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Hep C Discussion Forum -> Post Treatment -> I will go On - Treatment Failed
Post Info TOPIC: I will go On - Treatment Failed
Zlikster


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RE: I will go On - Treatment Failed
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Sorry to hear :( me too relapsed few weeks ago (damn u fatty liver!).

Hey, never loose hope in medical progress. New meds are around the corner. It's just question of time and more importantly damn money big pharma game.

we will eventually get rid of pesky little liver muncher ;)





__________________

GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
Loopy Lisa


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I'm sorry to hear that. I read this a lot lately. We are one step way from the future of Hep C and new treatment strategies. Sending my best regards. x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Tig


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I'm sorry to hear his treatment failed. We've had a few people experience the same disappointment recently, but like your husband they're accepting of that fact and getting prepared for the new treatments. Sounds like he's doing his best to keep occupied and stay positive. Give him our best and I hope you keep us updated on his condition and yours. He's very fortunate to have you on his side!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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angelwish


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Just popped in and saw this.

I am sending you positive energy.

My husband is just now starting to shake off a failed treatment. He is back to running --his form off meditation and fishing.

This is a mental game also take the love and support given to you. We find it all over when looking especially here.



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col135


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Hello steve thats obviously not where you would like to be after the full duration,but other all oral drugs hopefully wont be that far away.Im hoping myself for all oral drugs to be approved then i myself can try again.Wishing you all the best for now and in the future with tx.Colin.



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Steve-o


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I really know how you feel.

Accept my "Sorry's" I hope you take advantage of the Holiday Mr Liver has had whilst UND,

and have a fun time.

 

All The Best Mate.

Cheers.

 



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Steve
greenqueen


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Sorry to hear this, Steve aww You kept going, despite such a difficult tx and you need some time to recover and recharge the batteries.

Love to both of you

Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
Mary Jane


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Steve I ain't goin hold back I am crying like a baby, this really stinks.  I am in 4 weeks in and having a hell of time. My heart goes out to you and your wife. I have learned that I enjoy the little things.  You are a smart and strong person and I pray that something will break in the science world to help all those who have been handed this news. You are in our prayers and may your days be brighter than before.  The glass is half full.     All the best to you and your wife peace and love MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
ss


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Thank You Everybody - I am Ok especially knowing that i can live another 25 to 30 years

and that my liver functions are working so i feel postive about this !

i will be checked monthly so i know i am under good care with my doctors -

And Hopefully there will be another  solution  soon!

thank you again and good luck to all - i will definetly be in touch with you all!

 

 



__________________

Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
Bills


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ouch and ouch that hurts as you can see there are others here got the same news once or twice I feel that pain just thinking about you getting that news .  when i relapsed i was told the same thing your liver gets a break I still was very depressed

I didn't know about the 20% regeneration and adding years  I like that  You will feel better without the drugs     Keep a healthy diet much as you can  Time does go quicker when your not counting pills visits and lab results and weeks  Please stay with us we'll always try to keep your spirits up and your experience and encouragement will be a big help to all of us  Soon we'll be cheering you on again with easier & better treatment  My thoughts and prayers are with you Your family's behind you you will beat this 

BillS



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

davesf


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Keep your head up Steve.  You may have lost this battle but you are going to win the war against this worm.  Remember how bad you felt when Jim who started with you had the same experience?  Now he's gone on to lead the way in what will hopefully be the answer for the non-responders.  Take some time, if need be, to bottom out in some self pity, so you can rise again stronger and ready to fight on.  You still have your friends, family, and most of your health.  You are loved and feel love which is what living is all about.

As my buddy Henry Davy Thoreau sayz:  Do not go gentle into that good night,,,



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
JIme


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Steve and Eileen,

I'm am very upset to hear this. You both put your heart and soul into this tx and did everything possible for it to be successful. Steve, you hung tough for 48 weeks, no matter what. You are one tough person. I know you both must feel exhausted and very dissapointed but please remember that you did everything humanly possible to make this work.

There must be another plan waiting down the road. I believe this for all of us. Please get some rest and recover some. You deserve it. Both of you. I will keep you both in my thoughts and prayers every day. I will stay in touch. We are not done. God bless you both.

Jim



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Iris Dragonfly


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Steve, that is very disappointing news, you had such a long miserable haul. Hope you are feeling somewhat better, don't be a stranger. Blessings to you, Iris



-- Edited by Iris Dragonfly on Thursday 11th of October 2012 05:30:30 AM

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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Margo


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52baddog wrote:

How can your liver get a break when the virus is still in your system while on treatment?  Please, explain.

Heartbreaking... My doctor told me the same after my first failed treatment. He said by doing treatment I added myself an extra 10 years, because the liver had a chance to recover and not being damaged by the virus for 11 months. As you know, liver is the only organ that can regenerate itself. However, with cirrhosis, the complete regeneration is impossible due to the formed scar tissue, yet the liver got a break from being bombarded by the virus and most likely regenerated 20% or so with new liver cells.

__________________

Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
52baddog


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How can your liver get a break when the virus is still in your system while on treatment?  Please, explain.



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Geno type 1b, F1 vl 640,000 enrolled in Gilead's sofosbuvir/ledipasvir -week 1 66, week 2 <25
mallani


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Steve, what a kick in the guts! I'm very sorry to hear your news. As cirrhotics our chances of SVR are reduced but it must be a big shock after 48 weeks of trying. Take a break and get advice about the next step. Thinking of you both-



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
davesf


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Sorry to hear the bad news Steve.  Stay positive.  You gave your liver a great break from the virus.  Now you just need to sit tight a little while longer until the "easy" drugs get FDA approval.

All the Best,  Dave



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
K2


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52baddog wrote:

How can your liver get a break when the virus is still in your system while on treatment?  Please, explain.

The viral load was significantly reduced (below decectable) for the duration of tx which is to say at least they were not replicating within the livercells for a period. "a rest from the attack" so to speak.

 

Sorry to hear the news Steve, going on is all one can do. Best of luck for the future X

Margo- we were responding at the same time, sorry for the repeat.



-- Edited by K2 on Wednesday 10th of October 2012 05:48:11 AM

__________________

genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Cinnamon Girl


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I`m really sorry to hear this, what a shock. cry The two of you must be reeling after going through such a long stretch on tx and I expect it will take a while for this to sink in, but it`s really good to hear that Steve is thinking positive about this.  All is not lost though and at least his liver will have had a chance to start healing all the time he was Und.  He`s been a real trooper for the last 48 wks, you both have, please send him love and all best wishes for the future...his day will come, I`m sure.

Take good care of each other, and please do keep in touch...hugs to you both, Jill xxx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
hrsetrdr


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I am so sorry to hear of this, please help Steve keep  on being positive, new one-pill treatment(s) are only about 2 years away.

my very best wishes,

Tim



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
JoAnneh


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Oh no!!! Sad. Steve worked so hard and
Always encourage us behind him.
Sorry and disappointed to hear the news!
Thank you for posting to us and keep moving forward w life
And prayers
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Karen


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So sorry to hear this...Glad to read that your husbands thoughts are positive and all functions are working.  More positive news-there are many new trials in the pipeline-some with great results. I am also sitting on the sideline waiting...

 Big hug to you and Steven...



__________________

Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
12Step Guy


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Wow, what a shock. But what we know about Hep-C and how to treat it is still in the beginning stages. Going on is what it is all about. As a past non-responder I know my chances of a 100% outcome is low. Fortunately you and Steve have figured out that there is much more in life beyond this. While what happened frightens me, I hope you know that your not alone.

I wonder if it would make any sense to get some grief therapy to deal with the brick wall you both just ran into?

Vern



__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
ss


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I am writing in behalf of my husband - Treatment Failed he will think postive and move on.

Thank You all for all of your support !  -

 

Best of Luck to all of you in Treatment!

 

Hopefully there will be something in the future - Cirrohossis is a tough thing - Thank G-d All of his functions are working and he has another 30 years to live! We will just wait for another drug to come out



__________________

Harvoni Started - November 23 2014

Geno 1b  Cirrohsis started incivek October 13, 2011 ended incivek on January 5, 2012

 FAILED

6 months Undetectable! 

8 months UNDETECTABLE

Last Shot Sept 7 2012.

Last Ribo Sept 13 2012

Graduated now to Post Treatment

  

 

 

 

 
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