Hello everyone. I'm not sure why it's taken me so long to join up here. I've been an onlooker off & on for years. I guess I found it difficult to share when I was sick. Maybe it was shame. I don't know. But now, after decades of HCV, then cirrhosis, then cancer, two chemo-embolizations, a transplant an...
Just got a call from the nurse regarding Angelo's week 6 V/L results! UND, UND, UND, UND 00 00 00 00 Our prayers were answered! Now that there is no more poison to hurt his liver , we can move on to recovery! Mena
Hi everyone, Here to support my partner AzHiGirl. Learning a lot from the comments I've read. So thankful for all your kindness, experience and support. I'm feeling kinda scared. Not sure what to expect. I want to be as supportive as possible.
Hubby and I went to see the specialist today. He is 5 weeks post treatment now. As I mentioned on a previous post, he got his UND result 1.5 weeks post treatment. Today was a follow up. Hubby asked for a fibroscan so that it could be compared with the one done pre treatment. The specialist squeezed hi...
Hello everyone, yesterday we met with the liver transplant specialist at Mt. Sinai Hospital. His name is Dr. Gene IM and we also spoke to PA Cynthia Byrne. Both were very nice and knowledgeble. Angelo's Hepatologist had forwarded to him all the lab results so that he could be familiar with his conditi...
So I see a lot of people posting there counts, Numbers etc. So I did ask my nurse for a copy of my recent blood work... Well she gave me 2 sets of paperwork i'm guess the first bloodwork and my 6wk bloodwork. The problem is its all Chinese to me:( its 6 pages long and a zillion numbers!!!! Could someone tell me...
Hi folks, Can someone please let me know how/what/where do we pack out interferon needle when we travel on a plane? I can't ask anyone else but you guys.
Hi, my husband has seven weeks left of tx. You have no idea how helpful reading what people are going thru has been. My husband is getting transfusions every other week. First time, 3 units; second time, 2 units; third time, 2 units. I was wondering if a lot of people have experienced this. He had incive...
Hello everyone, I am so, sorry for not having posted in a while. I must say though that I come on here everyday to read and search hoping to learn something new! To make a long story short here goes the shortened version of what has been happening. Angelo is on his 7th week of treatment, yet it feels like...
Is anyone doing the Pearl trial conducted by Abbvie in Plymouth uk, I have nearly completed 12weeks with the placebo potential only applicable to the ribavirin arm. I have felt very tired and weak at times, however that is the worst of the side effects, so manageable. I went und after 2weeks, so hopin...
https://en.wikipedia.org/wiki/Ribavirin I just saw this bit of information on the bioavailability of Ribavirin when taken without food and with a fatty meal. I haven't read this before and wondered if the Guru's might know if this information is valid? It certainly could be and as many of us on tri...
just happenned to notice that coconut oil has 12 grams of saturated fat/serving. tried to google info on it and found out fda recommends no saturated fats in diet. since my triglycerides went from 74 to 155 while on treatment, i'm a bit concerned. any thoughts or comments? sandy,ucbgal
I've been on triple treatment for 5 wks 2 days and I am stopping treatment for 2 wks 3 days because I am donating stem cells to my brother to hopefully get rid of his cancer. It was a battle with all the doctors on what to do but my hepatologist in the end felt it was ok for me to stop since I responded to treatmen...
I was just wondering if anyone else noticed a problem with their nails? For at least the last 10-15 years, the fingernails on my right hand have not grown correctly. They have dents in the middle, and just grow on the edges, etc. I just keep all of my nails trimmed short. The left hand was always fine...
The specialist just called after yesterday's blood work. Finally I'm going to get blood! Hgb is at 82 and I'm dizzy and feel like I'm going to pass out. It will happen within the next couple of days. Looking forward to some energy and a good book read!
Greetings all! Ok of you may recall that I am finishing off Ribavirin this Thus. and finished Peg intron on July 11th. I have has no VL since week 11 and them my Dr. only tested to 650 VL. So I to my Dr. office today to pick up my EOT lab order and notice she has again ordered no VL. After waiting for 13 weeks to...
This coming Thursday will be my husband's last Interferon shot! I understand that his doctor would like him to continue taking his Ribavirin pills for one week after his last shot, which makes sense. I already calculated the numbers, and after that last week of taking the Ribavirin pills, my husba...
My husband has hep c and has had it for some what years. We found out 06 he took the horrible meds and didn't finish or didn't respond however, he has not been to the doctor since then. I was just wondering what need meds are available to him today if I could get him to go to the doctor. He was gen 1a the harde...
I tried Interferon with Ribarvrin twice for a total of 1.5 years. No change, in fact some things went up. After the treatment. I looked into some Chinese Medicine and with some doubt tried it. My liver enzymes are now normal and no virus in the blood. Before I had reading 3 times the normal li...
I just came across this site and am very thankful I just found it. Have been reading up on all the study participants and have found it very helpful. I am almost 2 weeks into my abbott sapphire trial and have absolutely no side effects so am pretty sure I am on the placebo arm. I'm quite disappointed eve...
greetings, just got back from hospital last night and hemoglobin went from 6.0 on tuesday to 8.7 on thursday w/2 bags of blood. wow i feel alive! at least i was smart enough to go to the er when my pulse was 110 and still hadn't gotten back my 7/26 labs. right before i left hospital my dr. gave me a sh...
Went to the doc today and after 5 shots, 1/2 week of vic, and 5 weeks of ribo, my VL dropped from over 5 million to 374,000!!! Thanking God for his good graces and I actually felt like my old self after hearing that....well it lasted a couple of hours anyway...but it was wonderful!
Anyone have any experience for me, I have headache every day. some days it hurts really bad others just dull ache -- Edited by JoAnneh on Friday 8th of March 2013 02:41:25 AM
Already posted a couple messages.. wasn't sure what to do or where to do it. I was just hoping to find out what kind of future I have. I've had Hep C for over 10 years. I haven't sought treatment because I've been afraid to add to the symptoms of depression and anxiety that I already have. I heard that some pe...
Stress & Depression with HCV Whether you completed or are currently in HCV treatment or living with the disease awaiting treatment or relapsed after treatment, dealing with the Physical, Mental, Emotional and Social issues of HCV can bring stressful events to the fore which can be a catalyst...
Hi, I'm new to this (or any) forum. My therapist suggested I join so here I am. I'm genotype 1a, viral load 6mil +, I did treatment back in 2003 but did not complete it (probably bad move). I just got so sick. Now I have fibrosis. I see my doctor on Tuesday to discuss the treatment. So for now, I'm just looking...
Hi Everyone I was diagnosed in 1990 - genotype 1b - I did 12 weeks IF in 1991 with no response. I started Boceprevir triple therapy in June and am up to week 9 but am struggling to stay on it, keep working and pretending to everybody that everything is normal. I find it really hard not to be able to let anyon...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
