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Hep C Discussion Forum -> On Treatment -> Starting Treatment 10-15-15 ROUND TWO !!
Post Info TOPIC: Starting Treatment 10-15-15 ROUND TWO !!
Sydhanrahan


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RE: Starting Treatment 10-15-15 ROUND TWO !!
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Hi RC,

so sorry to read your news. Your attitude is so inspiring though. Just immediately looking around for round 3, rolling your sleeves up, taking a big breath and getting ready for the next battle.

It seems as though you've chosen not to let it mess with your head. Im sure they'll get it next time. 

Hopefully round 3 won't need either interferon or riba and your viral,load is very low now. Does that make a difference? 

Thinking if you,

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Linuxter


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Ditto what Tig said ...

... we're not goin' anywhere ...

Phase 3 it is ... Onward to Victory!

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Tig


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We plan to continue being your support and cheering section too. Third time's the charm!! We're going to see you to success, count on it....



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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robertsamx


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Thanks eveyone.  Phase 3 coming up.  RC



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Tig


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RC,

What a shock that is to hear. I'm sorry buddy, but GT3 is a bear sometimes. The newer protocols, minus the Interferon and Ribavirin are going to be your answer. You did your very best, it's a failure of the drugs, not you. I know that's not much of a consolation prize, but knowing you did your best, counts. I have little doubt that with your genotype and history, they'll be ready with the right ammunition the next time you go to battle!

We're here for ya....



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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wmlj1960


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I'm sorry to hear this Robert. I know you feel very little hope right now but this too shall pass. There will be better options ahead so hang in there. The way I've been feeling lately I'm thinking I might have relapsed again too. But if so we will just take the next step and keep fighting. Although I know this road is a long one for you your SVR will come. Keep us up to date on what you find out next week. We're with you ALL the way!



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Ari-anna


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All the best with finding a new option RC

Warm regards

Ari



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Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
Linuxter


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Hi RC,

So sorry to hear this .. hang in there, there are new and better drugs out there. You sound Ok but I can't imagine how you feel right now, we're with you and do not be shy about leaning on us ... we stand with you and will until SVR!!

May you have the best of luck in getting on a Trial or other combo that will kill this beast.

Please keep us informed ... we'll be waiting to hear your options.

 

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
robertsamx


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I Relapsed again!  Got the call Monday. My AST  44.  ALT 86.   Viral load. 9940. They called and wanted me to come back to re-test the V/L.   So I went back and had the  re-test..

So I"m going back next week To see what my options are for round 3.   RC



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robertsamx


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Hi Mikaere, I just steped off the Sof-peg-riba train, I diden"t know your were on board!Welcome to the forum, I hope treatment goes well for you.Hang in there and get it done.  RC



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Mikaere


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Keep up the good work 



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Male 60+ from Newzealand gnome type 1 used  tx sovaldi,peginterferon,Riba  EOT 12 weeks SVR 24 weeks SVR 
robertsamx


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Thanks all for the well wishes.   That car would be a blast!  This news has really lifted my spirits .    RC



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Tig


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Now you're talkin!! One of my all time favorites, the 57 Chevy... I think we should buy that and each of us get to run it down the track after SVR. Kind of like the life of our Dragon. Starts out roaring and spitting flames and at the end, flames out and goes silent....... 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Linuxter


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Hey RC,

You could bring this car to the party!

unnamed%20(40).jpg

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Sydhanrahan


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Hi RC,

So happy to hear you got those readings and hope they are defected in a Virus Undetected 

result when your viral load results come in.

Syd

 



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Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Tig


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Good luck RC, we're all here to do the dance with ya!!

 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Shadowfax


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February 5th! A day that seems to have brought many good news.

Everything is looking good. So glad to keep reading this. All the best and you got this.



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
wmlj1960


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That's good news RC. AST 44 / ALT 86 sounds a lot better than AST 93 / ALT 242 and that looks like you'll likely see that UND Friday too. I know you can't wait till then and I'm anxious to find out too. We may have to have a little 'SVR-4' party to get warmed up for April. Fingers X'ed.



-- Edited by wmlj1960 on Saturday 6th of February 2016 01:57:55 AM



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Linuxter


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Hi RC,

Great numbers, it's looking good for you ... keep us posted, fingers and toes crossed, heck I'll even cross my eyes if that will ensure SVR for ya.

 

Wishing you the best,

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
robertsamx


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Good news today.   Yesterday I went to Seattle for my 4 week post blood draw, I just got a call from my study nurse, she said that my ALT is 86----my AST is 44    The HCV-RNA results won't be back untill Friday next week, but she said this is a very good indication that this treatment round worked. The ALT is high, but with cirrhosis they expect it to stay higher than normal . My numbers going into round two were AST 146 &  ALT 239.  On my first treatment with SOF-RIBA in 2014 at my 4 week post my ALT was 242 and my AST was 93. Load was 13 million. I relapsed!!  Looks like the Interferon was the kick in the butt I needed This time?

It's early I know but I think round two did the job.     RC



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Cinnamon Girl


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Hi RC, great news that you`ve finished your tx now, very well done!! 

Take good care of yourself while you recover, the hard part is over now, and I really don`t think you have anything to worry about with your 4 wk post tx results and beyond

.Keep us posted, we`ll be looking out for your updates and looking forward to celebrating with you!!  smile

(Ps - I think we all know now who to call when we have something to celebrate -- Mike, you`re now our official party organiser!!)

 

 

 

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
robertsamx


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Tig, don't beat your self up . I"m the one with two brain cells left , and geting dates and weeks and test and all that stuff in order, then add if it was my first or second treatment? It's all messed up in my head right now.  I am feeling bettear each day. Thanks all for the encouragement.

Mike, You know how to throw a party!!   Looking forward to that one.   RC



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Tig


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Hey RC,

I misread your initial post, my bad. When I saw EOT and undetected at week 8, my two brain cells equated that to EOT +8. I see clearly now and am still confident of your success. Me and the rest of the passengers on this train are looking forward to the upcoming station party! You have done everything by the numbers and obtained good reports along the way. You did your part, now it's up to Gilead. It's your time to shine! Continued good luck... smile



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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wmlj1960


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Congrats on finishing treatment Robert. Now we have a big double SVR party coming. I suspect we will both breeze right past EOT+4 with a continued UND so we need to concentrate on all the decorations and fireworks plans for the big party. What flavor cake do you want? What are you going to wear? What band are we going to hire for the music? What limo service? What type of food do we want from the catering service? Do you think it would be okay to bring my dog? I have a friend on the police department that I can ask to ignore any 'disturbing the peace' calls on us so we'll be good for all night. What else am I missing? Oh, why don't you bring a couple of your killer cars for the show too. Come on Robert - lets make this party one for everybody to remember! biggrin



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Matt Chris


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Hey Robert 

we are all pulling for your SVR-4, it's the hardest one but sounds like your feeling good about it and that's very important In achieving it.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
robertsamx


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Thanks Tig.  I would expect my week 12 results to be UND.  It's the 4 week post treatment I'm sweating!!  I will have that blood draw on Feb 4th.   My first treatment started on Feb 4 2014, it was Sof-RIBA 16 weeks, and I flunked the 4 week post treatment test. Hopeing this one goes a little better!!  RC



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Tig


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Hey RC,

WOOHOO BUDDY!! EOT +4 rates of success nearly equal +12 rates, so week 8, in my always brilliant (ha, ha) opinion, SVR is assured. My opinions have served me well, don't goof me up, lol! Congratulations Bob! I'm confident you'll get equally good news at week 12. 

The doctor understands the cirrhotic liver well and the LFT elevations warrant monitoring, but they do indicate liver damage, which you still have. As long as you remain undetected, your liver will begin a repair process and I would expect that you will see reductions in those enzymes as your hepatic system starts to heal. I'm sure your private specialist will be taking over your care now that the study is done and will keep a close eye on your recovery and ongoing liver health. You will be required to have the ongoing 6 month ultrasound monitoring, so I'm sure regular blood tests will be part of that.

Let us know when you get your week 12 results, it looks like a win to me!!!  

image.jpeg



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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robertsamx


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Last Thursday morning  I got up, popped 3 RIBA and one SOF and that was the end of treatment. Jumped into my truck and drove over to the trial hospital (200) miles away and had my EOT blood draw.  Got my 8 week resulets, still UND. But my alt 95, ast 64 both still high?   Dr said was because of cirrhosis.  Anyone have any thoughts on this?    It's nice to be done with the treatment.   RC



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wmlj1960


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 Hooray Robert! Another 144 hours and you will be a free man. And 12 weeks after that will prove it. I also have 6 more days of Tx left so we will both be throwing a double big SVR party the end of March. We'd better get ready to break out the grave digging boots and shovels because we'll have 2 dead dragons to bury. biggrin



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Tig


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Hey RC, you're right, there is a power that we all share when we put our minds to it. It's the power of success! 

 power002.jpg



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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robertsamx


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Thanks everyone, I feel the power in our group!!    RC



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Linuxter


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Hi Robert,

One more here wishing you well ...

Congrats on getting through the shots and great looking numbers ... keep us posted.

 

Linux



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Cinnamon Girl


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Almost there, RC, can you see the light at the end of the tunnel?  It`s shining brightly for you!

I`m sure 2016 is going to be a good year for you and for many others here.  Looking forward to celebrating with you..  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


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ALRIGHT!!!!!! You're almost there RC, well done! Clean up the leftovers with the remaining Riba and then throw out the water, bucket, mop and all when it's gone. I'm ready to start the celebration Brother, it's your turn. We've got some others nearing their own EOT, so the SVR's are going to start rolling in soon. Good job buddy....  

 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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robertsamx


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Last shot was yesterday (12-31-15). Now just 6 days of sof-riba and the 12 weeks will be behind me!  RC



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Cinnamon Girl


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Well done, RC, great to hear you`re getting so near to the finishing line! 

I know it can`t be easy, but seeing the big improvement in your labs must be a real boost.  Let us know when you have more results to post, we`re very keen to follow your progress this time around!

Not much longer to go... stick with it!  smile

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Tig


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Hey RC,

Hey Brother, it's good to hear from you! One more dart and done, that's what I want to hear. The sides are miserable most days, I remember well. You'll start feeling much improved, just keep putting one foot in front of the other. Stay compliant and make sure you finish the whole script too! The light at the end of the tunnel should be shining! 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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wendyo


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SO happy to read all these posts and your progress RC. Happy Holidays.

 

wendy



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
robertsamx


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Had shot 11 today, only one shot in the frig to go!  I can almost see the bottom of the Riba bottle,and the Sof jug is getting low!!!   It seems like the last couple weeks have been the toughest.   All said I have 14 days to go.  RC



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robertsamx


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Last week was shot 7, and yesterday (Thursday) was shot #8, so I have completed 7 weeks and starting week 8 .  Will go next Thursday for week  8 blood work. Will post when I get the results. RC



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wmlj1960


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I told you so, I told you so. biggrin That's good news Robert and it goes to show the meds are doing their job. Your dart board might be getting bigger and I'm sure your aim is getting better too. You should be throwing bulls-eyes blindfolded by the time EOT gets here in Jan. Keep up the good work!!!



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Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Groupergetter


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Congrats RC on the UND.  :)   You've hit the bullseye.  SVR to come.   Be well   



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Hey RC,

BIG WOOT!!!! That made my day smile Congrats old friend, you deserve this good news and I'm happy to share your joy. I know you must be busting! This is just the beginning of good things to come, I'm sure of it.

I used a bullseye type of pattern around my belly button for my dart practice. Once in a while if I had a rash (irritation) from the previous week's shot, I'd use a thigh, but preferred my abdomen. I noticed an odd reaction a couple of months into it though. I started to notice indentations in the spots I used most frequently. I remember another member mentioning that happening. So I made sure to move away from those areas. I had plenty of belly to inject, so that wasn't a problem!

You mentioned gaining some weight? I lost it by the bucketful. When I was finally through, I had lost over 50 pounds. I had it to lose, so I was pleased that I lost it and the viral freeloader. I was sick most of my treatment, so I wasn't eating well at all. If you're still able to eat and keep your strength up, that's a good thing imo. You can lose some weight after you're rid of the beast. If you can get through treatment, you can do anything you set your mind to! Keep it moving forward RC, you're going to beat it!



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robertsamx


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UND  at week  4 blood draw!!!  My study nurse called this morning with the good news!! My week one V/L was 147,week two was <15, so someware between 10-29-15 and 11-12-15  I went under the wire.  ast 57  alt 99  both still up but low for me. hg is ok @13 pl is ok @ 103.  Just did shot (dart for all us old fogeys) # 6  I"m not running out of places to through darts, the dart board is getting biger on treatment? Some body told me i would most likely loose weight on this protocol, but im going the other direction!!     Thankfuly happy   RC



-- Edited by robertsamx on Friday 20th of November 2015 04:36:31 PM

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5.3 million to <15, that's awesome. And everything else going as expected so that's good Robert. You'll likely be UND Friday. Keep up the good work.



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Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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robertsamx


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Shot #5 done last thursday 11-12-15. Went over to study Hospital that same day for my week 4 blood draw, will get those results by this friday (11-20-15).  My week two results are as follows. ast-64,alt-108, br-1.0,  V/L- <15, Plat"s-94, HG-13.4, Lipase-104, amylase-101

My ast has gone from 146 at screening to 64, my alt has gone from 239 to 108, My load has gone from 5.3 million to <15, platelets have droped from 142 to 94, and HG has droped from 15.9 to 13.4

Last time on treatment with sof-riba my hg went from 15.0 to 13.3 at the lowest point of treatment, so im not to worried about this. My platelets on last treatment went from 144 to 98, Im not worried about this . 

I"m doing pretty good on this treatment, Just a couple ruff days after the shot, and the usual SX from the Riba.  I dont  think there are any SX from the Sof?

Anyone else out there on this treatment? sof-peg-riba  please chime in and tell us how your doing!!   RC



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Keep heading in that direction Robert. You're doing fine. And post those test results when you get them. smile



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Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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robertsamx


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thanks Penny,thats encouraging.  I will see the week two results this thursday because i"m going in for the 4 week blood draw.   I dont know what the LFT"s were for week two other than the Hg13.4  PL 94  and  load <15      I"m going in the right direction any way!! RC



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Penelope PePod


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RC,

My last 2 RNA results said that too, but then went on to say Not Detected.  Here's what it looked like.  I hope yours ends up this way too.

Penny

Component

Standard Range

Your Value

HEP C RNA QT

() log IU

<1.2

INTERPRETIVE INFORMATION: Hepatitis C Virus by Quantitative PCR
The quantitative range of this assay is 1.2 - 8.0 log IU/mL (15-
100,000,000 IU/mL).
Limit of detection (LOD):
15 IU/mL (1.2 log IU/mL)
LOD values do not apply to diluted specimens.
An interpretation of "Not Detected" does not rule out the
presence of PCR inhibitors in the patient specimen or hepatitis
C virus RNA concentrations below the level of detection of the
test. Care should be taken when interpreting any single viral
load determination.
This test should not be used for blood donor screening,
associated re-entry protocols, or for screening Human Cell,
Tissues and Cellular Tissue-Based Products (HCT/P).

HEP C RNA INTER

Not Detected

Not Detected

Hep C Qt IU/mL

() IU/mL

<15

Hepatitis C EER

()

See Note


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09/14/15 draw: Undetected 8 wks into tx

10/12/15 draw: Undetected at EOT

01/05/16 draw: Undetected at E0T+12
robertsamx


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Thanks Tig.  Going from week one at 147   to  <15 at week two  is good news!   We all just want to see the word UND.    RC



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