Today was my first appointment at the University Medical Center. I am SO thankful. As I mentioned before (I know I haven't posted in a while) the doctor I had didn't want to do anything for me just because I was "too young". So I saw my new doctor today and had about 10 vials of blood taken so he co...
Hi. I am trying to find anyone who has tried this, or any information about this treatment... mistletoe extract (Viscum album)Mistletoes are parasitic plants with a root-like system imbedded in their host to extract food and water. The extracts used were mistletoe extract (Viscum album), and ora...
Hi. I am trying to fine anyone or any information about this treatment... mistletoe extract (Viscum album)Mistletoes are parasitic plants with a root-like system imbedded in their host to extract food and water. The extracts used were mistletoe extract (Viscum album), and oral extracts of green...
I learnt about a Danoprevir trial being conducted in my city and have emailed them about possible participation....however, does anyone know about SVR rates? Is it as high as telaprevir?
Hi guys, just wanted to pop in a share some good news... Don't know who remembers me but I was infected with Hep C 1A after an unruly patient threw a bloody IV insertion needle into my thigh. I was just about to start treatment but then got very acutely ill and my doctor said to hold off becaue it was consista...
Welcome to the forum! Not sure what hemachromatosis is.. But I'm mad too that you're facing the struggle again. With the new tx offered, I hope ur Dr will have a good plan to get you cleared once and for ever! Was ur iron high during ur tx, or did that develop later? What genotype are you? Look forward to wal...
Spoke to the Dr today at the clinic that I attend. Asked about when we could expect Televipar/Incivek to arrive in Australia. He wasn't that certain but he said by the end of the year at the very latest. So thats great news but I am confused? .. When I asked him about it he was adamant that I didnt need to...
As some of you all know i am a Geno 1a 30 years old With normal Utrasounds and 1.6 AFP >Normal VL 21Million No biopsy was ordered Per dr instructions starting triple therapy this week (Tuesday i think) with Victrelis. Finally got all meds in and the victrelis will arive tuesday. I am a little scared...
Hello Everyone, I didn't post in the introduction thread not because i am rude but because i'm at a stage where i don't know yet if i have Hep C but i am really scared. Here's my story. I am 32 and i (used to) do a lot of medical trials to help support myself. That means that everytime i went for one i am tested...
This was meant for the 'Disagreements on the Forum' thread, but it is now closed. So I shall post what I wanted to say here.. Disagreements are one thing, some comments that have been made go far beyond that. For me, I have just let most of the smartass comments slide. I just prefer that some people don'...
I got approved for pegasys and co peg and the meds will be here tommorow. The dr was asked to attach a script to the victrelis app so they can approve that one aswell this was on friday and all he had to do was send a measly fax. The last few days ive been in contact back and forth with victrelis and they have re...
Hi Everyone, I just wanted to let people on the forum know that I will be doing a presentation of some of my findings from the interviews with people with Hep C, as part of an event for WHD held by Renaissance at The Cornerhouse in Blackpool (102 Dickson Rd, Blackpool t: 01253 311 431) on Thurs 28th Jul...
My Dr told me i will be on victrelis and soc for up to24- 48ks! Anyone have exp w/ victrelis? Why did he chose this over incivek? 30 yrs old type 1a tumor marker 1.6 (normal) Vl 20 million ultrasound norm no symptoms I asked him and all he said was "You will be using victrelis" However i rea...
Got a call from pegasys on approval for patient assistance which was good! Got back my Vl 20.2 mil : So as it breaks down Vl 20.2 mil geno 1a Afp Tumor marker 1.6 ultrasound normal 30 years old maybe had for ten years??? No symptoms Pegasys will be here wed still waiting on victrelis
I heard from the pharmacy today and the insurance finally approved my rx for the triple tx, after my doctor sending in the paperwork to appeal the denial. My doctor appointment is on the 29th of July, and I am NOT supposed to start tx until I see him. My 10 day vacation is alrealy scheduled, so I will probab...
I have my iPhone alarm all set w what to take... And this morning I knew by the packaging I'd messed up on Telaprevir. I called the pharmaceutical RN n she said not to worry n gave me a tip. Here's my regime:
6 am - 2 Telaprevir n 3 Ribavirin
2 pm - 2 Telaprevir
6 pm - 2 Ribavirin
10 pm - 2 Ribavirin n interfero...
Hi friends for ever i got my test results virus UNDECTED 6 mths post treatment pretty gob smacked actually .................... elizabeth -- Edited by bethland on Monday 11th of July 2011 11:55:46 PM
Hey guys, i need help and advice on wheather or not i should start treatment with the interferon etc. I have heard nothing but horror stories about the side effects and the long term side effects. My fear is that i will be worse off with the treatment than if i dont do treatment at all. please help!
Hi all, I was wondering where to post, since i'm not on treatment. Would like to exchange the aches and pains of this virus as well as information about remedies and other alternative health care while in limbo land. Any ideas? Thanks, Iris
Hello there. I hope this note finds you all in good spirits and feeling well. Had some new input on my situation and just wanted to bounce it off of ya'll and see what real people had to say about it. Have gone over it all with the good doctor and then did some research myself online, now just wanting real...
Gail has been banned because some people have been receiving some very disturbing pm's from her, which we have been made aware of. If people are being intimidated in this way, then we have to put a stop to it.Hi all, don't drop by here that much anymore, life, work, an incredible wife and children, dema...
hello everyone i had my final PCR yesterday .........it came as a surprise as it was 2 wks before the date i had in mind ,when i recieved the slip in the mail it was already days past the date the doc had set so i rushed off to Fremantle and had the last blood work to mark the end of this long long epic journey tx....
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