver is smaller, no HCC, and spleen is also smaller. The echopattern is completely normal, so I'm taking that as continued resolution of fibrosis.

The 6 monthly followups are a bit of a pain, so I'm tempted to get a biopsy to see if I need to continue.

Cheers to all the cirrhotics with SVR!



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
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