Hi there! I just found this forum and I must say I'm really imressed with all of the knowledge on here. I was diagnosed 5 years ago and it has seemed like a downhill spiral so to speak. I do not feel like I have been educated nearly enough. I read and try to research online and it seems as though every website s...
Hi all , This post has been incubating in me for a while now , as I've browsed and then indulged in reading all the other posts that run through like a river of thoughts , bound by a common thread of challenge and fear and resilience , forward looking and then pulling from the shared past , always helping ea...
Well, I got a call at work today from my Dr.s nurse. She wanted to tell me I finally have an apt. at the hospitals infectious diseases dept., on the 15th. Wow....I think I have waited for about 2 years for this. Now i'm a little freaked out and incredibly anxious. Iris
Hi my name is Jennifer I am on treatment now with 400mg sovaldi and 1200mg ribavirin a day and am currently on week 9 of 16 and on my 8week labs was undetectable. I am having a really hard time with the treatment side effects like massive rashes,anger,super tired, its hard to breath when out walking, I kee...
Just finished my first month of treatment. Blood work is good, liver enzymes are normal and I don't have to go back to the Dr. until September. If everything checks out then, I will be considered cured. Harvoni really is a miracle drug!!!!
Hello, Glad to be a part of this forum. I'm 56, healthy otherwise, and a moderate alcohol user. In January, I went to my doc thinking I needed some help with sleep apnea. I've felt like crap for years, don't sleep well and when I do, wake up feeling like I didn't sleep well. I mentioned that I felt fogg...
I read an article today about cost effectiveness of treatment for Hep C It was titled "New Hepatitis C Are Cost Effective , but Only for Selected Patients. Can't find the address For it. This was my reply (comment) sent to the writer about the article: I am 80 years old and had Hep C for probably 50...
After being denied - twice by my insurance company, CDPHP in New York - I applied to Gilead's Support Path to see if I could obtain Harvoni thru them. I completed the Intake form & attached all the documents they wanted: Proof of Citizenship (driver lic & Utility bill), Proof of income (2 pay c...
I have been looking at getting into a trial of this sort, the lady in charge of the trials for University of Penn hospital in Philadelphia has been in contact with me over the past week and has all my info. She thinks they may be an immediate opening, if not one is starting within the next month. I always vie...
Hi All, Just got my fibrosure results in but haven't talked to my GI yet (he's off on Fridays, I pulled the results from my medical file online). I only know, from reading here, that these tests are fairly accurate at the low/high ends of the spectrum--the middle is iffy. That being said, I still can't...
Hi All Im confused . I called the CDC and asked a human , "How long can Hep C live oustside the body? " . I was told , " not less than 16 hr and up to 4 days " . However , a study done at Yale states, " it can live up to 16 weeks at room temp. " Im sitting here trying to decide if i...
Hello, I am new here....but not new to Hep C. Was treated in 2004, and relapsed after 10 weeks. Fast forward to 2015, I finished my second treatment with Sovaldi and Ribo in late March, and on the day I took my last pills, I took my blood test. My hope is that I took it too soon, as it came back <12 detected...
Hi everyone, I'm hoping to get some good advice if possible. I have gen 3 hep c for about 11 years. I'm 32. Don't drink and live healthy etc. My doctor insists that It's in my best interest to wait until a new treatment for gen 3 comes out. He says maybe in about a year or less. When I asked him to give me a name or...
Occasionally I need a little Viagra to get my blood flowing in the right place and have reduced my dose down to 20mg. I've googled and can't find any warnings about that. Can anyone advise??
I talk to an intermediary from Minnesota 1nce a week ..... Vikera ... we 3 way call an actual Rep.. on the East Coast Abbie V... Viekira in Maryland i think..... i have already faxed my 2nd denial of Vikera... yes that 3 or 4 Denial 2Harv ..and 2 Vikera.. deny plus appeal ... also faxed pay stubs :) i mak...
I'm new to the forum and, of course, didn't read the directions so immediately posted to the Viekira area. I've had Hep C for probably over 40 years. I had a treatment about 20 years ago, Interferon only. I had another about 11 years ago, Interferon and Ribaviron which almost killed me. Now I just sta...
Hello all, I would like to start new thread about important facts for HCV drugs based on Sobosbuvir such as Sovaldi and Harvoni. The reason I do it is the letter sent by Gilead to Health Care Providers: "Serious and Life-Threatening Cases of Symptomatic Bradycardia as well as One Case of Fatal C...
Hello all. Well been on Harvoni for lil over 6 weeks now. When I got my 1 month blood test Hep C was undetectable. I cant remember 8 years ago when I was on interferon if I ever was undetectable. All I know is I was really sick and it didn't work. Cant say that this time around. So is this pretty much standard to...
My Harvoni train ride has come to an end. Last pill was this morning! 8 week labs on Monday. It's going to be a second confirmatory NORMAL. I just know it is. (saving the #WOOT for next week when I actually have results)
I just picked up my next 2 week supply of Viekira Pak, starting on week 5 now. I see that now it has a patient information leaflet that was previously left blank. I guess because its so new none was available. I see one side-effect listed that's very interesting. "Changes in body fat may occur whi...
I was shaking when that email came in that my results were posted on my chart. Hoped for this but then was prepared for the worst. I was on the 8 week Harvoni plan and wasn't sure it was long enough. I will test again in another 4 weeks. For now I can breathe a sigh of relief. I feel blessed. This might br...
Yes, I have started Vikera-pac Saturday. Got this large styrofoam box I thought it was Omaha Steaks ! I take 3 pills plus riba in the am. At night 1pill plus riba. So far no head aches or nausea. Am feeling a little ant-zee or anxious. Drinking lots of bottled water keeps the taste down. No sleep problems...
From my doc - Your viral load after 4 weeks of treatment is detectable but < 20.It means the medication is working to suppress the viral production. When I responded I was told:The test is much more sensitive than other places. Our detectable <20 is what the drug company used to define treatment...
Hi all, I just got off the phone with my insurance company. I've been approved for tx! Called my doc and left a message so that he can write the prescriptions and send them to one of my two choices of specialty pharmacy, Accredo or Walgreen's. I've read some nightmare stories on here about Accredo, so I&q...
Feeling like I have a chest cold. Just started Harvoni 4 days ago and wondering if that is just a sx. But my lungs feel like an infection. which doctor do I go see? My Gastro or GP. Anyone taken amoxicillin or a zpak while on Harvon?
All I can say is I am the luckiest girl, okay woman, in the whole wide world!!! Given my history I should be dead a few times over but here I am at 67 years with fairly good health and NO Hepatitis C. I'm really having a hard time believing it. It has been with me since I was around 22 years old. Unbelievable! N...
I'm one that just got into the system at the perfect time as Harvoni is available and the big shake up last year that got them more funding and more pressure to perform. They gave me a complete physical, confirmed my HVC and am now going to start the Harvoni in a couple of days. My esperience and observati...
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