Hi all, I was just diagnosed as end stage cirrhosis, and have not had any symptoms. I went to a gastro specialist who had my blood drawn, and advised me I was in the last stage, told me the pills would cost $80,000, then left. I had no chance to ask him any questions. He was cold, distant and impersona...
Sadly it seems that HCV is gaining ground among the <30 year old demographic in Appalachia. It's important for us to get the word out in our local community about this disease. There appears to be three issues at hand here, IV drug use and HCV/HIV. All potentially fatal. Our most important contribu...
Just seen this on the hep c trusts websiteNew Treatments available for Cirrhotics NHS England has confirmed today that it plans to make the best oral hepatitis C treatment available for all those with cirrhosis as soon as the formal approval process has been completed. This is expected to happen t...
Hi everyone, It has been a while since I posted. Well first IVF attempt failed. I am OK about it, no drama, due the second attempt mid this month. I can't help but feel cheesed off today. I was reading about what is happening in regards to genotype 3, and not a lot! The best outcome to date is 12 weeks of Inter...
Hi y'all, I was diagnosis late last year and started Harvoni on 2-18-15. Not sure I got this but I was wondering why I was feeling bad. When my doctor said he wanted me on Harvoni I was concerned about the cost but he got it for me for through my insurance company for next to nothing ($5). When started my vira...
Hi everyone. My name is Dickey. I am 61 years old and had Hep C over 30 years. I have never been treated for it because my Dr told me I had no scaring from biopsy and it was very low detected so he felt I should wait until better treatment than inteferon. Well I finally got prescribed Harvoni after being persi...
just got my 6 month eot results after the 48 teleprevir/riba/interferon voyage. Hmmm seems it still isn't gone have an 80, 000 vl now. Docs have told me I will go on 12 week harvoni and riba. is this long enough of should I push for the 24 week? I was undetected after about 4 weeks on the teleprevir and thr...
Dear all I do hope that this email will find you well. I would like to invite Genotype 1 patients that are untreated to take part in a study. Participants would be required to complete a 15 minute self completion questionnaire. This is a booster study to A larger physician-patient linked project. Thi...
I am grateful it worked! Hopefully others on the 8 week plan will see it does work! Checking again in November. Now hoping I will feel better by then. Thanks to everyone who helped me get to this point. -- Edited by fourlocos on Friday 1st of May 2015 06:12:33 PM
Hello everyone. I am new to this forum. Has anyone still tested negative after 12 weeks post Harvoni treatment? I cannot find much info since the published trials. Thanks so much.
All done! 5th time is a charm I hope! This board has been so important to me throughout the years - good people exist! Questions for my crew: I still have about three weeks of Ribavirin left - I have no side effects with it - should I take it while the Harvoni leaves my body?
As I have said in other posts I am now UND, there is always hope, there's always a well of support from this forum and there are better times ahead. Wish you all well, Nxxx
Hello, For the 6 month SVR viral load blood test, is the 6 month target date for the blood work calculated from the time a person takes their first Harvoni pill or from the time they take their last pill? Thank you, Lon
It's been about 6 weeks since I was diagnosed with genotype 1a. Transmission through IV drug use probably 2-3 months ago - so dumb. Ahhh. Since then I've detoxed off heroin 3 times cold turkey on my own. My body is ravaged from withdrawal. Dr says everything is elevated and I could have some symptoms. So...
Hi Everyone, I was doing some reading and came across this very informative website. It's called "My Sick Liver". I think it will be a nice resource that we can all refer to. http://mysickliver.weebly.com/
Had the first " dart " yday afternoon and ahvent had to many problems - yet!!!! Starting the Riba tonight with tea/dinner so will be interesting to see over the next few days. Went for a run this morning and found I was really tired the last half of it so going to have to be careful on that side. O...
Hi, I have just finished 24 weeks of riba/Sol 2 weeks ago, over the last few days my eyes have become red again and there is a yellowish tinge (this happened a lot before treatment). While on treatment my eyes were clear. I also have a lot of cramping in my legs and hands and I have pain around my liver area. H...
Hi wondering if there is anyone out there on this tx right now? haven't seen many threads regarding peg-interferon with sovladi and riba ...I'm starting next week for 12 weeks. I'd be lyin" if I said I wasn't nervous.... Hope4
http://dgnews.docguide.com/sofosbuvir-plus-daclatasvir-associated-high-sustained-virologic-response-4-weeks-patients-hepatitis?overlay=2&nl_ref=newsletter&pk_campaign=newsletterArticle pasted below in case above link does not workSofosbuvir Plus Daclata...
Can someone tell me if these are symptoms? I can't google anymore! My withdrawals from H went away about two weeks ago so I don't know what's what if that makes sense. My doc says that I might have acute symptoms having just been diagnosed with transmission likely 2-3 months ago. I've been feeling fine e...
Hello dear friends. It has been a long time since I didn't visit this forum. I was UND post 12 weeks EOT after treating with Peg+Rib+Sovaldi for 12 weeks. However, for the last two weeks I have poor appetite again, slight swelling in hands, and some itches at night. Yesterday I took a walk and I got the fat...
Anybody out there finished Harvoni with Cirrhosis 1. Any Side Effects 2. HOw are your Test Results - 3. Energy Level 4. Did you lose weight Good Luck to All
My doctor called and left a message: UND on VL and all lab values in normal range. He didn't give exact numbers, but did state that ALT/AST were in the twenties and had a normal/good PTT. I've been pretty confident after reaching SVR 12 that I had slayed the dragon permanently; however, it's still nice t...
Hello everyone! I am sure some of you remember my post about my husband being diagnosed with liver cancer. An MRI showed 3 tumors and the consensus of all the doctors from the liver transplant dept. at Mt. Sinai Hospital was to treat him by doing RADIOEMBOLIZATION to see if the tumors would respond and...
Just took my last pill.....the first 20 weeks were not bad, BUT these last 4 weeks have been a challenge. I have dealt with bronchitis, (still coughing 4 weeks later), sore ribs from coughing, then originally thought I had gout turned out to be pseudogout (Uris acid levels normal), and I am still limp...
I got HEP C sometime between 1982 and 1984 working as a Paramedic in Florida. When I started as an EMT in 1974 or so in W VA. We did not even use a protective barrier for mouth to mouthresuscitation. Gloves, mask did not arriveuntillate 80's or early 90's. The fire department contacted me in 1999 to say...
I am now eot 7 weeks and I'm looking for some energy, still a bit foggy and just not what I expected. How long does it take to get these meds to get out of your system. I was on 12 weeks harvoni never been treated with f1-2 vl was 991,000. I just want to get back in order I have a lot to do. Thanks A
Hi all,At the latest Liver Meeting, a paper was presented warning of the dangers of some Herbal products, dietary supplements and food additives. The number of liver toxicity cases from these has more than doubled over the last 8 years. As such products are classed as foods, not drugs, there is no reg...
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