Hep C Discussion Forum

missycat · missycat

Hey guys, iv been looking on the internet to find out more about ribavirin,but all i can really find is the side effects which i already know...so wondered if anyone has any useful links on this drug as to what it is and how it hepls???? just want to know more about how its helping not scary sides thanks in a...

hope87 · hope87

Has anyone ever tried this? Or know if it's good? Would this be okay for the liver? Any help is appreciated! Thanks so much, Hope

cdnab · cdnab

Hi everyone, Further to my original post on my situation i was reading the various topics in the discussion forum looking to similar situations to mine for advice. In the linked discussion below, the original poster is quoted as saying "So after reading it looks more like a possibly that I have a...

Mano · Mano

COARSE??!! so not many answers there.. the radiologist (or whatever they call themselves) said its not cirrothic. ... Great! i mean.. can u tell more than that?! is there any damage?.. because it hurts i said.. her answer: ur liver looks "coarse".. Coarse?! -yes.. looks like its a bit st...

Mano · Mano

i am sleeping 15hrs per day.. i mean the Drs told me i was fighting an infection so I would be tired but im starting to ythink it has more to do with depression and not wanting to deal with what my symptoms daytime and my new situation.. last night went to bed at around 2am (always been to bed late) i slept to...

Mano · Mano

... feeeling a bit down to be honest. looks like everytime i go in they give me more and more bad news. im particularly down because the specialist nurse told me chances of clearing it at 4 weeks were very small and the target is more realistically to clear at 12 weeks. Dr. last time i saw him said that if i wa...

Mano · Mano

and had a lot to think of this weekend after my appointment one Friday.. got my starting day of treatment and that will be the 11th March also I got myself a new job, which is going to be a bit of a demanding one as im working in hospitality.. Now thats the big thing.. I havent signed a contract yet expect to do...

Mano · Mano

getting really anxious now.. will take blood and get briefed on treatment, side effects, etc.. next week i will know for sure if im to treat and if so will start str8 away.will probably write down a few questions tonight as i got plenty..been probably a month since i got diagnosed and its probably been t...

missycat · missycat

Hello, this site is still all new to me But iv found myself popping on when i have spare few mins. I was wondering if any of you have put off treatment? I had to put off treatment for a few reasons, When i was told i had hep c of course it was a shock and i would have need time to deal wiv that alone,but sadly 6 mo...

greenqueen · greenqueen

http://www.guardian.co.uk/politics/2011/feb/22/new-disability-test-is-a-complete-mess

Mano · Mano

Hey guys.. my Dr. called me today with my new viral load. Apparently went from 1.300.000 to 700.000 so she says its half o what it was 2 weeks before..as you know im not on treatment yet.. just waiting to find out next week what the plan of action is..does anyone know if this means anything?..is it just my i...

Mano · Mano

is everyone in winter hybernation mode?

LaurieBluesGuy · LaurieBluesGuy

Hello to all, as you may have seen - over the coming months, I have been just too busy to log in much. After starting the forum with Greenqueen(Steff) and Minerva(Heather), my time has just gotten too busy to allow me to attend to the Forum on a regular basis. The Forum ownership will now be passing over to...

Mano · Mano

just checking in..not feeling good at all at the moment.. my liver really hurts, have headaches and sore muscles all day and havent started treatment yet!...got my 1st hiep c appointment next week should know then what is going to happen treatment wise..really down right now how come i feel like crap...

sharlot50 · sharlot50

im 7 yrs informed of my hepc it seems to not matter to the drs. they discount my viral load 50million , im sure with the imune system this low. i should be taken seriously, in dec 21 2010 i was addmitted in the hospital with strep pnuemoina . i spent over a year asking for a strep test to 4 different drs. this ho...

espaeddie · espaeddie

Hi all, I am really proud of what you are doing and how well you are coping,however i need to say that 12 days clean off chemicals after a life time of abuse and i think i am going nuts not really sleeping at moment so i suggest you disregard what i say (or have said) in future correspondence because...

Moytie · Moytie

I was led to believe my interferon treatment was going to last every bit 0f 52 weeks. (i'm g1) On max dose per body weight. My wife looked at my blood draw schedule and came to the conclusion that its 48 weeks, which makes 1 more week of this nightmare instead of 5. My doctors office is proving to be over wor...

Greg · Greg

For reasons that I won't go into here, I informed my department head exactly what I will be treated for. Why would I do this?. It became clear to me during our conversations over the past few weeks that she had no idea of the side effects I might be facing while on treatment. My main concern was the mood swi...

Greg · Greg

http://www.healthcanal.com/immune-system/14223-10000-Hepatitis-patients-could-hold-the-key-better-treatment.html

Mano · Mano

need to talk..

Syxx · Syxx

I am in shock. Was just having routine tests and got called back by GP. I can barely remember what she said beyond something about my liver function being "off" So more bloods today except this time the nurse stuck a 'risk of contamination' sticker on the vial after she had taken my blood. Ho...

Hep Me · Hep Me

Hi, I'm a new member about to start treatment. I am wondering if anyone in treatment knows if there is any big difference in these two drugs other than one has the syringe and the other the pen type injector? The hep c book I have says one is basically a different consistency, but as far as the actual treatm...

rio · rio

Well... It just aint been happening for me at the moment folks, which is damn frustrating! If you haven't already picked it up via twitter or facebook, I didn't get to have my biopsy but just a rather expensive and annoyingly frustrating kind of a week. As I said on my vid, I was due to go in on Tuesday - Fant...

parkness · parkness

Hi The Hepatitis C Trust had a meeting with DWP on Monday of this week, here is a brief update on how it went. There have been an increasing number of calls (and discussiosn on forums) from people having trouble accessing benefits when on treatment or highly symptomatic so today The Hepatitis C Trust...

rio · rio

Hi folks, Just thought I'd post this before for I go back in to Jimmys' for a Liver Biopsy after my 1st year with my new Liver! (http://ianquill.blogspot.com/) Ian Quill : My World, A blog for me and people like me, beating HepC My Hepatitis C / Liver Transplant & Biopsy Video Diary http://youtu.be...

Keith Thompson · Keith Thompson

Ive had Hep C symptoms for 3 years,been tested 3 times(neg) and waiting for results of another.Can anyone tell me how accurate the basic blood test for it is?

bethland · bethland

Hi everybody that shot was full of air bubbles i couldnt get out ..oh well tried not to waste any.. one to go .... yep James it is what it is ...hope you are doing ok you sound like a real doer, always positive ... you are almost there, got any plans for the big day ? Jill i hope those sleeping tabs are working f...

Jillie1979 · Jillie1979

Hi all, I'm having my antibodies checked again on Monday morning and I just wanted to ask for some prayers. My RNA test came back negative so they're trying to rule out a possible false positive. I won't get the results until Monday the 17th and I think I might be a nervous wreck until then. Thanks! XO Jill...

hrsetrdr · hrsetrdr

Several days ago I attended the "hep c' class, my HMO conducts. I'm glad I went, I already knew most of what was presented, but I wanted to "go with the program" and not be seen as a 'rebel'. The PA ordered a pile of labs, and said that I'd be scheduled an appointment "soon", t...

AlexNY · AlexNY

hello everyone,My name is Alex, i've had hep c for about 10 years. never really thought of starting tx, but recetly started to consider tx because of increased fatique, weakness, feeling "cloudiness", inability to concentrate. just a year ago my vl was 1 mil, now it jumped to 6 mil. tomoro...

Topic		Started By	Replies	Views	Last Post
	hep c info (Preview) Hey guys, iv been looking on the internet to find out more about ribavirin,but all i can really find is the side effects which i already know...so wondered if anyone has any useful links on this drug as to what it is and how it hepls???? just want to know more about how its helping not scary sides thanks in a...	missycat	2	963	Mar 10, 2011 by Fnzol
	Acai Berry Diet? (Preview) Has anyone ever tried this? Or know if it's good? Would this be okay for the liver? Any help is appreciated! Thanks so much, Hope	hope87	3	1551	Mar 8, 2011 by angel452
	Hep C Results vs Automimmune Blood Disorder (Preview) Hi everyone, Further to my original post on my situation i was reading the various topics in the discussion forum looking to similar situations to mine for advice. In the linked discussion below, the original poster is quoted as saying "So after reading it looks more like a possibly that I have a...	cdnab	1	804	Mar 5, 2011 by BJ
	GOT MY ULTRASOUND TODAY AND THE LUCKY NUMBER IS... (Preview) COARSE??!! so not many answers there.. the radiologist (or whatever they call themselves) said its not cirrothic. ... Great! i mean.. can u tell more than that?! is there any damage?.. because it hurts i said.. her answer: ur liver looks "coarse".. Coarse?! -yes.. looks like its a bit st...	Mano	3	883	Mar 5, 2011 by Minerva
	i got hep L (for lazy) (Preview) i am sleeping 15hrs per day.. i mean the Drs told me i was fighting an infection so I would be tired but im starting to ythink it has more to do with depression and not wanting to deal with what my symptoms daytime and my new situation.. last night went to bed at around 2am (always been to bed late) i slept to...	Mano	3	842	Mar 2, 2011 by Mano
	"not a walk in the park" (Preview) ... feeeling a bit down to be honest. looks like everytime i go in they give me more and more bad news. im particularly down because the specialist nurse told me chances of clearing it at 4 weeks were very small and the target is more realistically to clear at 12 weeks. Dr. last time i saw him said that if i wa...	Mano	13	1270	Mar 2, 2011 by sunny77
	hey everyone today was Sunday (Preview) and had a lot to think of this weekend after my appointment one Friday.. got my starting day of treatment and that will be the 11th March also I got myself a new job, which is going to be a bit of a demanding one as im working in hospitality.. Now thats the big thing.. I havent signed a contract yet expect to do...	Mano	4	857	Feb 28, 2011 by BJ
	got my 1st official appointment tomorrow (Preview) getting really anxious now.. will take blood and get briefed on treatment, side effects, etc.. next week i will know for sure if im to treat and if so will start str8 away.will probably write down a few questions tonight as i got plenty..been probably a month since i got diagnosed and its probably been t...	Mano	9	994	Feb 25, 2011 by Mano
	Life gets in the way? (Preview) Hello, this site is still all new to me But iv found myself popping on when i have spare few mins. I was wondering if any of you have put off treatment? I had to put off treatment for a few reasons, When i was told i had hep c of course it was a shock and i would have need time to deal wiv that alone,but sadly 6 mo...	missycat	16	2161	Feb 25, 2011 by Minerva
	New disability test 'is a complete mess', says the man who designed it (Preview) http://www.guardian.co.uk/politics/2011/feb/22/new-disability-test-is-a-complete-mess	greenqueen	0	853	Feb 22, 2011 by greenqueen
	Viral Load drop before treatment (Preview) Hey guys.. my Dr. called me today with my new viral load. Apparently went from 1.300.000 to 700.000 so she says its half o what it was 2 weeks before..as you know im not on treatment yet.. just waiting to find out next week what the plan of action is..does anyone know if this means anything?..is it just my i...	Mano	5	1182	Feb 21, 2011 by Cinnamon Girl
	this forum is very very quiet.. (Preview) is everyone in winter hybernation mode?	Mano	2	846	Feb 20, 2011 by greenqueen
	NEW FORUM OWNER ! (closed) (Preview) Hello to all, as you may have seen - over the coming months, I have been just too busy to log in much. After starting the forum with Greenqueen(Steff) and Minerva(Heather), my time has just gotten too busy to allow me to attend to the Forum on a regular basis. The Forum ownership will now be passing over to...	LaurieBluesGuy	14	2872	Feb 17, 2011 by KAB
	hey everyone (Preview) just checking in..not feeling good at all at the moment.. my liver really hurts, have headaches and sore muscles all day and havent started treatment yet!...got my 1st hiep c appointment next week should know then what is going to happen treatment wise..really down right now how come i feel like crap...	Mano	8	1047	Feb 16, 2011 by Hep Me
	refused dr. services (Preview) im 7 yrs informed of my hepc it seems to not matter to the drs. they discount my viral load 50million , im sure with the imune system this low. i should be taken seriously, in dec 21 2010 i was addmitted in the hospital with strep pnuemoina . i spent over a year asking for a strep test to 4 different drs. this ho...	sharlot50	6	1215	Feb 12, 2011 by Fnzol
	To whom it may concern thats everyone ive posted to (please read) (Preview) Hi all, I am really proud of what you are doing and how well you are coping,however i need to say that 12 days clean off chemicals after a life time of abuse and i think i am going nuts not really sleeping at moment so i suggest you disregard what i say (or have said) in future correspondence because...	espaeddie	12	1832	Feb 7, 2011 by Steve-o
	Is there a standard length of treatment? (Preview) I was led to believe my interferon treatment was going to last every bit 0f 52 weeks. (i'm g1) On max dose per body weight. My wife looked at my blood draw schedule and came to the conclusion that its 48 weeks, which makes 1 more week of this nightmare instead of 5. My doctors office is proving to be over wor...	Moytie	3	967	Feb 7, 2011 by zibit56
	Disclosure (Preview) For reasons that I won't go into here, I informed my department head exactly what I will be treated for. Why would I do this?. It became clear to me during our conversations over the past few weeks that she had no idea of the side effects I might be facing while on treatment. My main concern was the mood swi...	Greg	5	1482	Feb 6, 2011 by Greg
	In the news for UK residents (Preview) http://www.healthcanal.com/immune-system/14223-10000-Hepatitis-patients-could-hold-the-key-better-treatment.html	Greg	2	923	Feb 5, 2011 by Hexen Hour
	anyone around? (Preview) need to talk..	Mano	22	1304	Feb 3, 2011 by Mano
	Terrified (Preview) I am in shock. Was just having routine tests and got called back by GP. I can barely remember what she said beyond something about my liver function being "off" So more bloods today except this time the nurse stuck a 'risk of contamination' sticker on the vial after she had taken my blood. Ho...	Syxx	24	1993	Feb 2, 2011 by greenqueen
	Pegasys vs. Pegintron (Preview) Hi, I'm a new member about to start treatment. I am wondering if anyone in treatment knows if there is any big difference in these two drugs other than one has the syringe and the other the pen type injector? The hep c book I have says one is basically a different consistency, but as far as the actual treatm...	Hep Me	13	3464	Feb 1, 2011 by Samby
	Time goes by so slowly... (Preview) Well... It just aint been happening for me at the moment folks, which is damn frustrating! If you haven't already picked it up via twitter or facebook, I didn't get to have my biopsy but just a rather expensive and annoyingly frustrating kind of a week. As I said on my vid, I was due to go in on Tuesday - Fant...	rio	2	1046	Jan 30, 2011 by Killer Bee
	DWP and Benefits (Preview) Hi The Hepatitis C Trust had a meeting with DWP on Monday of this week, here is a brief update on how it went. There have been an increasing number of calls (and discussiosn on forums) from people having trouble accessing benefits when on treatment or highly symptomatic so today The Hepatitis C Trust...	parkness	8	1774	Jan 26, 2011 by greenqueen
	My Hepatitis C / Liver Transplant & Biopsy Video Diary (Preview) Hi folks, Just thought I'd post this before for I go back in to Jimmys' for a Liver Biopsy after my 1st year with my new Liver! (http://ianquill.blogspot.com/) Ian Quill : My World, A blog for me and people like me, beating HepC My Hepatitis C / Liver Transplant & Biopsy Video Diary http://youtu.be...	rio	1	795	Jan 26, 2011 by Minerva
	How accurate are the blood tests?? (Preview) Ive had Hep C symptoms for 3 years,been tested 3 times(neg) and waiting for results of another.Can anyone tell me how accurate the basic blood test for it is?	Keith Thompson	11	1497	Jan 21, 2011 by Minerva
	week 47 (Preview) Hi everybody that shot was full of air bubbles i couldnt get out ..oh well tried not to waste any.. one to go .... yep James it is what it is ...hope you are doing ok you sound like a real doer, always positive ... you are almost there, got any plans for the big day ? Jill i hope those sleeping tabs are working f...	bethland	9	1127	Jan 14, 2011 by DGiga
	Nervous (Preview) Hi all, I'm having my antibodies checked again on Monday morning and I just wanted to ask for some prayers. My RNA test came back negative so they're trying to rule out a possible false positive. I won't get the results until Monday the 17th and I think I might be a nervous wreck until then. Thanks! XO Jill...	Jillie1979	19	1395	Jan 14, 2011 by Jillie1979
	Someday soon (Preview) Several days ago I attended the "hep c' class, my HMO conducts. I'm glad I went, I already knew most of what was presented, but I wanted to "go with the program" and not be seen as a 'rebel'. The PA ordered a pile of labs, and said that I'd be scheduled an appointment "soon", t...	hrsetrdr	15	1607	Jan 13, 2011 by greenqueen
	College, work, pre-tx (Preview) hello everyone,My name is Alex, i've had hep c for about 10 years. never really thought of starting tx, but recetly started to consider tx because of increased fatique, weakness, feeling "cloudiness", inability to concentrate. just a year ago my vl was 1 mil, now it jumped to 6 mil. tomoro...	AlexNY	2	677	Jan 13, 2011 by ty
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