So I had my 3 month transplant labs and MRI this morning, and I just got the call I have HCC 1.7 cm in the right lobe....if I could swear here I would, but I guess that's life, no good news is free......so I thought I was gonna beat this bastard of an illness, but it's got bound and determined to get me, I guess...
OH BOY (insert happy dance here) HVC NOT DETECTED!!!!!!! AST 14 ALT 11 My sodium came back 1 pt low 134 and MVP was marked low at 7.4 one tenth of a pt low Platelet 209, sugar a little high 113. I'm a happy camper :) :)
Hi Everyone, wife and I just returned from our Mexico trip and I have been off Vikera Pac for a month. While down there I got red tiny blisters on top of my tan. Started along both my biceps and worked it's way across upper chest area. They seem like blisters. They have subsided now and have dried up. They w...
Hi. I just started my treatment with Harvoni + Ribavirin 12 weeks today. I'm in the UK. I was wondering if anyone here has taken Harvoni while also taking Ursofalk (and Propranolol). Ursofalk is ursodeoxycholic acid, which might be a different brand in the USA. I was reading something about antacid...
Hi, I have just completed 7 days of treatment today and am pleasantly surprised that I have had absolutely no side effects. I just feel like I am taking a few more vitamins. It is truly amazing. I thank God for this opportunity to be in this trial. I was very hesitant to start this as when I got the cal...
Hey everybody, its actually been 4 years or more since I posted. Hepc geno1 . So I was very positive about the treatment and in the spring of 2010 or maybe end of 2010, started peg interferon with Victrillis. First let me say I had almost 9 years as a recovering addict. 3 months in, coming up negative, b...
I am surprised things are so quiet on the 3 forums I view. Not at all like it was in 2007. Post after post. I interpret this as 1 of 2 things: 1. Things are just quiet in the summer 2. The new drugs work with little/mild side effects. I hope it is #2! dm
Hello all, Just finished my 2nd week of Viekira pak with riba. So far not too bad... although I constantly feel like I am going to jump out of my skin. Very anxious. But waaaayyyy easier (so far) than interferon/riba. Anyway, hope to learn lots here. Vierkira is so different from previous soc. L...
Hello Everyone, My 12 week EOT labs are this week. Are they still considering people to be "cured" if they are undetectable at 12 weeks after treatment? Thanks, Lon
Hi all,This article from the latest 'Journal of Hepatology', shows that some interest is now being placed on assessing quality of life (QOL) after SVR. http://www.journal-of-hepatology.eu/article/S0168-8278%2815%2900326-8/fulltext The whole topic of symptoms of HepC (physical, mental...
after 10 yrs of drug use my daughter finally checked herself into drug rehab. It has been hell. She just called from facility crying saying she has been diagnosed with Hep C. I just looked it up to get info On it. I'm thankful she has finally realized only she can help herself but I need advice on what to do a...
Hi guys I had a question. Did 8 wee of Harvoni and I've been off for 3 weeks. I am undetectable. My doctor suggested that I don't take any workout supplements until after 3 months after treatment. I have had some mental fatigue and was wondering if CoQ10 natural energy supplement was ok. It's naturally...
Being that I have like 8 pills left, all labs excellent , and no appointments for 3 months I am returning to the Circus and will be joining the them , next stop Montreal . All I missed of the tour were the last 5 days in LA but they were special performances and showed that our fearless guide is also m...
Got my Gastroscopy done this morning and the gastro doc said no damage, everything is normal and I'd see him for a repeat in 3 years. This sounds pretty positive, but wondering how others have made out with their gastroscopy's? What exactly are they looking for? Bleeding veins? In the stomach? In the...
I've read a couple of posts on fibroscan scoring and am very pleased to hear that it can improve past treatment. I had one today and I tried to sneak a look and thought it said 15.5 kPa Which I think is quite high and now I'm worried. I have read conflicting scores that indicate cirrhosis. 12.5, 14.7 and 17....
Hi All, It's been a while since I have lurked these pages. I hope to find everyone here having good results. Tom is still on harvoni and doing very well. His count is still 0. We went back to Mt Sinai 6/11 for what was to be his last liver CT scan. From there he would begin to go every six months for an MRI o...
Greetings, My career has taken me to many different countries. Fond memories are held for some while others led to a "there's no place like home" moments. Now I find myself here with you,... traveling a very important highway. Lot's of curves ahead I can see and depending how traveled the...
I want to make sure that I'm doing everything I can to get the full effects of Harvoni. This is my chance for a new start. Five months ago, I tried IV drugs for the first time. Two months later, I felt sick and told my doctor to test me. I just knew. As soon as I transitioned from acute to chronic, I pushed my G...
Just checking in to share what's up with me. I certainly hope many here reading this have cleared and those that have just cleared or are on Treatment get something positive from this post. I am cirrhotic , hence my being I the turquoise trial to begin with . I went thru 24 weeks . My hepatolgist has taken m...
My RBC has gone up a touch as well as my Hemoglobin. My platelet count has now come into a low normal from 95 before start of treatment..it was 135 4 weeks ago. My Conjugated Bilirum has gone up from 6 (normal) to 8 since my 4 week test...I'm not sure why or what this means. My AST remains a bit above normal at 3...
If you are interested in being part of a Hepatitis C support group, please send me a message. We are working on starting a group in Portland to share information, our knowledge and experience, and how to get help with starting treatment. Rubye
I'm back from the city that doesn't sleep. Had a tiring, run off my feet, two broadway shows, Century 21 shopping, hot dog eating week and now it's down to business. I figure I have 2 or 3 weeks to initially clear the dragon, and then it will be gone, hopefully forever! Officially start week one tomorrow...
Fun and games guys. I've had a few chronic illnesses throughout my life. Psoriasis, Psoriatic Arthritis, Epilepsy, and newly dx'd with HepC. Can't get much luckier than that I guess. I tested positive for anti-bodies in November 2014, with a Viral load of 6.35 million IU/M1 just a couple days la...
Well gotta say i am so bloody relieved i had be final injection #48 now its time to reastablish my sanity and rebuild my fitness . it has been one hell of a journey to say the least i can now start hearing and understanding my wife and have plenty of time for my 2 year old little girl . i would like to say thankyo...
Happy Independence day to all .... I have watched the Harvoni Commercial being advertised in the United States "I am Ready for Hepatitis C Treatment:" This commercial advertises that Harvoni is a 12 week treatment program, and some patients may be cured in as little as 8 weeks. Since my d...
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