Hi everyone,With so many of our members now taking part in clinical trials, we think it makes sense to keep this section of the forum for trial participants from now on. We`ve changed the name to `Clinical Trial Participants` and anyone who is on a trial, or about to start one, is welcome to start a new t...
Hi I took my last interferon shot 3 days ago and will take my last riba pills in 2 days. I finished incivek 12 weeks ago. It was really hard, still is. Does anybody know how long does it take to get rid of the side effects? I have a bad anemia, itching, severe hair lost, depression...... thanks
WBC : 3.3 3.8-10.8 RBC : 4.37 4.2-5.8 HGB : 13.4 13.2-17.1 AB LYMPH: 795 850-3900 The rest are WNL HCV RNA : 16264 <43 IU/mL Down from 4.95 million HCV RNA : 4.21 <1.63 Log IU/mL i was hoping for an UND but these were the 4 week Peg/Riba results. Next results will include the first 4 wee...
Hey guys, Just wanted to share that my husband took his last pills this afternoon and has finished his treatment. Whew - what an absolute relief! It felt like that finish line was so teasingly close these last few weeks and it's just so good that the meds are now done. I immediately disabled all the a...
Just got results back from follow-up thyroid tests. Hair falling out, seriously in hand fulls can now see scalp and I've lost 6 lbs this week alone. I have four more shots left, this week was bad. Not sure if I had food poisoning or stomach flu but didn't get out of bed for 2 1/2 days. Couldn't keep anything...
Hello friends! Well I just got home from seeing a NP and getting blood drawn. The NP ordered a test for VL and also hep a and hep b. I should know the results by Friday! During my exam she said she didn't feel an enlargement of the liver. Yay! She did say the hep Dr wouldn't see me unless it's been at 6 months sin...
Tomorrow I'm driving down to SF for my four week draw. Still haven't gotten any labs back, but will undoubtedly get some tomorrow. Eager to hear and let everyone know what it is. RH and Li'l eddie, eager to hear what happens with you in the course of all this, as the three of us are on the 12 week sof/led...
I know I have not been around lately ,but I have not forgot about my friends going through battle. I am 6 months done with treatment and feeling great. I am walking again and playing softball. I feel like I have never been sick at all. So those of you still fighting this battle hang in there. There is a light...
does anyone know why there's a strange yellowish icon by some of my postings? what does it mean? how can i delete it for i don't seem to see it elsewhere. sandy,ucbgal
Haven't been around much over the past 4 months. I'm now 10 month post treatment, all my blood levels are in the normal range and I feel better than I have in 15 years. I'm climbing, biking and hiking daily. Life is good for this 59 year old Hep C survivor. All the best to you all still on the journey. It gets b...
Last fall at the height of my Incivek I had my boat out. Smacked a gravel bar and damaged the lower unit on my outboard and planned on having it fixed this Spring. Instead, this Spring I totally blanked out what had happened and took the un-repaired boat out a number of times. Of course it suffered catastr...
Hi all, This is week four for me. The only symptoms I feel is something that feels like mild heart palpitations in the last week. Had a few mild headaches the first week, but those discontinued. Maybe this is unrelated to the treatment. I haven't gotten any lab results back yet. The research ass...
Hey so I hope I'm posting in the right spot but anyway I don't know anything on my condition. Tomorrow is my very first Dr appointment after learning on Thursday I tested positive for hep c. Who knows, it could just be the antibodies! The reason why I'm posting is because my mom took the news well when I tol...
The journey begins .... Got the call on Friday that I've been accepted in to this study. Start date will be June 13th!My amazing clinical nurse was able to work it so I didn't have to cancel my vacation. So 2 days after we get back I check in to begin treatment. At that time I'll find out which arm I'll be on...
Hi to all I am looking for information. I have applied for disability due to many issues, depression, mood disorders and hep c. I applied in September 2008. It was denied once - then I got an attorney, who filed a "Dire Need" letter. Can some of you write your experiences, if you've appl...
We the people of the Pegasys and the Copegus order. What to do? is the question with so many issues after the drug therapy,from Chronic fatigue,Painful joints throughout the body, damage thyroid,depression,vision problems,come to find out these chemicals have damaged our brains somewhat.I hav...
I was recommended a product here called "Magic Mouthwash" by another kind member, Kellie. I was suffering from a very sore throat and Kellie's impression of thrush was correct. It looked and felt just like strep throat, very painful and difficult to swallow at all. Anyway, the mouthwash...
I started triple therapy with telaprevir. Unfortunately, in spite of a great response, rash and fatigue were overwhelming and I had to stop. 3+ weeks ago, I began standard pegasys + ribavirin as a lead in for boceprevir which I begin on Friday. Pegasys is a sustained release drug so I would assume t...
greetings, the good news is that since i stopped all that herbal stuff,for example m.t.,liv.52,and ip6, my ast&alt have lowered. my v.l. only dropped 100k. the bad news is that the dreaded rash decided to have a party on both the front and back of my torso on day3. did anyone ever get the ra...
Faldaprevir and deleobuvir with ribavirin achieves 95% cure rate in geno 1bInterferon-free combo faldaprevir+ and deleobuvir+ (BI 207127)/ribavirin achieves 95% viral cure rates in genotype-1b hepatitis C patientsNew data from Boehringer Ingelheim`s interferon-free SOUND-C3 study were...
Both Simeprevir and Sofosbuvir Likely Approved by 2014 - Clinical/Ethical/Pharmacoeconomic Dilemmas LoomAs expected, simeprevir, and now also sofosbuvir, are being given "priority review" by the FDA. With the 6-month rule under the Prescription Drug User Fee Act...that means there`s a goo...
Hello, Does anyone have information about how to manage low platelets and if there are any new studies going on for no responders? Thanks. -- Edited by JLynch30 on Monday 17th of June 2013 10:48:10 PM
I just had my blood work done, I am undetected!! My hemoglobin is starting todrop, but nothing to worry about yet. I am struggling though with side effects. MY dry mouth got so bad that I got thrush in my mouth, and even with the ambien im lucky to sleep 4 hours a night. (twins at night get up) My doctor t...
My boyfriend has hep C, he is a former IV drug user. We always used protection when having sex and never shared toothbrushes or rasors. However accidents happen. For the first time in 2 years of relation, the condom broke last night and I was menstruating. He finished inside. I read that the sperm may co...
New York State Legislature passes bill requiring doctors to offer hepatitis C tests to baby boomers Thursday, June 20, 2013 Baby boomers in New York will be offered screening tests for hepatitis C when they visit a doctor or hospital under a bill passed by the state Legislature today. The bill requir...
Thursday, June 20, 2013 FDA Approves Abbott Test for Identifying Hepatitis C Genotypes The U.S. Food and Drug Administration has approved a test manufactured by Abbott Laboratories (ABT) that identifies the genotype of hepatitis C virus, or HCV, that a patient is carrying, helping health-care p...
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