Hep C Discussion Forum

hope87 · hope87

Today was my first appointment at the University Medical Center. I am SO thankful. As I mentioned before (I know I haven't posted in a while) the doctor I had didn't want to do anything for me just because I was "too young". So I saw my new doctor today and had about 10 vials of blood taken so he co...

innerview · innerview

Hi. I am trying to fine anyone or any information about this treatment... mistletoe extract (Viscum album) Mistletoes are parasitic plants with a root-like system imbedded in their host to extract food and water. The extracts used were mistletoe extract (Viscum album), and oral extracts of green...

wnose · wnose

I learnt about a Danoprevir trial being conducted in my city and have emailed them about possible participation....however, does anyone know about SVR rates? Is it as high as telaprevir?

sunny77 · sunny77

Hi guys, just wanted to pop in a share some good news... Don't know who remembers me but I was infected with Hep C 1A after an unruly patient threw a bloody IV insertion needle into my thigh. I was just about to start treatment but then got very acutely ill and my doctor said to hold off becaue it was consista...

britlitkaren · britlitkaren

Welcome to the forum! Not sure what hemachromatosis is.. But I'm mad too that you're facing the struggle again. With the new tx offered, I hope ur Dr will have a good plan to get you cleared once and for ever! Was ur iron high during ur tx, or did that develop later? What genotype are you? Look forward to wal...

Kirstin · Kirstin

Spoke to the Dr today at the clinic that I attend. Asked about when we could expect Televipar/Incivek to arrive in Australia. He wasn't that certain but he said by the end of the year at the very latest. So thats great news but I am confused? .. When I asked him about it he was adamant that I didnt need to...

jrc209 · jrc209

As some of you all know i am a Geno 1a 30 years old With normal Utrasounds and 1.6 AFP >Normal VL 21Million No biopsy was ordered Per dr instructions starting triple therapy this week (Tuesday i think) with Victrelis. Finally got all meds in and the victrelis will arive tuesday. I am a little scared...

Milk · Milk

Hello Everyone, I didn't post in the introduction thread not because i am rude but because i'm at a stage where i don't know yet if i have Hep C but i am really scared. Here's my story. I am 32 and i (used to) do a lot of medical trials to help support myself. That means that everytime i went for one i am tested...

James10500 · James10500

Glad we have a day to raise awareness. We can beat this, we will beat this !

Kirstin · Kirstin

This was meant for the 'Disagreements on the Forum' thread, but it is now closed. So I shall post what I wanted to say here.. Disagreements are one thing, some comments that have been made go far beyond that. For me, I have just let most of the smartass comments slide. I just prefer that some people don'...

jrc209 · jrc209

I got approved for pegasys and co peg and the meds will be here tommorow. The dr was asked to attach a script to the victrelis app so they can approve that one aswell this was on friday and all he had to do was send a measly fax. The last few days ive been in contact back and forth with victrelis and they have re...

Heather_Mack · Heather_Mack

Hi Everyone, I just wanted to let people on the forum know that I will be doing a presentation of some of my findings from the interviews with people with Hep C, as part of an event for WHD held by Renaissance at The Cornerhouse in Blackpool (102 Dickson Rd, Blackpool t: 01253 311 431) on Thurs 28th Jul...

jrc209 · jrc209

My Dr told me i will be on victrelis and soc for up to24- 48ks! Anyone have exp w/ victrelis? Why did he chose this over incivek? 30 yrs old type 1a tumor marker 1.6 (normal) Vl 20 million ultrasound norm no symptoms I asked him and all he said was "You will be using victrelis" However i rea...

CaptBixley · CaptBixley

I probably have had HepC since the early seventies. I did Tx in 2004 and relapsed will start Incivek w/ PR next week.

jrc209 · jrc209

Got a call from pegasys on approval for patient assistance which was good! Got back my Vl 20.2 mil : So as it breaks down Vl 20.2 mil geno 1a Afp Tumor marker 1.6 ultrasound normal 30 years old maybe had for ten years??? No symptoms Pegasys will be here wed still waiting on victrelis

jrc209 · jrc209

Geno 1a ultrasound normal and afp 1.6 (normal) Dr says Soc +victrelis is what im gonna do ! Still no Vl Yet

jrc209 · jrc209

Results of ultrasound 100% normal on all organs. Afp Was 1.6 No signs of scaring or inflamation . I am still waiting on geno

BeccaJune · BeccaJune

I heard from the pharmacy today and the insurance finally approved my rx for the triple tx, after my doctor sending in the paperwork to appeal the denial. My doctor appointment is on the 29th of July, and I am NOT supposed to start tx until I see him. My 10 day vacation is alrealy scheduled, so I will probab...

britlitkaren · britlitkaren

I have my iPhone alarm all set w what to take... And this morning I knew by the packaging I'd messed up on Telaprevir. I called the pharmaceutical RN n she said not to worry n gave me a tip. Here's my regime: 6 am - 2 Telaprevir n 3 Ribavirin 2 pm - 2 Telaprevir 6 pm - 2 Ribavirin 10 pm - 2 Ribavirin n interfero...

jrc209 · jrc209

has anyone ever used/applied for this? https://www.pcip.gov/Default.html

James10500 · James10500

http://www.hepatitis-central.com/mt/archives/2011/07/nanogel_could_l.html?eml=hepcen138

Nimbus · Nimbus

Hey guys, i need help and advice on wheather or not i should start treatment with the interferon etc. I have heard nothing but horror stories about the side effects and the long term side effects. My fear is that i will be worse off with the treatment than if i dont do treatment at all. please help!

Iris Dragonfly · Iris Dragonfly

Hi all, I was wondering where to post, since i'm not on treatment. Would like to exchange the aches and pains of this virus as well as information about remedies and other alternative health care while in limbo land. Any ideas? Thanks, Iris

PJ · PJ

She's usually pretty active around here and I haven't seen her in a couple of days....worried.

beautiful_wrath · beautiful_wrath

Hello there. I hope this note finds you all in good spirits and feeling well. Had some new input on my situation and just wanted to bounce it off of ya'll and see what real people had to say about it. Have gone over it all with the good doctor and then did some research myself online, now just wanting real...

LaurieBluesGuy · LaurieBluesGuy

Gail has been banned because some people have been receiving some very disturbing pm's from her, which we have been made aware of. If people are being intimidated in this way, then we have to put a stop to it. Hi all, don't drop by here that much anymore, life, work, an incredible wife and children, dema...

hrsetrdr · hrsetrdr

...a question that probably has no answer for most, but I've been asked several times: "when did you get Hep C?" Is there a way to know? Perhaps some folks can connect the dots, and point to a specific incident, such as a needle prick in the medical lab, but otherwise- who would know "...

Iris Dragonfly · Iris Dragonfly

My stomach hurts all the time. From a small ache, to instant puke in a blink of an eye. Some thing is always churning in there. I don't usually throw up. Just feel like I might. Does anyone else suffer through this UUggggh blaaaaaaaaa, Iris

greenqueen · greenqueen

Hi Everyone,Feeling have been running high on the forum recently, culminating in escalating verbal abuse, particularly regarding the use of marijuana.I would like to say this:Tx is a potent mix of drugs that can cause extreme mood swings, anxiety and lots of other psychological problems. For som...

DGiga · DGiga

Hi everyone and a warm welcome to all our new friends. My Pc is finally fixed. I think I got a virus from playing pool, online. I hope everyone is well and hanging in. I see Greg and Moocow are gone. I read some of the posts that were leading up to a blow-up. It is sad. I don't have too much to say about it, everyo...

Topic		Started By	Replies	Views	Last Post
	Finally got to see a new doc. (Preview) Today was my first appointment at the University Medical Center. I am SO thankful. As I mentioned before (I know I haven't posted in a while) the doctor I had didn't want to do anything for me just because I was "too young". So I saw my new doctor today and had about 10 vials of blood taken so he co...	hope87	23	2493	Aug 6, 2011 by Greg
	Mistletoe extract, anyone??? (Preview) Hi. I am trying to fine anyone or any information about this treatment... mistletoe extract (Viscum album) Mistletoes are parasitic plants with a root-like system imbedded in their host to extract food and water. The extracts used were mistletoe extract (Viscum album), and oral extracts of green...	innerview	0	598	Aug 5, 2011 by innerview
	SVR with Danoprevir? (Preview) I learnt about a Danoprevir trial being conducted in my city and have emailed them about possible participation....however, does anyone know about SVR rates? Is it as high as telaprevir?	wnose	0	623	Aug 4, 2011 by wnose
	Hello! (Preview) Hi guys, just wanted to pop in a share some good news... Don't know who remembers me but I was infected with Hep C 1A after an unruly patient threw a bloody IV insertion needle into my thigh. I was just about to start treatment but then got very acutely ill and my doctor said to hold off becaue it was consista...	sunny77	9	810	Aug 4, 2011 by Cinnamon Girl
	Welcome mmadwife (Preview) Welcome to the forum! Not sure what hemachromatosis is.. But I'm mad too that you're facing the struggle again. With the new tx offered, I hope ur Dr will have a good plan to get you cleared once and for ever! Was ur iron high during ur tx, or did that develop later? What genotype are you? Look forward to wal...	britlitkaren	1	644	Aug 3, 2011 by James10500
	New inhibbies to come to Oz (Preview) Spoke to the Dr today at the clinic that I attend. Asked about when we could expect Televipar/Incivek to arrive in Australia. He wasn't that certain but he said by the end of the year at the very latest. So thats great news but I am confused? .. When I asked him about it he was adamant that I didnt need to...	Kirstin	16	861	Aug 2, 2011 by BeccaJune
	Starting Tx this week (Preview) As some of you all know i am a Geno 1a 30 years old With normal Utrasounds and 1.6 AFP >Normal VL 21Million No biopsy was ordered Per dr instructions starting triple therapy this week (Tuesday i think) with Victrelis. Finally got all meds in and the victrelis will arive tuesday. I am a little scared...	jrc209	4	661	Jul 31, 2011 by britlitkaren
	Scared i have Hep C (not a baseless worry, had inconclusive tests) (Preview) Hello Everyone, I didn't post in the introduction thread not because i am rude but because i'm at a stage where i don't know yet if i have Hep C but i am really scared. Here's my story. I am 32 and i (used to) do a lot of medical trials to help support myself. That means that everytime i went for one i am tested...	Milk	8	3777	Jul 30, 2011 by James10500
	Today, July 28th, is World Hepatitis Day (Preview) Glad we have a day to raise awareness. We can beat this, we will beat this !	James10500	8	888	Jul 28, 2011 by Kirstin
	Oh well... It's time (Preview) This was meant for the 'Disagreements on the Forum' thread, but it is now closed. So I shall post what I wanted to say here.. Disagreements are one thing, some comments that have been made go far beyond that. For me, I have just let most of the smartass comments slide. I just prefer that some people don'...	Kirstin	16	1091	Jul 27, 2011 by Kirstin
	My Dr is worthless (Preview) I got approved for pegasys and co peg and the meds will be here tommorow. The dr was asked to attach a script to the victrelis app so they can approve that one aswell this was on friday and all he had to do was send a measly fax. The last few days ive been in contact back and forth with victrelis and they have re...	jrc209	1	773	Jul 26, 2011 by James10500
	Presentation of findings 28th July 2011 (Preview) Hi Everyone, I just wanted to let people on the forum know that I will be doing a presentation of some of my findings from the interviews with people with Hep C, as part of an event for WHD held by Renaissance at The Cornerhouse in Blackpool (102 Dickson Rd, Blackpool t: 01253 311 431) on Thurs 28th Jul...	Heather_Mack	1	640	Jul 25, 2011 by Heather_Mack
	Please someone answer my questions (Preview) My Dr told me i will be on victrelis and soc for up to24- 48ks! Anyone have exp w/ victrelis? Why did he chose this over incivek? 30 yrs old type 1a tumor marker 1.6 (normal) Vl 20 million ultrasound norm no symptoms I asked him and all he said was "You will be using victrelis" However i rea...	jrc209	3	959	Jul 23, 2011 by britlitkaren
	Hi - I'm new (Preview) I probably have had HepC since the early seventies. I did Tx in 2004 and relapsed will start Incivek w/ PR next week.	CaptBixley	14	967	Jul 23, 2011 by Deidre
	Good And Bad News Today (Preview) Got a call from pegasys on approval for patient assistance which was good! Got back my Vl 20.2 mil : So as it breaks down Vl 20.2 mil geno 1a Afp Tumor marker 1.6 ultrasound normal 30 years old maybe had for ten years??? No symptoms Pegasys will be here wed still waiting on victrelis	jrc209	2	667	Jul 22, 2011 by jrc209
	Tx to begin soon (Preview) Geno 1a ultrasound normal and afp 1.6 (normal) Dr says Soc +victrelis is what im gonna do ! Still no Vl Yet	jrc209	1	640	Jul 21, 2011 by Greg
	My Blessing For The Day (Preview) Results of ultrasound 100% normal on all organs. Afp Was 1.6 No signs of scaring or inflamation . I am still waiting on geno	jrc209	6	965	Jul 20, 2011 by jrc209
	Approved for tx by insurance (Preview) I heard from the pharmacy today and the insurance finally approved my rx for the triple tx, after my doctor sending in the paperwork to appeal the denial. My doctor appointment is on the 29th of July, and I am NOT supposed to start tx until I see him. My 10 day vacation is alrealy scheduled, so I will probab...	BeccaJune	7	972	Jul 19, 2011 by Greg
	Anyone ever missed a med? (Preview) I have my iPhone alarm all set w what to take... And this morning I knew by the packaging I'd messed up on Telaprevir. I called the pharmaceutical RN n she said not to worry n gave me a tip. Here's my regime: 6 am - 2 Telaprevir n 3 Ribavirin 2 pm - 2 Telaprevir 6 pm - 2 Ribavirin 10 pm - 2 Ribavirin n interfero...	britlitkaren	6	877	Jul 19, 2011 by Kirstin
	Pre existing Health Insurance? (Preview) has anyone ever used/applied for this? https://www.pcip.gov/Default.html	jrc209	2	667	Jul 18, 2011 by BeccaJune
	HCV Vaccine talk (Preview) http://www.hepatitis-central.com/mt/archives/2011/07/nanogel_could_l.html?eml=hepcen138	James10500	0	542	Jul 18, 2011 by James10500
	Thinking about treatment (Preview) Hey guys, i need help and advice on wheather or not i should start treatment with the interferon etc. I have heard nothing but horror stories about the side effects and the long term side effects. My fear is that i will be worse off with the treatment than if i dont do treatment at all. please help!	Nimbus	15	953	Jul 18, 2011 by Nimbus
	No section for those not on treatment (Preview) Hi all, I was wondering where to post, since i'm not on treatment. Would like to exchange the aches and pains of this virus as well as information about remedies and other alternative health care while in limbo land. Any ideas? Thanks, Iris	Iris Dragonfly	7	1069	Jul 18, 2011 by Cinnamon Girl
	Has anyone heard from Kirstin? (Preview) She's usually pretty active around here and I haven't seen her in a couple of days....worried.	PJ	28	1325	Jul 18, 2011 by Kirstin
	Biopsy Results (Preview) Hello there. I hope this note finds you all in good spirits and feeling well. Had some new input on my situation and just wanted to bounce it off of ya'll and see what real people had to say about it. Have gone over it all with the good doctor and then did some research myself online, now just wanting real...	beautiful_wrath	17	1237	Jul 17, 2011 by James10500
	Disagreements on the Forum - Not Closed (closed) (Preview) Gail has been banned because some people have been receiving some very disturbing pm's from her, which we have been made aware of. If people are being intimidated in this way, then we have to put a stop to it. Hi all, don't drop by here that much anymore, life, work, an incredible wife and children, dema...	LaurieBluesGuy	20	1285	Jul 17, 2011 by Lizard
	When? (Preview) ...a question that probably has no answer for most, but I've been asked several times: "when did you get Hep C?" Is there a way to know? Perhaps some folks can connect the dots, and point to a specific incident, such as a needle prick in the medical lab, but otherwise- who would know "...	hrsetrdr	5	1265	Jul 4, 2011 by Ron Gilbert
	UUGGGGGHHH Does anyone else have this stomach ache??? (Preview) My stomach hurts all the time. From a small ache, to instant puke in a blink of an eye. Some thing is always churning in there. I don't usually throw up. Just feel like I might. Does anyone else suffer through this UUggggh blaaaaaaaaa, Iris	Iris Dragonfly	9	1764	Jul 3, 2011 by Ron Gilbert
	DISAGREEMENTS ON THE FORUM (closed) (Preview) Hi Everyone,Feeling have been running high on the forum recently, culminating in escalating verbal abuse, particularly regarding the use of marijuana.I would like to say this:Tx is a potent mix of drugs that can cause extreme mood swings, anxiety and lots of other psychological problems. For som...	greenqueen	12	1207	Jun 29, 2011 by Minerva
	What's going on here! (Preview) Hi everyone and a warm welcome to all our new friends. My Pc is finally fixed. I think I got a virus from playing pool, online. I hope everyone is well and hanging in. I see Greg and Moocow are gone. I read some of the posts that were leading up to a blow-up. It is sad. I don't have too much to say about it, everyo...	DGiga	0	660	Jun 29, 2011 by DGiga
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