Hi all,This article from the latest 'Journal of Hepatology', shows that some interest is now being placed on assessing quality of life (QOL) after SVR. http://www.journal-of-hepatology.eu/article/S0168-8278%2815%2900326-8/fulltext The whole topic of symptoms of HepC (physical, mental...
after 10 yrs of drug use my daughter finally checked herself into drug rehab. It has been hell. She just called from facility crying saying she has been diagnosed with Hep C. I just looked it up to get info On it. I'm thankful she has finally realized only she can help herself but I need advice on what to do a...
Hi guys I had a question. Did 8 wee of Harvoni and I've been off for 3 weeks. I am undetectable. My doctor suggested that I don't take any workout supplements until after 3 months after treatment. I have had some mental fatigue and was wondering if CoQ10 natural energy supplement was ok. It's naturally...
Being that I have like 8 pills left, all labs excellent , and no appointments for 3 months I am returning to the Circus and will be joining the them , next stop Montreal . All I missed of the tour were the last 5 days in LA but they were special performances and showed that our fearless guide is also m...
Got my Gastroscopy done this morning and the gastro doc said no damage, everything is normal and I'd see him for a repeat in 3 years. This sounds pretty positive, but wondering how others have made out with their gastroscopy's? What exactly are they looking for? Bleeding veins? In the stomach? In the...
I've read a couple of posts on fibroscan scoring and am very pleased to hear that it can improve past treatment. I had one today and I tried to sneak a look and thought it said 15.5 kPa Which I think is quite high and now I'm worried. I have read conflicting scores that indicate cirrhosis. 12.5, 14.7 and 17....
Hi All, It's been a while since I have lurked these pages. I hope to find everyone here having good results. Tom is still on harvoni and doing very well. His count is still 0. We went back to Mt Sinai 6/11 for what was to be his last liver CT scan. From there he would begin to go every six months for an MRI o...
Greetings, My career has taken me to many different countries. Fond memories are held for some while others led to a "there's no place like home" moments. Now I find myself here with you,... traveling a very important highway. Lot's of curves ahead I can see and depending how traveled the...
I want to make sure that I'm doing everything I can to get the full effects of Harvoni. This is my chance for a new start. Five months ago, I tried IV drugs for the first time. Two months later, I felt sick and told my doctor to test me. I just knew. As soon as I transitioned from acute to chronic, I pushed my G...
Just checking in to share what's up with me. I certainly hope many here reading this have cleared and those that have just cleared or are on Treatment get something positive from this post. I am cirrhotic , hence my being I the turquoise trial to begin with . I went thru 24 weeks . My hepatolgist has taken m...
My RBC has gone up a touch as well as my Hemoglobin. My platelet count has now come into a low normal from 95 before start of treatment..it was 135 4 weeks ago. My Conjugated Bilirum has gone up from 6 (normal) to 8 since my 4 week test...I'm not sure why or what this means. My AST remains a bit above normal at 3...
If you are interested in being part of a Hepatitis C support group, please send me a message. We are working on starting a group in Portland to share information, our knowledge and experience, and how to get help with starting treatment. Rubye
I'm back from the city that doesn't sleep. Had a tiring, run off my feet, two broadway shows, Century 21 shopping, hot dog eating week and now it's down to business. I figure I have 2 or 3 weeks to initially clear the dragon, and then it will be gone, hopefully forever! Officially start week one tomorrow...
Fun and games guys. I've had a few chronic illnesses throughout my life. Psoriasis, Psoriatic Arthritis, Epilepsy, and newly dx'd with HepC. Can't get much luckier than that I guess. I tested positive for anti-bodies in November 2014, with a Viral load of 6.35 million IU/M1 just a couple days la...
Well gotta say i am so bloody relieved i had be final injection #48 now its time to reastablish my sanity and rebuild my fitness . it has been one hell of a journey to say the least i can now start hearing and understanding my wife and have plenty of time for my 2 year old little girl . i would like to say thankyo...
Happy Independence day to all .... I have watched the Harvoni Commercial being advertised in the United States "I am Ready for Hepatitis C Treatment:" This commercial advertises that Harvoni is a 12 week treatment program, and some patients may be cured in as little as 8 weeks. Since my d...
Hi, I have had Hep C for 25 years + and am waiting for new treatments like Harvoni just like many others are also waiting for this treatment who alo have Hep C. I have recently come across this petition online that somebody has started recently. The petition will be put to the government so that all peo...
New Hepatitis C Treatment Needs No Antiviral Boost Release Date: July 1, 2015 FAST FACTS: A study of nearly 2,000 patients showed that adding ribavirin to the combination of ledipasvir and sofosbuvir had no benefit in treating hepatitis C. Patients taking ribavirin along with the combination we...
Hi folks, are any of you experiencing problems with your posts seeming to `disappear` after you`ve posted them, only to reappear later on? And if so, could you tell us which browser you are using, please? There seems to be a technical problem going on and we`d be very grateful for any feedback.Thank...
Finally after waiting 2+ weeks got my post 12 week results my Dr. emailed me back NO VIRUS. I haven't got it in writing but I emailed her back to get it. I want to say again thank you Its been me, my wife and you guys getting me thru, this was a godsend. I know I haven't added a lot but ill still be in the wings s...
Hello everyone, I just stumbled upon your forum and enjoyed reading your posts with each other. It's so nice to see such support. I am 53 years old and the mom of two young kids. I had them in my 40's and had such fatigue after my daughter that the doc ran an arbitrary liver panel. That's how they found HCV in...
Hi all, I am now post treatment with an undetected viral load. However, I still have kidney involvement which is listed below in my signature. I will be seeing my nephrologist at the end of the month. My GI doctor said the Hep C treatment would halt the progress of the kidney disease and eradication...
Hi all. Looks LIke Im SVR.. WOOT me. platelets lowish at 117, all metoblics normal, FibroSure F2: down from F4 last year. WBC are 4,5 but I was on prendisone for 5 days do it went up 0.1 , So Im thanking God ; and All of you for putting up with me. I really dont give alot of creadence to Fibrosure , but Dr does....
I have been ot for 1 week now and so far no bad side effects...just wondering IF you are going to have any side effects would they be in the beginning of treatment...or possibly later on?? Your thoughts???
Called same # as given last Wed. when I was told about not qualifying for help on my second mo. worth of Harvoni. This time the person that I talk to was quite disgruntled that I was told I did not qualify for assistance and that I was also taunted with "too bad if you have to stop treatment." Tod...
1/2 way into my 12week Harvoni treatment I noticed a major life change. I started to feel a new certain overall wellness. Since I got sober 20 years ago I have slept horrible. A lot of mornings I woke up feeling worse than when I went to bed. Im talking about a feeling of being extremely tired in the head. Al...
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