Hep C Discussion Forum

loulabelle · loulabelle

Hi, I would really appreciate some advice please. I am on week 20 of a 24 week triple therapy and want to stop. I cleared the virus at 4 weeks. I am so sick of feeling depressed, cold, weak and bad tempered ect! Surely stopping at this point wont make any difference?

Freshhope · Freshhope

I just started a the TURQUOISE II AbbVie all oral trial for those with cirrhosis. I haven't done treatment before and just found out last year that I had Hepatitis C type 1b. I probably got it from a blood transfusion as a kid, but since I'm in my early 40s, it was still a shock to find out it had already cause...

Loopy Lisa · Loopy Lisa

I just wanted to wish everyone a Happy Easter, to those that don't celebrate I hope you have a relaxed and fun evening. Hugs to all past and present Hep warriors! :*

Aj · Aj

Hi all, I've been reading through posts over the last few days & finallha have the courage to ask some questions myself. My mom has had HCV for approx 38 yrs (when I was born she had a blood transfusion). She was in a clinical study approx 9 yrs ago but couldn't finish or was not responsive (I may not get...

bill77 · bill77

Hi everybody,Bill here, about to start triple therapy (Incivek) March 22nd. My chances for SVR with my particulars should be good but wonder if more interferon vice waiting 2 years is worth consideration in lieu of what is now being questioned about repetitive interferon regimens.Geno 1b,IL-CT,...

tommy07cat · tommy07cat

I will complete my therapy the last week of April 2013!! I was a non responder in 2007 and started triple therapy with Incevik May 2012. I was terribly sick and weak the first three months of Incevik and have had every side effect there is for the last 8 months of dual therapy. I have been undetectable thro...

New member · Alaska Fred

I start treatment in about a month and thought joining this forum would be a great way to start my support network. Alaska Fred

nurschic · nurschic

Hello all! Im new here to the site, but have been dx with HCV genotype 1 for a few years. Once I found out that I was positive I stated seeing a GI doctor who just wanted to monitor my lab values and not do any treatment. At first I was very good about going to see him every 6 months, but after a few years of "...

Tankrat · Tankrat

Hello all, my past has come back to haunt me and now it have to fix it. I started the regular two drug therapy 4 weeks ago and just got blood work back. I went from 9,000,000 virus load to 100,000 (close to undetectable but not enough) so now i will have to add incivek. Will start that tomorrow. A little bit...

HepperGirl · HepperGirl

I'm new to this site and hoping to meet some people that can give me some good advice. I just finished my 13th week on triple therapy with Incivec. I keep having a swollen tongue, sores that come and go, difficulty swallowing, and pain in my throat that sometimes hurts really bad, and not to mention acid r...

Isla · Isla

Hi I'm new to the Forum .I had hepC for 12 years ,I'm 32 now .My treatment was supposed to be started last march.Two days before my first injection I received a phone call from my nurse to say that my latest, pre-tx test came back negative. Being as we all assumed that it was lab's mistake I had another one fe...

Groo · Groo

Was diagnosed Hep-C 2-b positive in 2005. Did the pegasis for 43 weeks as I was a slow responder, beat is and will be going on 8 years clear as soon as I get the next blood test. Just wanted to try and boost the morale of others who are newly diagnosed and let them know its not the end of the world, and as long as t...

Blessed · Blessed

On March 25th I start my first round of chemo. Just want to get it over with because I trust Yahweh to heal me of this nasty thing! Getting my Nioxin to protect my hair. Thanks to all for advise. Yahweh Blessings

Ouchie · Ouchie

Well , guess I'm in the family now lol. Was told I have HVC antibody and only had a couple symptoms and ignored it ( about three years ago ) hoping it would go away - talking myself into being fine and just worrying. 95% Chronic - I think that's why it took so long to get to this point. Now , everything from c...

KLG · KLG

I have been reading the board since I started treatment 4 weeks ago and wanted to thank you for all posts!! It eases my mind to know that what I am experiencing this go- round is normal -- fatigue, shortness of breath, rash and just feeling crappy... What I didn't include in my bio was my 2nd treatment att...

3bz · 3bz

When I was diagnosed with Carcinoid Cancer in 2008 I'd been on a 10 year journey to find out what was wrong nd why so much pain.? The average journey to find this rare and little known disease is 6 years as it mimics itself as so many other diseases and is mean but slow growing. Its also known as NeuroEndocr...

Christine_63 · Christine_63

I Am new to this.I,ve known I have this disease. For 20 yrs And in the last year I,ve gone From To 3.I feel sick all The time and I.m about to start treatment.......Anyone got advice?

jrmcl · jrmcl

Hi, I am female , 58 years old and live in Sydney Australia. I was diagnosed 15 months ago with Hep C and Cirrohsis but have not started treatment yet. The specialists wanted to make sure I was stable enough. For example during that time I also got diagnosed with osteo-athritis in my knee and need a pa...

Shelby · Shelby

I am open for all advice on help with getting calories in him. I have hospice in the house but they are kinda annoying. He does not want to die trying to make things better for him. I am 32 so kinda young to be a caregiver but feel blessed to be by my dads side. I feel so lost watching this very sad. I am up fo...

hepcinohio · hepcinohio

Ugh! Well, my name is King and Ive been through the whole routine and now im back for round 2. I see some familiar names are still here (hello) and Hello to the new ones too. Well in 2008 I was on the treatment for about 38 weeks. Sicker than a dog I had to stop. I guess I tried to fool myself into believing that I...

Emm · Emm

I want to converse with Canadians because the US has different system of monitoring and treatment which means absolutely nothing to me. It is confusing gibberish to my eyes and brain, so, if this is not exclusively Canadian would someone please forward me to a Canadian site on Hep C. Thanks

MikeJJ · MikeJJ

I recently was confirmed with Hep C 1A after a routine blood test by a life insurance company, which declined me. My viral count is roughly 14,631,000. I very likely have been living with this 20-30 years. I have had several blood tests and a sonogram. My liver function tests are all pretty much normal o...

Rescape · Rescape

This is my first post. I am a 60 year old man, and I have had hep c for 8 years. After long discussions with my wife and doctor, I decided to begin triple therapy treatment. I am in the fourth week now with several of the side effects that bother others. My biggest problem involves the intake of the 20 gr...

Kel · Kel

Hi guys . Well I got more blood work done, and i got my biopsy. My viral count is 69 million, and biopsy showed no scarring. My doctor says i dont need treatment because there is no scarring. I dont understand - why would I want to wait until there is damage to treat? That doesnt sound pro active or at all rati...

Materbob · Materbob

Just found out I had hep c antibodies and yesterday had blood test for viral loading, still waiting for results. I was tested due to a persistent pain in my upper right quadrant. so far, it is scaring the hell out of me; my brother died about 10 years ago from liver disease. What should I expect next. --...

Easter · Easter

Hello all from Illinois. My name is Sarah and new here and to the Hep C thing, well as far as the one who has it. My doctors believe I contracted the virus while I was a volunteer medic. I tested positive and my viral load from my understanding was through the roof and the biopsy showed stage 2, so they don't w...

SonniQ · SonniQ

My 35 year Hep C infection has now turned into cirrhosis and I've been dealing with ascites. I've actually been feeling good the past 5 years. Treatment didn't work for me in 1998. I have a good dr I see every 3 months who keeps up with blood tests, etc. I turned really sick and blew up with ascites 2 wee...

New Member first post · Matt Chris

Hello Everyone , I've join this forum interact will other HepC brothers & sisters. My status is HCV genotype 1a with cirrhosis I have justly finished my first week in the Abbott open label clinical drugl trial called TURQUOISE-II So far so good, very little side effects Matt

Blessed · Blessed

I must say, I am scared to death, but I trust in Yahweh and I know I will be healed of this.

Blessed · Blessed

Any info on hair loss would be helpful to me and how I may avoid it. I finally have a great head of hair at age 50 and now I may loose it I have been told.

Topic		Started By	Replies	Views	Last Post
	Stopping treatment 4 weeks early? (Preview) Hi, I would really appreciate some advice please. I am on week 20 of a 24 week triple therapy and want to stop. I cleared the virus at 4 weeks. I am so sick of feeling depressed, cold, weak and bad tempered ect! Surely stopping at this point wont make any difference?	loulabelle	6	1296	Apr 2, 2013 by 12Step Guy
	New, just started Abbott trial (Preview) I just started a the TURQUOISE II AbbVie all oral trial for those with cirrhosis. I haven't done treatment before and just found out last year that I had Hepatitis C type 1b. I probably got it from a blood transfusion as a kid, but since I'm in my early 40s, it was still a shock to find out it had already cause...	Freshhope	1	1036	Apr 2, 2013 by mallani
	Happy Easter (Preview) I just wanted to wish everyone a Happy Easter, to those that don't celebrate I hope you have a relaxed and fun evening. Hugs to all past and present Hep warriors! :*	Loopy Lisa	2	1021	Apr 2, 2013 by news
	Mom is sick, but how sick? (Preview) Hi all, I've been reading through posts over the last few days & finallha have the courage to ask some questions myself. My mom has had HCV for approx 38 yrs (when I was born she had a blood transfusion). She was in a clinical study approx 9 yrs ago but couldn't finish or was not responsive (I may not get...	Aj	5	1742	Mar 28, 2013 by Cinnamon Girl
	Well folks, here I go. (Preview) Hi everybody,Bill here, about to start triple therapy (Incivek) March 22nd. My chances for SVR with my particulars should be good but wonder if more interferon vice waiting 2 years is worth consideration in lieu of what is now being questioned about repetitive interferon regimens.Geno 1b,IL-CT,...	bill77	18	1855	Mar 24, 2013 by mallani
	almost done!! (Preview) I will complete my therapy the last week of April 2013!! I was a non responder in 2007 and started triple therapy with Incevik May 2012. I was terribly sick and weak the first three months of Incevik and have had every side effect there is for the last 8 months of dual therapy. I have been undetectable thro...	tommy07cat	3	779	Mar 22, 2013 by Butcheeyboy
	New member (Preview) I start treatment in about a month and thought joining this forum would be a great way to start my support network. Alaska Fred	Alaska Fred	10	1014	Mar 20, 2013 by tomyboy
	New to site (Preview) Hello all! Im new here to the site, but have been dx with HCV genotype 1 for a few years. Once I found out that I was positive I stated seeing a GI doctor who just wanted to monitor my lab values and not do any treatment. At first I was very good about going to see him every 6 months, but after a few years of "...	nurschic	8	1141	Mar 20, 2013 by Loopy Lisa
	Starting triple therapy tomorrow. (Preview) Hello all, my past has come back to haunt me and now it have to fix it. I started the regular two drug therapy 4 weeks ago and just got blood work back. I went from 9,000,000 virus load to 100,000 (close to undetectable but not enough) so now i will have to add incivek. Will start that tomorrow. A little bit...	Tankrat	21	2561	Mar 19, 2013 by Andreaz
	Swollen tongue (Preview) I'm new to this site and hoping to meet some people that can give me some good advice. I just finished my 13th week on triple therapy with Incivec. I keep having a swollen tongue, sores that come and go, difficulty swallowing, and pain in my throat that sometimes hurts really bad, and not to mention acid r...	HepperGirl	3	1063	Mar 15, 2013 by HepperGirl
	spontaneous clearance (Preview) Hi I'm new to the Forum .I had hepC for 12 years ,I'm 32 now .My treatment was supposed to be started last march.Two days before my first injection I received a phone call from my nurse to say that my latest, pre-tx test came back negative. Being as we all assumed that it was lab's mistake I had another one fe...	Isla	3	925	Mar 15, 2013 by Zlikster
	Hey all. (Preview) Was diagnosed Hep-C 2-b positive in 2005. Did the pegasis for 43 weeks as I was a slow responder, beat is and will be going on 8 years clear as soon as I get the next blood test. Just wanted to try and boost the morale of others who are newly diagnosed and let them know its not the end of the world, and as long as t...	Groo	4	1104	Mar 15, 2013 by Cinnamon Girl
	The Countdown! (Preview) On March 25th I start my first round of chemo. Just want to get it over with because I trust Yahweh to heal me of this nasty thing! Getting my Nioxin to protect my hair. Thanks to all for advise. Yahweh Blessings	Blessed	3	920	Mar 14, 2013 by Matt Chris
	Finally accepted it lol - (Preview) Well , guess I'm in the family now lol. Was told I have HVC antibody and only had a couple symptoms and ignored it ( about three years ago ) hoping it would go away - talking myself into being fine and just worrying. 95% Chronic - I think that's why it took so long to get to this point. Now , everything from c...	Ouchie	2	881	Mar 11, 2013 by 12Step Guy
	Hello and thanks! (Preview) I have been reading the board since I started treatment 4 weeks ago and wanted to thank you for all posts!! It eases my mind to know that what I am experiencing this go- round is normal -- fatigue, shortness of breath, rash and just feeling crappy... What I didn't include in my bio was my 2nd treatment att...	KLG	9	1324	Mar 9, 2013 by KLG
	I'm lost. Oh. And new here. (Preview) When I was diagnosed with Carcinoid Cancer in 2008 I'd been on a 10 year journey to find out what was wrong nd why so much pain.? The average journey to find this rare and little known disease is 6 years as it mimics itself as so many other diseases and is mean but slow growing. Its also known as NeuroEndocr...	3bz	5	1137	Mar 9, 2013 by Bloomster
	Hep C type 1 stage 3 (Preview) I Am new to this.I,ve known I have this disease. For 20 yrs And in the last year I,ve gone From To 3.I feel sick all The time and I.m about to start treatment.......Anyone got advice?	Christine_63	3	811	Mar 8, 2013 by Matt Chris
	New here (Preview) Hi, I am female , 58 years old and live in Sydney Australia. I was diagnosed 15 months ago with Hep C and Cirrohsis but have not started treatment yet. The specialists wanted to make sure I was stable enough. For example during that time I also got diagnosed with osteo-athritis in my knee and need a pa...	jrmcl	2	923	Mar 7, 2013 by Cinnamon Girl
	Dad is in end stage liver faliure from hep C NEED HELP (Preview) I am open for all advice on help with getting calories in him. I have hospice in the house but they are kinda annoying. He does not want to die trying to make things better for him. I am 32 so kinda young to be a caregiver but feel blessed to be by my dads side. I feel so lost watching this very sad. I am up fo...	Shelby	8	1381	Mar 7, 2013 by Cinnamon Girl
	I'm back again (Preview) Ugh! Well, my name is King and Ive been through the whole routine and now im back for round 2. I see some familiar names are still here (hello) and Hello to the new ones too. Well in 2008 I was on the treatment for about 38 weeks. Sicker than a dog I had to stop. I guess I tried to fool myself into believing that I...	hepcinohio	8	1207	Mar 2, 2013 by hepcinohio
	Canadian Site on Hep C? (Preview) I want to converse with Canadians because the US has different system of monitoring and treatment which means absolutely nothing to me. It is confusing gibberish to my eyes and brain, so, if this is not exclusively Canadian would someone please forward me to a Canadian site on Hep C. Thanks	Emm	14	1547	Mar 1, 2013 by Iris Dragonfly
	Newly Diagnosed HEP C 1A - desperately needing advice (Preview) I recently was confirmed with Hep C 1A after a routine blood test by a life insurance company, which declined me. My viral count is roughly 14,631,000. I very likely have been living with this 20-30 years. I have had several blood tests and a sonogram. My liver function tests are all pretty much normal o...	MikeJJ	9	1106	Mar 1, 2013 by LUV2RYDE
	Hello to all (Preview) This is my first post. I am a 60 year old man, and I have had hep c for 8 years. After long discussions with my wife and doctor, I decided to begin triple therapy treatment. I am in the fourth week now with several of the side effects that bother others. My biggest problem involves the intake of the 20 gr...	Rescape	6	1134	Feb 27, 2013 by Bouba
	I have more info on my hep c but im confused (Preview) Hi guys . Well I got more blood work done, and i got my biopsy. My viral count is 69 million, and biopsy showed no scarring. My doctor says i dont need treatment because there is no scarring. I dont understand - why would I want to wait until there is damage to treat? That doesnt sound pro active or at all rati...	Kel	1	784	Feb 26, 2013 by mallani
	Found I had exposure to hep c (Preview) Just found out I had hep c antibodies and yesterday had blood test for viral loading, still waiting for results. I was tested due to a persistent pain in my upper right quadrant. so far, it is scaring the hell out of me; my brother died about 10 years ago from liver disease. What should I expect next. --...	Materbob	6	1221	Feb 23, 2013 by Materbob
	Hello Everyone (Preview) Hello all from Illinois. My name is Sarah and new here and to the Hep C thing, well as far as the one who has it. My doctors believe I contracted the virus while I was a volunteer medic. I tested positive and my viral load from my understanding was through the roof and the biopsy showed stage 2, so they don't w...	Easter	8	1027	Feb 22, 2013 by GodsGrl
	cirrhosis and ascites (Preview) My 35 year Hep C infection has now turned into cirrhosis and I've been dealing with ascites. I've actually been feeling good the past 5 years. Treatment didn't work for me in 1998. I have a good dr I see every 3 months who keeps up with blood tests, etc. I turned really sick and blew up with ascites 2 wee...	SonniQ	8	4819	Feb 20, 2013 by BeingOral
	New Member first post (Preview) Hello Everyone , I've join this forum interact will other HepC brothers & sisters. My status is HCV genotype 1a with cirrhosis I have justly finished my first week in the Abbott open label clinical drugl trial called TURQUOISE-II So far so good, very little side effects Matt	Matt Chris	4	1409	Feb 19, 2013 by JoAnneh
	And I start Next Week!!! (Preview) I must say, I am scared to death, but I trust in Yahweh and I know I will be healed of this.	Blessed	6	1133	Feb 16, 2013 by JIme
	Getting ready to start treatment. (Preview) Any info on hair loss would be helpful to me and how I may avoid it. I finally have a great head of hair at age 50 and now I may loose it I have been told.	Blessed	4	957	Feb 14, 2013 by Blessed
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