Hep C Discussion Forum

Hola tiggerino! 

Ive been defying the advice to stay indoors. Ive skipped a few days but I have a new fitness program that combines low carb eating with high intensity training. I have 3 different weight vests of varying weight: 4lbs, 8lbs, and 16lbs. I wear a weighted vest and hike up some nice big hills to get my muscles activated. I only do about 20-30 mins per session, but yesterday I met up with a friend and did a 75 minute weighted walk around Lake Merritt in Oakland. I feel like frickin Wonder Woman today! But I will admittedly need a nap around noon. Had an 8am zoom meeting this morning no makeup and bed head keeps the ego in check. Even with the touch up my appearance feature in zoom I am beginning to look every bit of my 53 years old. But I have wonderful coworkers my age, older, and much younger too. We cut each other a lot of slack. They dont know of my CEO aspirations yet Tig and Im not sure how to break it to them (kidding, kidding). 

Whats new with all of you? how are the grandkids? Hows life? 

Wow, so great to see my old pals!! Hope you are all doing well? Life sure is weird right now. Sheltering in place does have some advantages though: no commute, working from home makes it easy to take naps, more time for meditation. More time to clean the house too but its always messy because Im home all day messing it up! 

Hey hoodie

good to see you... hope youre noticing an improvement in your health now youre HCV-free

stay safe

Hoodie Hood Hoodsterator!!!! We've been wondering about your sudden departure. Yep, things get weird, alright. How is your health post treatment, and aside from being enclosed in smoke? I sure hope all is well. 

Not much HepC around here (thankfully) but we're still hanging around.

You were missed, my dear. Thanks for touching down.

Weird. She was so here.

Hoooooooodieeeee, I miss yooouuuuu 

Hoodie! Just saw the results! Whoo-hoo! I'm so happy for you.  Hoodie (doing her best Gollum/Smeagol imitation): 

"Leave now and never come back! 

Leave now and never come back!

We told him to go away...and away he goes!

Gone, gone, gone!

Smeagol is free!"

Darlings, I couldnt have done it without you. 

THANK YOU!! 

You guys have been here for me every step of the way. You listened to me when all I had to say was crazy talk, filled with fear and anxiety. You heard me talk about my fears and my aches and tiredness.  You gave me hope! You lifted me up and told me I could do it, when I was so unsure, so fearful, so filled with doubt and worry. You did that for me for MONTHS until I could have the strength and courage to do what Ive been blessed to do:

SLAY THAT DRAGON BEAST!!!!

You all gave me that strength and courage. I sincerely could not have done it without you. And as I stand here before you with my customary melodrama, one foot propped atop a dead dragon and my sword hand raised to the heavens, I make this solemn vow:

I promise you I will make this life worth living I will help others I will be true to myself I will know Gods will and I will have the power to carry it out

LOVE AND GRATITUDE,

hoodie

Yay yay yay.  

You are freeeeeeeeeeeeeeeeeeeeeeee 

Im so happy for you Hoodie,  

You guys are so sweet to me! I love you all and I thank you from the bottom of my heart right to the top!    

Hoodietree wrote:

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Hi friends, 

Results from 12 week EOT labs: UNDETECTED 

 

 

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 , oh what a feeling!! congratulations hoodie, and welcome to club zero

Hey Hoodie,

YAY!!!!!!!!!!!

A lovely UND for our lovely Hoodie! Congrats on your SVR12.

That was a pretty quick return of your lab results eh? You only had that draw done about a week ago? So, how does that UND feel? Did you get any other labs with that? When was the last time and next time you see the doc?

So nice you have this SVR12 under your belt now, we are waiting for some other folks results pretty soon as well - the good news we all appreciate sharing. 

Thanks for your prior update as well, good to figure out you had not had to move far away for the new work, but commuting certainly can add an element your workload. I am hoping you will find a new sleep hour quota settling in over the next months since your cure - my sleep requirements changed (amount of sleep required lessened) slowly after I completed treatment and was cured. Maybe this will happen with you too (some less sleep required). Glad to here you are still doing yoga - me too - movement is our friend!

So glad for your SVR12, you so deserve to be "officially" free of this virus. Congrats, bigtime. The light in me salutes the light in you my dear!  C.

about the 'mom' , i just glazed over and wondered what it really meant. hahahaha

harry, yes one of spring tx ppl had that

i have gained 4 pounds since eot ; i hope it is just from less energy and movement... eating is the same. will have thyroids in the spring, had my 6 months quant,af & liver panel lab today. i hope the turn around was as fast as the 12week

I was going to say...Mom? I missed that part, lol. Did I miss it? Hoodie do you have kids?

So good to hear from you, say safe in all your extra commuting, keeping fingers crossed for SVR for all of us.

Bb, Iris

Thanks Cheddy and 5!

Please excuse typo in previou post. Should be IM still not Mom still. Argh. 

5 Best wishes on your labs today!

looking fwd to celebrating with you, Iris, and STL very soon

hoodie, so glad to hear from you

i still have some bad days, but hubs is having more good days so he is hope walking

i'll go mon. for labs, soon you me and iris will have our labs... i wonder whats up with STL

i'm glad to hear your drive isn't awful and that you are getting good sleep

Hi Friends!!

Sorry Ive been so busy lately and not checking in regularly.

Canuck, no I didnt have to relocate for this job but my commute is about 30 minutes more total, not too bad but enough to feel the difference.

Mom still sleeping 10 hours a night when I can get it. Often around 8-9 hours will do. 

I think Im starting to feel better finally, but its up and down. I think my stress tolerance is improving. 

I got my 12 week post treatment blood draw done yesterday, so Ill report back with my UND as soon as possible! 

Thanks and love

hoodie

i was thinking about hoodie too... jobs have a way of really taking it out of a person. Especially the full time jobs that are intense.

i hope all is well her way

Hi Hoodie, hope you are well for the New Year! Canuck was right the first two months I was on Epclusa I was never so tired in my life.

I was one of the patients who had to feel much worse before I could feel better ... it even concerned my doc as he said my reaction to Epclusa was definitely an edge case but he said just tough it out as my viral load crashed dramatically and labs were normal. Now I have plenty of energy, and feel better than I have in ten years, well except for the arthritis and the bum knee but one grows old.

Hoodie,

How's the new job going?? Did you have to do a major "re-location" (to another city) for this job? Just wondering. That was my impression but i could be wrong, it seemed like you did not have a lot of time for a big pick up and move. 

My other curiosity is how much fatigue you still have. I know you were like me (and lammasu) in experiencing some profound fatigue, and big needs for many hours of sleep per day. But I have been gleaning this fatigue has lessened for you now after EOT? and that you are requiring less hours of sleep? - maybe you already said this elsewhere on another thread but i cannot recall exactly what you have said on this subject. I recall the intensity of lamassu's fatigue was more related to being severe "while ON-treatment", whereas mine was profound for quite a while before treatment and of course continued just as profound or thicker while on-treatment, and then was slow to improve for me post-treatment - I am just wondering how the fatigue and sleeping has morphed/evolved for you. C.

Hoodie, I slacked off the water too. I was way down the last month of treatment, and now I'm back to my normal, several cups of coffee, and maybe two glasses in the day, a beverage with dinner, and that's about it. I try no to drink before bed but that's when I like some herbal tea. And a short glass of water to take vitamins with. I do sometimes go on a juice binge, but that's a lot of sugar. Seems processing sugar and fats had become an issue, but maybe that will be in the past now?

I really hate having to find a restroom all the time  what can I say, sometimes a bush just isn't near 

You're doing great, If you used to jog then ease yourself back into it, (after the smoke clears) ...hey, we should be getting our "good news" right about the same time in January...hang in there

bb, Iris

Hi Hoodie,

For me the heavy fatigue ended like magic after week 10 on Epclusa. Seems like it was overnight. Now my stamina was lousy because I had gotten little exercise for over 2 months but 6 months after end of treatment now I am feeling pretty good, and walk every day as much as my bad right knee can handle. Probably will get the knee replaced next year as I have had enough medical treatment for one year:) I still drink at least a half gallon of water a day. May not be medically necessary any longer but I feel better when I stay well hydrated. Just waiting on the 24 week viral load results from the test done last week. Everyone's journey is different I have no doubt any lingering fatigue you have will pass. Take good care of yourself!

my first 2 months eot i drank more, now it's about 1.5 liter plus watery coffee. 

i drink more on my days off i think.