Hep C Discussion Forum

tomyboy · tomyboy

Hi all, three weeks today since I had my chiari malformation surgery. It went well, still healing and sore but getting at home care. Tom completed his radiation treatments while i was hospitalized and it worked out great. They gave him a certificate of completion the day of his last treatment. T...

Plaun1954 · Plaun1954

Hi .. I am planning to do a rhinoplasty in Toronto and booked an appointment with Dr. Oakley Smith next week. I have read in a health magazine that rhinoplasty should be considered only if you are perfectly fit and healthy. I had hepatitis C last month and I am recovering from it. Should I delay my surgery...

xtra · xtra

I had my first appointment with a specialist. He said that I was not immune to Hep B and some insurance companies require inoculation for Hep B before approving treatment for Hep C. He said that inoculating for Hep B takes six months so, possibly, I could not be treated for 6 months. I have never seen anyt...

hades10109 · hades10109

I have Hepatitis C, but am worried that I have Lymphoma. I have a family history of cancer and my father had Lymphoma about 10 years ago. My symptoms are : Pelvic pain Abdominal pain/pain in my sides Lower/middle back pain Swollen lymph nodes in neck Lumps in my lower back Hard lump in groin area Random s...

mjm · mjm

I am doing alot of research on having this virus and my new-found osteoporosis. I originally had a routine blood test last May2014, and the enzyme that comes from bone and liver disease- ALKALINE PHOSPHATASE was elevated. Dr. told me it could be from a bone injury. Then the recheck was positive for hep...

G Man · G Man

12 weeks...Boom! Finished!Permalink Reply Quote More That was quick. I finish tomorrow. Blood test on Thursday. I'm sure it will come back HCV undetected since that was what I got at 4 weeks. Anyway, just wondering, how long to cleanse the Harvoni from my body? To those just starting....t...

freesoul · freesoul

http://www.businesswire.com/news/home/20151116005852/en/Enanta-Pharmaceuticals-Announces-Investigational-Regimen-Enanta%E2%80%99s-Next-Generation

Zlikster · Zlikster

I am not making a genotypeist sect or anything

just wonder if anyone from GT 3 folks is willing to share their stories regarding therapy and GT3 particular conditions like liver steatosis. I am also curios has anyone shorten their therapy or reduced Ribavirin dosage cause of RVR? thanks

Acers · Acers

Hi: Has anyone been to India for treatment or imported drugs from there to the U.S.? I'm interested in ledipasvir and sofosbuvir (for genotype 1a). What can you tell me about distributors or things to be aware of? (PM me if that's best.) Thanks a bunch!

tomyboy · tomyboy

Well all, what else is new. It's been a few weeks, but Tom couldn't have the radio embalization. When he went to get maped a few weeks ago, The doctor couldn't map him as he is filled with too much plaque. After much discussion, they decided they would try the ablation of the liver. He had this complete...

angela72 · angela72

Hello! Anyone know how to get Sovaldi approved by your insurance company? I have Genotype 3 and need Daklinza, which was approved by my insurance, they will not approve Sovaldi. I have tried through Gilead but they wont help because my insurance company recommended Veikira Pak, which is not for G...

Scott18927 · Scott18927

Anyone have any suggestions of good food to eat with bloat. It is too uncomfortable for me to eat but I am hungry still. I have cut a lot of my salt out of my diet which is super hard because I crave salt like no other. Sweets jack me up too. Just if anyone has figured out what they were able to eat when like...

mallani · mallani

Hi all, I did a post on peripheral neuropathy a few months back. http://hepcfriends.activeboard.com/t60802131/peripheral-neuropathy-and-hepatitis-c/ Since then, I did have an EPP (plasma electrophoresis) and nerve conduction studies. They were both normal. In view of my cirrhosis I was a...

Steve76 · Steve76

I am a serious worrier and now I am worried that my treatment for Shingles with Valtrex( Valaciclovir )caused the virus to mutate. Anyone else here clear the virus after being treated for Shingles before treatment(for me 4 years)? I am also scheduled to receive my second shot for the Hep B vaccine w...

Dopey · Dopey

Hi and hope hope everyone is well. I've not posted in a very long time after failing treatment twice I just decided to hide away (easier than facing reality). Anyway ive been offered a chance to try treatment again. Now I'm really stressed I've been given the choice between sovosfibir and simemprivi...

KeepingTheFaith · KeepingTheFaith

Its been one week to the minute since the love of my life lost his battle with his Cirrhosis/HC/Cancer..... found out on the 25th of Sept he had liver cancer, one oncology appointment then Oct 4th we landed in ICU for two days then moved to Hospice wing of the hospital as there was nothing more they could...

xtra · xtra

I was in the barber shop owned by a man who had cancer. One of the customers was talking about his brother who has liver cancer and Hep C. Then the man stated he had Hep C but had been cured. His brother had not and had subsequently developed cancer. I asked about the treatment, time frame and this is what the...

basser · basser

saw an article bout abbvie . the FDA are giving warnings about it.worth a read if you live in the states

wmlj1960 · wmlj1960

Staying adequately hydrated is vital to good health as well as very helpful with reducing the severity of many side effects caused by Hep C treatment medications. Don't overdo it. Although not as likely as dehydration, excessive hydration can cause issues too such as headache, cramps, bloating a...

wmlj1960 · wmlj1960

I've recently been seeing advertisements for Xifaxan for treatment of irritable bowel syndrome w/diarrhea (IBS-D) on TV. As some of you with advanced liver disease know, Xifaxan can also be used for the treatment of hepatic encephalopathy (HE). It can also be used to treat travelers diarrhea (TD...

xtra · xtra

http://gihep.com/calculators/hepatology/fibrosis-4-score/

dharmabum · dharmabum

I have a friend who also happens to be infected with Hep C. I last saw him in June, when in my eyes, he just did not look well. I opened the conversation with news of my Harvoni treatment and my Hep C affliction. He shared with me news of his recent discovery; he also has Hep C and was to begin treatment with...

tomyboy · tomyboy

Hi all, Went back to Mt Sinai Friday for Tom's MRI lthree month liver scan. Sad news, the "shadow" which was seen three months ago is still there. They determined it is a small tumor in the middle of his liver. The surgeon cannot remove it surgically like the previous one. We are very di...

Steve76 · Steve76

I have insurance but I am wondering what kind of money people have ended up spending to get treated? I am looking at 24 weeks, we have insurance but I am kind of worried. Any advice on how to navigate this? Thanks

Steve76 · Steve76

Are there other treatment options that are cheaper than Harvoni? Or possibly I can use the Harvoni as a last ditch effort, trying to get 24 weeks, but not sure if insurance will cover. I think I read that you can take S/O and if you fail that you can still do Harvoni with success. Actually considering Bu...

Redbird29 · Redbird29

In Remembrance of my husband Art Schlosser who lost his battle on Oct. 2, 2009Hi there Papa Bear, I just wanted to let you know that we are ok though not a day goes by that we don't think of you. It's been six years today since you left us and though we had some really hard times for a few years things have been s...

Steve76 · Steve76

I need help with some information. I was treated in 97 with mono therapy Iterferon alone, did not work. Did not try anything else...fast forward to 2015. Heard about new treatment went through lots of test including Fibrscan (F4) Blood work normal except Alt and AST. Ultrasound came back norma...

VetwithC · VetwithC

Just wondering how many decades can this dragon survive undetected in the body?? I figure that in my case I got exposed in the US Navy basic training in 1964 as I have never done IV drugs in my life or got a transfusion. My Hep C was Dxed in the year 2000, and started to feel fatigue earlier than that. So far...

freesoul · freesoul

http://hcvsvrpredictor.liverdoc.com/#/ I don't know about accuracy (best discussed with your doctor, and your mileage might vary and all) but it's an interesting way of comparing treatment options quickly.

mallani · mallani

Hi all, Since achieving SVR 2.5 years ago, peripheral neuropathy (PN) has developed and is getting a little worse. After much deliberation, I finally consulted a Neurologist. Basically, I have numb toes which are worse at night, lying in bed. There is a slight burning sensation, and the L is more aff...

Topic		Started By	Replies	Views	Last Post
	Mt Sinai Update (Preview) Hi all, three weeks today since I had my chiari malformation surgery. It went well, still healing and sore but getting at home care. Tom completed his radiation treatments while i was hospitalized and it worked out great. They gave him a certificate of completion the day of his last treatment. T...	tomyboy	13	1613	Dec 8, 2015 by wmlj1960
	Surgery immediately after Hep C (Preview) Hi .. I am planning to do a rhinoplasty in Toronto and booked an appointment with Dr. Oakley Smith next week. I have read in a health magazine that rhinoplasty should be considered only if you are perfectly fit and healthy. I had hepatitis C last month and I am recovering from it. Should I delay my surgery...	Plaun1954	2	990	Dec 8, 2015 by Tig
	Does Hep C Treatment Require...? (Preview) I had my first appointment with a specialist. He said that I was not immune to Hep B and some insurance companies require inoculation for Hep B before approving treatment for Hep C. He said that inoculating for Hep B takes six months so, possibly, I could not be treated for 6 months. I have never seen anyt...	xtra	1	894	Dec 1, 2015 by Cinnamon Girl
	Lymphoma or Hepatitis C ? (Preview) I have Hepatitis C, but am worried that I have Lymphoma. I have a family history of cancer and my father had Lymphoma about 10 years ago. My symptoms are : Pelvic pain Abdominal pain/pain in my sides Lower/middle back pain Swollen lymph nodes in neck Lumps in my lower back Hard lump in groin area Random s...	hades10109	2	972	Nov 28, 2015 by Tig
	Bone health and hep-c (Preview) I am doing alot of research on having this virus and my new-found osteoporosis. I originally had a routine blood test last May2014, and the enzyme that comes from bone and liver disease- ALKALINE PHOSPHATASE was elevated. Dr. told me it could be from a bone injury. Then the recheck was positive for hep...	mjm	6	1914	Nov 22, 2015 by maddie
	12 weeks...Boom! Finished! (Preview) 12 weeks...Boom! Finished!Permalink Reply Quote More That was quick. I finish tomorrow. Blood test on Thursday. I'm sure it will come back HCV undetected since that was what I got at 4 weeks. Anyway, just wondering, how long to cleanse the Harvoni from my body? To those just starting....t...	G Man	7	1403	Nov 19, 2015 by Penelope PePod
	Great news! (Preview) http://www.businesswire.com/news/home/20151116005852/en/Enanta-Pharmaceuticals-Announces-Investigational-Regimen-Enanta%E2%80%99s-Next-Generation	freesoul	0	849	Nov 16, 2015 by freesoul
	Genotype 3 fighters thread (Preview) I am not making a genotypeist sect or anything just wonder if anyone from GT 3 folks is willing to share their stories regarding therapy and GT3 particular conditions like liver steatosis. I am also curios has anyone shorten their therapy or reduced Ribavirin dosage cause of RVR? thanks	Zlikster	24	4482	Nov 16, 2015 by wmlj1960
	Indian treatment for Hep C (Preview) Hi: Has anyone been to India for treatment or imported drugs from there to the U.S.? I'm interested in ledipasvir and sofosbuvir (for genotype 1a). What can you tell me about distributors or things to be aware of? (PM me if that's best.) Thanks a bunch!	Acers	7	1983	Nov 14, 2015 by wmlj1960
	Mt Sinai (Preview) Well all, what else is new. It's been a few weeks, but Tom couldn't have the radio embalization. When he went to get maped a few weeks ago, The doctor couldn't map him as he is filled with too much plaque. After much discussion, they decided they would try the ablation of the liver. He had this complete...	tomyboy	16	1573	Nov 13, 2015 by wmlj1960
	Prescription Help (Preview) Hello! Anyone know how to get Sovaldi approved by your insurance company? I have Genotype 3 and need Daklinza, which was approved by my insurance, they will not approve Sovaldi. I have tried through Gilead but they wont help because my insurance company recommended Veikira Pak, which is not for G...	angela72	12	1434	Nov 13, 2015 by angela72
	Food to eat with bad bloat (Preview) Anyone have any suggestions of good food to eat with bloat. It is too uncomfortable for me to eat but I am hungry still. I have cut a lot of my salt out of my diet which is super hard because I crave salt like no other. Sweets jack me up too. Just if anyone has figured out what they were able to eat when like...	Scott18927	24	1930	Nov 12, 2015 by wmlj1960
	More on Peripheral Neuropathy (Preview) Hi all, I did a post on peripheral neuropathy a few months back. http://hepcfriends.activeboard.com/t60802131/peripheral-neuropathy-and-hepatitis-c/ Since then, I did have an EPP (plasma electrophoresis) and nerve conduction studies. They were both normal. In view of my cirrhosis I was a...	mallani	2	1167	Nov 8, 2015 by mallani
	Harvoni and prior treatment for Shingles? (Preview) I am a serious worrier and now I am worried that my treatment for Shingles with Valtrex( Valaciclovir )caused the virus to mutate. Anyone else here clear the virus after being treated for Shingles before treatment(for me 4 years)? I am also scheduled to receive my second shot for the Hep B vaccine w...	Steve76	4	2006	Nov 4, 2015 by bassetgirl
	Here we go again (Preview) Hi and hope hope everyone is well. I've not posted in a very long time after failing treatment twice I just decided to hide away (easier than facing reality). Anyway ive been offered a chance to try treatment again. Now I'm really stressed I've been given the choice between sovosfibir and simemprivi...	Dopey	11	1706	Nov 1, 2015 by Cinnamon Girl
	My fiance lost his battle.... (Preview) Its been one week to the minute since the love of my life lost his battle with his Cirrhosis/HC/Cancer..... found out on the 25th of Sept he had liver cancer, one oncology appointment then Oct 4th we landed in ICU for two days then moved to Hospice wing of the hospital as there was nothing more they could...	KeepingTheFaith	12	1443	Oct 31, 2015 by Greg D
	Interesting Conversation (Preview) I was in the barber shop owned by a man who had cancer. One of the customers was talking about his brother who has liver cancer and Hep C. Then the man stated he had Hep C but had been cured. His brother had not and had subsequently developed cancer. I asked about the treatment, time frame and this is what the...	xtra	2	1033	Oct 31, 2015 by xtra
	abbvie (Preview) saw an article bout abbvie . the FDA are giving warnings about it.worth a read if you live in the states	basser	3	937	Oct 29, 2015 by Cinnamon Girl
	Just a reminder: 'Stay adequately hydrated'. (Preview) Staying adequately hydrated is vital to good health as well as very helpful with reducing the severity of many side effects caused by Hep C treatment medications. Don't overdo it. Although not as likely as dehydration, excessive hydration can cause issues too such as headache, cramps, bloating a...	wmlj1960	0	810	Oct 25, 2015 by wmlj1960
	Xifaxan (rifaximin) TV commercial. Who takes this for treatment of HE? Sx's? (Preview) I've recently been seeing advertisements for Xifaxan for treatment of irritable bowel syndrome w/diarrhea (IBS-D) on TV. As some of you with advanced liver disease know, Xifaxan can also be used for the treatment of hepatic encephalopathy (HE). It can also be used to treat travelers diarrhea (TD...	wmlj1960	8	2627	Oct 21, 2015 by basser
	Understanding Lab Test (Preview) http://gihep.com/calculators/hepatology/fibrosis-4-score/	xtra	22	2718	Oct 20, 2015 by Scott18927
	Speechless in Connecticut (Preview) I have a friend who also happens to be infected with Hep C. I last saw him in June, when in my eyes, he just did not look well. I opened the conversation with news of my Harvoni treatment and my Hep C affliction. He shared with me news of his recent discovery; he also has Hep C and was to begin treatment with...	dharmabum	0	879	Oct 15, 2015 by dharmabum
	Mt Sinai Update (Preview) Hi all, Went back to Mt Sinai Friday for Tom's MRI lthree month liver scan. Sad news, the "shadow" which was seen three months ago is still there. They determined it is a small tumor in the middle of his liver. The surgeon cannot remove it surgically like the previous one. We are very di...	tomyboy	10	1506	Oct 11, 2015 by hepCFREEwanab
	Co pays for Harvoni? (Preview) I have insurance but I am wondering what kind of money people have ended up spending to get treated? I am looking at 24 weeks, we have insurance but I am kind of worried. Any advice on how to navigate this? Thanks	Steve76	5	1419	Oct 10, 2015 by Tig
	Cheaper Treatment options? (Preview) Are there other treatment options that are cheaper than Harvoni? Or possibly I can use the Harvoni as a last ditch effort, trying to get 24 weeks, but not sure if insurance will cover. I think I read that you can take S/O and if you fail that you can still do Harvoni with success. Actually considering Bu...	Steve76	0	743	Oct 6, 2015 by Steve76
	In Loving Remembrance (Preview) In Remembrance of my husband Art Schlosser who lost his battle on Oct. 2, 2009Hi there Papa Bear, I just wanted to let you know that we are ok though not a day goes by that we don't think of you. It's been six years today since you left us and though we had some really hard times for a few years things have been s...	Redbird29	7	1217	Oct 5, 2015 by Cinnamon Girl
	New Here (Preview) I need help with some information. I was treated in 97 with mono therapy Iterferon alone, did not work. Did not try anything else...fast forward to 2015. Heard about new treatment went through lots of test including Fibrscan (F4) Blood work normal except Alt and AST. Ultrasound came back norma...	Steve76	14	2204	Oct 5, 2015 by Steve76
	How many decades can this dragon survive undetected in the body?? (Preview) Just wondering how many decades can this dragon survive undetected in the body?? I figure that in my case I got exposed in the US Navy basic training in 1964 as I have never done IV drugs in my life or got a transfusion. My Hep C was Dxed in the year 2000, and started to feel fatigue earlier than that. So far...	VetwithC	7	1361	Oct 3, 2015 by mallani
	Found this "SVR Predictor" online (Preview) http://hcvsvrpredictor.liverdoc.com/#/ I don't know about accuracy (best discussed with your doctor, and your mileage might vary and all) but it's an interesting way of comparing treatment options quickly.	freesoul	7	1850	Sep 21, 2015 by Matt Chris
	Peripheral Neuropathy and Hepatitis C (Preview) Hi all, Since achieving SVR 2.5 years ago, peripheral neuropathy (PN) has developed and is getting a little worse. After much deliberation, I finally consulted a Neurologist. Basically, I have numb toes which are worse at night, lying in bed. There is a slight burning sensation, and the L is more aff...	mallani	20	3668	Sep 15, 2015 by dragonfly
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