Hep C Discussion Forum

dodger · dodger

I was wondering if a ct scan would be a good idea. I go to a free clinic here in my hometown. They said that they could arrrnage for a no cost ct scan of my liver, if I wanted to have it performed. I have had hep c for many years and no tests other than blood work done. I don't have insurance so I can't afford muc...

sparky · sparky

http://www.hepatitis-central.com/mt/archives/2011/08/surprising_data.ht...

DGiga · DGiga

http://www.medicalassistedtreatment.org/424627/index.html#to

Spanky · Spanky

This is my first post and the reason I am posting is I'm concerned with some supplements I take or plan on taking and if they'll effect me negatively. First some backgound might be in order. I have had HepC for at least 10 years and I've only had my levels checked twice, the last being about 2 years ago. Bot...

hope87 · hope87

Today was my first appointment at the University Medical Center. I am SO thankful. As I mentioned before (I know I haven't posted in a while) the doctor I had didn't want to do anything for me just because I was "too young". So I saw my new doctor today and had about 10 vials of blood taken so he co...

innerview · innerview

Hi. I am trying to fine anyone or any information about this treatment... mistletoe extract (Viscum album) Mistletoes are parasitic plants with a root-like system imbedded in their host to extract food and water. The extracts used were mistletoe extract (Viscum album), and oral extracts of green...

wnose · wnose

I learnt about a Danoprevir trial being conducted in my city and have emailed them about possible participation....however, does anyone know about SVR rates? Is it as high as telaprevir?

sunny77 · sunny77

Hi guys, just wanted to pop in a share some good news... Don't know who remembers me but I was infected with Hep C 1A after an unruly patient threw a bloody IV insertion needle into my thigh. I was just about to start treatment but then got very acutely ill and my doctor said to hold off becaue it was consista...

britlitkaren · britlitkaren

Welcome to the forum! Not sure what hemachromatosis is.. But I'm mad too that you're facing the struggle again. With the new tx offered, I hope ur Dr will have a good plan to get you cleared once and for ever! Was ur iron high during ur tx, or did that develop later? What genotype are you? Look forward to wal...

Kirstin · Kirstin

Spoke to the Dr today at the clinic that I attend. Asked about when we could expect Televipar/Incivek to arrive in Australia. He wasn't that certain but he said by the end of the year at the very latest. So thats great news but I am confused? .. When I asked him about it he was adamant that I didnt need to...

jrc209 · jrc209

As some of you all know i am a Geno 1a 30 years old With normal Utrasounds and 1.6 AFP >Normal VL 21Million No biopsy was ordered Per dr instructions starting triple therapy this week (Tuesday i think) with Victrelis. Finally got all meds in and the victrelis will arive tuesday. I am a little scared...

Milk · Milk

Hello Everyone, I didn't post in the introduction thread not because i am rude but because i'm at a stage where i don't know yet if i have Hep C but i am really scared. Here's my story. I am 32 and i (used to) do a lot of medical trials to help support myself. That means that everytime i went for one i am tested...

James10500 · James10500

Glad we have a day to raise awareness. We can beat this, we will beat this !

Kirstin · Kirstin

This was meant for the 'Disagreements on the Forum' thread, but it is now closed. So I shall post what I wanted to say here.. Disagreements are one thing, some comments that have been made go far beyond that. For me, I have just let most of the smartass comments slide. I just prefer that some people don'...

jrc209 · jrc209

I got approved for pegasys and co peg and the meds will be here tommorow. The dr was asked to attach a script to the victrelis app so they can approve that one aswell this was on friday and all he had to do was send a measly fax. The last few days ive been in contact back and forth with victrelis and they have re...

Heather_Mack · Heather_Mack

Hi Everyone, I just wanted to let people on the forum know that I will be doing a presentation of some of my findings from the interviews with people with Hep C, as part of an event for WHD held by Renaissance at The Cornerhouse in Blackpool (102 Dickson Rd, Blackpool t: 01253 311 431) on Thurs 28th Jul...

jrc209 · jrc209

My Dr told me i will be on victrelis and soc for up to24- 48ks! Anyone have exp w/ victrelis? Why did he chose this over incivek? 30 yrs old type 1a tumor marker 1.6 (normal) Vl 20 million ultrasound norm no symptoms I asked him and all he said was "You will be using victrelis" However i rea...

CaptBixley · CaptBixley

I probably have had HepC since the early seventies. I did Tx in 2004 and relapsed will start Incivek w/ PR next week.

jrc209 · jrc209

Got a call from pegasys on approval for patient assistance which was good! Got back my Vl 20.2 mil : So as it breaks down Vl 20.2 mil geno 1a Afp Tumor marker 1.6 ultrasound normal 30 years old maybe had for ten years??? No symptoms Pegasys will be here wed still waiting on victrelis

jrc209 · jrc209

Geno 1a ultrasound normal and afp 1.6 (normal) Dr says Soc +victrelis is what im gonna do ! Still no Vl Yet

jrc209 · jrc209

Results of ultrasound 100% normal on all organs. Afp Was 1.6 No signs of scaring or inflamation . I am still waiting on geno

BeccaJune · BeccaJune

I heard from the pharmacy today and the insurance finally approved my rx for the triple tx, after my doctor sending in the paperwork to appeal the denial. My doctor appointment is on the 29th of July, and I am NOT supposed to start tx until I see him. My 10 day vacation is alrealy scheduled, so I will probab...

britlitkaren · britlitkaren

I have my iPhone alarm all set w what to take... And this morning I knew by the packaging I'd messed up on Telaprevir. I called the pharmaceutical RN n she said not to worry n gave me a tip. Here's my regime: 6 am - 2 Telaprevir n 3 Ribavirin 2 pm - 2 Telaprevir 6 pm - 2 Ribavirin 10 pm - 2 Ribavirin n interfero...

jrc209 · jrc209

has anyone ever used/applied for this? https://www.pcip.gov/Default.html

James10500 · James10500

http://www.hepatitis-central.com/mt/archives/2011/07/nanogel_could_l.html?eml=hepcen138

Nimbus · Nimbus

Hey guys, i need help and advice on wheather or not i should start treatment with the interferon etc. I have heard nothing but horror stories about the side effects and the long term side effects. My fear is that i will be worse off with the treatment than if i dont do treatment at all. please help!

Iris Dragonfly · Iris Dragonfly

Hi all, I was wondering where to post, since i'm not on treatment. Would like to exchange the aches and pains of this virus as well as information about remedies and other alternative health care while in limbo land. Any ideas? Thanks, Iris

PJ · PJ

She's usually pretty active around here and I haven't seen her in a couple of days....worried.

beautiful_wrath · beautiful_wrath

Hello there. I hope this note finds you all in good spirits and feeling well. Had some new input on my situation and just wanted to bounce it off of ya'll and see what real people had to say about it. Have gone over it all with the good doctor and then did some research myself online, now just wanting real...

LaurieBluesGuy · LaurieBluesGuy

Gail has been banned because some people have been receiving some very disturbing pm's from her, which we have been made aware of. If people are being intimidated in this way, then we have to put a stop to it. Hi all, don't drop by here that much anymore, life, work, an incredible wife and children, dema...

Topic		Started By	Replies	Views	Last Post
	ct scan (Preview) I was wondering if a ct scan would be a good idea. I go to a free clinic here in my hometown. They said that they could arrrnage for a no cost ct scan of my liver, if I wanted to have it performed. I have had hep c for many years and no tests other than blood work done. I don't have insurance so I can't afford muc...	dodger	4	1061	Aug 19, 2011 by BeccaJune
	Our "Death Sentance". (Preview) http://www.hepatitis-central.com/mt/archives/2011/08/surprising_data.ht...	sparky	3	873	Aug 16, 2011 by James10500
	Check this site out (Preview) http://www.medicalassistedtreatment.org/424627/index.html#to	DGiga	3	893	Aug 14, 2011 by James10500
	New member with some questions on supplements and their effects on Hep C (Preview) This is my first post and the reason I am posting is I'm concerned with some supplements I take or plan on taking and if they'll effect me negatively. First some backgound might be in order. I have had HepC for at least 10 years and I've only had my levels checked twice, the last being about 2 years ago. Bot...	Spanky	5	993	Aug 9, 2011 by Captain Over
	Finally got to see a new doc. (Preview) Today was my first appointment at the University Medical Center. I am SO thankful. As I mentioned before (I know I haven't posted in a while) the doctor I had didn't want to do anything for me just because I was "too young". So I saw my new doctor today and had about 10 vials of blood taken so he co...	hope87	23	2607	Aug 6, 2011 by Greg
	Mistletoe extract, anyone??? (Preview) Hi. I am trying to fine anyone or any information about this treatment... mistletoe extract (Viscum album) Mistletoes are parasitic plants with a root-like system imbedded in their host to extract food and water. The extracts used were mistletoe extract (Viscum album), and oral extracts of green...	innerview	0	681	Aug 5, 2011 by innerview
	SVR with Danoprevir? (Preview) I learnt about a Danoprevir trial being conducted in my city and have emailed them about possible participation....however, does anyone know about SVR rates? Is it as high as telaprevir?	wnose	0	705	Aug 4, 2011 by wnose
	Hello! (Preview) Hi guys, just wanted to pop in a share some good news... Don't know who remembers me but I was infected with Hep C 1A after an unruly patient threw a bloody IV insertion needle into my thigh. I was just about to start treatment but then got very acutely ill and my doctor said to hold off becaue it was consista...	sunny77	9	908	Aug 4, 2011 by Cinnamon Girl
	Welcome mmadwife (Preview) Welcome to the forum! Not sure what hemachromatosis is.. But I'm mad too that you're facing the struggle again. With the new tx offered, I hope ur Dr will have a good plan to get you cleared once and for ever! Was ur iron high during ur tx, or did that develop later? What genotype are you? Look forward to wal...	britlitkaren	1	742	Aug 3, 2011 by James10500
	New inhibbies to come to Oz (Preview) Spoke to the Dr today at the clinic that I attend. Asked about when we could expect Televipar/Incivek to arrive in Australia. He wasn't that certain but he said by the end of the year at the very latest. So thats great news but I am confused? .. When I asked him about it he was adamant that I didnt need to...	Kirstin	16	957	Aug 2, 2011 by BeccaJune
	Starting Tx this week (Preview) As some of you all know i am a Geno 1a 30 years old With normal Utrasounds and 1.6 AFP >Normal VL 21Million No biopsy was ordered Per dr instructions starting triple therapy this week (Tuesday i think) with Victrelis. Finally got all meds in and the victrelis will arive tuesday. I am a little scared...	jrc209	4	735	Jul 31, 2011 by britlitkaren
	Scared i have Hep C (not a baseless worry, had inconclusive tests) (Preview) Hello Everyone, I didn't post in the introduction thread not because i am rude but because i'm at a stage where i don't know yet if i have Hep C but i am really scared. Here's my story. I am 32 and i (used to) do a lot of medical trials to help support myself. That means that everytime i went for one i am tested...	Milk	8	3867	Jul 30, 2011 by James10500
	Today, July 28th, is World Hepatitis Day (Preview) Glad we have a day to raise awareness. We can beat this, we will beat this !	James10500	8	975	Jul 28, 2011 by Kirstin
	Oh well... It's time (Preview) This was meant for the 'Disagreements on the Forum' thread, but it is now closed. So I shall post what I wanted to say here.. Disagreements are one thing, some comments that have been made go far beyond that. For me, I have just let most of the smartass comments slide. I just prefer that some people don'...	Kirstin	16	1187	Jul 27, 2011 by Kirstin
	My Dr is worthless (Preview) I got approved for pegasys and co peg and the meds will be here tommorow. The dr was asked to attach a script to the victrelis app so they can approve that one aswell this was on friday and all he had to do was send a measly fax. The last few days ive been in contact back and forth with victrelis and they have re...	jrc209	1	857	Jul 26, 2011 by James10500
	Presentation of findings 28th July 2011 (Preview) Hi Everyone, I just wanted to let people on the forum know that I will be doing a presentation of some of my findings from the interviews with people with Hep C, as part of an event for WHD held by Renaissance at The Cornerhouse in Blackpool (102 Dickson Rd, Blackpool t: 01253 311 431) on Thurs 28th Jul...	Heather_Mack	1	713	Jul 25, 2011 by Heather_Mack
	Please someone answer my questions (Preview) My Dr told me i will be on victrelis and soc for up to24- 48ks! Anyone have exp w/ victrelis? Why did he chose this over incivek? 30 yrs old type 1a tumor marker 1.6 (normal) Vl 20 million ultrasound norm no symptoms I asked him and all he said was "You will be using victrelis" However i rea...	jrc209	3	1042	Jul 23, 2011 by britlitkaren
	Hi - I'm new (Preview) I probably have had HepC since the early seventies. I did Tx in 2004 and relapsed will start Incivek w/ PR next week.	CaptBixley	14	1081	Jul 23, 2011 by Deidre
	Good And Bad News Today (Preview) Got a call from pegasys on approval for patient assistance which was good! Got back my Vl 20.2 mil : So as it breaks down Vl 20.2 mil geno 1a Afp Tumor marker 1.6 ultrasound normal 30 years old maybe had for ten years??? No symptoms Pegasys will be here wed still waiting on victrelis	jrc209	2	760	Jul 22, 2011 by jrc209
	Tx to begin soon (Preview) Geno 1a ultrasound normal and afp 1.6 (normal) Dr says Soc +victrelis is what im gonna do ! Still no Vl Yet	jrc209	1	726	Jul 21, 2011 by Greg
	My Blessing For The Day (Preview) Results of ultrasound 100% normal on all organs. Afp Was 1.6 No signs of scaring or inflamation . I am still waiting on geno	jrc209	6	1060	Jul 20, 2011 by jrc209
	Approved for tx by insurance (Preview) I heard from the pharmacy today and the insurance finally approved my rx for the triple tx, after my doctor sending in the paperwork to appeal the denial. My doctor appointment is on the 29th of July, and I am NOT supposed to start tx until I see him. My 10 day vacation is alrealy scheduled, so I will probab...	BeccaJune	7	1070	Jul 19, 2011 by Greg
	Anyone ever missed a med? (Preview) I have my iPhone alarm all set w what to take... And this morning I knew by the packaging I'd messed up on Telaprevir. I called the pharmaceutical RN n she said not to worry n gave me a tip. Here's my regime: 6 am - 2 Telaprevir n 3 Ribavirin 2 pm - 2 Telaprevir 6 pm - 2 Ribavirin 10 pm - 2 Ribavirin n interfero...	britlitkaren	6	964	Jul 19, 2011 by Kirstin
	Pre existing Health Insurance? (Preview) has anyone ever used/applied for this? https://www.pcip.gov/Default.html	jrc209	2	783	Jul 18, 2011 by BeccaJune
	HCV Vaccine talk (Preview) http://www.hepatitis-central.com/mt/archives/2011/07/nanogel_could_l.html?eml=hepcen138	James10500	0	627	Jul 18, 2011 by James10500
	Thinking about treatment (Preview) Hey guys, i need help and advice on wheather or not i should start treatment with the interferon etc. I have heard nothing but horror stories about the side effects and the long term side effects. My fear is that i will be worse off with the treatment than if i dont do treatment at all. please help!	Nimbus	15	1040	Jul 18, 2011 by Nimbus
	No section for those not on treatment (Preview) Hi all, I was wondering where to post, since i'm not on treatment. Would like to exchange the aches and pains of this virus as well as information about remedies and other alternative health care while in limbo land. Any ideas? Thanks, Iris	Iris Dragonfly	7	1158	Jul 18, 2011 by Cinnamon Girl
	Has anyone heard from Kirstin? (Preview) She's usually pretty active around here and I haven't seen her in a couple of days....worried.	PJ	28	1437	Jul 18, 2011 by Kirstin
	Biopsy Results (Preview) Hello there. I hope this note finds you all in good spirits and feeling well. Had some new input on my situation and just wanted to bounce it off of ya'll and see what real people had to say about it. Have gone over it all with the good doctor and then did some research myself online, now just wanting real...	beautiful_wrath	17	1332	Jul 17, 2011 by James10500
	Disagreements on the Forum - Not Closed (closed) (Preview) Gail has been banned because some people have been receiving some very disturbing pm's from her, which we have been made aware of. If people are being intimidated in this way, then we have to put a stop to it. Hi all, don't drop by here that much anymore, life, work, an incredible wife and children, dema...	LaurieBluesGuy	20	1387	Jul 17, 2011 by Lizard
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