Hi guys, I'm new here. I'm a baby boomer who was diagnosed in 2000. I've been waiting many years for these amazing drugs to come out. This has been a wild and exhausting experience,but I was approved recently for Gileads' PAP. I didn't think it would happen(many times). I had to start over a couple of t...
Hi all, I'm a newbie, genotype 1(b), with a fibrosis range of F2-F4. I was prescribed a 24 week Harvoni regimen, and I've got a question for the forum. I'm hoping someone can help me understand after being summarily dismissed by my hepatologist with the suggestion that I just not pay attention to lab re...
My boyfriend was placed on a 12 week treatment of Solvaldi/Ribo for his type 2 geno. He has 10 days of treatment left but at the last visit they told him his count was not where they expected it to be. He is not one to ask any questions and has no idea what his viral load is or was. His doctor doesn't provide hi...
hi all, I am kind of recycliing previous concerns but anyway..I'm about 5 months post tx and while most sides have diminished i am still finding myself increasingly vulnerable to fits of rage and irritability. i experienced this on a small scale toward the end of my 48 wks but now feels amplified since...
I'm on day 8 of a 12 week stint on Harvoni. It's still really early to tell if I'm going to have mentionable side effects on this drug, but comparing it to the SE's of meds I've had to take for joint pain and skin problems, this stuff is almost as mild as acetaminophen. When I stay active I don't even have a pr...
this afternoon I was out mowing the yard and thinking to myself , I sure would like to have a Bloody Beer (spicy v8/beer) but I had to remind myself not any more.... but then I got to wondering about a Odouls style near beer and if it would hurt my liver?? any thoughts???
A long article on the history of and effort to get people in for testing and treatment. I found the article to be very telling of many of the situations we all found ourselves in at one time or another. The behavior, the stigma and the fight to get treated. I think you'll find this interesting. Healio is a g...
We had blood dawn on 8/17 for our 1st VL count since prior to SOT. I'm so anxious to see results. Can anyone give me an idea how long it takes for results? The lab guy thought we'd see something yesterday. No biggie, just anxious... Penny -- Edited by Penelope PePod on Sunday 23rd of August 2015 01...
After rescinding breakthrough designation earlier this year, the FDA re-established two new designations for an oral combination tablet of grazoprevir/elbasvir for the treatment of chronic hepatitis C virus infection genotype 4 and genotype 1 with end stage renal disease on hemodialysis, ac...
This message is for Tig, specifically or anyone who has statistical data. Ok I took 8 week harvoni treatment. I am 9 weeks post treatment and am undetectable with ALT 24 AST 26. What are the statistics I will successfully achieve SVR? The only reason I am concerned is because I still feel a slight tender...
My husband is less than two weeks to finishing treatment on Harvoni. My question is how long after treatment does he have to wait to go on major natural vitamins. I went on Thrive which is mega vitamins, minerals, and everything else under the sun after Viekira Pak and got my health back really quick....
I've never wanted to get my hands on drugs this much since the 1970's and literally could not wait to get started. The first and second night I had trouble sleeping; it felt as if adreneline was surging through my body. After 2x peg-interferon/riba treatments I was sure I could deal with any sides, b...
Hi there! Well this is going to be fun and I'm really happy about finding this group :) I have genotype 3a and have probably had it since early 70's drug use :( I was diagnosed with Porphyria Cutaneous Tarda (stores iron in your liver and causes skin lessions) in 2003 and the doctor decided to rest for He...
I realize this might be a touchy subject for some and a legal and ethical issue for others, but I have been reading around the web and some people say that marijuana helps the liver and some sources say that is causes fibrosis?????????? not try to start a legal argument or any nonsense, just want honest...
Good News First! I am a 2X Non-Responder and have been on Harvoni for 60 days. I was told today that my viral load is down to 15 from 1.8Million!! Basically, undetectable. I have an appointment in the morning with my doctor. While I am very happy, I am a little reserved, until I hear it straight from the hor...
Dear Folks, I started this topic around 9:30 am and just as I was getting ready to submit, my power went out :( We got 5 1/2" of rain yesterday.....can't believe it didn't go out then. The power company said it would be several hours before restored so what better reason to go and spend time with...
Hi, My name is mike I am a 42 year old male , I recently did a biometric screening for some life insurance and I was told I got disapproved, so they sent me the copy of the Labs and it show I tested positive to HEP C, I went to my primary care last week he referred me to a Liver specialist , I am waiting to see him, m...
HI, I wondered if anyone can tell me what the normal dosage is for ribavirin per day? I know my Dr. goes by weight. Yet I am in some other groups where many people who weigh more than I do are taking much less than I am and with the same gentotype. I do not have cirrhosis either. Could anyone explain why t...
Hello, my mother has Hepatitis C genotype 1b. Last time she was tested, I think it was about 4 months ago, her viral load was 6 million UI/ml (I realise this is still considered high, but her previous loads were even higher). About a month ago, on a whim, and because her specialist was on vacation (and sti...
I called my pharmacist n she asked me the brand of herbs n the name of the formula n she looked it up n said it was OK to take w Harvoni. It has berberine in it n I saw someone say they stopped using there berberine while taking Harvoni. So far I only took the herbs one day then I quit it. But I am taking a advanc...
I usually took my pill at 9.30am, however by mistake I overdosed at 8.30pm (because that's when I take my 2nd of Ribavirin, accidentaly took a Harvoni too) so then my time Harvoni time became 8.30pm. Basically an accidental time change. 1) Did you change the time you took your Harvoni? How? Did you ove...
Hi Dragon Slayers ! Hey...I am on my second Abbvie nurse now as of last week. I have asked her also the golden question: What do you consider "cured" ? She stated that the FDA and in conjuction with AbbVie considers EOT+12 weeks the standard. I think this probably has been touched on elsew...
Good morning, I just returned from my EOT Doctor appointment, my blood test has been returned as VL - UNDETECTED. Doctor says: my status now is virus cleared, next blood test is 08-01-2016, if UND at that time my status will be virus Cured My new Doctor's orders for the next year are to: (1) do not gai...
Hi, I am a Kidney patient on maintenance dialysis. I caught HCV 2 years back. I am taking Sofosbuvir and Ribavirin. This treatment is not recommended for Kidney patients. However my doctor and I decided to take chance. After four weeks of treatment, HCV PCR quantitative shows virus undectable and se...
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