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Hep C Discussion Forum -> On Treatment -> Hep C Survey Pays $100 Check it out
Post Info TOPIC: Hep C Survey Pays $100 Check it out
Douglas


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SIX MONTHS TODAY LIVER TRANSPLANT ANNIVERSARY / NEW MEMBER
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SIX MONTHS TODAY LIVER TRANSPLANT ANNIVERSARY

WHAT DO I DO NEXT ??


Does anyone have experience/advice on Hepatitis C / Near Death / Liver Transplant injury?


I contend my HEPATITIS C (HCV) story and all started approx 16 years ago with a medical mistake that lead to near death that was staved off by a just-in-time liver transplant exactly 6 months ago. Subsequently, I found the Attorney in Boise, Idaho, who was involved in the class action suit against BAXTER PHARMACEUTICAL.
I believe he specifically wrote the section which I qualified as a patient who suffered exposure ONLY, at that time, to the product labeled as OFF MARKET due to potential HCV contamination.
My IGG immune deficiency requires monthly IVIG infusions. It was during one well documented occasion I was administered the wrong medication. Unfortunately, my prescribed medicine sat side by side next to the OFF MARKET bottle that was inadvertently selected.


I contend that my subsequent HCV diagnosis, as recent as 10/2012 and liver transplant, 12/2013, can be traced back to the medicine wrongly administered during an IVIG infusion at Yale New Haven Hospital approx. 14 years ago.
It is known that pathology lab test technology was not sophisticated enough for accurate determination of HCV at that time. Hence, the Exposure ONLY status was confirmed at that point in history. Even today, I believe such tests can also yield initial false negatives or positives.
It can take as much as two decades with many years of no apparent symptoms for HCV to manifest its self as liver cirrhosis. I am the worst case scenario requiring an organ transplant. The congenital immune deficiency combined with HCV and the myriad of medical maladies that followed, all created the perfect painful storm headed for my early demise.
 
I contacted the Idaho / Past Class Action Attorney to discover if I can pursue BAXTER within the the settlement's 30 year window for further injury claims. The Settlement has made funds available for further claims up to 30 years later of those with qualifying injury criteria. My award could potentially be calculated in excess of $650,000. Also, he is interested in finding a Connecticut firm to coordinate a possible further personal injury / medical negligence suit regarding the YNHH medical mistake.
Statue of Limitations absolves YNHH of any legal responsibility after 3 years for an injury that takes decades to manifest itself.
There must be a way to make ethics prevail over this law for such a compelling story.
 
Do you know anyone with experience with such issues?
 
Do I have a viable claim here?
 
Could the State of Connecticut 24/36 month personal injury statue of limitations start at the moment of diagnosis?
 
How can I creatively make such a legal hurtle?
 
How do I determine a value to my financial injury and emotional injury?
How to determine dollar value of an early demise for me / family?
 
I look forward to your response.
Thank you for any insight and interest you can share.

Douglas_Julian

ps
New liver came with Genotype 1B, much more serious than previous.
Also I am prone to autoimmune Hepatitis, as experienced pre- transplant
ANTHEM BX BS has approved SOLVALDI, but I need combo therapy for SVR success - must appeal !! So far;
ANTHEM BX BS has denied OLYSIO 
ANTHEM BX BS has denied RIBAVIRIN

WHAT DO I DO NOW?


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dianna


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RE: Hep C Survey Pays $100 Check it out
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Hello Is anyone on line I am a newbie to the site.



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Dianna
Isiscat2011


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It was today, Matt.



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Matt Chris


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Hey Isiscat

Interesting info, did you just have the interview in the last couple of days? I emailed on Sat she responded then I email back the first set of questions but have been not heard from her yet.

Three meds for 24 weeks, could be Abbvie, BMS, or Merck they all have multiple meds. I liked your input/response about the weird question that put them back in the real world.

matt   



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Isiscat2011


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P.S.  Thank you for the info suzig.  It was a unique experience.



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Isiscat2011


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So, I participated in the phone/web interview with the mysterious pharma marketing folks.  I don't know what they learned but I learned they are putting their feelers out on what appears to be an all oral 3 drug combo that takes 24 weeks.  And, they are considering offering a money-back guarantee (a fairly dumb idea considering nobody actually pays for these drugs themselves).  A big budget support system appears to be part of their plan.  

At the end of the interview she asked me if I would recommend their tx to a loved one, to which I replied "I don't even know what your tx is."  She says, "Well, based on what you do know."  I told her that, assuming similar efficacy and safety profiles,  24 weeks with a 3 pill burden didn't sound so great considering the S/L combo is a one pill/12 week tx for most patients.    

Mildly interesting, but I doubt I'd participate in a focus group again.  Focus groups can be valuable, but I must say, I couldn't grasp the value in that one. Most of the questions concerned ranking the importance of efficacy, ease of tx, cost, and support.  Similar questions over and over again.



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Loopy Lisa


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Hahaha if I could have a super power it would be to read minds, there again I might not like what I read :P



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Huey


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hrsetrdr wrote:
Tig56 wrote:

Are you kidding? That's quite a technical question, ha, ha! If I could have a super power, I would desire the ability to be invisible at will. Of course everything I touched would need to turn invisible too, lol!

Tig

 I would like my super power to be........to be able to choose the correct numbers for the next Power Ball draw.     

 you mean like Steven Kings story ware you get tomorrow 's News paper every day .



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
jimbob


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I want Tim's super power!

Mugsy, you chose to be noble, live with it....

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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
Tig


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I just heard from Sari Kaplan and she said that there was one question that I had answered no to that disqualified me. She did mention that there are some additional surveys coming in the next few months and they are maintaining our requests for consideration in those surveys. So maybe I'll get some poker money anyway, it's just going to take a while to get it, lol!

Hey James, I forgot about that. lol! Maybe I should consider being Aqua Man instead. Might be a more helpful transition if my potato flakes self ignite again!!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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hrsetrdr


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Tig56 wrote:

Are you kidding? That's quite a technical question, ha, ha! If I could have a super power, I would desire the ability to be invisible at will. Of course everything I touched would need to turn invisible too, lol!

Tig

 I would like my super power to be........to be able to choose the correct numbers for the next Power Ball draw.     



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
jimbob


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I remember at one point during your tx Tig you could "flame on"....

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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
Mugsy


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Lame answer...said I would want to be a healer. Should have told him something outrageous. I asked him who the drug company who hired his research company and he wouldn't give an answer.



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62 y/o F     Genotype 1b  for 40+ years    cirrhosis    Started Harvoni  on 11/23  for 12 weeks       UND  12/22/2014     Ended treatment on Feb 15th.

12 week's EOT viral load      <15 
Isiscat2011


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Tig56 wrote:

Are you kidding? That's quite a technical question, ha, ha! If I could have a super power, I would desire the ability to be invisible at will. Of course everything I touched would need to turn invisible too, lol!

 

         _________________________________________________________________________________________________________

Dang, invisibility would be a good one.  I told him I would cure all disease.  Just call me Saint Isiscat from now on.  hahaha   



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
jimbob


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Mugsy wrote: .  

I also sent an email. Spoke to 'James' for 10 minutes or so answering questions, then he set up an online appointment for Monday. Just got a call back and he said the survey is filled, so no $100 for me. One question he asked was if I could have any super power what would I choose.

 So,what did you choose? 



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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
Isiscat2011


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Mugsy wrote:

One question he asked was if I could have any super power what would I choose.

 Oh yeah, I forgot that one; he asked me that too.  Interesting question.  I'll tell you my response if you tell me yours.  lol



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Tig


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Are you kidding? That's quite a technical question, ha, ha! If I could have a super power, I would desire the ability to be invisible at will. Of course everything I touched would need to turn invisible too, lol!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Mugsy


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I also sent in an email. Spoke to 'James' for 10 minutes or so answering questions, then he set up an online appointment for Monday. Just got a call back and he said the survey is filled, so no $100 for me. One question he asked was if I could have any super power what would I choose.



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62 y/o F     Genotype 1b  for 40+ years    cirrhosis    Started Harvoni  on 11/23  for 12 weeks       UND  12/22/2014     Ended treatment on Feb 15th.

12 week's EOT viral load      <15 
Isiscat2011


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Tig56 wrote:

I submitted everything as I mentioned and didn't hear from them. Must be looking for something specific. Darn, I could've used some pocket change, lol!        _____________________________________________________________________________________________________

 

They might want to talk to people who still have the virus as opposed to those who have SVRd.  Heck, I would have talked to them for free.  

He asked me a very interesting question:  "Do you believe there will be a vaccine to treat HepC in the future?"   I took this to mean a therapeutic rather than a preventative vaccine.  

He also asked whether I had ever used Sovaldi or Olysio (as well as Interferon and Riba and first gen protease inhibitors). He asked some questions concerning social stigma and how having hepc has effected my personal relationships.  He asked a few health related questions.  He asked about my educational level.  I think they are trying to determine who their targeted audience is and how best to market to those demographics.  I'm pretty curious to see what else they want to know although I am having second thoughts about helping them build an advertising campaign.  



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Tig


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I submitted everything as I mentioned and didn't hear from them. Must be looking for something specific. Darn, I could've used some pocket change, lol!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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suziq


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Decided to update the title in case someone missed it.  The form to get into the survey is in my first post about it.

Just scroll down to that post to see info.

SuziQ



-- Edited by suziq on Friday 6th of June 2014 10:13:07 PM

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Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
Isiscat2011


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RE: Hep C survey
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P.S.  I doubt they will ask me about the prospective costs of the new DAAs, but if they do, boy will they get an earful.  



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Isiscat2011


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My curiosity got the best of me so I emailed Sari Kaplan with my responses and received a phone call 5 minutes later.  I asked the guy who called me about the purpose of the survey.  He indicated that the survey is for a pharma company looking to "release" a new drug but he was not eager to share more details.  I asked him if he worked on behalf of or for Gilead, he replied no, asked if he worked for Merck, he replied no.  

I don't think there is any nefarious reason for their inquiries; they appear to be marketing a new HepC drug.  I like to share my experience and add my two cents so I agreed to participate.    

He asked me more questions and then said ok you qualify.  I have an appointment for the survey next week via telephone and webcam.  He sent an email to confirm the appointment.  I've never participated in a survey of this nature before so we shall see how it goes.  

Should be interesting.  I'll try to behave myself.  



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Tig


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Hi Susan,

I went ahead and copied the included questions to a Word document and emailed it to Sari Kaplan. Sounded like something that would be helpful and that's so important to get our individual input out there. I see some specifics in this list but it sounds like they're looking for a cross section of everyone infected and affected. I'm always amazed at the stuff you find and appreciate you sharing this type of information with us. I hope you're doing well!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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suziq


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Hep C Survey Pays $100 Check it out
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Hope this is not breakin the rules.  These surveys help the drug companies.  They are interviewing between now and Tuesday so call ASAP if you are interested.  They called me right back BUT cutoff age is 70.  You will receive $100. I have done many of these over the years and have always gotten PAID!  It is one way to get the drug companies to hear you.  I have no affiliation with this survey--just saw it and thought someone might be interested.  I was But I'm too old.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Hi there, we are currently looking for HCV patients to participate in one of the following types of interviews:

1. Nationwide phone interviews

2. In person interviews at our office (MedQuery 850 West Jackson, Chicago, IL)

The interviews will last one hour and to thank you for your valuable feedback we will compensate you with a generous honorarium. If you are interested in participating please answer the questions below:

1. Name

2. State you live in

3. Telephone Number

4. Is your HCV active or undetectable?

5. Are you currently on medication to treat your HCV?

6. What type of insurance do you have?

7. Which of the following pertain to you:

a. I have Cirrhosis of the Liver

b. I am on the transplant waiting list

c. I have had a liver transplant

d. I am co-infected with HIV/AIDS

e. I am genotype 3

f. I have taken Victrelis or Incevik in the past but am no longer it. I am currently looking for other treatment.

g. None of the above

If you qualify for the study I will call you to schedule you for an interview. We have limited spots available so please e-mail me to reserve your spot! Looking forward to hearing from you!

Sari Kaplan
Client Service & Marketing Manager
Email: Sari.Kaplan@medqueryinc.com

 



-- Edited by suziq on Friday 6th of June 2014 05:26:37 PM



-- Edited by suziq on Friday 6th of June 2014 10:07:42 PM

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Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
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