Hello everyone. I am awaiting approval from the pharmacy (my insurance uses Diplomat Pharmacy) to set me up with Interferon, Riba and Sovaldi and then it's time to start this12 week battle. I have been infected with genetype 1b since 1972. Was tested for Hepatitis during my first pregnancy in 1982 an...
Oh Gurus's, just got my latest labs, RBC results have multiple notes attached that shows the RBC's are diff in shape and size, any ideas on why this suddenly shows up? Anybody notice same on their labs? I have been fighting Anemia but lately hgb has been around 10. cheers, lee WBC 3.4 RBC 3.02 Fe...
hi all! the months end is 6 mos. post eot for me. gave blood today for my last vl. curious because i haven't been feeling tip top the last month or so. fatigue and muscle aches mainly so i emailed the doc and she set up the CBC and VL. i'm 99% sure i'm ok. just a nagging little voice that says i better check. will...
IF YOUR HEALTH IS STRONG, SAY "NO" TO TREATMENT WITH INTERFERON - BUT CONTINUE TO SEE YOUR GASTROENTEROLOGIST - EVERY TIME INSISTING ON THE NEW TREATMENTS - WE NEED A MASS MOVEMENT OF PATIENTS REFUSING THIS TREATMENT - THE ONLY MEDICINES WE SHOULD PERMIT DOCTORS TO TREAT US WITH ARE THE NEW...
alt ast almost normal - bilirubin back to normal (1.4 down to 1.0). Neutrophils the only problem. They are 2.5 where the low is 4. Keeping an eye in them - will now in a few days whether viris is undetectable.
Called out to Scripps today and talked with them about the upcoming Janssen Optimist-1 clinical trial (NCT02114177). Sounds like they are going to accept me. It will start in May in California. We are currently in Colorado with a child with a broken arm. No problem to travel though. All of you ha...
Well, I am coming to the end of my 12 weeks on Sovaldi & Ribavirin. Sunday will be my final day. At the Dr today, they told me I will be the first person to complete the treatment in their practice. There was one ahead of me, but they ended up dropping interferon & now have to do 24 weeks. Not sure...
Hello, my last two lab results show that I've got neutropenia. im in week 17 of 48. I would be interested in hearing others experiences with this side effect. Is week some early for this sort of problem?
An interesting article which raises many questions of cost/health benefits and moral obligation to prisoners and the wider community. Here are some quotes from the article, to read it in full follow the link...`If used widely, a new generation of antiviral drugs has the potential to wipe out the d...
Lengthy (90 min) but informative eSymposium discussing key data presented at the recently concluded EASL in London. Email address required to view. Topics include various study data (Pearl, Sapphire, Ion, Cosmos and others), treatment of cirrhotics, whether to use riba or not, re-treatment af...
Everything is stable but they want to repeat the cbc in a week - platelets must have plummeted but I did not see the result yet. Alt ast and bilirubin all better. They wanted to know if I had a fever all week and I never did.
I just opened my last box of peg. pens. Getting ready to do number 45. I went from first shot starting treatment to can some one bring my meds to the hospital first transfusion (over nighter). Ok off the incivek but I stilll have to take these pills and this shot opps need another transfusion. Then it was...
Have just had THE call to say that at the 24 week mark I am UND....a deep breath taken The next 24 weeks will fly by Im sure The support, humour and friendship has been amazing Sally
Hi all,There are many questions on the Forum about fibrosis regression after SVR. This is a complex subject.Three genes have been identified, that hasten fibrosis progression in HepC. Hopefully, this is only of academic interest, as most patients will now be cleared of the virus before cirrhosis...
Very good news for the most severely affected Hep C patients in England - well done our NHS! Press Release, 16th April: NHS England has approved an £18.7 million investment in a new drug for the treatment of hepatitis C.Around 500 patients with acute liver failure, and/or awaiting liver transplant...
superb news is that i'm still UND at 3 months!!!!!!! my wbc & platelets are even better than pre-tx,5.9 & 211!!!! i was exposed to strep throat on vaca & didn't catch it!!!!! my ast is w/in normal range although my alt climbed to 49. life could be worse!!!!! my ferretin dropped from 2000, to...
This article is provided by Healio.com. Some of their articles are open to review and some require a simple and free registration. Their email newsletters make registration worth doing. The following article addresses the conversation we've all been following, the cost of treatment. It offers s...
Another Healio.com specialty publication exclusively focused on HCV. Offers a multitude of articles and reports dealing with our favorite subject HCV. Again, this publication may require a free registration to view the complete report or website. It's a very worthwhile registration. HCV Next...
I found a doctor who will put me on interferon, rib and solvaldi even though I failed triple therapy with Telaprivar. Is anyone hearing any good results yet for us non responders and solvaldi? What about tolerance failure?
"Doctors should consider expensive new hepatitis C drugs for patients with advanced liver disease, including those awaiting transplants, but ask most others to wait for drugs in development, the Department of Veterans Affairs said Wednesday." "A California panel made si...
Benitec Proceeds With First In Man Trial for TT - 034: A Single Injection To Treat Hepatitis C Posted: 14 Jan 2014 10:02 AM PST Hepatitis C Trial To Proceed 1/14/2014 9:04:01 AM Sydney Australia, 14th January 2014: RNAi - based therapeutics company Benitec Biopharma Limited (ASX: BLT) today anno...
I'm curious what experiences folks have had in getting approved for the Sovaldi/Olysio combo, given it's off-label. I've read several reports here of people getting approved and some who haven't. I'm thinking maybe we can compile a list of who is approving and who isn't. I'll start the list wi...
Do I understand correctly that everyone that had geno 1b obtained SVR no matter how much fibrosis they had? Were the 7% that didn't get SVR genotype 1a's ? I hope I'm not asking a very dumb question but I want to now bad enough to risk it. :>) It does say 100% doesn't it? My husband is geno 1b but has h...
I have a very high viral load of 23mil. I have yet to read any other posts by anyone who's had a viral load this high. Is there any information on how this may affect the outcome of treatment using the new meds that are coming out?
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