The Jansen solvadi/olysio trail I was hoping to jump on looks like the FDA is changing up to only include certain people groups, so I'm out. Very disappointed, but still hoping to maybe get on Mercks next iteration of C-worthy, however the trial center says FDA May do the same with this one. I'm temp...
Hi I am new to the forum. I was diagnosed in 2002 but haven't pursued treatment as the doctors felt the treatment was worse than the disease. I am genotype 3A and have always had very low viral loads (highest being 400,000) and normal enzymes. I haven't had a biopsy but all tests say I don't have any fib...
my skin is totally burning. I don't know what to do.. I am sits end, need to rest. it is just not letting up on the stinging. I have put everything on it & jumped in shower 3 times for relief of cold water.. I have some really red spots that are within my skin. under breast, on breast, little on back & l...
ok,, here is what happened. I just finnished off my 12th week of Tx and I had been taking the Sovaldi in the A.M. the the dose of Ribo, and just Ribo in the P.M. But the other day i couldn't find the bottle so i went to work without taking it and took it in the P.M. Now that I think about it this might be better, 12...
they said it shouldn't affect treatment. i sure hope not. got to go to dermatology tomorrow & then to hepa fri so they cn ly eyes on me.the rash is not rel bad, the burning feeling of my skin on fire & the spots where prior derma froze many spots off are the one realloy inflamed..i told her please do...
Guys, I'm so excited that tonight is my last shot! I have til Monday with the pills but the shot is the worst of the trio so I'm glad to say farewell to interferon. ..hopefully for good!
Im on 400 mg sovaldi and 1200 mg ribavirin, and 10 mg ambien to sleep. Im 13 weeks into my 16 week treatment, and i always feel like im racing ,my mind gets ahead of my mouth, I say things in the wrong order sometimes. I will go from feeling what i call nornal to angry very fast, I think im talking normal and m...
The Doctor orally told me " I was one of the lucky ones who had it and cured it myself" I lost 20lbs, my wedding ring doesn't fit tight and is loose, and have digestional issues (the doctor is a gastroenterologist) Could it come back in the future as it lays dormant and defeated? Here ar...
Could folks please post their experiences with improvement (or lack thereof) in brain fog, fatigue, muscle/joint pain after treatment? I am curious what tx you did and timeframes for noticed improvement. I have brainfog/memory issues and fatigue. Trying to get an idea of how long it might...
been dealing with this alone for so long I decided to reach out ... I'm on day 25 of Sovaldi/Olysio for geno 1.... had it for the past 12 years or so and failed interferon/riba horror twice... had my labs back 10 days ago and my doc said my liver stats were all in the normal range for the first time in the past...
Hi All I think that I'm considered a 'returning new member'. My husband has been diagnosed with Hep C for several years. Tried the HALT-C clinical trials many moons ago (no luck), then Interferon/Ribavarin (sick with low platelets). More recently tried Incivek triple therapy, cleared at 8 wee...
"An interferon-free combination of sofosbuvir (Sovaldi) plus ribavirin taken for up to 24 weeks led to sustained virological response in 70% of liver transplant recipients with hepatitis C virus (HCV) recurrence, according to a poster presented at the 49th annual meeting of the European Associ...
I mentioned to my nurse about a thread I saw on here where someone had possibly reinfected themselves after UND from their own razor. She was very interested in a link to that post but I am useless at doing searches. I believe it was in a thread about how log the virus can live out of the body. Can anyone help...
Hi, first post on this forum. I've had HCV for over 20 years and am on week 9 of sovaldi and ribavirin. I started treatment with a viral load of 19 million and my last lab, after 51/2 weeks, was at 21. My doctor wanted me to be und by now but I'm happy with the results. I have about 31/2 weeks left with genotype 2...
This month`s newletter from the HCV Advocate website includes reports from the NEJM (New England Journal of Medicine) and EASL 2014 (European Association for the Study of the Liver) on the latest drug developments, as well as other articles of interest.[url]http://www.hcvadvocate.org/news/...
Hey All... At 7:27pm ET this evening I took my last three Ribavirin pills! It has been a long 12 weeks. The first four seemed to go okay once I got the hydration and headache thing down pat. The middle four seemed to just take forever. I seriously had moments of doubt as to whether or not it was ever going to e...
Wow Look who came to give me my last shot. "Ok Mr Hankey Im ready" Yes that is MY Mr. Hankey bobble head. Thanks all for the support so far and putting up with me at times. I swear its the riba making me act like I do!
I do shot #4 next Friday. I really am trying to stay positive. this stuff is bringing me wayyyy down. skin is in terrible shape, shortness of breath & plain out just give out. & got to work. guess that really is an ok thing even tho there is NO compassion there. it keeps me a little busy with the mind...
got 2nd labs today. everything stable. cept for trying become anemic. alt & ast now normal. my last treatment they had told me I had a good log drop. o=f course this is a different doc. so should next labs which will 4 weeks show if I am responding or not? I was really hoping to hear that today.
I'm on day 11 of tx. The nausea & headaches are better (due to great advice to drink plenty water), however I'm feeling depressed & (was told) I'm irritable. Is anyone else experiencing this?
My friend got Hep C and is dying. He is in eager need of the medicine of SOF (gilead) and Semiprovir( J&J). However it's not possible for him to travel to US at this moment, which means he cant get a prescription from the doctor. In this case, is there any way for him to buy the medicine? Any help would be...
Apparently it is nurses week? I did not know about that until today and since I have a bunch of nurses that are always there for me when I need them, I decided to send them flowers to their office. I realize not everyone can do this, but I thought it would be nice for people to at least give their own a special t...
"The formulary decision by the VA comes as a panel assembled by the system last month recommended that doctors warehouse hepatitis C patients, putting those with advanced liver disease on Sovaldi first.""By triaging patients, health care providers can absorb the patient load -...
I will be starting my treatment this evening (Sovaldi, Interferon, & Ribavirin). My copay was supposed to be $500 a month (for 3 months) but I found a copay card for Sovaldi and Interferon and it has brought it down to $245, I found one for Ribavirin, but I think I found it too late. We are gonna try tho...
Just got report back from 4 wk lab result. Due to privacy issue they won't email lab results but this email arrived this morning. Good morning Dave. Can you guess what this means? Thats right.you-know-what is negative! Hope you are enjoying your trip so far. When you get the chance, let me know ho...
its been quite a while since I have posted, mainly because I did not want to write anything too negative, however I need to offload!!! From week 21, its week 27 next week I have reached a place that I am struggling to comprehend and its a freaky feeling of 'they are coming to take me away'...I finally admit...
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