well my gastro screwed paper work up forcing me to wait anothee month or so for Harvoni... my dad died of stage 4 bone and prostate cancer on May 30th.... lucky me i watched most it ... ive watched a few people die now ... wasnt actualy there when he passed but i saw enough of it ... he wasnt in hospice a...
Picked up some of labs @ Dr.s office today, to understand some of my #'s better with the wealth of info. here. Says that I tested positive for cryoglobulin with no damage to kidneys. It was positive after 24 hrs. negative after 72 hrs.. Also says that I am 1a, which I thought I was 1b. Also says trace a...
Hi all, I'm starting my 11th week on Viekira Pak and Ribaviron. As you can see by my signature line, my kidneys are involved. The other day, I had a urinalysis which showed my protein level to be 2+. This seems to be down from 3 which was measured in June 2014. On June 24th, the day after I end this drug re...
Hi All, the rocket ride is leveling off now. Am aware of the antiviral headache verses a tension headache. Antiviral headache is at the base of the back of my head. My Dr. said it was ok to take a 325 Tylenol 4 times spread out over 24 hrs.. Am according to what I have read here, must be F 3 or 4, prior to, but j...
Hi Folks, I'll be starting my treatment tomorrow of Viekira Pak and Ribaviron. My doctors says and the rep says also to stop taking my over the counter supplements. Why? I would think this would help.
NHS England agrees funding for new drug treatments for Hep C totalling almost a quarter of a billion pounds.In what will be the NHS` single largest investment in new treatments this year, NHS England has today (10 June 2015) announced it will be investing an estimated further £190 million in new cure...
I am also going to consult my Doctor on this. I have heard people saying to avoid alcohol after Tx. I don't plan on drinking the day I finish Tx. I am not an alcoholic. I do however have drinks on occasion. I only drink cider draft and even when I do that, the galaxy must be in perfect alignment to actually fee...
We were doing a run thru all day when at exactly. At 4,00 pm .the lights went out and the begining of space. Oddesy started at full volume. I am like wtf is going on? Not on the sheet! . Then the video screens came on to me with my tupperwear cone counting my pills which became an obsession for me.i always carr...
Evey day is another adventure 13 days After EOT I get my VL result said " Unable to calculate result" Since non-numeric number result was obtained. The good news is I was told by Labcore this " Unable to calculate result" means the PCR/NIG test couldn't read any numbers " l...
Hi all, My uncle has a chronic Hepatitis C. Today I drank water from the glass that he uses. I have done it before, and I was never worried. However, this time it's different: I got my teeth cleaned from the dentist yesterday and my gums were somewhat damaged (I got some blood coming out of them yesterday)...
feeling blessed! After 25 years of the dragon, it will be slayed. Continue to use 50 mg of tramadol for pain daily, also helps with insomnia. Some would be R on here chastized me, but hey, my Doc says its okay. OTC are ineffective and mess with my digestive system. I use an far infrared sauna @115 degrees...
Like many who haven't had many, if any side effects, I did not eat as well as have been yesterday, did not drink as much water, had a small amt. of sugar, paid for it last night. Through the night I experienced nausea, insomnia, acid stomach, muscle discomfort. I will correct this today and pray the calm...
Finally received my 4 week EOT lab results from May 26! Happy to report I remain undetected, but am concerned as I remain with: elevated AFP 18.0 (norm 0.0-8.3), Other labs are only marginally off: slightly low Albimin 3.3 (norm 3.5-5.0) platelets 102 (norm 149/390) Endoscopy showed improvement...
I have just joined the forum and glad of it. I have found a wealth of information, and large numbers of well informed people. I have had Hep C since 1970, I was badly wounded and required a blood transfusion, couple weeks later my urine looked like coca cola, and my eyes were yellow. Docs called it 'serum...
http://www.latimes.com/business/la-fi-anthem-blue-cross-harvoni-lawsuit-20150518-story.html-- Edited by RudiRoo on Monday 8th of June 2015 11:10:13 PM
Hi. I have genotype 1. I had a vl of 247,000 and was a F1. I started an 8 week course of harvoni. At just 2 weeks I was undetectable. My alt went from 198 to 29. I am so grateful for this wonder drug. I have experienced extreme fatigue while on treatment. I was wondering is this normal? And when treatment is ove...
I am on my 39th day of 12 week Harvoni & my doctor did not request blood work even after calling before the first 4 weeks. The pharmacy told me that some insurance companies were refusing to pay the remainder of scripts if your blood work came back clear. Now I understand why my doctor wants to wait 3 m...
Has any one else lost weight on Harvoni ? Tomorrow will begin 3rd week and Im down about 8 - 10 lbs. Its one of the grade 2 side effects and took me forever to find a page confirming it. Michaele -- Edited by Michaele on Saturday 20th of December 2014 12:31:52 PM
Hi everyone, Just to say that as part of our ongoing maintenance of the forum we have decided to integrate all posts from the previous `Non Responders` and `Treatment Intolerant` areas into this one section, which I have now done. No-one`s posts have been lost or deleted, they are just all under this...
I have been taking Harvoni for 5 days now, it seems that the first couple days the side effects were very mild. But this morning I was feeling pretty bad, headache, nausea, and fatigue even though I just woke up from a 9 hour sleep. I have been drinking 80 to 90 ozs of fluids each day. Do Harvoni side...
I haven't begun Harvoni treatment as yet, but I will be soon. I am concerned about the side effects of coarse, and weather they will effect my job duties. I spend 4 to 6 hours a day in my car, on a freeway. Stopping two or three time along the way. Do I need to take some time off work to get use to the effects of Ha...
Hi everyone! It's been a while since Renee (LadyAlaise) or I have posted. Renee is 2.5 years post treatment and doing well. Looks like she slayed the dragon for good ;) The past few years have been good in that she's feeling better, but I had a nasty foot infection develop that would not clear. I wound up h...
Hi everyone! I'll post a brief update about Renee and I in the partners section, but I have a question regarding a client I work with. He has Hep C, and we're trying to get him in a transitional program. He did a brief stay to try it out and staff reported that he was very intoxicated one night. He maintain...
Well, got the call from the pharmacy today. And spoke to my hepologists nurse. My viral load is just over 6,000,000. My platelets are 82 and ALTs are 43. And he put the claim through on both my insurance plans while,I was on the phone with him, and it seems I'm covered 100%. I asked him the cost to just know f...
I finished 24 weeks of Harvoni about 3 weeks ago. Muscle and joint pain is much improved and the fatigue is beginning to lift. About a week ago I noticed some dizzyness after working out and also at other times during the day. Haven't had this symptom prior to or during treatment. Has anyone experienced...
hi, I belonged to this forum a few years ago when I was on triple therapy. It didn't go to well, had to stop at 8 weeks because of rash. I'm still feeling the effects of that treatment, I hope Harvoni has better results. Anyway I will read what others are going through and know what to expect. Thanks in a...
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