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Hep C Discussion Forum -> Post Treatment -> Movebo update
Post Info TOPIC: Movebo update
Matt Chris


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Movebo update
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Hey Tom

Great news for you, UND -SVR is the most happy acronym I know

WTTROYL

matt



-- Edited by Matt Chris on Thursday 10th of March 2016 01:08:09 PM

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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Cinnamon Girl


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Ah yes... "...a steamer from Yokohama to Plymouth would also do nicely, with Cream playing "Tales of brave Ulysses" in the dining hall..", now that sounds like a journey I would enjoy too!

Everyone is in too much of a rush these days and life is lived in the fast last for many, unfortunately!  Not me, I`m old school..  smile

I like your style, Tom! 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
movebo


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Thanks Jill,

well, the train thing will happen, but the "soon" is on a HepC timescale. I grew up in Germany, but I have lived the last quarter century in the east.
I have been on far too many flights to and fro, and I do not like to fly, certainly not as a passenger. So this is where this transsiberian train idea was born,
after 11 hours in the air, with a jetlag, in a traffic jam, on a rainy autobahn.
Of course, a steamer from Yokohama to Plymouth would also do nicely, with Cream playing "Tales of brave Ulysses" in the dining hall, but these things
have vanished from the face of the earth, sadly.

I will update, sure!

Cheers, Tom (more coffee ...)

__________________

M, 57 (@Dx, 2014)

7/14: VL 4E6, F0-2 MRI TE

8/15: biopsy, A2F4 (no good)

SOT 8/15 - Harv./RIBA 12 wks

12 wks post: UND, ALT 21, AST 21, GGT 23, platelets 206

5/19 (44 month post): UND, ALT 34(?), AST 24,  GGT 22, platelets 240 
Cinnamon Girl


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What excellent news, Tom, congratulations!!  You did it, one more dead dragon here!!  biggrin 

What a relief for you, so many of us here have been through that emotional rollercoaster waiting to hear the news, I remember that feeling very well!!

Your train journey sound so exciting, what an amazing experience that will be!  Please do keep in touch, we want to hear all about your travels!

Enjoy your Hep C free life!!



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Ari-anna


Veteran Member

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Good one Tom, SVR is a wonderful thing! 

Enjoy your cross continental train journey. As I child I wanted to take the Siberian Express. . . .  . 



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Genotype 1a diagnosed 2005, Cirrhosis.

Pyglated Interferon/Ribavirin 2006, non-responder 

Viekira Pak/Ribavirin 24 weeks, virus undetected EOT 12 weeks SVR Feb 2016

New Zealand 64 yo
wmlj1960


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Way to go Tom! You killed that dragon and came out smelling like a rose. There will be many others hoping to follow your exact footsteps. Congrats are in order and a big SVR-12 party too. You are now a bonified member of the dragon slayers club. Hep C free it is.



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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Linuxter


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Congrats to you Tom, what delightful news to hear!

SVR 12 is the ultimate goal and you've reached it in style ... my hat is off to you and I wish you nothing but the best from here on.

Now it's time to enjoy being HCV-Free smile

 

Do Enjoy,

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
movebo


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Hi Gracie & Tig & All,

Thanks for the kind words.

I must be living right? I used to enjoy certain liquids produced in Scotland and Bavaria,
in a rather amateurish fashion, though. The HepC Dx in 2014 put a complete stop to this, and I lost 5 kg.
Otherwise I did not do a thing to earn it.

I do plan to take a train from Shanghai to London soon, passing through Beijing and Berlin,
but I doubt very much that ride will outshine the one I just took.

Cheers, Tom (now off for more coffee)



-- Edited by movebo on Tuesday 8th of March 2016 06:13:57 AM

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M, 57 (@Dx, 2014)

7/14: VL 4E6, F0-2 MRI TE

8/15: biopsy, A2F4 (no good)

SOT 8/15 - Harv./RIBA 12 wks

12 wks post: UND, ALT 21, AST 21, GGT 23, platelets 206

5/19 (44 month post): UND, ALT 34(?), AST 24,  GGT 22, platelets 240 
Tig


Admin

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Congratulations Tom! That's an excellent way to start my day! You made it through with barely a scratch, you must be living right. Sounds like your Dragon saw what you were going to throw at it and just decided to leave without too much fighting and screaming. Few side effects, especially with the Ribavirin was a blessing for you. That has to be one of your treatment highlights. That, along with the ultimate prize of SVR12, qualifies as an early St Patricks Day "Pot O Gold"! Enjoy your Hep free life, you earned it...

image.jpeg



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Gracie


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TOM!!!

That's awesome! SVR 12 is the end of the train ride. So happy for you. And how lucky to have no sides through treatment. I did have some sides but nothing I couldn't handle. 

Excellent news on a Monday morning!



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
movebo


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Hi All

just back from my hepatologist, 12 weeks post treatment, all looking good:

VL undetected < 15, ALT 21, AST 21, GGT 23, platelets 206.

Psychology is an interesting field. My draw was on Feb 22nd. I went through 12 weeks of Harvoni & Riba without any sides, 

just a little more grumpy than usual. No post Harvoni syndrome either. But the wait for this VL was 

really bad. I called after a week, was told that they run PCR only once a week, mine was an hour too late. They had the ALT and AST,

so I thought no problem, should be UD. But still,  another week of waiting. Obsessive behavior sets in: Instead of going for a nice

walk, I spent a beautiful Sunday afternoon going through the book of abstracts of the CROI conference. Difficult to sleep:

the better the overall chances, the larger the slight chance of relapse looms ...

But all went well!!!

This place here is very helpful indeed, thanks to all.

Cheers,

Tom   (going for another coffee ...)



__________________

M, 57 (@Dx, 2014)

7/14: VL 4E6, F0-2 MRI TE

8/15: biopsy, A2F4 (no good)

SOT 8/15 - Harv./RIBA 12 wks

12 wks post: UND, ALT 21, AST 21, GGT 23, platelets 206

5/19 (44 month post): UND, ALT 34(?), AST 24,  GGT 22, platelets 240 
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