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Hep C Discussion Forum -> On Treatment -> Energy level?
Post Info TOPIC: Energy level?
chatterbox


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RE: Energy level?
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Glad to read these comments. I cut some vines down in our back yard this morning and that was all she wrote. So weak. Still wrestling with feeling like a slug on a rug, so I appreciate your encouraging comments! I "should" do this and I "should" be doing that is driving me nuts. I guess perhaps I should be watching Dodger baseball, the Stanley Cup, and Locked Up Abroad! Cool.

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Debra

 

Geno type 1a1b

Began Peg/Rib 4/16/2012  

Began Victrelis May 14, 2012            4 week and 8 week labs undectable

12 weeks und. 16 weeks und. Week 17 Cut peg, added Neopogen 5+months und.!
hrsetrdr


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kiwi wrote:

i call this

THE NEW NORMAL.

 ^^this.  

 

I was just thinking to myself yesterday about "normal", and whether or not I would recognize it if I ever experianced it again.



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
kiwi


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i call this

THE NEW NORMAL.



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
JoAnneh


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I have always been on the go all my life.
Nog a lazy bone in me. Now is time for me to chill
And heal. I do what I can and have to accept
Limits. For one that likes doping things it's different
But I am embracing it and as Surfer Girl says if has drawn
Me into a warm and personal relationship w God!
I hear birds chirping, I am enjoying 'my vacation of healing'
With Dave's attitude all the way.
I have moments of frustrations but I accept
I am tired and therefore doing things that require
Physical activity don't even appeal to me now.
I called it healing chilling time :)
Thinking of you all,
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Shep


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That's a great idea Dave!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
davesf


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"I have been trying to imagine that I am enjoying a new leisurely lifestyle rather than just to tired to do anything."

 

Shep- I think you need to add that quote to your signature line. 



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
kiwi


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yup im well over the guilt. no worries there. priorities in the house have changed, long as i can manage to feed myself (minimal) and the animals, who cares about the rest.? it aint goin anywhere. i get my laundry done for work. and i get firewood in, and yeh im SUCH A COUCH POTATO, and i have been dropping off for a nana nap, after work, easily for 3 hours... not bothered at all,  in the past i would be horrified being so lazy, not now. someone said to me, kiwi, no you are not lazy you dont have a lazy bone in your body, and no you are not sick, you are tired and fatigued and its ok... go with it..

 couch and me really bonded :) i even sleep on here most nights too, its a big couch, me and purple can fit no worries.

thanks for lettin me share. gettin it out with you guys who know how it feels is awesome. take it easy people. :)

 



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Kellyw


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I agree at first I felt so bad I didn't care I was doing nothing.mthen when I felt a little better I felt guilty I still wasn't doing much, but when I got a little energy and used it I was rewarded with a 3-5 day headache so I've gotten over the guilt and am enjoying Shep's life of leisure too.

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
LanaiSurferGirl


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yes...the energy level being lower is quite frustrating but has really humbled me and deepened my relationship with God.  I am more dependant on him than I ever have been and in a situation where I really have to trust him even though I struggle with trying to control my life all of the time. :)



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
hrsetrdr


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The couch seems to have become part of my body, as of late. I've always been industrious around the house, so just not giving a care about all the little things that I'm NOT doing has taken some adjustment. 

 



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
davesf


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I've embraced Shep's new life of leisure as well.  biggrin  The old me used to feel guilty if I didn't get to the gym or exercise on a regular basis.  Today Jen asked me if I wanted to go for a walk and I happily declined and chose to remain on my couch instead.  Thanks Shep for putting some positive spin on it for me.



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
Shep


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I have been trying to imagine that I am enjoying a new leisurely lifestyle rather than just to tired to do anything.

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
news


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There will be side effects, particularly where energy levels are concerned, all the way to the end of treatment. Even without the Incivek or Victrelis, the peg and riba can kick your butt at times. Good thing is, some weeks are milder than others. I feel pretty good most of the time. But I have the Incivek days to compare to. Those were tough days. I would prefer a poke in the eye with a sharp stick. But the sad fact is being UND has nothing to do with how lousey you feel. Just try to enjoy the good days when they come. I really think I have gotten used to being tired, losing hair, having delicate skin with cuts and bruises that won't heal, etc. It's all in a day's treatment. And there is an end to it in July.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
jwmaher


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Hi 

It's Mike and I've been undetected for aabout a month now and I'm still experiencing side effects from the drugs; unfortunately I have to be on them until November but very grateful for being und.

I'm assuming that when the virus becomes undetected your body is just dealing with the side effects without the war going on in your body so it doesn't seem so severe.  My energy level has improved quite a-bit since then.  Has anyone else had this experience?



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Scout


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The war doesn't end. UND is in your blood but the virus lurks. Hang in there. I'm a week out after ending the incevik but still a bit tired and lathargic while still on Peg and Riba. These 2 have pretty rough sides of their own.



-- Edited by Scout on Saturday 2nd of June 2012 09:06:49 PM

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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!
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