On day 4 now the only side effect so far is this horrible rash caused by pretty much any fabric I wear. It itches so bad. Anyone else went through the same my nurse told me to expect a rash.
My Hep C is back. I took my Sovaldi / Ribavirin like clock work for the first 15 weeks then I was hospitalized 11-3-14 due to an accident and went through 5 major surgerys in which time I missed several doses. Also, during this time my already compromised immune system due to HIV was weakened to a CD4 coun...
Hello It's my first time on the forum and I really need some help. I am a healthcare worker and I was recently tested positive for hep c antibodies and negative in 2 subsequent PCR tests, after a possible exposure at the end of September 2013. You would have thought that this would put my mind at ease, a...
I signed up for a HCV webinar sponsored by Clinical Care Options with Mark S. Sulkowski, Professor of Medicine from Johns Hopkins University School of Medicine Baltimore, Maryland One of the topics was · Role of Resistance Testing in HCV Re-treatment During the program Dr. Sulkowski said a statem...
Hello, I finished Harvoni about 3 weeks ago. I wanted to comment on how much energy I have now. I used to take multiple naps everyday, now I go straight through a 16 hour day without needing to stop. Before there was a treatment, doctors used to tell me that Hep C was silent and didn't have an immediate i...
Hi all, I was wondering if anyone has heard of the virus returning post SVR 24+. I have been super tired lately and I guess I'm a bit paranoid. Thanks.
as the title says I start tomorrow. Looking forward to clearing this virus from my body. but the doctor and Abbie rep say to stop taking my over the counter supplements, like my daily vitamin regimen and such. Not sure why, makes no sense to me. I thought it would help make things more tolerable. Any ide...
Today I took my first pill. I took it with food "breakfast" as the pharmacist suggested. She said it might cause sleeplessness so not to take it at night. There is a long list of medication not to take with it. Here's to all of your first days on Harvoni. Dragon? take THAT! Jen
Hi all, did my 4 week labs this past Monday (they're not back yet). Have a gi appt today. Overall, feeling pretty good, except for pretty severe backache from time to time. Feels like all the muscles, upper to lower back, are tight as guitar strings. Taking flexeril is helping with that. My l...
Just got back from my doc visit. Virus is undetected, ALT=19, AST=14. Doc said I was a little anemic but nothing to be concerned about. Don't have a copy of my labs yet but he showed me my numbers on his computer. I'm kind of in shock, but I have to go now--I am about to bust out my HAPPY DANCE!!
I am once again in hospital for the same small bowel. Obstrction. I am 8 pills from my last bottle so i am a littleconcerned about surgery and getting Harvoni thru system I wi be talking to my dr as he is in the same hospital,but i am trying to make sure nothing affects. H from getting to mu sytem,with all th...
for last 18 months have had very little red meat.during tx and post tx have been on a fish and fruit diet with plenty of high fibre.when i started looking at diets i got a bit down.i loved roast lamb steak etc. strange as it seems after going without red meats when i did try some it didnt do it for me.so am qui...
Anyone having pain in their liver area? What diet should we eat with cirrohis? About a month ago I ate 2 bowls of Blue Bell ice cream before bed and woke up violently ill. Stomach messed up for a while and I lost 8 lbs. Weigh loss could be due to extra duties as a child was getting married. My stomach had bee...
Started Harvoni and Ribivirin on 3/25/2015 for 12 weeks 1200mg Ribivirin per day. Things went real well the first week. 2nd week headaches and the runs. Most likely from my experience it's the Ribivirin.
Well halle-frickin-lujah! I just got back from the doctor for my 1 year check up and to get the results of my EOT+1 year labs that I had drawn last Tuesday on the 1 year anniversary of my first post treatment "pill-free" day. IT'S OFFICIAL KIDS - Another success story! "SVR52" ...
My first blood test on Vikera-pac/Riba was all good except a flag for Glucose/Serum. About 124. "Undetected" also as far as the virus. I took the blood test on an empty stomach at 6:15am. Fasting was not required. Could I be diabetic? Maybe the Riba is causing this? I have been short of brea...
Hi All, Kind of scared after my second scan for HCC a couple of weeks ago. There is a lesion on the head of my pancreas that has "minimally enlarged" since my last scan. I also have some gall stones. . I've been having pain on my right side for a while. My clinical trial director called...
Hiccups...hiccoughs However you spell them. Anyone else have them after treatment? I've heard that an enlarged liver can cause the diaphragm to spasm into hiccoughs and I realize just because I may be virusless, I do still have cirrhosis. They aren't too frequent maybe 4 times a week but I didn't g...
So, just wondering what people are or have experienced. I had headache and flu like symptoms for a week. The 8th day, today, I feel better, but my stomach hurts and is bloated and my hand was shaking a bit. This is not a complaint, just wondering what others have experienced. I am fine enough to work,...
I have not started my Harvoni prescription yet (it's in the mail), So I have been reading some post and trying to learn some tips on how to make the next 3 months of my life a little easier on myself as well as on my loved ones. I must tell everyone here that I am impressed with how much everyone seems to...
Hello, I wanted to take a moment and leave a final post on my treatment for anyone just starting Harvoni. My viral load was about 6 million and my length of treatment was 8 weeks. Below is a brief summary of my personal experience with the drug. In January 2015 I applied for the medicine. Between my ins...
Just got the call from my Doc SVR12. 35 years ,and quite a few tough ones along the way, with various nasty treatments it's finally over . I wish everyone on here that has had to deal with Hep C the same results. GOOD LUCK TO ALL HARVONI is the real deal Sal
I have to apologize for freaking out. I was truly afraid of this Tx. I am nearly finished with my second week of Harvoni Tx. I am feeling really good. I have mild fatigue and that is all. I am running again all week this week! I think I will be ready for that Triathlon in August! I am so excited about this Tx tha...
Hi all, I was just diagnosed as end stage cirrhosis, and have not had any symptoms. I went to a gastro specialist who had my blood drawn, and advised me I was in the last stage, told me the pills would cost $80,000, then left. I had no chance to ask him any questions. He was cold, distant and impersona...
Sadly it seems that HCV is gaining ground among the <30 year old demographic in Appalachia. It's important for us to get the word out in our local community about this disease. There appears to be three issues at hand here, IV drug use and HCV/HIV. All potentially fatal. Our most important contribu...
Just seen this on the hep c trusts websiteNew Treatments available for Cirrhotics NHS England has confirmed today that it plans to make the best oral hepatitis C treatment available for all those with cirrhosis as soon as the formal approval process has been completed. This is expected to happen t...
Hi everyone, It has been a while since I posted. Well first IVF attempt failed. I am OK about it, no drama, due the second attempt mid this month. I can't help but feel cheesed off today. I was reading about what is happening in regards to genotype 3, and not a lot! The best outcome to date is 12 weeks of Inter...
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