Hello Everyone, I am so new to this forum. I have never used one before, but I do know Facebook very well. I was diagnosed in 2002 with HCV Genotype 1b. I just received my Harvoni prescription yesterday! I am scared to start this Tx, but I am also excited and hopeful. I plan on start the Tx on Monday April 20,...
Hello guys, New to the forum. I just need to ask that my father was on sovaldi treatment for 4 days when his (serum) creatinine level shot up to 2.53 which later came down to 1.96 and now at 1.43. He has no renal impairment and his kidney ultrasound and detailed urine report is perfectly normal. He is cirr...
feeling nervous. During my 12 week harvoni I was undetected but last day my lab came back as u quantifiable (<20) but not undetected. Doc said that happens sometimes and that many studies count unquantifiable as undetectable. Just freaking out because it sounds like numbers are increasing. Any...
Hi All....Saw my Doc yesterday. He said my MCH level is normal for Ribavirin. No anemia, but wants an EOT blood test. He said a 40 score above a 32 max. would concern him. Riba does tend to kick up your hemaglobin stats. He is concerned about my glucose/serum level which was never elevated and will w...
just finished my 8 weeks of harvoni and had a blood test yesterday. Some results are in, viral load isn't. Some of my numbers are off and wanted some feedback PLT. 135. Low HGB. 14.1. High Auto lymphocyte absolute. .9 low BUN/ creating ratio. 27.4. High of course the doc won't be back till next week an...
I have been following the literature. Eighteen months ago, ribavirin was essentially dead as a part of HCV therapy. In the fall, it was back in the armamentarium in addition to combos like Harvoni. Today, the role is increasingly clear for cirrhotics with genotype 1. If you fit this category, as...
Hi guys,This is the diary of an Australian who travelled to India to buy generic Sovaldi. It is rather long-winded.The most interesting part for me was that he eventually had a Fibroscan in India which showed cirrhosis. This is despite a negative Ultrasound and CT in Australia. It makes my blood boil...
I have my 8 week lab test showing great news. "NOT DETECTED" My Glucose /Serum is still 122 or high. ACH is now up 33.2 The limit is 33. Maybe anemia is starting. I see the Doc Tuesday. Everyone have a great holiday! This will make it sweeter for me. I just saw a few EOT signs out the window o...
i am having a holiday in Thailand after 6 months of riba/solvaldi, as I was on a trial they will not release my results until after my 12 week EOT bloods (6 more weeks to go). I decided to get some blood work done here and it came back with normal ALT/ASt They seem to use a different range here my ALT was 41 th...
Found this interesting. Must be because harvoni is so well tolerated ... The times, they are a changin' New study to examine the effectiveness of community-based hepatitis C treatmentA new study led by the U.S. National Institutes of Health will evaluate whether primary care doctors and other he...
I have had Hep C for who knows how long, diagnosed in 1992. Transplant in 2000, still had Hep C of course which continued to damage the new liver. Tried PegInt/Riba 2x, no luck. Did the Sovaldi/Oylysio, ending dose 12/26/2014. Hep C continues to show "not detected." But in mid-to-late Janu...
Well, good news and bad news. Good news is she wrote the script for harvoni 24 weeks. Bad news is I was right about my fibroscan. 15.5 which is F4. She says not to worry that its just at the cusp of cirrhosis and will most like regress with successful treatment back down to minimum F3. No riba though. She sai...
Is anyone else waiting for 16 weeks after EOT instead of 12 to test for SVR after treating with Harvoni? My doctor is waiting until 16 weeks for a viral load after I treated for 12 weeks on Harvoni with an UND VL at 4 weeks post-tx. Another forum member has been told to wait 16 weeks also, after they f...
Information from the American Liver FoundationDiet and Hepatitis CWHAT IS THE RELATIONSHIP BETWEEN DIET AND HEPATITIS C? Hepatitis C (HCV) is a virus that infects the liver. Up to 85% of people exposed to this virus develop chronic liver disease. In general, chronic HCV appears to be a slowly prog...
Started the blast off countdown today, 9 more days of meds to go (yes I'm counting). Overall the Harvoni ride hasn't been too bad. Hoping and praying to join others in SVR land. I need some of that energy Malcolm has :) Good luck to all on treatment and those awaiting the 12 week golden SVR awa...
I am wondering if anyone has any info on depression after treatment? I completed my treatment just over a year ago and I'm happy to report that I'm still non detectable and my liver scan earlier this month showed that my liver is the same as that of a person who never had HepC. That was very exciting news...
Our new member Charly8 mentioned this new investigational drug from Gilead GS 9857. It is being combined with Sovaldi and their other investigational drug GS 5816. GS 9857 is a NS 3/4A PI. The data is from Phase 1and 2 studies. They are concentrating on both improved SVR rates and shortened treatment...
Just finished 6 months RIBA/solvaldi and am having troubles sleeping due to tingling and restless feet when I go to bed, is there anyone else having or had similar symptoms. cheers liam
Here was my today - 1. Today was my one month weigh in after completing my Whole30 challenge. I lost 9 lbs and fit back in my favorite jeans. 2. I was offered a job I really wanted. 3. I opened my email and there was one from my friend at the lab ( an unheard of week and a half early) and it said, UNDETECTED!! Thi...
excuse my spelling but remembering my way home from work is even a bit tricky these days so pls forgive . i cannot believe i have only 7 games of darts to go and every day is a blessing ? it has been a tough road and still is but the sense of achievment and relief is amazing already it is all about a new life for me...
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