I know several people who have had liver transplants and have hepatitis C. They are trying to find out more about the new direct-acting antivirals (sofosbuvir, ledipasvir,etc.) and about the clinical trials for those with liver transplants and HCV. I would truly appreciate any information you c...
I'm living proof that I cured Hep C without any medications. Don't stray the public to think that only a man-made medication can cure disease, that is totally false information! I cured my Hep C without any help from any doctor! So YES, it can be cured! I had cirrhosis of the liver and now it's undetectab...
doing the sovaldi pegsys & riba. I am tring to drink lots of water. hard sometimes. but I am developing a small bumpy sorta red arsh on my face just a little. anyone having this too? its really annoying. well very.... I already have place a dermatologist froze off my arms & legs 2 yrs ago that wil...
I have spent over 10,000 dollars on liver teas, Chinese herbs and supplements. I will never know if they prevented any long term stability on my liver - but they have NEVER made my blood tests normal or prevented fibrosis. Use them as a healthy lifestyle choice, but NEVER as a cure!
I am new to these forums, but wanted to share with someone that I have been on the Ribavarin/Simprevir/interferon treatment for 6 weeks and was just informed by my doctor's office that my blood is clear of infection, half way through treatment and it's already done it's job. It feels great to feel like...
Hi Everyone, I've made some additions and updates to our list of payment assistance programs here on the forum. The thread is closed to additions and commentary because we wanted to keep the information readily available and prevent it's loss in a lengthy post count. Wayne (Oldenslow) gave me some n...
Hi everyone, I posted here back in August. Then I disappeared, sorry about that. I started the Sovaldi / Olysio tx friday. Its time to kick this Hep C's a$$! That being said, I went home sick from work today. Headache, nausea & very fatigued. I'm also feeling weak. It's still a hundred times better t...
I wanted to share this link which all of my friends have been sending me all day: http://www.gilead.com/news/press-releases/2014/4/gilead-sciences-announces-first-quarter-2014-financial-results
Aside from sunblock, SPF clothing, umbrellas and downright avoiding the sun, I thought this supplement may be good to take as well. I took it last summer just because I like to protect my skin in general from UV, and remembered it so I thought I'd share it with you all. It also has other high benefits: h...
I became aware I had the hep-c virus during a routine blood donation (Red Cross) in 1988. At that time it was non-A, non-B hepatitis. I had been in a county jail for 5 months where we had to shave for visitors each Saturday. We shared razors which were nasty and rusty. I suspect that is where I acquired the v...
Finally! Saw my GI/Liver spec. for first time today. 10 years since diagnosed, guessing I have had this genome 2a for many more years. Dr. wants to get me on the Solv./Rib. as soon as my 2nd liver biop (a decade since initial) gets done(hopefully next week). Highly motivated, got insurance throug...
9 "business days" doc told me "day or two" before results I have hep c antibody, and a slow thyroid which the doc said is below hypothyroidism levels but gave me meds for it anyway. I have lost weight, very, very, slowly. But haven't lost any in a long time either(I might have gai...
Ran across this in my search for info on HCC after treatment. Really found it to be VERY informative. Screening and Diagnosis of Hepatitis C Infection - Hepatitis C Online SuziQ
I'm thinking I've missed the boat to participate in a clinical trial for Gileads sofosbuvir & ledipasvir dual therapy. Does anyone know of any upcoming trials (U.S.) using these? I so want to get treated but I'm skeptical that my insurance will cover this combo due to price when they are approv...
FYI: "The CDC is investigating possible occupational exposure to HIV, hepatitis B virus, hepatitis C virus and Mycobacterium tuberculosis among workers at a human nontransplant anatomical donation center in Arizona" CDC: Infection exposure possible at nontransplant anatomic...
My doctor did not specify anything that would conflict with the efficacy of O/S but I was wondering if anyone heard anything contrary to drinking a half a glass a wine a few days a week while on these meds? I have no fibrosis.
April 23, 2014Sovaldi/Olysio Combo Cures 94% of Those With Liver Disease In a recent trial, combination therapy with Gilead Sciences Sovaldi (sofosbuvir) and Janssens Olysio (simeprevir) cured 94 percent of people who had genotype 1 of hepatitis C virus (HCV) and advanced liver disease, MedP...
Hello All I am bringing this thread up now because I finally was informed via email from Abbvie / Turquoise II Trial doctor that my relapse was not caused from Rav's / Virus mutations. This is significant because I was UND at treatments end and for 2 or 3 weeks after (proved by blood tests) but on week 4 pos...
I've had this virus since I was a child - blood transfusion. So it's been inside me so long that I really have no clue who I am without it. I've had it since I was 13. I'm wondering if those who have been SVR12 or more genuinely feel different or just relieved? Anyone? Oh and CONGRATULATIONS!!!! I CAN...
So here is my historical lab results for ALT/AST. I have absolutely no explanation for the extreme jump in November of last year. I haven't drank alcohol nor am I taking any medication other than Benadryl and the occasional ibuprofen. I take Benadryl almost nightly for sleep but I've been doing th...
Hi Everyone; I'm on my third day of Sovaldi/Olysio treatment and don't really have any side effects except more thirsty than normal. I'm wondering if there's an optimal time to take the meds? A friend of mine said that it's best to take Solvaldi on an empty stomach and Olysio with food. They said Solval...
I get my meds tomorrow but was told not to open them until I get the phone call from someone (nurse or pharmacist?) to receive the "med training". Is this just a formality? What's to tell? No injection training. Just curious (and anxious).
Hi everybody, Just wondering if anyone knows of any upcoming trials? I've been watching Clinical Trials.gov waiting to jump on something. I'm doing pretty well, but the fatigue is getting me every day by mid-afternoon. We are in the Phoenix area for the winter and it's been very nice. Lots of sun...
Hi all, I'm Kurt and I'm a retired firefighter/paramedic who has been living Hep C for 20 years. I'm starting my 4th week of treatment on Sovaldi/Olysio and so far it looks good. Viral load has gone from 3,000,000 to undetectable and my ALT went from 349 to 16.
Hey everyone... It's been said a million times on this forum that we are our own best advocates. With more and more people starting treatment and Express Scripts holding some insane % of the American prescription coverage market I just wanted to reiterate the importance of being on top of your own ref...
So I called the doctor's office today and got word I'm Genotype 1, Bummer. But I expected as much when the virus was discovered. With the doc being out of town for two weeks, I'm having a hard time getting the Medical Assistant to understand my request for the Solvaldi/Olysio treatment option. I'...
I have accepted an invitation to play golf around May 17. By that date I should be 10 darts into tx. I have hit a couple of small buckets of balls recently, but have been either covered, or somewhat in a shaded area. Hitting ball after ball made me a little dizzy and winded. Of course I'll have breaks in bet...
ok.. so took sovaldi 1 riba got shot.. day 1.. so looking forward to getting rid of this crap.. doc said 90% cure rate. (well remission) I will achieve SVR this time..
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