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Tig


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RE: The battle commenced!
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Consider it Reptilian Birth Control, lets make that go viral! biggrin



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Canuck


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Jaggles wrote:

The first week or so of treatment amounts to a mass murder of the Virus. This is why folks tend to dip from the Millions to undetected in such a short time. The remainder of the treatment is a seek and destroy mission to mop up the stragglers if any.

  

Jimmy, could this be why today I'm feeling a little fragile? My energy levels dropped today and I'm feelin need to totally rest now....I had a near faint earlier out shopping. I'm not feeling ill just zapped. I have been feeling a bit better and straight out, shopping, sweeping and cleaning the yard etc.  The sense of relief is actually making me feel I'm a little better already but today reminded me....slow down...its day 3 ...stupid woman ....ive taken to vertical position on bed watching tv and drinking water. bull in china shop ....that's me 

Love that phrase of Jimmy's invention, he coined  ... "amounts to a mass murder of the virus" ... hahahah, always makes me lol when I hear it! Didn't know about the 45 min Zanzibar war! hee hee

I hear ya, about "pushing it", Jaggles. Hopeful lady goes madly sweeping! One way (or another) you will get the extra rest, when you need it, either by pacing yourself or catching up.  Feeling impatient to be well, to feel better, striving for it, can never be faulted, getting all excited and maybe overdoing things at the first hints of possible wellnesss, or at least with the knowledge you are now swallowing the best "back-up" EVER!, can lead one, so bolstered, to do a wee bit more than we can actually bite off and get away with. Slow and steady, boringly wins this race. I did not get these bursts of energy or feeling much better (like others have) when I was on treatment, but I really do think that that danged (but appreciated) VOX could have added another dimension to how I felt, everything was slowed to fudge speed for me, but I also felt kinda frenetic at times - how's that for a wierd mix!

So, you feeling faintish out mega-shopping, did not surprize me, nor to hear that you wisely parked yourself in bed for some neccessary TV rest, but .... may I make a small suggestion? .... try laying supine or horizonatal in bed, not vertical as you did, you will be better rested and recoup your energy faster, if you are not standing up in bed like that.  hee hee hee whee!  (sorry, I jes can't help teasin ya!)

Yer doing great!

Say no more! I understand completely!! About wanting to get gussied up. You slather as much of that tan stuff on as you darn well want to! (Now that you got it sussed out, and will test-run it). I too want you to look your best! It's a special time, a special day for you, your daughter, family and friends, and it WILL be special, with all those who know, love and appreciate you, JUST the way you are! smile C.  

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
RainyJ


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Well I like those odds.

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Diagnosed: July 2007

Opted not to get treatment

Feb 2017 Geno 2B

AST-98   ALT 140

Ultrasound F3-F4

Started Epclusa 3/31/17

4/28/17 Still Detected

AST 104  ALT 119

5/4 Not Detected J

 

AST 110  ALT 125 L
Tig


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The chance of relapse after SVR12 is <1% and is rarer than chickens with teeth!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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wendyo


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Jaggles - gad you got the ok. I hear you, we want to look our best especially at big functions. I have always said thank God for make up! 

Rainy - yes, some people relapse but that is VERY few and far between on these new protocols. I am sure Tig and Canuck have stats to share. Do Not even think like that, keep the faith, positive thoughts etc. You got this girl!



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
RainyJ


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Hi all. I got the days wrong when I posted on the other board, Ive completed 8 days on epclusa. No side effects. I was so worried about it. Doing the water like Tig and Canuck said. Felt a little tired today. The last few days I felt almost normal. Its funny, you forget what its like to feel normal until you start to feel normal again. Bloodwork scheduled for 4/28. Im guessing they'll do the whole panel like they did before treatment? I read something disturbing on another hepc forum. This lady was like hey dont let the doctors fool you. The virus goes away during treatment but I guess hers came back. I pray mine doesnt. Its been on my mind but Im trying to think positive because I know there must be a ton of folks with svr for years.

__________________

Diagnosed: July 2007

Opted not to get treatment

Feb 2017 Geno 2B

AST-98   ALT 140

Ultrasound F3-F4

Started Epclusa 3/31/17

4/28/17 Still Detected

AST 104  ALT 119

5/4 Not Detected J

 

AST 110  ALT 125 L
Jaggles


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Thanks wendyo .....called the Hep nurse and they looked into it and said it was ok to use it.

( fake tan) although I will do a small patch first see how it goes. The Hep nurse here (NHS ) seem to oversee and administer all patients tests and treatment. I rarely see consultant, my next appointment with him is July 4th yayyyyy Independence Day.....feeling a little exhausted today but only day 3.... now resting up again.

the only reason I wanted to look a little extra nice is my daughter's wedding party. She is still in the States as they hitched up in Vegas and I couldnt go. Was way too ill. My illness has almost taken over all our conversation since diagnosis, along with them being tested too and getting all clear. it's been  crappy the past 8 / 9 months and I kind of feel like I owe it to her to allow her wedding party ( 29th April) to be a day we can put it all behind us....i want to look my best. 

i also know there will be quite a few guests probably want to be nosy and ask me what has been going on with me. I have become quite a hermit since illness progressed, also looked ill, big dark eye circles.....now a little better too ..but  I wI'll be prepared for that . 

next bloods 18th April

 



-- Edited by Jaggles on Saturday 8th of April 2017 02:43:33 PM

__________________

HBV 1982 Resolved  / HCV Undiagnosed until Sept 2016

female U.K. AGE 56

fibro score 6.9 

Viral load 3.5 million October 2016 

Geno 3

Treatment Epclusa

Undetected at 2, 4, 8 and 12 EOT , SVR 12 / 24

October 2016 Alt levels 190 now, July 2017 17

 
Jaggles


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The first week or so of treatment amounts to a mass murder of the Virus. This is why folks tend to dip from the Millions to undetected in such a short time. The remainder of the treatment is a seek and destroy mission to mop up the stragglers if any.

 

 

Jimmy, could this be why today I'm feeling a little fragile? My energy levels dropped today and I'm feelin need to totally rest now....I had a near faint earlier out shopping. I'm not feeling ill just zapped. I have been feeling a bit better and straight out, shopping, sweeping and cleaning the yard etc.  The sense of relief is actually making me feel I'm a little better already but today reminded me....slow down...its day 3 ...stupid woman ....ive taken to vertical position on bed watching tv and drinking water. bull in china shop ....that's me 

 



__________________

HBV 1982 Resolved  / HCV Undiagnosed until Sept 2016

female U.K. AGE 56

fibro score 6.9 

Viral load 3.5 million October 2016 

Geno 3

Treatment Epclusa

Undetected at 2, 4, 8 and 12 EOT , SVR 12 / 24

October 2016 Alt levels 190 now, July 2017 17

 
JimmyK


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Jaggles wrote:

Day 2 and I'm rock and rollin...biggrin I'm feeling a little light headed and speedy happy relief....think it's because I know my body is finally getting extra soldiers to fight the battle.


 Greetings,

I am no help when it comes to tans. (I'm a Redhead LOL)

I would like to point out something regarding the "..extra soldiers.." , fighting the battle.

The first week or so of treatment amounts to a mass murder of the Virus. This is why folks tend to dip from the Millions to undetected in such a short time. The remainder of the treatment is a seek and destroy mission to mop up the stragglers if any.

It is important or at least interesting to understand the methodology of treatment.

The process to stop replication has begun and the virus is very short lived. Without the ability to replicate itself quickly it simply dies off. The almost immediate reduction in enzymes that shows up in an ALT/AST that will have plunged next time you have a blood draw is simply amazing.

Sometimes that 84 days seems or feels long but the fact is it is among the shortest wars in history. Well unless you count the war between The British Empire and Zanzibar in 1896. That one lasted 45 minutes.

This lil bit of history was designed to waste time which in turn,after you have read this, you are that much closer to Victory!

Have a great weekend y'all!

 

wink



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
wendyo


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Hi Jaggles,

 

you could ask the specialty pharmacy about the tan product and if they cannot help you I suggest BB cream and bronzer. Canuck is right, probably best to stick with make up. 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Shadowfax


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Congrats on pill #2 and probably #3 by the time you read this.

The first one is the hardest then the rest, no problem. Regarding the fake tan stuff? I thought exactly what Canuck did but honestly, I would just wait until after TX. They test these drugs with many others to check for interactions but they just cannot cover everything. 12 more weeks without that tan I am sure will be very tolerable. I would rather error on the side of caution.

 

Good luck and welcome to the beginning of your cure.

 

SF



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Canuck


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hee hee hee hee Jaggles ... the "grey pink blotchy " ... description of yourself! I am intimately famliar with these colours too! LOL, (not that looking or feeling those colours is funny) ... actually I tend more to the pale withered mottled abscessed hue, neither was I happy or satisfied in letting my "unwellness" flag flutter away calling attention to a sickly face with a couple sunken wrinkled red eyes poking out of it, vanity oh vanity, I was so upset one time on one of my out-of-town trips to the doc that I had forgotten my face powder at home! Like ... I had to try to look better, for him?! I have a feeling that no matter how much face powder I might put on, I look the same to everybody anyway!

Your stuff?, I would try to google it, as much as you can, to find out what specific ingredients it has in it. If all it's ingredients are innocuous, you could consider it. But if you have ever had a hx of sensitive/reactive skin (especially if you have never usd this stuff before ) I wouldn't bother using it, just use make-up you are familiar with that you know you have never reacted to. If you are unsure ask your docs nurse, read her the main ingredients listed in it and see what they say. 

If you have never used this stuff before, and you find no reason not to, then you would have to test-run it regardless, apply a patch of it on your inner arm where it will not show, layer a good test application on, go about your day and wacth that night and the next day for ANY hint of reaction. Do this test more than once, to make sure (1) you will not have an untoward reaction to it, 2) that you do not end up turning up at your party with a flaming orange-colored Trump-head. Also not the best look!

I too had a day or two of large funny BM's, early on when I started with the treatment, that soon passed (pun).  

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Jaggles


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Day 2 and I'm rock and rollin...biggrin I'm feeling a little light headed and speedy happy relief....think it's because I know my body is finally getting extra soldiers to fight the battle.

the water is going down ok...2 litres morning...2 afternoon and as much as I can handle during the night

the worst side so far has been ( and it wasn't that bad ) large bowel movevent after taking Epclusa. Slight headache tried to kick in but i just drink water and it's gone.

early days but safari sagoody 

biggrin

Ps. Does anyone know if it's ok to fake tan on Epclusa ? The Australian variety called Skinny Tan. Sounds silly but not sure if anything absorbed via skin could affect? I have a party to go to in a few weeks and want to look better than grey pink and blotchy biggrin



-- Edited by Jaggles on Friday 7th of April 2017 07:10:07 AM



-- Edited by Jaggles on Friday 7th of April 2017 07:13:23 AM

__________________

HBV 1982 Resolved  / HCV Undiagnosed until Sept 2016

female U.K. AGE 56

fibro score 6.9 

Viral load 3.5 million October 2016 

Geno 3

Treatment Epclusa

Undetected at 2, 4, 8 and 12 EOT , SVR 12 / 24

October 2016 Alt levels 190 now, July 2017 17

 
Cinnamon Girl


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Jaggles wrote:

Thanks Mike ....the journey begins ....and on reflection today I remembered I completed a 6 month Heroin detox in 1984 ....so this ride should be a breeze in comparison biggrin

 

Wow, Jaggles, that takes a lot of strength, courage and determination... and you`ve obviously got them in spades!!  Well done!!

First pill down, onwards and upwards!!   w00t.gifw00t.gif

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Jaggles


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Thanks Mike ....the journey begins ....and on reflection today I remembered I completed a 6 month Heroin detox in 1984 ....so this ride should be a breeze in comparison biggrin



__________________

HBV 1982 Resolved  / HCV Undiagnosed until Sept 2016

female U.K. AGE 56

fibro score 6.9 

Viral load 3.5 million October 2016 

Geno 3

Treatment Epclusa

Undetected at 2, 4, 8 and 12 EOT , SVR 12 / 24

October 2016 Alt levels 190 now, July 2017 17

 
wmlj1960


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Jaggles wrote:

 armed with knowledge and knowledge is power .....and power won the panel and the doctors over enough to believe I was entitled to access this drug via NHS

 

You all gave me the voice......I just  had to shout loud enough ....

 That's what it usually takes when dealing with healthcare providers. I like the old phrase my father used often, "The squeaky wheel gets the grease". Congrats on starting treatment Jaggles. Look out dragon!!!



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Jaggles


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Tig56 wrote:

Hey Jags,

One down the hatch! You go Girl!

Now that you have started, you only need to concentrate on the success that follows. They say it's darkest before the dawn. I just looked outside your door and this is what I found. It's your day to shine!!!

image.jpeg

 Thanks Tigs...feeling positive...that sunshine actually looks a bit like you...hi five xxx



__________________

HBV 1982 Resolved  / HCV Undiagnosed until Sept 2016

female U.K. AGE 56

fibro score 6.9 

Viral load 3.5 million October 2016 

Geno 3

Treatment Epclusa

Undetected at 2, 4, 8 and 12 EOT , SVR 12 / 24

October 2016 Alt levels 190 now, July 2017 17

 
Jaggles


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Posts: 145
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wendyo wrote:

A lot of songs came to mind after reading the below posts; "We've Only Just Begun", "Happy Day Are Here Again" but this is what won:

 

https://www.youtube.com/watch?v=nGUKtC5-WBo

 

 

 Thanks Wendyo ....great power song...feeling the vibe xxxx



__________________

HBV 1982 Resolved  / HCV Undiagnosed until Sept 2016

female U.K. AGE 56

fibro score 6.9 

Viral load 3.5 million October 2016 

Geno 3

Treatment Epclusa

Undetected at 2, 4, 8 and 12 EOT , SVR 12 / 24

October 2016 Alt levels 190 now, July 2017 17

 
JimmyK


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T- 83 and counting!



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Tig


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Hey Jags,

One down the hatch! You go Girl!

Now that you have started, you only need to concentrate on the success that follows. They say it's darkest before the dawn. I just looked outside your door and this is what I found. It's your day to shine!!!

image.jpeg



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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wendyo


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A lot of songs came to mind after reading the below posts; "We've Only Just Begun", "Happy Day Are Here Again" but this is what won:

 

https://www.youtube.com/watch?v=nGUKtC5-WBo

 

 



Edit = linked URL -- Edited by wmlj1960 on Thursday 6th of April 2017 09:49:58 AM



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Observer


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Great to hear Jaggles  

It is really exciting.

Welcome to the Dragon slaying club

                   

A



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 
Canuck


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Well, sheesh, a LOT of power in that little pill! Just listen to you! I like what I'm hearin'. You go girl! Knock 'em dead!  biggrin C. 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Jaggles


Senior Member

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Posts: 145
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Just took my first Epclusa after staring at the box on and off all night. My special alarm to remind me went off at 7.50 am and I nearly cried as I opened the bottle. Great big tablets to swallow lol but I got it in one without gagging cause I've waited so long for this moment. A little wave of anxiety but mostly excited thinking of the prospect of getting rid of this nasty evil virus and being free from so many symptoms now...looking forward to getting my energy levels back and most of all..the old ME back....not the angry frustrated, tired resentful cranky   ill thing looking back from the mirror every day. The battle commenced ...I'm finally here on treatment. Thanks for all your support during my wobbly days...your wisdom and humour kept me armed with knowledge and knowledge is power .....and power won the panel and the doctors over enough to believe I was entitled to access this drug via NHS. 

You all gave me the voice......I just  had to shout loud enough ....

 

Happy days are here again ....bring it on!! biggrin



-- Edited by Jaggles on Thursday 6th of April 2017 03:32:19 AM

__________________

HBV 1982 Resolved  / HCV Undiagnosed until Sept 2016

female U.K. AGE 56

fibro score 6.9 

Viral load 3.5 million October 2016 

Geno 3

Treatment Epclusa

Undetected at 2, 4, 8 and 12 EOT , SVR 12 / 24

October 2016 Alt levels 190 now, July 2017 17

 
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