Hep C Discussion Forum

That's my guesstamation, too! My fingers and toes add up to Thanksgiving day or there abouts. Getting very close to the day we have to shoo you off this train! Your journey is about finished, the dragon slaying over and the beginning of a new Hep C free life is ahead of you! That's mahhh-velous 

Yep. Ya can never say never! I think it was Observer or dharmabum (or maybe both of 'em positive type people) who had a sig line or quote that went something like .... " Oh,  but what if I fall?? with the answer being "Oh, my dear, but what if you fly!?" Loved that one. Maybe GI things WILL improve, and, just all by themselves.  C.

Hi Lindsay,

Hep C can cause a number of symptoms and problems that most are unaware of. There really isn’t a single system in your body that HCV misses on it’s path of destruction. None. I know others that witnessed good improvements in their gastric health. There’s no reason to think that you won’t be one of the fortunate people that gets total resolution of the reflux. If the Hep C caused it, let Epclusa and your cure, take it away! Let’s be positive and expect it to improve! I think that’s the ticket you need on this Train....

 

LM, 

When you are cured (cured?! .. what am I talkin' about!), you're already cured! (well, in my book anyway) - you are "technically" cured, (in boxing you would have already been celebrating the technical knock-out of your bloodied and beaten foe on day 28), you killed him, it's a foregone conclusion that you are already "technically" cured!, but, OK, OK, to be "official" you do have to have an EOT VL, ya, ya, I know, then there is that EOT+12 week VL (your "official" SVR), and your EOT+24 one and any future ones ... are all going to be UND's just like your week 8 one, but you know what I mean - we were totally correct to be partying on day 29! 

So, back to what I meant to say - when you are "finished" (like on any day past day 84!) do you think you will just keep on with the H2 antagonist you are on now, or, do you think you might prefer to swtich back to the PPI you used to be on - did the Pepsid seem to "hold" you OK (while you were on treatment) compared to the other stuff you used to take? C.

Hi LM.      The morning Pepsid will be ok moving one hour all at once. Keep your evening Pepsid With your evening Epclusa. ( move your evening EP and PEP) together at the same time.   RC

Hi all, I have been on a 5PM schedule for my VOSEVI. Today I will take it at 4:30,then tomorrow at 5PM. I take the RIBA at 5AM & 5PM and will not adjust the timing. I took all my rejection meds according to the new fall back time this morning. In my case the anti-rejection drugs shouldnt know they went down one hour early. I do remember when I was on a trial with SOFOSBUVIR they told me that if I wanted to chang the dosing time to do it 1/4 hour each day.  MY ADVISE IS 1/4 HOUR A DAY.  .   RC

 

ah, just have a double personality and be dyslexic and we'll all git along jes fine.

I think, therefore i am, or ... is it ...

https://www.youtube.com/watch?v=V2f-MZ2HRHQ

 

I just turned the computer screen around, that was easy! What isn't easy for me to do is to paste anything, period!

My doc can read upside down, and fast too! I discovered, and, from across the room apparently! - going into my appointments I had a list and he glanced at it (upside down) briefly, (maybe he has photographic memory too!) and he amazingly seemed to be anticipating my every question/topic!! It was unnerving, I went paranoid, is he actually reading my mind I silenlty thought to myself?!, geez maybe he knows I just wondered that?! or maybe I had (in my disjointed blathering state) just forgot what I had said and had already asked??, maybe I had actually said something out loud, wasn't just formulating the sentences in my head, and plain forgot in my fog that I had said something?!, or, that my questions were just so rotely predictable he could answer them before they even left my lips. Then I noticed on subsequent appointments his hidden upside down talents! I wish I could read upside down. I'm going to a yoga class tonight, so I will try something upside down.

I think you are like me (not like me my fogged state, nor like me in my inability to paste part) but that you wish and need to pour over every nuance of your cure (which I do not think is a bad thing, at all!). On the contrary, I derived so much relief in continuing to see all my labs normalize. (So see, contrary to gossip ... parts of me are VERY normal).  C.

LM,

What a great report!

I'll take the easy way out and just repeat all the things Tig saw and said - maybe just re-state them in reverse order ....  "celebrate!, doing great!, don't worry, splendid, solidly normal" ...    

I had some little blips in BS's too while on treatment, they were of no consequence. Your numbers make you a poster girl for epclusa cures!

Ah, don't we just love the smell of epclusa in the mornin'!

I'm impressed with you (in many ways), including your abilty to paste a pic!, something that will always confound me, so, I just don't even bother trying anymore.  C.

Hi Lindsay,

I missed your post, sorry about that! BAD Tig, bad....! 

I tried to open your lab report and I was unable to look at them. It looks like you posted the wrong type of file. If you could post a picture or a .PDF, it would be viewable. Until I can see it, I have to wonder if they did the GGT. It depends on the labs ordered. The full name is “Gamma-Glutamyl Transferase”

Aside from that, your ALT/AST are splendid. The two point rise in your ALT is nothing. You are solidly normal and have nothing to be concerned with. On the contrary, they are cause to celebrate! I wouldn’t be concerned about the glucose elevation at this time, either. I see those elevations fairly often during treatment. I can’t explain why, it just happens. There could be another reason for it as well, but my guess is it’s just a reaction. Each instance of this, in people that have been routinely normal in the past (in my experience) always normalize after treatment is finished. Don’t worry about it. You’re doing great! 

That's a heck of a club and so glad to see the newest member there. 

XO,

wendy

Thanks C-Club Zero is a lovely place to be!  

Thanks, Tig.  Definitely donning those dancing shoes today!  It's a huge relief to see that UND!

Thank you, my friend!  Needless to say, I am thrilled!

Just got my 8 week results.  UNDETECTED!!!!  WOO HOO!!  So very happy and relieved!!  Thank you all for always helping me to stay positive!

Canuck wrote:

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LM,

Congrats on being 2/3!!

(Whoever said i was no good at this new math!!) 8 = 2/3

Let's see, now that I am on this math roll ... 0.66666666666666666666666666666666666666.................................... = 56 days.

If 28 = <15, then 29 should = 0 (I figure), so then, it stands that anything between 29 and 84 (including 56) will = (minus) 7.64 million, and that -7.64 mil remains to = 0. Got it?

By the results of my calculations ... you should have booked celebration reservatons for Club Zero starting on the first day of week 5.

I will gladly wager on what your NP said.    C. 

---

 

 Whaaa??? All those 6’s would have ol JimmyK shaking over the delete button, lol! I hope he’s enjoying his time off.

I have no doubt the news will continue to shine positively bright!  

LM,

Congrats on being 2/3!!

(Whoever said i was no good at this new math!!) 8 = 2/3

Let's see, now that I am on this math roll ... 0.66666666666666666666666666666666666666.................................... = 56 days.

If 28 = <15, then 29 should = 0 (I figure), so then, it stands that anything between 29 and 84 (including 56) will = (minus) 7.64 million, and that -7.64 mil remains to = 0. Got it?

By the results of my calculations ... you should have booked celebration reservatons for Club Zero starting on the first day of week 5.

I will gladly wager on what your NP said.    C. 

lm -- How did the lab visit for your 8 week blood draw go today? Smooth, I'm hoping.

 

Lindsay,

I used to have eagle vision until the age of 40, and literally overnight my vision turned to crap in a hand basket. I thought I had something bad going on. The doctor laughed and said “Welcome to 40”. I didn’t find much reassurance or humor in his remark!

The vision troubles were common in those of us that went through the Interferon protocols. That stuff was harsh and often damaged or exhibited precursors to retina damage. We had several people that had to stop treatment because of it. You don’t have the same worries on your treatment. I was also diagnosed with early indications of glaucoma, but my eye pressures are still very normal. You may have heard the term “cupping” developing because of it. The optic nerve passes through the retinal wall and people with glaucoma and those that may be predisposed to it show evidence of this cupping phenomena. They can see a misshapening of this nerve portal early on. As long as they are on top of it and spotted it early on, you shouldn’t have anything to worry about. They’ll keep an eye (!) on it and recommend annual or 6 month check ups to monitor it. Even if the pressures start to rise, they can prescribe drops that control it. They can laser a passage to alleviate it too. The people that ignore the warnings, are susceptible to increased damage. Let me know what your Opthamologist says and take notes! Ask what your eye pressures are when they take them. They numb you with drops and then blow a puff of air against your eyes. It’s a simple test, as are all of them. Been there, done that! 

 Blink-Blink

Thanks Jayne.  The thumb thing is annoying and I honestly don't know if it's from the HepC or just age!  I did get a steroid shot in my left thumb before treatment and it helped immensely.  If this is your first time, I will warn you that the shots (I think I had 5 or 6) are quite painful and it takes a few days to notice improvement.  Good luck!

Great news on your SVR 12!  Woo Hoo! 

as someone on here once told me....smells like victory .... good going Lyndsey ....I know your ride and only this Tuesday got my SVR12....such a relief and with the easy ride of Epclusa you will see the results you pray for ....I notic d some posts earlier about thumb like trigger...I got the same since end of treatment. Thumbs lock at night and hurt like hell...Im having steroid injections in them November 3rd . I wish you well and look forward to seeing you big news..which is coming...hugs

Jayne

My dr says to not worry about it . But itâs your personal preference if you choose to discard old toothbrushes etc. I would probably just change the head of the toothbrush if itâs removable then forget about it.

I have a question about toothbrushes.  I did a search on this site, but didn't find a definitive answer, so would love to hear the opinions of the ever wise and experienced gurus on this board.  Should I really be changing out my toothbrush every week?  I use an expensive electric one so would have to switch to disposable ones, but if there's really a chance of reinfection, I'll certainly do it!