I got results from my one year SVR tests this afternoon. My enzymes were 18 and 24. My Fibrotest was .62 which is between Stage 2 and Stage 3. I started my trial with cirrhosis--I think around .75. Soooo my liver IS healing. It has been 21 months since my first UND, so I have almost two years since Hep...
I am now on day 14 of my Harvoni treatment, in the last few months, I have been racking my brain trying to pinpoint an approximate time line & possible cause of my infection. I will be 60 yrs. old on my next birthday, and like many of us here, I used and shared needles with others. My Doctor said that...
HAS ANYBODY EXPERIENCED ANY SIDE EFFECTS ONCE THEY FINISHED HARVONI - I JUST FINISHED 2 WEEKS AGO A 24 WEEK TREATMENT. FEELING SOME TIREDNESS AND JOINT PAIN
Hi all, just got my 8-week labs back from 6/8/15 (apologies for formatting, on mobile). Still undetected! Still feeling a little tired and dealing with various muscle aches, but nothing too tough to handle. I'd welcome any input as to how things are looking. A little over 1/3 complete... CBC W...
I will be finished with 24 weeks of Harvoni in 20 days. Taking Harvoni only, no other drugs. Obviously concerned about the length of time needed to clear the effects of the drug and recover from any discontinuance issues. I have been working out regularly, averaged 4.5 days a week, during treatment in...
Two weeks ago, I asked the question below. You can also see the answers I received to my question. But since I am considered the ("ignorant"general public that may understand the whole SVR/cure debate ) I was wondering if anyone could explain it to me in layman terms ?I still do not unders...
The Scottish Medicines Consortium (SMC) has now approved Viekirax (ombitasvir/paritaprevir/ritonavir) and Exviera (dasabuvir) for use within NHS Scotland. Viekirax has been approved for use in combination with Exviera, with or without ribavirin, for the treatment of genotype 1 chronic he...
After giving me written instructions with my 1st bottle of Harvoni not to remove from original container...the pharmacy removed the pills from the bottle and put them into a another pill box. The PDF states... 16: HOW SUPPLIED/STORAGE AND HANDLING HARVONI tablets are orange, diamond-shaped, fil...
Please share with all of your networks! we need 53 more people! If you want to participate in the survey for 30 mins and an incentive of $35 dollars click on the survey below! Requirements co infected Hep C with renal problems Please share with all of your social networks !!!!! Attention people in...
well my gastro screwed paper work up forcing me to wait anothee month or so for Harvoni... my dad died of stage 4 bone and prostate cancer on May 30th.... lucky me i watched most it ... ive watched a few people die now ... wasnt actualy there when he passed but i saw enough of it ... he wasnt in hospice a...
Picked up some of labs @ Dr.s office today, to understand some of my #'s better with the wealth of info. here. Says that I tested positive for cryoglobulin with no damage to kidneys. It was positive after 24 hrs. negative after 72 hrs.. Also says that I am 1a, which I thought I was 1b. Also says trace a...
Hi all, I'm starting my 11th week on Viekira Pak and Ribaviron. As you can see by my signature line, my kidneys are involved. The other day, I had a urinalysis which showed my protein level to be 2+. This seems to be down from 3 which was measured in June 2014. On June 24th, the day after I end this drug re...
Hi All, the rocket ride is leveling off now. Am aware of the antiviral headache verses a tension headache. Antiviral headache is at the base of the back of my head. My Dr. said it was ok to take a 325 Tylenol 4 times spread out over 24 hrs.. Am according to what I have read here, must be F 3 or 4, prior to, but j...
Hi Folks, I'll be starting my treatment tomorrow of Viekira Pak and Ribaviron. My doctors says and the rep says also to stop taking my over the counter supplements. Why? I would think this would help.
NHS England agrees funding for new drug treatments for Hep C totalling almost a quarter of a billion pounds.In what will be the NHS` single largest investment in new treatments this year, NHS England has today (10 June 2015) announced it will be investing an estimated further £190 million in new cure...
I am also going to consult my Doctor on this. I have heard people saying to avoid alcohol after Tx. I don't plan on drinking the day I finish Tx. I am not an alcoholic. I do however have drinks on occasion. I only drink cider draft and even when I do that, the galaxy must be in perfect alignment to actually fee...
We were doing a run thru all day when at exactly. At 4,00 pm .the lights went out and the begining of space. Oddesy started at full volume. I am like wtf is going on? Not on the sheet! . Then the video screens came on to me with my tupperwear cone counting my pills which became an obsession for me.i always carr...
Evey day is another adventure 13 days After EOT I get my VL result said " Unable to calculate result" Since non-numeric number result was obtained. The good news is I was told by Labcore this " Unable to calculate result" means the PCR/NIG test couldn't read any numbers " l...
Hi all, My uncle has a chronic Hepatitis C. Today I drank water from the glass that he uses. I have done it before, and I was never worried. However, this time it's different: I got my teeth cleaned from the dentist yesterday and my gums were somewhat damaged (I got some blood coming out of them yesterday)...
feeling blessed! After 25 years of the dragon, it will be slayed. Continue to use 50 mg of tramadol for pain daily, also helps with insomnia. Some would be R on here chastized me, but hey, my Doc says its okay. OTC are ineffective and mess with my digestive system. I use an far infrared sauna @115 degrees...
Like many who haven't had many, if any side effects, I did not eat as well as have been yesterday, did not drink as much water, had a small amt. of sugar, paid for it last night. Through the night I experienced nausea, insomnia, acid stomach, muscle discomfort. I will correct this today and pray the calm...
Finally received my 4 week EOT lab results from May 26! Happy to report I remain undetected, but am concerned as I remain with: elevated AFP 18.0 (norm 0.0-8.3), Other labs are only marginally off: slightly low Albimin 3.3 (norm 3.5-5.0) platelets 102 (norm 149/390) Endoscopy showed improvement...
I have just joined the forum and glad of it. I have found a wealth of information, and large numbers of well informed people. I have had Hep C since 1970, I was badly wounded and required a blood transfusion, couple weeks later my urine looked like coca cola, and my eyes were yellow. Docs called it 'serum...
http://www.latimes.com/business/la-fi-anthem-blue-cross-harvoni-lawsuit-20150518-story.html-- Edited by RudiRoo on Monday 8th of June 2015 11:10:13 PM
Hi. I have genotype 1. I had a vl of 247,000 and was a F1. I started an 8 week course of harvoni. At just 2 weeks I was undetectable. My alt went from 198 to 29. I am so grateful for this wonder drug. I have experienced extreme fatigue while on treatment. I was wondering is this normal? And when treatment is ove...
I am on my 39th day of 12 week Harvoni & my doctor did not request blood work even after calling before the first 4 weeks. The pharmacy told me that some insurance companies were refusing to pay the remainder of scripts if your blood work came back clear. Now I understand why my doctor wants to wait 3 m...
Has any one else lost weight on Harvoni ? Tomorrow will begin 3rd week and Im down about 8 - 10 lbs. Its one of the grade 2 side effects and took me forever to find a page confirming it. Michaele -- Edited by Michaele on Saturday 20th of December 2014 12:31:52 PM
Hi everyone, Just to say that as part of our ongoing maintenance of the forum we have decided to integrate all posts from the previous `Non Responders` and `Treatment Intolerant` areas into this one section, which I have now done. No-one`s posts have been lost or deleted, they are just all under this...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
