|
Last day of treatment!(sov/peg/riba)
(Preview)
Well I've made it through, Thank God! This morning I took my last sovaldi pill.
One more ribavarin tonight and it's finished!
My appt with the dr is tomorrow so I'll get blood work done then.
It's really finished!!
I'm ready to begin running again. I miss it, but each time I tried, even to walk, it w...
|
jenjen
|
8
|
1009
|
|
|
|
|
Sof. Ledi. Riba. week 22
(Preview)
Hey All Well haven't been on in a while had to give update. Week 22 of Sof. Ledi. and Rib. cant believe almost done with treatment. Have tolerated most sideffects reasonably well, Riba Rage has been worse wife calls me Mr Hide but is putting up with it. So far Virus undetectable since week 3. I cant tell y...
|
Gig
|
1
|
896
|
|
|
|
|
Seeking new treatment
(Preview)
I have not posted for a while but have been looking in. DH needed to go another round of Rutuxin for SMZ-Non-hodgkin's Lymphoma. He had a good response and doctor suggested to seek treatment for HCV sooner than later. The doctor that did triple treatment said DH is a good candidate for the Sovaldi/Olys...
|
angelwish
|
2
|
761
|
|
|
|
|
Vertigo
(Preview)
Hi All, was wondering if anybody actually suffered from vertigo before starting Tx? I have and it seems to be gradually getting worse as tx goes on. My sinuses & face are constantly freezing can't get warm & the dizziness is like seasickness with occasional vomitting. Dr changed my ta...
|
borowif
|
16
|
2351
|
|
|
|
|
First doctor appt tomorrow
(Preview)
Tomorrow is my first appt since starting my treatment.. Say some prayers for me my fellow warriors! I'll post my results, hope they make me happy
|
Dee Dee
|
9
|
887
|
|
|
|
|
Ribaviren I love and hate you!
(Preview)
I'm starting to feel the effects of our friend Ribaviren. It is a sad day when you let wind that is so odious that everyone assumes it can be only the dog it is that bad! ;) Vile little pills are making me woozy, tired, headache and very smelly. Is this the start of anemia, or just toxic effects of my friend t...
|
Loopy Lisa
|
9
|
1115
|
|
|
|
|
Sovaldi Treatment Tracker
(Preview)
Hi Everyone, I located this treatment tracker, provided by MySupport Path (Gilead). It lists specifically the 12 and 24 week charts. Now that Sovaldi is considered the primary or backbone, it appears that many doctors are choosing to wait until EOT for the viral load, regardless of tx length. I gues...
|
Tig
|
8
|
1527
|
|
|
|
|
two week labs on solvaldi
(Preview)
They said keep going. alt and ast and alkaline phosphatase plummeted to almost normal. Billirubin is up from 1.2 to 1.4 The infamous blood count: NEUTROPHILS %, AUTOMATED COUNT42.0 - 75.0 %26.3LYMPHOCYTES %, AUTOMATED COUNT20.0 - 51.0 %48.8MONOS %, AUTO1.0 - 12.0 %22.3
|
JLynch30
|
1
|
746
|
|
|
|
|
Started Tx Finally
(Preview)
Well after months of being poked, prodded, x-rayed, fibroscanned, MRIed, and basically made to feel like a human pin cushion from all the blood work I took my Sovaldi, simeprivir (Galexo in Canada), and ribavirin this morning. The clinic nurse said I was the first to get this off-label treatment on V...
|
Barnacle
|
6
|
1023
|
|
|
|
|
Cured in less than two weeks.
(Preview)
After failing two attempts at treatment over the last 15 years I have been cured in less than two weeks. I have the unfavorable genotype TT near the Il28b gene so I had a very poor response to interferon which is why the previous two attempts at treatment failed. Five weeks ago I started a clinical tria...
|
justjim
|
7
|
1284
|
|
|
|
|
Round 2, starting today
(Preview)
I just started my meds O/S/R. This is round 2, so I am hoping this one works! I am going to try and work this time. I just hope everything works out.
|
Caryn
|
12
|
972
|
|
|
|
|
8 week labs ... 4 weeks to go.
(Preview)
Happy Monday everyone! I got my 8 week labs a little early. My PCP was overly worried about my elevated WBC. I had checked in with him after my 2 week labs showed the elevation and my liver doc wanted me to check in with the PCP. He re-ran the labs and WBC was still elevated. Then my liver doc ran my 4 week lab...
|
Enavigo3891
|
6
|
954
|
|
|
|
|
Olysio sovaldi off label treatment
(Preview)
I'm still awaiting insurance approval to get on the new meds but am curious about something. First, I want to say this board is a great thing and also it's so wonderful and encouraging seeing all these posts of undetectable virus after being diagnosed for 17 years and going thru the interferon/riba tr...
|
Audreyanna
|
6
|
1850
|
|
|
|
|
Damn panic attack!!!
(Preview)
Well it is Friday night again and took my shot as supposed to. Tonight I had the most god damn awful panic attack because I have a stupid fear of needles and got so worked up. So instead of going to sleep I am wide awake with the after effects and can't shake that horrible feeling and weird sensations they ca...
|
Loopy Lisa
|
14
|
1117
|
|
|
|
|
NEW HERE, but been a lurker..STARTING TRIPLE TREATMENT SOON! YIPPEEE!
(
1 2
)
(Preview)
Hi.. I am so excited, as I will start treatment soon (Next 2 weeks).. Ive been on treatment list for 1 1/2 years and that was the short list.. I did not get that, as my insurance covers it..Anyways I just wanted to say "HI".. I have compensated cirrohiss and am 42 years old.. I hope all goes well...
|
lozeaujo
|
52
|
3457
|
|
|
|
|
Results of 2 week bloodwork - Few Questions
(Preview)
Hi Guys, Well, we got back some preliminary info on the 2 week bloodwork my husband had done yesterday. I didn't expect to hear back so soon. Thought I would paste what was told to him and hear what you guys thought. We got two emails back which contradict the part about the hemoglobin. Here's the fir...
|
pl1952
|
7
|
986
|
|
|
|
|
Undetectable! 1st blood test results. GT2, 5 weeks out of 12 Sovaldi/Ribavirin
(Preview)
Hey All, I couldn't wait for the doctor's office to mail my results (she wouldn't tell me over the phone) so I drove across town this afternoon and picked em up. Got the news I was hoping for, ALT and AST levels in the normal range for 1st time in 12 years and HCV = Not Detected (<15 IU/mL and <1.18...
|
db
|
6
|
1123
|
|
|
|
|
Latest Labs
(
1 2 3 4
)
(Preview)
I thought I'd start a new thread where people could post there labs.
I had my labs done at 11 am today and got the results via e-mail at S1 pm. Except PCR.
Anyway: Hematocrit 48.8, HGB 17.2, ALT 37, AST 35, WBC 6.8
They look good, it blows me away how well my HGB came back the altitude probably helped.
...
|
James10500
|
185
|
25882
|
|
|
|
|
Hello
(Preview)
Started tx a week ago sovaldi/olysio/riba and glad to see all the posts here of those on similar tx and those who are already cured. Congrats and good luck to all I am SO grateful for this new tx and looking optimistically forward to 4 week appt. with dr and improved labs. So far the only side effect I've no...
|
Sara
|
2
|
708
|
|
|
|
|
Why do I suddenly feel like I have arthritis?
(Preview)
Hi All, For the past week I have been waking up with joint stiffness I've not had before. Every little thing is stiff and working is difficult to say the least. I do get relief from Ibuprophren, but I wonder why this has manifested itself so suddenly? My paranoid mind has me thinking I'm of the 2% who'l...
|
wilsondog
|
17
|
2612
|
|
|
|
|
Excited :D
(Preview)
I know this sounds silly, but I was so excited today I got through my appointment through on the 24th April for the Doctor check and first viral load check, but I am... :D I have had such an easy week it is like I'm not on treatment apart from some dry eyes that I have drops for. Since I have had low blood press...
|
Loopy Lisa
|
13
|
1233
|
|
|
|
|
Update for me
(Preview)
Well I got the all clear for my heart and treatment commenced 3 weeks ago. Triple therapy - whoot whoot..............oh not so much whoot whoot! The side effects are random and can be pretty extreme. Today I have sore eyes, black hairy tongue syndrome due to dehydration even though I can't physically...
|
Michelle22
|
8
|
1219
|
|
|
|
|
For those taking Riba/sovaldi/interferon
(Preview)
Hello. I am going on week 5 and wondering where everyone else is at on their tx and how everyone is doing?
|
AngieV123
|
24
|
2743
|
|
|
|
|
Furious!
(Preview)
I knew I should have changed doctors before I started. I have been waiting patiently for my 2 weeks lab report only to be told they don't do VL until the end of 12 week treatment (?). I asked the nurse to speak with doc and get back to me on my 4 week coming up. Naturally, I had to call them back. Nurse stated the...
|
jimbob
|
12
|
1404
|
|
|
|
|
how are these numbers?
(Preview)
Can an expert check these out and let me know how they look? These were my numbers before treatment. thanks so much!!TestAttributeValue(Normal Range)LOINC CodeResultDateHCV RNA by PCR, Qn Rfx GenoHepatitis C Quantitation673000 ()11011-4 Feb 26, 2014HCV RNA by PCR, Qn Rfx GenoHCV log105.83 ()...
|
Dee Dee
|
7
|
1941
|
|
|
|
|
Breakthrough - DAMN!
(Preview)
He says not to worry - I don't have cirrhosis and he will get me the new treatment within a year. But DAMN - it sucks. My VL was up to 100 at 12 weeks. Guess I'll just be here for the company now and not the complaining ...lol. -- Edited by Gracie on Saturday 29th of March 2014 01:03:13 AM
|
Gracie
|
24
|
2629
|
|
|
|
|
Ribaviren and the sun
(Preview)
I picked up my meds today as the chemist called, and notified the nurse she doesn't have to collect them and can come straight to my house. The pharmacist told me I am to avoid the sun totally. Is this correct? What about going for a walk or shopping? I can't avoid the sun totally that is ridiculus... Any a...
|
Loopy Lisa
|
8
|
981
|
|
|
|
|
sick
(Preview)
Does anyone get nauseous on sovaldi or ribaviran? The last 2 mornings i've been getting sick. I felt fine by yesterday afternoon but its back this morning again. Not sure if it is related to the meds or if im getting the flu or what. And no im not pregnant! Just wondering if anyone has experienced this?
|
aprileee
|
4
|
838
|
|
|
|
|
Sovaldi/Olysio/Riba for those on all 3
(Preview)
Starting day 5 today. Sx. has been tolerable. Last night felt a little itchy and restless. Mornings I get a queezy stomach but seems to go away as the day progresses. I eat well & try to do the 20g fat thing before taking meds. A little A&D ointment on the itchy spots. Maybe tonight I'll try Benedr...
|
Blueyes
|
16
|
2282
|
|
|
|
|
Sovaldi/Olysio tx
(Preview)
We'll i am about to complete my 9th week on Sovaldi and Olysio tx. Results week two were vl count down to 383 from 8 million. Week four results i was undetected with liver functions within normal range. Week 8 still undetected with all liver functions in normal range. Bilirubin was 14 before tx now .09. ...
|
Richstar
|
9
|
2042
|
|
|
