Hi everyone, We`re very pleased to announce that Mike (wmlj1960) has agreed to join us on the Admin team as a forum moderator. As many of you already know, Mike has been a valued and respected member of this community for a good while and we appreciate how helpful and supportive he always is to others, e...
Hi everyone, My name is Karina, I'm from Toronto(Canada). In Nov.2014 I was tested positive for HCV. It took me so long to see liver specialist, finally in June i saw him, and he told me that OHIP will not cover me, cause I'm only stage 0. What does it mean i had no idea. I did fibroscan on July and got 4.4mar...
Hi folks! Long time no see. I recently had my standard check up, testing C panel and a1c, (still in the pre diabetic range) They also did a viral load. Since I have been having this test (first one was in 1999) the range has always fell in the millions. From the low 1 millions up to 3 million...It always went...
Hi Only 7 days of meds to go! At 4 weeks there was no detectable trace of virus and at my last appt on August 4th they said it takes them a while to get the results back. I guess with a clinical trial all blood work goes to the lab conducting the trial and then it's sent back to the administering hospital or clin...
This is a frightening statistic! Consider there are approximately 3-4 million cases of reported chronic HCV in the USA alone. If the CDC is correct and this number of acute cases goes unreported, of which 75% progress to chronic HCV, the number of people with chronic HCV is not going down, but up at an a...
Well my nurse called and told me I was undetected... but after careful reading and research , I see that my printed results say "hepatitis C Quantitation <15 IU/mL HCR RNA detected.Technically this is not UND... correct??and a question - is the qualitative test the one that can tell y...
How important is it to get a 24 week test. I was clear at 14 weeks eot. I can ask my pc for test but will not go back to gastro doc. She was the worst.
Hi guys, I'm new here. I'm a baby boomer who was diagnosed in 2000. I've been waiting many years for these amazing drugs to come out. This has been a wild and exhausting experience,but I was approved recently for Gileads' PAP. I didn't think it would happen(many times). I had to start over a couple of t...
Hi all, I'm a newbie, genotype 1(b), with a fibrosis range of F2-F4. I was prescribed a 24 week Harvoni regimen, and I've got a question for the forum. I'm hoping someone can help me understand after being summarily dismissed by my hepatologist with the suggestion that I just not pay attention to lab re...
My boyfriend was placed on a 12 week treatment of Solvaldi/Ribo for his type 2 geno. He has 10 days of treatment left but at the last visit they told him his count was not where they expected it to be. He is not one to ask any questions and has no idea what his viral load is or was. His doctor doesn't provide hi...
hi all, I am kind of recycliing previous concerns but anyway..I'm about 5 months post tx and while most sides have diminished i am still finding myself increasingly vulnerable to fits of rage and irritability. i experienced this on a small scale toward the end of my 48 wks but now feels amplified since...
I'm on day 8 of a 12 week stint on Harvoni. It's still really early to tell if I'm going to have mentionable side effects on this drug, but comparing it to the SE's of meds I've had to take for joint pain and skin problems, this stuff is almost as mild as acetaminophen. When I stay active I don't even have a pr...
this afternoon I was out mowing the yard and thinking to myself , I sure would like to have a Bloody Beer (spicy v8/beer) but I had to remind myself not any more.... but then I got to wondering about a Odouls style near beer and if it would hurt my liver?? any thoughts???
A long article on the history of and effort to get people in for testing and treatment. I found the article to be very telling of many of the situations we all found ourselves in at one time or another. The behavior, the stigma and the fight to get treated. I think you'll find this interesting. Healio is a g...
We had blood dawn on 8/17 for our 1st VL count since prior to SOT. I'm so anxious to see results. Can anyone give me an idea how long it takes for results? The lab guy thought we'd see something yesterday. No biggie, just anxious... Penny -- Edited by Penelope PePod on Sunday 23rd of August 2015 01...
After rescinding breakthrough designation earlier this year, the FDA re-established two new designations for an oral combination tablet of grazoprevir/elbasvir for the treatment of chronic hepatitis C virus infection genotype 4 and genotype 1 with end stage renal disease on hemodialysis, ac...
This message is for Tig, specifically or anyone who has statistical data. Ok I took 8 week harvoni treatment. I am 9 weeks post treatment and am undetectable with ALT 24 AST 26. What are the statistics I will successfully achieve SVR? The only reason I am concerned is because I still feel a slight tender...
My husband is less than two weeks to finishing treatment on Harvoni. My question is how long after treatment does he have to wait to go on major natural vitamins. I went on Thrive which is mega vitamins, minerals, and everything else under the sun after Viekira Pak and got my health back really quick....
I've never wanted to get my hands on drugs this much since the 1970's and literally could not wait to get started. The first and second night I had trouble sleeping; it felt as if adreneline was surging through my body. After 2x peg-interferon/riba treatments I was sure I could deal with any sides, b...
Hi there! Well this is going to be fun and I'm really happy about finding this group :) I have genotype 3a and have probably had it since early 70's drug use :( I was diagnosed with Porphyria Cutaneous Tarda (stores iron in your liver and causes skin lessions) in 2003 and the doctor decided to rest for He...
I realize this might be a touchy subject for some and a legal and ethical issue for others, but I have been reading around the web and some people say that marijuana helps the liver and some sources say that is causes fibrosis?????????? not try to start a legal argument or any nonsense, just want honest...
Good News First! I am a 2X Non-Responder and have been on Harvoni for 60 days. I was told today that my viral load is down to 15 from 1.8Million!! Basically, undetectable. I have an appointment in the morning with my doctor. While I am very happy, I am a little reserved, until I hear it straight from the hor...
Dear Folks, I started this topic around 9:30 am and just as I was getting ready to submit, my power went out :( We got 5 1/2" of rain yesterday.....can't believe it didn't go out then. The power company said it would be several hours before restored so what better reason to go and spend time with...
Hi, My name is mike I am a 42 year old male , I recently did a biometric screening for some life insurance and I was told I got disapproved, so they sent me the copy of the Labs and it show I tested positive to HEP C, I went to my primary care last week he referred me to a Liver specialist , I am waiting to see him, m...
HI, I wondered if anyone can tell me what the normal dosage is for ribavirin per day? I know my Dr. goes by weight. Yet I am in some other groups where many people who weigh more than I do are taking much less than I am and with the same gentotype. I do not have cirrhosis either. Could anyone explain why t...
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