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Hep C Discussion Forum -> Post Treatment -> Interferon/Parsonage Turner Syndrome
Post Info TOPIC: Interferon/Parsonage Turner Syndrome
Loopy Lisa


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RE: Interferon/Parsonage Turner Syndrome
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I've never heard of this before, you haven't had much luck really, it is a lot to contend with all these issues.

Like Tig said, it may be all resolved once your immune system can reboot without the inflammatory problems caused by Hep C, and the eventual removal of the tumour. Pain is never easy to contend with. I had one episode of a partial paralysis in 2005, it felt like someone was ripping out my nerves. They called it unexplained as they could find no biological reason for it, and it was my pre-treatment and pre-diagnoses era. I now attribute it to Hep C. I never had it again thankfully so sometimes we can get weird issues that are against the norm.

 



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Tig


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You do have much to be thankful for and I'm going to go one further. Let's hope that with your coming SVR, and now, your shrinking tumor, that there will be a vast improvement of your immune system in general (you should once the virus is destroyed), and the PT Syndrome will begin to resolve on it's own. It looks to me like the stars are lining up in your favor and the future is going to be very bright. Let's go with that, okay? Keep up that great attitude, it looks good on you and is nice for all of us to see. I hope you continue to share your progress and wish you the very best going forward!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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It will be 4 years this November that I was hit with this. The pain, at times, was nearly un-bearable. My neighbors would hear the screams and come runnin. There is no treatment. The Doc that finally figured it out prescribed dilaudid. It is going away and only my right arm has limitations now, the harvoni is wiping out my hep and my tumor is shrinking. Life is good.hmm



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64 yr old male. Geno 1B. Fibroscan-20.9 Peg/Interferon in 2005 no luck. Started 24 week Harvoni on May 11

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Tig


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If I had to place all of my own symptoms in a description, Parsonage Turner Syndrome would work nicely. I haven't heard of that particular syndrome before. Seems the immune system can cause so many different problems and you introduce me to another! I've got all the nerve problems and pain that is described in the literature for this, but mine are the result of a cervical spine injury. Makes one wonder if there isn't some connection when everything is so similar. How long have you been affected by this? You mentioned 6 years after Interferon. I see some articles mention spontaneous resolution in some cases. I hope that you're able to find some relief. I know the difficulty that chronic pain and limitation can place on our lives.



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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I have been searching to see if there is any relationship between the two. I was hit with this syndrome 6 years after interferon. It took specialists months to diagnose. I doubt that this was a result of interferon, but I do hope that if someone else did a Google search, they might find this. 



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64 yr old male. Geno 1B. Fibroscan-20.9 Peg/Interferon in 2005 no luck. Started 24 week Harvoni on May 11

After 24 weeks of Harvoni 

ALT-18

AST-18

Platelets-103

Viral Count-UNDETECTED !! :)
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