hope everyone is having a pain-free evening. went to drs. yesterday re side effect management and test results. i'm still confused about them. started w/ a 3.5 uric acid and is now6.6! i don't have gout it's the meds he said.he won't give me gout meds and am treating w/asparugus,lemon,ginge...
Hi all. I have just been newly diagnosed with Hep C - positive for antibodies and Viral load just over 4 mill. I know I would have got this about 23 - 36 years ago when battling Heroin addiction and the symptoms have just been picked up througha routine checkup with the Dr. I am 58 years but have kept really f...
What a God sent has benadryl been for my husband. He had been having so much trouble keeping food, water and MEDS down. It was breaking my heart seeing my husband like that. Holding my breath everytime he took a zip of water or swallowed his pills, for fear that everything was going to come up...and the...
Hi all, Just checking in to say hello and hope you are all doing staying hep c free or on treatment. Just wanted to let you know the day has arrived for Tom's liver surgery. We are going down to the city tonight and his surgery his scheduled for tomorrow morning. Happy to report at his pre surgical testi...
So I am a busy mom and student AND on week 7 of Pegintron and Ribosphere (genotype 3) ....the reason I found this site tonight is because I have been very irritable lately.... I have friends and family to talk to, but I'm that irritable that I don't even want to strike up any conversations with anyone, it...
So after my failed treatment this year, it is time for me to go for an ultrasound and start thinking about treatment again. I emailed my doctor a while back and he said that sofosbuvir is looking the best. I asked him if it would be with or without interferon and he said with. It was a short, quick email. My...
I had a living donor liver transplant in 1999. But now the hep c has returned bad enough to put me on the treatment, I hope. Can someone that has been on it or is on it, how it makes you feel and what is your activity level?I was doing great for almost 14 years but they said it could come back and it has. My younge...
Hello all, lovely forum. I'm a geno3a and am about 5days into tx. Peg and lots of Riba (weight based 1200mg 2Xd) Got a pretty clean bill of liver health after the bx...slight signs of steatosis, but otherwise good news. Decided to begin treatment while SVR chances are pretty favorable. First shot done...
Hi ! Nice to have found this forum :) I am French, from Paris, and have been diagnosed HCV last end of February, with early cirrhosis too. Contaminated by blood transfusion early in my life, 42 years ago. I started AbbVie TURQUOISE II trial on the 8th April for 12 weeks. Treatment ended on 1st July. My VL...
I have been so ill from this treatment, just like the other 2 times but it seems worse this time around. I getting older I guess. I was un detectable at week 12and 24. I seem to have most of the skin and the worst flu like symptoms, They have me injecting Epox to bring my red blood cells up every week as well. Th...
Well long time coming and glad it finally came for me . I had my blood&urine work done this morning and my first dose this monring. I am taking ABT-450/ABT-267& abt-67 and the ribavirin. Or I am taking the placebo and the ribavirin. I still have my nightly dose to take...but so far so good. I al...
Tomorrow morning I will take my 1st dosage of 600 mg Ribavarin, and then tomorrow night I will have another dose of 400 mg and my 1st shot...I am really on my way......funny I used to have a drink to drown my sorrows or to try to cope with a difficult situation.....a whole new day a whole new me...
I was wondering if anyone here who has had their gallbladder removed, is experiencing any pain or other side effects form it??? Its been 10 years anyway, since mine is gone, and the pain that was always to the right side of my bellybutton is getting worse, ...almost to the point of when it was first remov...
Hello! Like the subject says, I'm new to the forum and to the disease. I found out 2 days ago I was positive for hepatitis c. It a surprise, but not really. I will be celebrating one year clean (from drugs) on July 2. I always thought the drugs would kill me first so I was never really careful about how I used a...
I partipated in and put my body on the line in being involved with Interferon based triple therapy..(Alisporvir) Novartis. Is there any one else on the site who was involvef in this Kafkaesque study??
Hey out there Buds- starting week 10 tomorrow. The good news is the Incivik rash, along with the itch is gone. Now for about a week. I still have 2 weeks to take it, to make it an even 12 weeks. I just have a lot of nausea when I take it now. My face is even puffy now too. Not rashy puffy. Just like chipmunk puffy....
Just joined this group after reading many of your posts. After having abnormal Liver Enzymes for many yrs. finally DX with HEP C in 1992. Genotype 1b currently on triple tx of Interferon. Riba 1200mg daily and Inciveck 6 pills daily. Started TX on June 25. After first Injection had fever for almost t...
I start treatment tomorrow... 12 months long... do i really have to stop drinking that whole time? what about occasional drinking? i became hep-c positive because i used a syringe after an infected person... because i couldnt wait til i got home for a new one. i have so much regret built up... for mysel...
Hello! Just got back from seeing my NP. 600 mg of Riba - sphere for the next week. Dose in the a.m. She won't start me again aggressively on it until next week. Then back to the 600mg in the a.m. and 400mg in the pm. I'll start back on the Pegasus tonight after a 8 day break. No reduction. 180 mcg. Just got the ca...
I finished a 36-week treatment (Incivek for twelve weeks then just peg/riba for 24 more) last July. Got my SVR late January this year. Last June I rode in the MS 150 Bike Tour for the Multiple Sclerosis Society. After 63 miles on the Saturday run, I gave myself a Pegasys injection at the camp site. I didn'...
Hello everyone. My name is Jim but go by Dreamkite. One because I dream of things that happen most of the time the next day or soon after. I now know it is God preparing me for usually something bad that is about to happen. Anfd the kite is because....wel after you know me you will see I can Really get our ther...
How do you handle your Riba rage when your family and friends refuse to listen to your explanations of the irritability? I've got a surprise houseful right now and it's as if I'm in the way or needing to forget my own personal issues. My last nerve is about shot!
yippee!!!! on day 9 had my 1st test reults. vl went from 1.2million to 170. ast/alt went from 122/195 to 62/89!!!! my hemoglobin went from 11.2 to 10.2. today's day 14 and am getting rash,scalp,and bathroom issues under a bit of control. with such great test resuls i almost feel like...
I got my results back today and no one can explain them to me. Today I got another antibody test done. But these numbers are the ones I got today from last week. Hep c rna realtime pcr <1.6 HCV rna qnt realtime pcr <43 hep c pcr quant interp not detected. I requested a hard copy because I didn't underst...
Hi EveryoneNeed to communicate whith others who were on this trial, I am very aware of Abbott and Gilead developments. This incredibly difficult jouney is getting more mystifying as I emailed Abbott and they maintain that their protocol will not allow anyone who has been on a tripple therapy trial t...
As some of you know, I'll be doing the tx soon. I want to get prepared and see what supplements helped you manage the side effects. I hear that probiotics, b12 and vit D are good ones..maybe eye drops and special mouth wash. Any others? Thanks.
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