Hi all, I was hoping some of you could tell me how bad the side effects were/are for you. I did the whole interferon thing 5 years ago (with Ribavirin) & that was awful. I had a migraine the entire time. Im very sensitive to side effects, so please if you all could tell me what to expect I'd appreciate it...
Hi Everyone, My GI called today with my 12 week EOT labs. I'm still undetectable. My GI said my next labs will be in a year. Thanks everyone for all of your help and support. Best Regards, Lon
Hi all, I am wondering if anyone experienced an elevation in WBCs and Absolute Lymphocytes? Between week 4 and week 9 my wbcs shot up from normal to 17 and lymphs to 12,000. Very odd. Saw doctor and will be following it, but wondered if anyone else had this reaction. Thanks, Maura
I have browsed here as a guest for about a week now, and if I had not stumbled on this forum my state of mind would surely be gone. No words can convey my gratitude toward each and every single person here. A very dear best friend of mine was diagnosed with Hep C a week or two ago. Everything I read tells me I...
Hello friends, I am wondering if anyone on the Harvoni train is experiencing slow but steady weight gain. I am eating normally and continuing to gain weight with each week. I am in week 6 of treatment. I'm wondering if I should expect more gain so I can adjust my diet accordingly. I do not have any strong c...
I've been getting updates from this blog, authored by Greg Jeffreys. He's the guy that documented his travels to India in search of new treatments and DAA's. Very interesting and I know you'll find his journal fascinating. There are a lot of different topics. He's a great advocate for all with this di...
Hey all, Just wondering what times you take your meds. I was taking mine exactly 12 hours apart , but then realized it didn't have to be 12 hours. Just am and pm. I have been carefully monitoring how I felt after dosage and found that the worst I felt was an hour through 5 hours after taking my a.m. , 3 riba...
I found out yesterday that after 40 years with HepC, having a case of early cirrhosis helps in the approval process with Medicare partD. I'd have been unable to afford it without a grant from the Patient Access Network Foundation though. As it is 12 weeks of it costs right at 100K. My copay is 7K with M...
Hello! I was wondering if anyone has any information on Harvoni clearing up skin lesions. About six to eight months ago I developed a small (about 1/2 cm) whitish patch of skin on my chest that would occasionally flake dry skin. About 2 months ago this patch of skin began to raise up, got red with a bum...
I hope everyone is doing well . Just wondered if anyone wears gloves when they wash their dog. Its a heavy flea summer in Eastern NC. The drops arent working well, and dog needs an oatmeal flea bath. I didnt use gloves last time but now I wonder ; how much of the chemical use to treat fleas will I absorb throu...
Hi and a warm welcome from the Admin Team! We hope you will find this forum helpful, informative and easy to use. This is a very friendly and supportive group so do feel free to start a new topic to introduce yourself and join in with the discussions if you so wish.If you have a look around the forum you`l...
Hello everyone. Found this forum today. I live on the Big Island of Hawaii. I've been aware of my status for about fifteen years. Genotype 1a carrier. I chose not to pursue the old Pegasys combination therapy which many of you probably know was none too effective for those of us with 1a. After being deni...
I am genotype 2. My Dr's are looking into another treatment for me since I have relapsed on Pegasys and sol/rib. They talked a little about sometimes the medicine tricks the body thinking that it is gone. I didn't understand that at all. Anyways they have given me a month of and In September they will h...
I took a Harvoni with the night rib last night because I am an idiot - anyone ever take 2 in fine day by accident. I feel fine, I am just wondering what you did about the next dose.
Hello forum members. I am grateful to be accepted in this community and would like to introduce myself. I am Jake, 57 years old US expat (former-I never returned) living in Amsterdam, Netherlands. I have HCV genotype2, HIV+ and stage 4a cirrhosis. In the 1980's I experimented with int...
Hi Everyone, I was looking for some information on Harvoni and came across this rather comprehensive PDF file related to it from the University of Washington. I liked all of the ION trial data and the various reaction studies that were mentioned too. It's a lengthy read, but answers many questions, t...
Bristol-Myers Squibb Company announced today (24 July, 2015) that Daklinza (daclatasvir), an NS5A replication complex inhibitor, has been approved by the U.S. Food and Drug Administration (FDA). This approval marks the first time patients with chronic hepatitis C virus (HCV) genotype 3 have...
I would have waited for the new drugs that cured me. Hi Folks. haven't posted on here since i got cured of Hep C 2-3 years ago. I had 4 years of 4 Tx atttempts with the 4th curing me with the newer experimental drugs. The first 3 years included interferon and ribavirin. I had a zest for life and a great libido b...
hi all, I ned to hear people's experience after harvoni. I am struggling on day 12 and considering stopping. Do any of you that were cirrhotic had HCV for over 35 years, did interfron or similar and failed, feel physically better after the 24 weeks? also, have any of you had a zero viral load after 3 mont...
Hi all. Thought I had better start a new thread. Question - I know when I get results for last bloods that they will likely say they will do next VL at 24 weeks. So is the newer protocols say 12 weeks? Just want to prob push for an earlier Vl rather than wait that long - 24 weeks on treatment was hard enuf waitin...
So the day after Boceprivir commencement. Brain fog seems more pronounced. Feel like I have even less get up and go. Bad taste in mouth. Don't feel like eating at all. That is it at the moment. Does anyone relate to the above ? Can I expect it to get worse or will my system become accustomed to the additi...
Well I got my 1 year SVR recently so today I cleaned out my med cabinet. Like many other old timers here I bet I had a bunch of those "this is supposed to work or this might help" bottles of stuff. Goodness I must have thrown out 10 bottless of this and that. Only one I kept was the milk thistle and it...
I finished up 12 weeks of Harvoni on May 7th and have been non detectable since the first blood work was done two weeks into treatment! YAY!!! The very mild side effects I experienced at the beginning of treatment such as light sensitivity and headaches were gone within the first couple of wee...
I went to my dr's office today and demanded to see my test results and to keep a copy. They made me see one of the walk-in clinic doctors, since he wasn't there. Not sure why all the fuss. I said I wanted to know my genotype- she didn't know what I meant... Finally I said I just wanted to see a copy of the test r...
My great Dr sent me an email that he visited this site. He said he found it be be fantastic and informative. So i wanted to pass that on.
I did my labs today and should have results. By the end of the week. I. Am now 23. Pills to the end and by just how i feel i am confident i am in a great spot.
Onve again i am very t...
Curious about exercise and hep c. Although I have been walking on a treadmill for many years I just don't have any stamina. I took a pilates class last year and could not hack it. ten minutes in, I would get nauseous, lightheaded and a weird sweat on my forehead, blood pressure spikes the rest of the day an...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
