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Hep C Discussion Forum -> On Treatment -> Hello From An Old Fellow Warrior
Post Info TOPIC: Hello From An Old Fellow Warrior
JimmyK


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RE: Hello From An Old Fellow Warrior
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I don't know. Living to 300 sounds downright painful to me. LOL



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
hrsetrdr


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Hi Gracie,

"you can live 300 years with an F2" .

As a fellow "F2er, I hope that's true!

Glad to hear that life is getting better!

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Scruffy


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Hi Gracie 

:) :) :)



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
wendyo


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Hey Gracie - nice seeing your post. That is funny about the tomatoes and glad you are feeling better. 

Yeah I read that Canuck...here's to Dairy Queen! Check this out, in my area, the Racetrack gas stations now have ice cream bars in them. Just like the frozen yogurt places, you make your cup add toppings and they charge by weight. I  rarely go inside when I get gas so I had no clue. Kinda wish I still didn't! 

 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Canuck


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Howdy Gracie,

Glad to see a post from you, and to hear your latest, and your good news. Been wondering how you were faring. Often think of you, especially at times of icecream and cookies! I hold you (and Wendy, and a few others) almost personally responsible for getting me hooked on Dilly Bars! All and all, our fellow Canuck comrades are faring very well on the cured list! Don't matter what we choose to celebrate with, maple syrup, apple pie, or croissants as long as we get to celebrate eh! Interesting your theory on your prior Fscore - I recall you alluded to that before - it's got to make ya wonder alright. Love what you doc said - 300 years! hee hee.

After my trial, I signed on for the gilead-5-year-love-affair-"follow-up" plan - I go back to the same hep doc @ 6 months for this and that - I don't mind. What I DO mind are the other kinds of  "frequent flyer" lists I seem to be getting on, all the reproductive bits that i don't use, being oggled, poked, pinched and prodded! Those I could gladly do without. How do women get off these recall lists! There's always sumpin it seems!

So glad to hear from you and to know of your improvements.biggrin C.

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
JimmyK


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Free to live your life is a gift.

God Bless.

JimmyK



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Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Tig


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Hi Gracie,

There you are! Nice to hear the positive update. Seems that joint pain is a common complaint with Sovaldi backbone treatments. I'm glad that has improved, keeping active is important and it sounds like you're doing an enviable job of that! I need your ambition.

How about that F score? F2 sounds so much better than F4, wow! Your reason for the initial approval sounds about right. They wanted you to qualify. Well, now you know where you stand and it's looking pretty good to me. We have been discussing the use of non invasive fibrosis testing and as long as two different methods are utilized and the results agree, the reliabilty of the score is quite high. So there can be accurate fibrosis staging now without biopsy. It's nice to see these advances.

As far as not worrying about the virus anymore, it is strange. To be so involved in your own care for years/decades and then one day it's over. I'm enjoying it, we all do, when our chance comes along. (still strange) Gotta jump onboard that train and stop at a DQ or two along the way! I really want a Blizzard right now.... wink

Stay in touch, it's nice to hear from you!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Gracie


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Hi All...

Just though I would check in as I went to see my hep doc for (hopefully) the last time yesterday. Last year I had a 3 month post Fibroscan that registered as F2, and my Fibroscan from 2 weeks ago registered as an F2 again (one year apart). She said and I quote "you can live 300 years with an F2" ... lol. Although I would like to think that successful treatment brought me from an F4 (15.5) to an F2 (8.7), the most likely reason is the first test was read as higher than I was. It makes sense as the first Fibroscan was given by the drug company who traveled around to smaller cities to give us readings so we could get treatments. It was also more suspicious as she was given no readings on the first test, while the second and third Fibroscans, which were done at a hospital an hour away from where I live had all the readings shown, and they were all very close. Either way, she says I can still get standard blood work done every 9 months, and thats about it. It feels so darn weird to not have to be screened constantly any more.

Personally I am feeling much better. I had pains in hands and feet throughout harvoni and after as well. They have subsided, and while I still do get them, I notice when I do and realize how infrequent it actually is. I still like ice cream, but don't feel the need to have it for breakfast any more. Been running and exercising regularly, and really just enjoying life. The weirdest thing I can think post-treatement is that I no longer like tomatoes which I use to love ... strange .. but true.  

Anyhow, I think of you all often, and pop in once and awhile for a read and am happy to see all the SVRs coming fast an furiously. Its a great time for us warriors, especially us old soldiers who suffered through the old treatments. 

.... smile



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
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