Greetings All! Has anyone taken Xifaxin for amoninia levels and brain fog? My doc just prescribed it and its very costly! Can i please get feed back and info! Thx
Right, it's been 2 weeks since my last shot and 1 week since the final Riba's. I feel much, much worse than before! The rash is getting unbearable, I type this at 4.30 am because I can't sleep, have not slept properly for a week and the pains in my stomach drive me crazy. They never mentioned this at the Hosp...
Is there anybody on this forum that is being treated on triple x therapy ( Incivek) over 60. My husband is being treated and so far so good but just wondering if anybody on this forum or if you know anybody that went thru this that is over the age of 60 - Thank You
Hi Faiv and Welcome. I have edited your post as we generally prefer people to consult with one of the mods before asking people to participate in online surveys. I am sure you can appreciate that often people are undergoing treatment and can be unwell and this is a measure we feel the need to undertake...
hello all wel my time is getting closer im having 6 months post tx on the 28th nov,i am so scared cant get it out of my mind. Other post tx that were doing there 6 months did they feel the same,im always saying to other ppl dont worry about something that hasen happen yet,wish i could take my own advise.Im eve...
Entering my 12th week of treatment, last one for Incivek. I'm an avid skier, today will be my first day, wish me luch. I'm sure the anemia will hurt, but have to try.
Happy Thanksgiving to everyone. I'm very grateful to be here and I'm thankful for all the help and encouragement you have given me during this journey. Hope everybody has a great day! Thanks!!!!!!
I laid down for a bit this morning and woke up to a gigantic face, eyelids so swollen!!! I've noticed a tightness lately in my legs and feet....but my face was horrific!! It's been a few hours now since that incident and I'm almost back to normal, but my eye lids are still swollen. Is this the swelling me...
Can someone please list ALL the drug companies, that have programs, to assist people who do not have insurance or cannot afford the med. I went to Merck. And Vertex. See.... I found a place that will pay for my hep medicine. BUT I cannot get a d*** dr to write me a RX of the medication that I need. She said In...
A couple of years ago, a very close friend told me something I still cherish to this day: "The next time you're feeling sorry for yourself, spend a week working on your problems.Then, spend a week helping someone else with real problems.See which one makes you feel better!"Thanks to all w...
Hi everyone, I hope the battle goes well. I am just now seeing a wonderful benefit that I suspect is coming from my TX. You see, I love to rock climb, but over the last few years, I began to experience bad arthritis in a long ago injured knee. NOTHING helped much. Drugs, therapy, etc, just kept it barely u...
I know it is still early days for us here but thought it might be worth generating a discussion to find out how people feel about the prospect of us going public at some point? Personally, i think the decision whether to go public or not, is down to all of us. Any feedback appreciated!! Love and hugs Hxxx -...
Hi everybody. I have studied this TX, and disease for hundreds of hours, but have found little on our susceptibility to other illnesses. The nurse at my infusion svcs. said to be careful when she learned there is a 2 yr old in the house. She said it was possible to catch the actual disease from the child...
Hi folks, well it`s been a long wait but I finally got my 6 mnth PCR results today and heard those 3 little words I`ve been waiting for...SVR! So that`s it - no more blood tests, no more hospital appointments or follow ups, finished, finito, done and dusted! Thanks so much to all of you lovely people who ...
Well I had my 4 week blood drawn on 11/3 it came back undetected. So I have another one to do around 12/1 and if it comes back undetected I will wait and do one more at 4 months later which would be my 6 month one. Fingers are crossed. It's amazing how slow time goes when you want to fast forward it. When I am no...
I had my 2nd liver biopsy since being diagnosed in 2004. The first biopsy showed Grage 2, Stage 1. I had stopped any drinking about a yr prior, and was living a pretty healthy lifestyle (vegetarian, non-smoker, athletic, etc). In 2008 I tried the 2-prong treatment for a week. Had a really bad reacti...
Since end of June I have been off tx. It lasted a whole month...Thanks to the Mayo telling me I'm better off waiting till I start staging.Oh the best part is the doc told me I may never have any staging and live life with this demon,seeing I am in the 30% chance range of staging, I guess that's going to mak...
Has anyone been tested to see what IL28B genotype (CC, CT or TT) you belong to? It seems this is a fairly new test only performed by some labs. I see there is a new clinical trial to see if 12 weeks of total triple tx with Incivek will cure those with the CC type. Does anyone know if these all in the Genoty...
Hello guys and girls wel im 5 months finish tx were i feel a lot better since tx i still dont feel myself,i got a cold and really went down with it, were before i could fight now i dont feel like i have much energy i am trying.Is it post tx and how long untill u feel altogather better after tx.Im not sure what to...
Hello Everyone, So I'm a few days out from my last dose of medication, been little over a week since the last shot. I was treated for type 3 for 6 months with Interferon and Ribavirin, I feel like I handled the treatment very well physically, I went from a viral count of 10mil down to 43 after the first month...
Hi guys, I have quite a complicated story so thanks in advance for your patience. I am originally from the UK. Whilst travelling in Australia I was diagnosed with Hep C during a routine screening for a clinical trial I was going to undertake by GSK for money. I am a low risk candidate for Hep C and have neve...
Hey all, I'm looking to see if there is indeed a link between SVR and how you manage your diet and lifestyle during tx. Please list whether you a) smoked b) drank alcolhol c) ate a healthy diet d) treatment outcome thanks Nikki xx
hi everyone! i have had hepc1a for around 20 years or so and been fighting to get rid of it for ages. i refused the traditional treatment but my liver enzymes were around 86, viral load around 168,000. i decided to give making my own concoction of herbal tea a shot. i took organic olive leaf, organic roast...
My husband is on his 3rd day of treatment. He is horribly sick, nauseated and vomiting. Of course being the weekend, we cannot get a Rx for meds. What can I do to help him?
hi everyone, havent been around for a while trying to get back to a normal life,but whats normal! I am now 3 months post tx, got alot more energy back, hair still falling out but not as much, noticed last week that hair has started growing back alittle,ive got alittle mohican thing going on on top! The onl...
I would like to update all you guys that I just received 3 months post TX blood test yesterday. It's "UNDETECTED". And AST 48 & ALT 48. ALT significant decreased from touch highest 298 while I was on the treatment. I feel so happy now. I hope this topic will be the inspiration for those who...
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