I finished a 36-week treatment (Incivek for twelve weeks then just peg/riba for 24 more) last July. Got my SVR late January this year. Last June I rode in the MS 150 Bike Tour for the Multiple Sclerosis Society. After 63 miles on the Saturday run, I gave myself a Pegasys injection at the camp site. I didn'...
Hello everyone. My name is Jim but go by Dreamkite. One because I dream of things that happen most of the time the next day or soon after. I now know it is God preparing me for usually something bad that is about to happen. Anfd the kite is because....wel after you know me you will see I can Really get our ther...
How do you handle your Riba rage when your family and friends refuse to listen to your explanations of the irritability? I've got a surprise houseful right now and it's as if I'm in the way or needing to forget my own personal issues. My last nerve is about shot!
yippee!!!! on day 9 had my 1st test reults. vl went from 1.2million to 170. ast/alt went from 122/195 to 62/89!!!! my hemoglobin went from 11.2 to 10.2. today's day 14 and am getting rash,scalp,and bathroom issues under a bit of control. with such great test resuls i almost feel like...
I got my results back today and no one can explain them to me. Today I got another antibody test done. But these numbers are the ones I got today from last week. Hep c rna realtime pcr <1.6 HCV rna qnt realtime pcr <43 hep c pcr quant interp not detected. I requested a hard copy because I didn't underst...
Hi EveryoneNeed to communicate whith others who were on this trial, I am very aware of Abbott and Gilead developments. This incredibly difficult jouney is getting more mystifying as I emailed Abbott and they maintain that their protocol will not allow anyone who has been on a tripple therapy trial t...
As some of you know, I'll be doing the tx soon. I want to get prepared and see what supplements helped you manage the side effects. I hear that probiotics, b12 and vit D are good ones..maybe eye drops and special mouth wash. Any others? Thanks.
Hello I finished my 90 day trial on June 3. They wont give treatment numbers till everyone is finished with the trial in the US. I did receive my bloodwork back from last tx day June 3 And two weeks post tx June 17. I was undetectable at both visits. I broke through after the peg/interferon at 2 weeks post t...
Hi all, I went to see my DR today. Had a long talk with him about my TX. The DR re-explain to me how it work with TX. At 12 WK if under 1000 you stay on riba and peg and re-test at 24 WK and if {by the grace} I finally become UND then I continual for 48 WK of TX. Anyway thats info i got today. I've posted in the past abou...
Hi Friends!, Kellie here, wow, what a horrible last 5 days. I'm finally starting to feel like writing again, let alone eating, breathing, talking, and the simple act of brushing my teeth. My nausea and messed up digestive system really whacked me good. Tip: Do not take Zofran for nausea (Unless you ha...
I was in for my standard blood test and checkup and have still been declared undetected so I hope it stays that way. The ALT and AST are now normal and my Platelet count that started at 108 has now made it to 149. I have been so busy with work and baseball that I haven't had time to post. That Ribavirin sure can...
i got lite fever for 2nd day, i thought it was usual peg biz, but it's Mon nite (getting peg on Sat) and i still got fever. Went to my mom's for a dinner and she noticed i was shaking, measured body temp t was 39C (102F)! Measured it couple of time mores, all in +-0.2 range. I dont feel like i am on that high body t...
I have come to find out that if it wasnt for my knowledge of my treatment schedule and what labs are needed when and what scripts my Dr had sent to the lab I would have been getting the WRONG labs drawn at the WRONG times... here is what I mean: My two week labs and four week labs were sent to the lab office.... m...
I'm nearing the finish. I'm in week 40 undetected and feeling all the ups and downs. This hot humid weather is really kicking my energy in the ass. I had the summer cold thought I was dieing but made it though. Hang in there peeps! brian
I went for my baseline blood test today and the plan was to start the peg/rib on Friday 7/5.....ok then the insurance company is giving a hard time about the victrellis because my doctor was on vacation and the office staff did not provide the info that the insurance co requested....ugh ugh ugh...so th...
I think I read somewhere that tx can flare psoriasis. .I currently have a very mild case of it and was wondering if anyone else has it and is experiencing a worsening of the condition during or after treatment. I have not begun tx yet..just wondering.
Just got back from my fourth week blood draw, and got my first week VL results, which was 47. I had a baseline VL of 4 million. Clinical research asst said my two week labs should be coming in tomorrow or so, and she would call me. I'm genotype 1A. Feeling very hopeful!!!!
the good news is it's day 10 and 2 darts down. also i didn't get the tingles at all during the nite for 2nd shot also my rash has abated ,it's on 2/3rds of my body. here's what i need help with;burning scalp,nausea, &extreme constipation. for the burning scalp i use olive oil in my hair....
I am concerned about the treatment causing Jaundice. Does any one have experience with this one? I so hope to continue some level of working and social activity during treatment.
Friday has come and gone and still no phone call. I was told I'd have the test results by Friday. Aaahh! I'm trying really hard to be patient! I'm waiting on the results from my VL test so that's why this is so important. They said 2-3 days. The lab is open 24/7 so I didn't know if I could just call them or does i...
Did anyone on the incivek triple therapy get a baseline eye exam prior to starting the treatment? My GI Dr said that his partner just got back from a conference and they were recommending one prior to treatment. Has anyone on treatment have/had eye/vision changes during treatment?
The therapyis successfullycompleted, UND after 24 post Tx weeks and SVR.I thank all theforum membersfor their support, help andassistance, especiallyguru Malcolm.Health and luck for everyone!
Hello Folks, I am starting my tx therapy in 8 days and I am thinking seriously about starting an antidepressant prior to starting so I will know if I get any symptoms and I won't be confused about if the symptoms are from the HCV meds or the antidepressant. Anyone out there on an antidepressant? What ki...
Hello folks, Been doing some homework today, I start my meds in 8 days and I am very anxious and just want to stay busy and I discovered if you google the name of the med you are on with coupon savings after it example " Peginterferon coupon savings" in google you will find a link to sign up for th...
Hi all, This tx has been hard for me because i never stop working. Some times i think of taking a leave of absence but life is calling and responsibility are in front of my eyes. The first 12 wk were brutal and now I'm allway tired and aching all over my body. what do you guy deal with this part of this thing ca...
I know that someone needs to get viral load tests done after treatment to test for SVR, but did anyone else have to continue doing other blood work after treatment, such as CBC's or CMP's? Thanks, Carol
Well getting ready for week 40 shots, blood work and results. the rib sharpness, and brain fog along with an a hole personality resulted in me going out to camp for a few days and coming home to nothing, my wife anita had enough I guess and left. Had to deal with OPP as she was in a shelter and they confisca...
Hi everyone,With so many of our members now taking part in clinical trials, we think it makes sense to keep this section of the forum for trial participants from now on. We`ve changed the name to `Clinical Trial Participants` and anyone who is on a trial, or about to start one, is welcome to start a new t...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
