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Post Info TOPIC: Anniversary
upstate


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RE: Anniversary
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yeah...mine was just kinduv a reflective acknowledgement...

 

Canuck...was just at Dr. for blood pressure check...all good...and he said next visit, in 6 months, we'll do the blood panel...



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66 m asymptomatic for perhaps 45 years GT 2b Dx HCV 2/17 ALT 113 AST 67 VL 551K SOT 5/17 12 weeks Epclusa 4 week blood draw ALT24 AST 22 VL undetected
Observer


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 wow time flies when youre healthy and busy and living dragon free, hey?

glad to see you again upstate,  

my daughter has been able to celebrate her last 3 birthdays without the cloud of sharing the anniversary with my dragon.



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
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4 years.... successful dragon slayer 
Canuck


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Hey upstate!

Nice yer back.  : )  

So, do you have any bouquets of labs to go with this anniversary?

How's yer Alt/Ast  now, just as good as before we assume. Do you ever get a fibroscan? - what do you get for following and when?

How is ya physically feeling since cure. Good, better, best i hope. : )  C.

 

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Cheddy


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Happy anniversary Bruce.  

I, too, recall the diagnostic news as an event in itself.  It was the start of a high arc to SVR12 with plenty of weirdness in between.  

I'm glad it went so well for you.  Who needs dusty shoes?

 

 

 



-- Edited by Cheddy on Saturday 25th of May 2019 12:07:35 PM

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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
Tig


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Good to know you’re still doing well! Time really does fly, doesn’t it? Whew!

Thanks for the kind words and your continued support for all the fine people here. Thanks for checking in and saying hello. It’s always good to hear from our members! 



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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upstate


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Hey all....

Started treatment 2 years ago this week...

All good...

Log on occasionally to check on you guys who helped me so much...And see you all continue to help others through the treatment journey...

You're heaven bound for sure...

 

Keep up the good work...

 

 



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66 m asymptomatic for perhaps 45 years GT 2b Dx HCV 2/17 ALT 113 AST 67 VL 551K SOT 5/17 12 weeks Epclusa 4 week blood draw ALT24 AST 22 VL undetected
Tig


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No freaking way!

 



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Canuck


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Yep, that would be a pic of me, many moons ago (what I would have looked like wavin at ya from across the Lake) from when I used to live in Terana.

Image result for white out at lake

 

Couldn't take the winters there, so here's me living in BC wavin at ya.

Image result for white out at lake

Hey BTW hahahahahaha, I jes noticed sumpin - below i wrote about having "glob"smacking moments, I'll have you know i did not just make that up, being glob-smacked is waaaaay more severe a condition up here in BC, than simply being gob-smacked, it affects spelling and everything! hee hee wheee! C.

 

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
upstate


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...is that you I see Canuck, shoveling a couple inches across the lake????...Is that you waving at me????.... I can see the Toronto lights from here...hehe...I'm on the American side tho...

nice couple days in the 60s..but I understand we got snow on the way...

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66 m asymptomatic for perhaps 45 years GT 2b Dx HCV 2/17 ALT 113 AST 67 VL 551K SOT 5/17 12 weeks Epclusa 4 week blood draw ALT24 AST 22 VL undetected
Canuck


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Ya, me too upstate ... for me the easiest date to recall will always be the diagnosis date of July 2015 (but, that is not to say some of the other dates subsequent to that were NOT equally momentous and definitely more joyously noteworthy)! biggrin But ya, the glob-smacking moments are imprintable. 

So, if all you got was the 4 week UND and the EOT UND, subsequently you should have had an EOT+12 weeks VL and LFT's, and perhaps an EOT+24week VL and LFTs, to "officially" document your SVR12 and SVR24, therefore in May you SHOULD definitely ask them to include your lacking VL and LFT's (they likely will/should without asking), as "normally" you SHOULD have already had at least one set of these done (since EOT). I'm a little surprised they did not ask you to have the SVR12 one done. 

As well, it is a good thing, if you ask for (or get) a repeat ultrasound, regardless that your last U/S looked OK. All these kinds of specific things are just good follow-up practise.

Same for any repeat fibrosis type blood tests, it's good to see everything remains boringly normal or has improved! It's good news and good feedback, rewarding, to know (for all you have been through) to see concretely how successful your all your work has been. 

I look forward to every single repeat boringly normal follow-up test i get, I do a little celebrating, everytime! 

What ya'll been up to since EOT? We shoveled 'bout 3 inches of snow off our property this AM, same s----, dif day! Then, out for another one of our (short) forced-march health walks in the snow. Hope your Fall/Winter has been funner. biggrin C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
upstate


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hehe..
good thought Canuck...
Interesting how the diagnosis date is much more firmly imprinted on me...man, it was a shocker..
By the time I had my EOT + 4 weeks draw in beginning of September and all was good ( ALT...16 AST....23 and my Doc then bid me adieu) I was much more seasoned and dates and events weren't as momentous and imprint worthy...
SVR is perhaps more celebrate-able.... and I'm sure i'll be aware in another few months...especially 'cause I'm thinking it through just now...
Canuck...followup stuff is just a complete physical, with blood work in May...original liver scan didn't show much abnormality so no new scoping...phew...

Looking back...that was an action packed year...




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66 m asymptomatic for perhaps 45 years GT 2b Dx HCV 2/17 ALT 113 AST 67 VL 551K SOT 5/17 12 weeks Epclusa 4 week blood draw ALT24 AST 22 VL undetected
Canuck


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Well, this must be the nice anniversary thread here! Can't wait to hear your report on the state of all things too wmlj! How's the cycling weather down your way? Now, lessee, 110 weeks divided by 12, that's ... uh-huh, gotta go get my calcuator. wink C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
wmlj1960


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There's certainly more peace of mind in my life 110 weeks after getting that great SVR news (provided my blood draw from yesterday yields a UND result). My Tx followup consist of blood test and imaging (Alternating between MRI / US) every 6 months. I feel confident my US results from yesterday will show continued recovery. Good to hear from you Bruce!



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

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Canuck


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Hey! Hi ya upstate. smile

Ya, like Tig, I'm very glad to see a post and update from you here again.

It's always so good to hear from my fellow-velparized and well-cured epclusian friends. It's an exclusive membership, this particular vel "Club 0" is.

Glad to hear you ruminating about your milestones, what a dif a year can make eh? No dust on demshoes.

But you had me confused again (it doesn't take much! heehee). At first, I thought you were checking in with your 1 year SVR.

So's I sets off a-countin on my finners.

If your EOT was Aug 2017, you had your EOT+12 week SVR about Nov, and now - about Feb 2018 would be your SVR+24 week SVR, right?

We will always look forward to your thoughts and news, always, anytime, but I will also be looking forward to your 1 year SVR coming this Aug! Now that I got that straight in my head!

So, obviously your are UND, but DID you have a VL drawn, just about now, for the EOT+24 week mark?

What kind of follow-up has been planned for you - will you get a repeat ultrasound, a fibroscan, or do you have any new ALTs/ASTs or fibrosis type-blood tests to share? Just nosey.

Glad to hear from you. smile C.

 

 

 

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
Tig


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Hey Bruce,

Welcome back! I’m glad you checked in and shared your anniversary with us. The first year annie is a big one, congrats. I hope you check in as often as you can and share your continued progress. It has been 4.5 years for me and it‘s still a special day! Good luck...



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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upstate


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Hey all...

One year ago tonight I got the phone call with the hep c diagnosis...

Wife and I sat on the couch for a long time waiting for the call, and then a long time after trying to figure it all out..

After my twelve weeks of epclusa, I've pretty much kicked that dust off my shoes, and I don't think about it all that much.

But, I haven't thrown the baby out with the bathwash, and I visit the forum and think of you guys still 'cause I can't forget the support, info and confidence I gleaned from you guys..

All good here now, as I hope it is with you all...

 

Peace

 

Bruce



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66 m asymptomatic for perhaps 45 years GT 2b Dx HCV 2/17 ALT 113 AST 67 VL 551K SOT 5/17 12 weeks Epclusa 4 week blood draw ALT24 AST 22 VL undetected
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