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Hep C Discussion Forum -> On Treatment -> Headache
Post Info TOPIC: Headache
JoAnneh


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RE: Headache
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I would take one Tylenol and it helped.
I slept as much as possible.
The headaches were often and doctor
Recommended Tylenol.
Don't suffer take Tylenol if it won't go away.


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Cinnamon Girl


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Hi Supportive Wife,

it`s best to keep `over the counter` painkillers to a minimum  with Hep C, because everything we eat or drink has to be processed through our livers.  The one usually recommended is paracetamol (tylenol), but only to be used in moderation as it`s very toxic to the liver if taken in large quantities.  It`s best to try other ways of relieving the headache first, like taking a walk in the fresh air or practising one of various relaxation techniques.  If in doubt check with your husband`s doctor.

Here`s some useful info on Hep C and painkillers...

http://www.hep.org.au/documents/factsheets/PainkillersLiver2010.pdf

Hope that helps.  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
supportive wife


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what can a person with hep c take for a headache



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Brendalee333


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in my instance, i have came to just deal with the headaches> I see a neurologist for headaches and had medication adjustments and nothing has seemed to help much.  I notice my headaches are worse on the night and few days after I take my shot. Hang in there, stay positive! 



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genotype 1a

Started treatment 4/12/13 with ribavirin and peg-intron. Started Victrelis 6/19/13. (triple therapy)
Dillo


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They gave me a shot of Procript whenever mine went below 10. Its not cheap stuff but works good.



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

dustbear


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Yes, I experienced headaches before the transfusions, and yes they went away after getting blood.



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Tig


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That could certainly be part of the cause!  Have you experienced these headaches before the previous transfusions and were they relieved?



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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dustbear


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I drink lots of water daily, at least 2 litres. I use fresh lemon squeezed in it.

I just got my blood test results today.  My hemoglobin is low at 84 and will need a blood transfusion soon (had 2 already).

Maybe this is why the headaches have lasted longer than usual??



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Dillo


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I used to have them at first part of tx but could usually be cured with Tylenol. I have gotten them more frequently lately and the Tylenol doesn't help as much. My hepa Doc said no ibuprofen or asprin allowed.. Naps help, sometimes just doing soething different than what I am doing when it came helps. More and more water intake has been the only consistant thing thats helped me. The neck bag, massages, and baths sound like a good idea.

Good luck dustbear



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Tig


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Hi! I can relate to the headaches but mine are a little different. I have a headaches, but they aren't constant. How much fluid are you consuming? I find that the headaches will either go away or become easier to tolerate if I have water with me all the time. If you get used to sipping it all the time, you'll develop a habit of it and it becomes easy. It's really important to keep hydrated during treatment. What you think is normal isn't going to be during treatment. Your body demands higher quantities of it. Try to up your input with water, minerals and nutrients, hopefully that will reduce the frequency of your headaches and the discomfort. Good luck!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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dustbear


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I've had headaches for 6 days straight now!  The longest stretch so far.  I feel like pulling what little hair I have left out!

I've tried tylenol (sparingly), nettie pot, ibuprofen, warm neck bean bag, massages, epsom salt baths.

I haven't tried Panadol, I see my hepatologist this week so I'll ask about it.

Sleeping is the only break I get, and I have to take pills to do that!



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Karen


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Hi JoAnne...You have done an amazing job...Still und...Hang in there. Wishing you the best.  Karen



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
news


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Isn't it amazing how far you have come, and how little is left to go? It seems you are going to survive after all. This makes me very happy. We pulled through this together, you and me, with lots of questions and answers. Can't wait for you to finish. Probably only a few more days, right? Now you get to go through that confusing time of going to the pill holder but there's nothing there, checking for good injection sites when you are laying in the tub, then realizing you don't need one, and the rehab for the skin and hair, trying to get back to normal. It's fun in a crazy sort of way.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Greg


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Hi JoAnneh,

I don't know if I have said hello yet at this very late stage in your journey, but hi and well done. I used to get headaches all the time as well and found that drinking lots of good old water helped, you have to keep hydrated. Water intake is vital during tx for this very reason as it flushes out the toxins for our systems which can cause the headaches among other things. Hope this helps.

So happy for you.

All the very best,

Greg



-- Edited by Greg on Wednesday 13th of March 2013 08:27:37 PM

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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
JoAnneh


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Hey my friend Alan!!!
I have 5 weeks left somewhere around 35 more days.
My skin is sand paper and hair is HAHA!!
With Spring in the air and having received MY LAST
BOX OF MEDICINE TODAY. 11th month delivery, I seethe finish line.

I love my hep c friends! Thank you for 

Getting me excited about it ending!
I live w my pill box and alarms!
Gotta get thru 5 more injections

to join post tx friends! 

Xxoo



-- Edited by JoAnneh on Wednesday 13th of March 2013 07:53:06 PM

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
JoAnneh


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I feel much better, I believe working
Is causing the headaches to increase.
I am only working 5 hours this week.
The weather is sunny, Spring is coming!:)
I try to keep moving at home and rest as needed.
It's a beautiful day today!
And still UND, the medicine is working!!! So THANKFUL!



-- Edited by JoAnneh on Wednesday 13th of March 2013 02:47:21 PM

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
hrsetrdr


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One day at a time, JoAnne- may seem like forever but you're on the downhill stretch!  I'm glad that today was a good day for you, may you have many more.

 



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
JoAnneh


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Butch u got this! 1 week left! Today has been a good day.

I have to focus on one day at a time as

5 weeks seems too far away and

depressing but I will get there

love my hep c forum friends! Xxoo



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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Butcheeyboy


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JoAnneh wrote:

Anyone have any experience for me, I have headache every day.

some  days it hurts really bad others just dull ache



-- Edited by JoAnneh on Friday 8th of March 2013 02:41:25 AM

I am sorry you are having headaches and I can say that it was the same

for me.

I am on week 47 with one shot and 7 days worth of Riba. My headaches were

a daily issue with some worse than others. I am taking Ibuprofen 600 mg.

But what really helped me was a blood transfusion. About week 35 or 36 my

blood counts were getting really low and I was very anemic. A couple days after

the first transfusion my headaches began to subside (just a thought for you). 

I have had 3 transfusions and headaches been 4 or 5 times a week now and not

as severe. My blood counts are  dropping again but I am gonna try to finish without

having another transfusion.

Please hang in there, as it's almost over for ya!!

 



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May You Have A Safe Trip & A Successful Journey
Zlikster


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for headaches, i had best results with forced sleep. I had mixed results with cannabis, sometimes it helps, sometimes it makes headache worse...not sure about meds, since i do not take painkillers. Call me mazochist, but if it's not an operation that asks for anesthetics and painkillers i do not take em...even at dentist 80% of cases i do not take xylocaine injections. I do not like pain, but i know pain is only "in my head"

Lavander oil under my nose was giving me short term headache relief, also ment tea helped...

__________________

GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
Cinnamon Girl


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JoAnneh wrote:

I corrected my typo error! How embarrassing.
I shouldn't type w a headache:)!
Thank you all for your ideas and encouragement.
5 more weeks:)

 JoAnne, you don`t need to feel embarrassed with us, ever, and you made us smile!  wink  We`re your friends and we`re here for you all the way......>>> to the finishing line!  Not much longer!!    Hugs, Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


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Hi JoAnne,

Sorry you've got headaches as well, but you can deal with them. Only 5 weeks more- no problem! Cheers



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Biggyb


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So it's not sexperience, i was sooo confused, just kiddin with ya.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
JoAnneh


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I corrected my typo error! How embarrassing.
I shouldn't type w a headache:)!
Thank you all for your ideas and encouragement.
5 more weeks:)

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Bloomster


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Sorry to hear what you're going through with the headaches JoAnne.

Hubby is on Victrelis and not incivek, but he has had dull headaches for weeks.  He has been told it is the treatment.  He takes Panadol quite regularly to keep it under control as he works full time in an intensive environment.  The Panadol seems to ease it, but it rarely goes away completely.  It can be very draining having a dull headache go on and on, so I feel for you.

I understand from reading some of your other posts that you are on your final few weeks with treatment?  Be encouraged, the time will pass quicker than you think. 

PS: I tell hubby to create a mental picture in his mind when he gets all the aches, pains and headaches, that it is the treatment getting into every cell of his body killing off the virus.  Somehow makes the pain a little more bearable. 

Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
Mary Jane


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Hey Jo Jo...

So sorry.... hugs....Yes...  I did have headaches everyday some seemed to serge.. and others were dull.. I 've had miagraines but these were different..  It seemed to me to have something to do with my sinuses..?  or at least it felt that way..

I got a humidifier and did the saline nose spray stuff but sometimes I had to take Tylenol... I did ask my hepatologist.. and that's what he recommended... plus it was easier on my stomach...  I know what some are going to say about Tylenol & your liver...but I took it sparingly...

also I got one of those bean/rice neck injury warmers things you heat in the microwave; warmed it up and put that around my neck & it seemed to help idk why but it did... I sure hope you get some relief... hang in there and give your doc's  office a ring and see what they recommend... all the best  P & L MJ



-- Edited by Mary Jane on Friday 8th of March 2013 02:06:36 AM

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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Cinnamon Girl


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Hi JoAnne, oh sorry you`re getting these headaches every day, it must be hard going for you .  Are you taking anything for them?  It might be an idea to mention this to your doctor or nurse.

I expect other people will jump in and reply to you soon, someone else may be having the `same experience`, I think that`s what you meant to say.  wink  Take care,  Jill xx



-- Edited by Cinnamon Girl on Thursday 7th of March 2013 11:29:07 PM



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
JoAnneh


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Anyone have any experience for me, I have headache every day.

some  days it hurts really bad others just dull ache



-- Edited by JoAnneh on Friday 8th of March 2013 02:41:25 AM

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
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