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Hep C Discussion Forum -> General Discussion -> NOhep wants your personal HCV story
Post Info TOPIC: NOhep wants your personal HCV story
hrsetrdr


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RE: NOhep wants your personal HCV story
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Hi Brady!  Hi everyone!    Oh my, I believe I shall leave my Hep C story over on NOhep, in case anyone has a similar experience and is curious.   

My tx story in a nutshell:

The usual Victrelis experience plus:  

1.Terminated treatment at 16 weeks(?) due to damage to Rt. optic nerve.

2. I beat the virus anyway! 

3. Still dealing with long term side efforts- anxiety & 'some' depression.

Live is good, I would do it all again in a hearbeat!  



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Harry


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Harry here ,not sure if my messages are getting through ,have not been InTouch of late ,I hope my hep friends are as safe and well as possible,so far not too bad over here so far ,I've been having a lot of respiry breathing probs plus neuro probs all been going on too long now ,got rid of virus about 3 yrs ago now and continue to feel worse ,I'm not sure if a coincidence but I have spoken to a lot of people with similar problems after doing epclusa,I still can't get any satisfaction from liver treatment people regarding DAAs,good luck to everyone who are now doing well Poste treatment I think there's a lot of people who would appreciate an explanation from Gilliard, try stay well and good luck to all,Harry

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Tig


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Iris,

You're not kidding! If we could sit down together and share with others, the hardships we experienced, the listening audience would think we were referring to some horror show! Imagine what people would think when those stories of Incivek side effects came out! The rectal problems come to mind more than anything. The itching, the rashes and profound fatigue would shake people to the core. I was on Victrelis, which had its own set of side effects.

If NOhep wants some anecdotal evidence, we could probably write a book on them. Big Pharm owes us all a prize for what we went through. Maybe that's how we can finally get that Cruise? wink



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Iris Dragonfly


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really, win a prize? huh..., would bet the old treatment warriors have the best stories.



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Tig


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Hi Harry,

Instead of replying in this section, I'll reply in a private message.  Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Harry


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Hi Tig hope this blog finds you in good health and you are taking care of yourself and family, starting to get hot over here, air con sure makes a difference ,I will try not take too much of your time ,I had a bit of a breathing issue couple weeks ago ,I walked out of air con house nice an cool got in my car and had kinda like asthma attack ,so wife rang ambulance spent a week in hospital getting tests done , didn't really like being in hospital with covid about ,but hospital staff were great ,anyway I'm booked in to have a coronary angiogram apparently they send a very thin wire to heart thru artery in groin then put dye around heart to see if any heart muscle or any other problems,so can't say I'm really looking forward to it,what worries me is weather my immune system will be ok as IV had so many infections since doing the DAAs,my local gp hasn't much of an idea on the procedure his very young ,I realise you are not a dr but I thought maybe you may have heard of anyone having this angiogram done , apparently have to be awake,just hope they give me something to stop me stressing sorry to bother you,I realise you have more then your share of problems going on ,just would be interested in hearing any info.as I'm prone to getting infections apparently kidney infections can happen ,oh well ,thanks please try stay safe best wishes down under,

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Tig


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Hi Everyone, I received this message today from NOhep. They're a big voice and advocate for all Heppers. I know several of you have some real hair splitting stories, so I thought you might like to share it and maybe win a door prize, lol!

 

The World Hepatitis Alliance, NOhep and the London School of Hygiene and Tropical Medicine are collecting stories about hepatitis and we need your help!

 

NO Hep Personal Story Info



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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