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Hep C Discussion Forum -> Post Treatment -> Its back and I'm back!
Post Info TOPIC: Its back and I'm back!
JIme


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RE: Its back and I'm back!
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UUgghhhh. awful news. Sorry.

Maybe some oral meds in your future Bev. Give yourself a chance to rest up and get back to living.

Maybe a trial? Good luck.

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
alohaKim


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I just got the same damn call, Bev. 3 weeks post tx, I have a VL of 217,000. UGGGGHHH!!!!!!

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Genotype 1a, non responder to Peg/Riba in 2005. Started triple therapy 1-27-12 with Victrelis.  UNDETECTABLE as of 8wk labs (after 4 weeks of Victrelis) 4-3-12. UND at week 8, 12, 16 & 20 of tx. Completed triple therapy Oct 2012. relapsed 10/2012
Bills


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52baddog wrote:

Bill: How did your liver got to stage 3 in 6 years, I thought it takes longer. Did you have a biopsy in 2002?

 Sorry I must have missed this some how didn't mean to eave you hanging

I only found out I had HEP c in 2002  I think I contracted in 1980's  HEP C and Drinking was causing damage like 30 years now  that's why I have stage 3

 



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

alohaKim


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Oh, this is heartbreaking. I'm so sorry to read this, Bev. Hang in there, girl!  



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Genotype 1a, non responder to Peg/Riba in 2005. Started triple therapy 1-27-12 with Victrelis.  UNDETECTABLE as of 8wk labs (after 4 weeks of Victrelis) 4-3-12. UND at week 8, 12, 16 & 20 of tx. Completed triple therapy Oct 2012. relapsed 10/2012
gatekeep


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Nightmare! But hope is on the horizon. I was ready to throw in the towel yesterday because of pain. I called incivek hot line they told me nothing. They just wanted my info so they could pass it along to the FDA. I hope all is well in your future.

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
kiwi


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wow, i do post treatment VL bloods next week. find out by nov 6 results. i am an optimist. but like alan says, its scary to read stuff like this.

stay strong mate. lots of people sending you good vibes.



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Uval951


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Bev, very sorry to hear you relapsed. In your age you can hope for new meds and next Tx.
Please remind,
1. What is your biopsy (which stage)?
2. Why did you stop Tx at 38th week?
3. Did you reduced meds doses during Tx?
All the best to you.



-- Edited by Uval951 on Friday 19th of October 2012 06:08:47 PM



-- Edited by Uval951 on Friday 19th of October 2012 08:43:05 PM

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Gen. 1b. 1st Tx in 2003 Rib/Peg. Biopsy F3-F4; 2nd Tx started 2/28/12, Pegasys+RibaPak+Victrelis for 48 weeks. VL: 260,000 (starting), 125,600 (4 weeks), UND-weeks 6-45.EOT 1/7/13 after 45 full weeks. Post Tx 4,12,24 weeks -UND  SVR!
Mary Jane


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Bummer Bev, damn dragon.. My wish for you is to enjoy your life , one day at a time, and as the others said newer better and not so yucky drugs are in the works.  peace and love MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
K2


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Sorry to hear it. Major disappointmentno All you can do is keep looking forward and not give up. It's one battle, not the whole war. Chin up mate.



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
mallani


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Hi Bev, Devastating news but not the end of the world. At your age you can afford to wait for whatever new drugs they decide on. Stay positive and get healthy. We're all with you.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
davesf


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Crap. I wish things could be different. I'm anxiously awaiting and simultaneously dreading my 3 month labs in a couple of weeks. I keep telling myself that if I don't pass not to worry. There are plenty of better drugs coming down the pipeline in the near future for us, Bev. Best, Dave

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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
52baddog


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Bill: How did your liver got to stage 3 in 6 years, I thought it takes longer. Did you have a biopsy in 2002?



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Geno type 1b, F1 vl 640,000 enrolled in Gilead's sofosbuvir/ledipasvir -week 1 66, week 2 <25
Biggyb


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So sorry for your results, i know how it feels, came back on me twice already in 12 years. This is my last time ever doing the peg crap..Just gotta take it one day at a time, and yes liver got a good break.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
hrsetrdr


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So sorry to hear, it's the nightmare that we all cringe to think about. I had to quit at 16 of 28 weeks...was UND @week 5 post tx. I won't get another VL lab done until March, so I hold my breath until then.       gen068.gif

 

Some new tx comin' down the pike in [probably] mid 2014 so there's hope in the no-so distant future.  wootj.gif



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
news


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This is maybe the scariest thing I have ever read. I really hope something comes along for you soon. You fought hard, and by golly you deserve better. My 12-week post tests are late November, and 24-week (SVR) in January 2013. I can't imagine my reaction if the news is bad. Best wishes to you no matter what. Get well. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
sungoddess


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Thanks everyone. Its a bummer for sure but as Bills says my liver got a break. For now the sun is shining, the shock is wearing off and I'm going to go wash my dusty truck.

Bev



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Geno 1a, VL 289,000 at start of Tx Nov 2/11. Und after 4 wks on Interferon, Ribavirin, and Victrelis, Finished Tx June 25/12. Still und. Virus back Sept 2012 VL over 1 million.

Started Harvoni Sept 22/16. VL 2 million. F score 2.

10/24/16:HCV UNDETECTABLE. Alt 21, Ast 21.

EOT: Dec 14/16  

SVR: May 2017
Iris Dragonfly


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Hi Bev, so sorry for the bad news. Maybe the new treatment will be approved there in a couple years, and perhaps we'll be on that ride together. Looks like the 7977 won't be available 'till 2014.

Hang in there babe, were here for ya. Be good to yourself, the woulda shoulda coulda's, will make you scream. Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naďve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Bills


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So sorry to hear this  Some of us do know this feeling  Someone said to me at least your liver got a break  We are all hopeful that something new is close and without Intf / Ribv  It should be a breeze  compared to the Tx we do now

Good luck Keep an eye out for the new TX  and best of luck with all this 'Bill S



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

kandacetb


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I am terribly sorry to hear that.  I hope you can get on the new treatment sooner than 2 yrs and get rid of this once and for all.

Big, huge, encouraging hugs to you!  Kick this virus' @$$!



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12Step Guy


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SunGod. I feel for you and wish you success in the future. Youre going to think maybe I'm crazed but it being back, being gone, not knowing either on some level may be somewhat equal. What I mean by this is that; is we all just live a day at a time. Sometimes good days, some days not so good; with or without the virus we all mostly have the same choices. Be a caring person, be grumpy, be confused, be controlling, be a victim. Bringing happiness, security and safety to others might be whats most important.

I'm only 16 weeks into this time. If it's back next Fall, I'll deal with it, just as you are. Don't know how many times you have relapsed before, but I've not made it twice in 1990 and 2006. My brother in law just celebrated this two liver transplant. I wouldn't wish this on anyone, nor would I like to end up like him and be that close to checking out. Yet now we are back fishing together and giving each other support.

Hang in there; we all have got your back

Vern

 



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
sungoddess


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Went to see my doc yesterday for the results of 3 month post tx blood test. The virus is back and viral count is over 1 million this time. Doc says viral load will likely come back down as time goes on. It felt like a kick in the teeth. We talked about the new tx that is coming, he thinks it will be 2 years before anything will be available in Canada. Right now I'm in a daze. I only did 38 weeks instead of 48 and I cant help thinking that if I did the last 10 maybe the results would have been different. Doc says no way to tell if that would have made any difference. Never thought I'd say this but I cant wait to get some tx.

Bev



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Geno 1a, VL 289,000 at start of Tx Nov 2/11. Und after 4 wks on Interferon, Ribavirin, and Victrelis, Finished Tx June 25/12. Still und. Virus back Sept 2012 VL over 1 million.

Started Harvoni Sept 22/16. VL 2 million. F score 2.

10/24/16:HCV UNDETECTABLE. Alt 21, Ast 21.

EOT: Dec 14/16  

SVR: May 2017
Judy S


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Oh gosh, I'm so sorry, Bev.  38 weeks is a long time to go through hell to learn that it's back.  I was able to do 23 weeks (supposed to do 48) but had to stop due to severe sx.  So I could very well be in your same boat.  I'm currently 7.5 weeks post tx.  I tested UND at week 4, but won't have my 3-month post tx test until Nov 6.  I'm nervous, believe me.  Well, the good news is that the future tx will be interferon-free and I've read they're aiming at only 12 weeks, instead of the 48 weeks!  I hope that will be possible!  You're in my prayers and let's stay positive.  Take good care of yourself and enjoy being sx-free for 2 years, then the new tx should be much easier and hopefully more effective.  Don't get too down; we'll beat this at some point!



-- Edited by Judy S on Friday 5th of October 2012 04:58:07 PM

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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
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