I dragged myself to a 50th birthday party tonight. I had to go because I love my friend dearly. I had to leave the party to be home for my 9 pm med!s and shot, I thought of Cinderella, but she had till midnight.....lucky girl....And in the end she got Prince Charming......so hopefully in the end I will be...
I'm on Incivek and had my 4 week VL done on the first. I'm kinda discouraged cause I did not come back UND, instead my VL is 367,580. What is the success rate of people on treatment that dont have EVR?
I was recently having some discomfort when biting down. I mentioned it here and got some interesting replies. Well, I decided to see my dentist to see what was going on and got some sad news. In just 10 weeks there is significant damage to the enamel on my teeth. XRays also show loss of the material under a...
Hi everyone, just finished the 12week trial today. Found out I was on the real meds not the placebo. now the waiting game to see if the results are good. Should be good as I understand that they are getting 97.5 percent pass with the Abott meds. For anyone starting this treatment, it would have to hav...
I have been taking an iron supplement for the past few months and my GI Dr knows. I even told him that I have changed my dosing to every other day instead of everyday. He said that it was fine for me to take it everyday if I want, but everything I have read says to not take them at all. I emailed him and asked for a...
Read from ION 3 forum "erythema nodosum is probably from ribavirin" and also that patients tx with INCIVEK 53% develop BAD rash 3% discontinue due to rash. I'm tx naïve but debilitating Erythromelalgia, most likely from HCV Cyoglobulinemianeuropathy complications. Unabl...
Hello. I am a new member but not new to Hep C. I found out that I had it by donating blood in High School. I received a blood transfusion as a baby and that's how I think I got it. I took the treatment in my early 20s and in 6 months, I tested negative. Now, oven ten years later I find that I have it again :(.I'm not s...
This is a very informative site and I am glad I found it. My husband of 18 years went to donate blood the other day and they called him back and told him that he has Hepatitis C. He is 44 years old. The man at the blood clinic took another blood sample and we find out tomorrow all the details. We have no idea h...
I am new to this forum, but not to this treatment. I made my first post in the Rant and Rave section last week see Ignorant Friends.I have Hep C, genotype 1A. I just found out in 2011, and I know I've had it since about 1981 when I used needles briefly for 6 months (not heroin). I have lived symptom free for...
I have been rotating my injection sites and I always have a local site reaction (which I know is normal). My sites usual go left abdomin, left leg, right abdomin and right leg. I have noticed that my sites on my legs are discolored, almost bruised looking even after many weeks. The one on my leg leg is 5 wee...
NICE (the National Institute for health and Care Excellence) draft guidance recommends drugs to treat chronic hepatitis C in children and young peopleIn a draft guidance published 17th July 2013 NICE recommends peginterferon alfa in combination with ribavirin as an option for treating chronic...
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Hi there, Our nurse informed us that my husband's VL test came back as undetected which is great news. His VL test was done 1.5 weeks after finishing treatment and we are seeing the specialist in about 9 days to discuss everything. We are going to see if we can get another VL test done at 12 weeks. One q...
Does anyone know if its ok to cook with alcohol while on treatment? I know most of all the alcohol is cooked off, but just wanted to get others take on it...... thanks! -- Edited by nurschic on Monday 22nd of July 2013 01:17:09 AM
Hello to all, Took my last shot of peginterferon last night; six days of riba left to finish my treatment. When I was struggling through the sfx of the first twelve weeks, especially the dreadful incivek, I could not see the finish line. My hat goes off to all who are making it through longer treatment...
I finished triple therapy with Victrelis on June 12th. Received email today from the nurse: Good news! You were undetected at the end of treatment. So we will do this test again 6 months after treatment, if we get same results, you are considered cured.Have a great day, Also went to see my hematologi...
in the past 4 days i,ve been extremely lethargic and dizzy. dr. just called and hemo went to 7.6,uric acid is 7.3,ast/alt up again,73/86. he told me to only take 2 riba/day,will this resolve problem? also forgot to tell him i've been having bloody noses. i don't normally eat meat but think i should...
I have finally decided to register after lurking here for the last few months. I was told about this forum by the research nurse I see for the Abbvie Sapphire Clinical Trial. I have just completed three months of placebo and am now into my second week of the real thing.
I got really dizzy within 30 seconds of taking my injection Saturday night. It lasted for over 1/2 hour until I went to bed. I was told to take it right before bed so I can sleep off the worst of it.
Hi all,I did a post on this a year ago, but with the Trials, it seems appropriate to mention it again. I realise that many patients don't have the luxury of being able to choose their Hepatologist, but it is possible to be satisfied that you're going to get the proper level of care.For non-Trialists, you...
Hi All, I just finish wk 19 and The last two weeks or so I've been having lightheadedness. On my last blood draw at 16 weeks into Tx WBC 2.1, RBC 3.62, HEMO 11.5, HEMATOCRIT 34.0, PLAT 109, Neutrophils 1044, lymphocytes 722, and are all low and i'm not sure if this has anything to do with lightheadedness....
I am waiting for the final ok to be part of a study through BAMC Ft. Sam Houston. I am so new to everything and still learning so much about this illness. I was diagnosed last Christmas, had a biopsy done in February and the final round of blood tests should be in in the next few days to verify that I am acc...
Last night was the worst night of my life! At about 3:30 Angelo got up to go to the bathroom. He came back to bed, laid down and seemed go back to sleep. After about 10 minutes, he got up and looked lost. Of Course I got up also and asked him what was the matter. He could not answer me, a word or two that came out o...
I am a 57 years old female and was diagnosed with HCV in 1999. I contracted the virus from a blood tranfusion in 1977 in a bad car accident. My health is excellent. Genotype 1A, minimal liver fibrosis and inflammation, ALT and other liver enzymes almost always normal, viral count usually 1-2 million....
Good morning everyone! I hope today is a better day for all of you. Just wondering if someone would please describe more in details what " Brain Fog feels like"! Actually I have a pretty good idea since I have experinced it myself after stopping Xanax or right now while under so much stress...
Hey folks! i had blood drawn 3 times today! yay! (blood counts, PCR and thyroid test) i feel bit better, but still very tired and sleepy during day hours. good thing is WBC numbers are back so are thrombocytes! tho RBC/HGB/HCT are still low and i look really pale (c'mon Riba get out of my body!). Ferum...
Hi folks. Finishing up my 12 week gilead trial on Tuesday. I have been undetected since week 4. 3 prior attempt/fails with interferon/riba and the last trip tx with Vict. My question. Is there a difference between going UND on the new oral drugs I am on vs the current FDA approved Trip Tx that include int...
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i had blood drawn 3 times today! yay! (blood counts, PCR and thyroid test) i feel bit better, but still very tired and sleepy during day hours. good thing is WBC numbers are back so are thrombocytes! tho RBC/HGB/HCT are still low and i look really pale (c'mon Riba get out of my body!). Ferum...