Hep C Discussion Forum

mallani · mallani

Hi all, Since achieving SVR 2.5 years ago, peripheral neuropathy (PN) has developed and is getting a little worse. After much deliberation, I finally consulted a Neurologist. Basically, I have numb toes which are worse at night, lying in bed. There is a slight burning sensation, and the L is more aff...

robertsamx · robertsamx

http://www.dndi.org/images/stories/events2015/liverupdate/LiverUpdate_Chang_ChangingHepCLandscape_2015.pdf

hepCFREEwanab · hepCFREEwanab

Hello everyone, it has been a while since I have written an update in Angelo's condition. Let's see : EOT 24 wks Harvoni on May 10, 2015 UND : 4 wks, 13 wks. After Radioimbolization and TACE for his HCC ( 2 tumors)he was able to meet the MILAN Criteria which qualifies him to get on the Liver Translanta...

Iris Dragonfly · Iris Dragonfly

Hi folks! Long time no see. I recently had my standard check up, testing C panel and a1c, (still in the pre diabetic range) They also did a viral load. Since I have been having this test (first one was in 1999) the range has always fell in the millions. From the low 1 millions up to 3 million...It always went...

Tig · Tig

This is a frightening statistic! Consider there are approximately 3-4 million cases of reported chronic HCV in the USA alone. If the CDC is correct and this number of acute cases goes unreported, of which 75% progress to chronic HCV, the number of people with chronic HCV is not going down, but up at an a...

drummerman · drummerman

http://www.prnewswire.com/news-releases/abbvie-to-present-new-data-from-hepatitis-c-clinical-development-program-at-the-international-liver-congress-2015-300062654.html

bigmac73 · bigmac73

this afternoon I was out mowing the yard and thinking to myself , I sure would like to have a Bloody Beer (spicy v8/beer) but I had to remind myself not any more.... but then I got to wondering about a Odouls style near beer and if it would hurt my liver?? any thoughts???

lilbit · lilbit

My husband is less than two weeks to finishing treatment on Harvoni. My question is how long after treatment does he have to wait to go on major natural vitamins. I went on Thrive which is mega vitamins, minerals, and everything else under the sun after Viekira Pak and got my health back really quick....

bigmac73 · bigmac73

I realize this might be a touchy subject for some and a legal and ethical issue for others, but I have been reading around the web and some people say that marijuana helps the liver and some sources say that is causes fibrosis?????????? not try to start a legal argument or any nonsense, just want honest...

3rdTimesACharm · 3rdTimesACharm

Good News First! I am a 2X Non-Responder and have been on Harvoni for 60 days. I was told today that my viral load is down to 15 from 1.8Million!! Basically, undetectable. I have an appointment in the morning with my doctor. While I am very happy, I am a little reserved, until I hear it straight from the hor...

Batman · Batman

Have the makers offered any sugestions for the post treatment pain.

bubble · bubble

Hi Dragon Slayers ! Hey...I am on my second Abbvie nurse now as of last week. I have asked her also the golden question: What do you consider "cured" ? She stated that the FDA and in conjuction with AbbVie considers EOT+12 weeks the standard. I think this probably has been touched on elsew...

Cinnamon Girl · Cinnamon Girl

Patient Community Forum on Hepatitis C The County of Fresno`s Department of Public Health and several other health agencies will be hosting a patient community forum on Hep C. The forum will be moderated by Alan Franciscus of the Hep C Support Project/HCV Advocate. Educators will discuss the basi...

mweichel · mweichel

I received a letter from my insurance provider stating I don't meet their criteria for payment of harvoni. the criteria is stage 4 fibrosis with cirrhosis. At this point, I will need a transplant. Needless to say I am very angry and disappointed. My doctor told me on my visit with her that they handle al...

Flower Child · Flower Child

Please let me know if I should (or should not) question this. My friend went to an appointment for blood work. Doctors told her they are going to try putting her on four weeks of Daklinza by itself. She has not had an ultrasound yet (later this month). Genotype is 3a, treatment naive. Her blood work re...

Brian1412 · Brian1412

I leave tomorrow for Italy as the circus begins in Turin in 3 days. The only test I have not done yet is the last VL.( for svr ) and all were excellent. Ast and Alt the best ever. There was some discussion about the VL lab, , doing it at my home, or elsewhere., it is less than 2 weeks until scheduled...

SickPuppy · SickPuppy

The UK has decided not to offer a 24 weeks course of Harvoni, Viekira or any other expensive DAA under any circumstance. It has also decided that instead, they will offer 12 weeks Harvoni + Ribavirin only to TX-naive cirrhotics. TX-experienced cirrhotics will not get treatment (not even the 12 weeks...

freesoul · freesoul

So I just got my more extensive blood panels back, yay! Some things are really good. AST is 24, ALT 36, all the rest of liver panel, and INR are within range. That's good news. However some stuff is just strange... -Borderline hyperkalemia. I had actual hyperkalemia and dealt with this issue for a month...

tomyboy · tomyboy

Hi all, Hope to find everyone well. Today is a huge day. It is Tom's last day of harvoni. He is very excited. This last treatment has been a breeze compared to his previous five. Just wanted to share our excitement. We go back to NYC in September for his MRI and he will get his blood work completed too. ...

titus321 · titus321

Can anyone suggest a dr. in the Denver area for hep c treatment. I just moved here and I'm interested in taking the new drugs on the market. I discovered I had hep in 1999 and have been through all the interferon treatments with no success. I'm now cirrhotic with genotype 3. I've read the latest tx seems t...

drexelpbp · drexelpbp

Haven't seen Gator Man on the forums. Does anybody know how hes doing?

Tig · Tig

I've been getting updates from this blog, authored by Greg Jeffreys. He's the guy that documented his travels to India in search of new treatments and DAA's. Very interesting and I know you'll find his journal fascinating. There are a lot of different topics. He's a great advocate for all with this di...

freesoul · freesoul

I went to my dr's office today and demanded to see my test results and to keep a copy. They made me see one of the walk-in clinic doctors, since he wasn't there. Not sure why all the fuss. I said I wanted to know my genotype- she didn't know what I meant... Finally I said I just wanted to see a copy of the test r...

Brian1412 · Brian1412

My great Dr sent me an email that he visited this site. He said he found it be be fantastic and informative. So i wanted to pass that on. I did my labs today and should have results. By the end of the week. I. Am now 23. Pills to the end and by just how i feel i am confident i am in a great spot. Onve again i am very t...

Penelope PePod · Penelope PePod

I just finished week 1 Viek/Riba, so I'm assuming I have less virus than a week ago. So I'm using a styptic pencil to staunch a little shaving nick; same pencil I used a week ago and just rinsed off after use like the package says. Did I just give myself a fresh dose of HCV from my own pretreatment blood?...

KPB · KPB

OR,,,,what people should not eat or drink ? to help their liver regenerate

saravanan · saravanan

Hi can any one suggest,which is the best Indian version Sovaldi available @ lessprice and where to buy....??

cayohueso1 · cayohueso1

Hey everybody, its actually been 4 years or more since I posted. Hepc geno1 . So I was very positive about the treatment and in the spring of 2010 or maybe end of 2010, started peg interferon with Victrillis. First let me say I had almost 9 years as a recovering addict. 3 months in, coming up negative, b...

mallani · mallani

Hi all, This article from the latest 'Journal of Hepatology', shows that some interest is now being placed on assessing quality of life (QOL) after SVR. http://www.journal-of-hepatology.eu/article/S0168-8278%2815%2900326-8/fulltext The whole topic of symptoms of HepC (physical, mental...

tomyboy · tomyboy

Hi All, It's been a while since I have lurked these pages. I hope to find everyone here having good results. Tom is still on harvoni and doing very well. His count is still 0. We went back to Mt Sinai 6/11 for what was to be his last liver CT scan. From there he would begin to go every six months for an MRI o...

Topic		Started By	Replies	Views	Last Post
	Peripheral Neuropathy and Hepatitis C (Preview) Hi all, Since achieving SVR 2.5 years ago, peripheral neuropathy (PN) has developed and is getting a little worse. After much deliberation, I finally consulted a Neurologist. Basically, I have numb toes which are worse at night, lying in bed. There is a slight burning sensation, and the L is more aff...	mallani	20	4065	Sep 15, 2015 by dragonfly
	good info on treatment drugs (Preview) http://www.dndi.org/images/stories/events2015/liverupdate/LiverUpdate_Chang_ChangingHepCLandscape_2015.pdf	robertsamx	0	1060	Sep 14, 2015 by robertsamx
	ANGELO's UPDATE!!! (Preview) Hello everyone, it has been a while since I have written an update in Angelo's condition. Let's see : EOT 24 wks Harvoni on May 10, 2015 UND : 4 wks, 13 wks. After Radioimbolization and TACE for his HCC ( 2 tumors)he was able to meet the MILAN Criteria which qualifies him to get on the Liver Translanta...	hepCFREEwanab	10	1772	Sep 9, 2015 by tomyboy
	Viral load going down? (Preview) Hi folks! Long time no see. I recently had my standard check up, testing C panel and a1c, (still in the pre diabetic range) They also did a viral load. Since I have been having this test (first one was in 1999) the range has always fell in the millions. From the low 1 millions up to 3 million...It always went...	Iris Dragonfly	7	2314	Aug 28, 2015 by robertsamx
	Frightening Statistic (Preview) This is a frightening statistic! Consider there are approximately 3-4 million cases of reported chronic HCV in the USA alone. If the CDC is correct and this number of acute cases goes unreported, of which 75% progress to chronic HCV, the number of people with chronic HCV is not going down, but up at an a...	Tig	3	1393	Aug 28, 2015 by bubble
	reposting here... this looks a promising new tx with no riba. (Preview) http://www.prnewswire.com/news-releases/abbvie-to-present-new-data-from-hepatitis-c-clinical-development-program-at-the-international-liver-congress-2015-300062654.html	drummerman	0	1203	Aug 24, 2015 by drummerman
	replacement with near beer (Preview) this afternoon I was out mowing the yard and thinking to myself , I sure would like to have a Bloody Beer (spicy v8/beer) but I had to remind myself not any more.... but then I got to wondering about a Odouls style near beer and if it would hurt my liver?? any thoughts???	bigmac73	9	2513	Aug 24, 2015 by robertsamx
	Post Treatment on Harvoni Question (Preview) My husband is less than two weeks to finishing treatment on Harvoni. My question is how long after treatment does he have to wait to go on major natural vitamins. I went on Thrive which is mega vitamins, minerals, and everything else under the sun after Viekira Pak and got my health back really quick....	lilbit	2	1187	Aug 23, 2015 by lilbit
	marijuna good for liver or bad (Preview) I realize this might be a touchy subject for some and a legal and ethical issue for others, but I have been reading around the web and some people say that marijuana helps the liver and some sources say that is causes fibrosis?????????? not try to start a legal argument or any nonsense, just want honest...	bigmac73	5	1363	Aug 22, 2015 by basser
	Harmony Side Affects (Preview) Good News First! I am a 2X Non-Responder and have been on Harvoni for 60 days. I was told today that my viral load is down to 15 from 1.8Million!! Basically, undetectable. I have an appointment in the morning with my doctor. While I am very happy, I am a little reserved, until I hear it straight from the hor...	3rdTimesACharm	9	2874	Aug 22, 2015 by Groupergetter
	Drug company. (Preview) Have the makers offered any sugestions for the post treatment pain.	Batman	1	1009	Aug 21, 2015 by Tig
	The standard for "Cured" (Preview) Hi Dragon Slayers ! Hey...I am on my second Abbvie nurse now as of last week. I have asked her also the golden question: What do you consider "cured" ? She stated that the FDA and in conjuction with AbbVie considers EOT+12 weeks the standard. I think this probably has been touched on elsew...	bubble	1	1014	Aug 20, 2015 by Cinnamon Girl
	Patient Community Forum on Hep C (Fresno, USA), to be held on 20th Aug `15 (Preview) Patient Community Forum on Hepatitis C The County of Fresno`s Department of Public Health and several other health agencies will be hosting a patient community forum on Hep C. The forum will be moderated by Alan Franciscus of the Hep C Support Project/HCV Advocate. Educators will discuss the basi...	Cinnamon Girl	2	1076	Aug 18, 2015 by Cinnamon Girl
	Insurance denials (Preview) I received a letter from my insurance provider stating I don't meet their criteria for payment of harvoni. the criteria is stage 4 fibrosis with cirrhosis. At this point, I will need a transplant. Needless to say I am very angry and disappointed. My doctor told me on my visit with her that they handle al...	mweichel	10	1888	Aug 17, 2015 by Tig
	Advice or second opinion? (Preview) Please let me know if I should (or should not) question this. My friend went to an appointment for blood work. Doctors told her they are going to try putting her on four weeks of Daklinza by itself. She has not had an ultrasound yet (later this month). Genotype is 3a, treatment naive. Her blood work re...	Flower Child	5	1660	Aug 15, 2015 by Flower Child
	Watch Out Europe ! Here comes the circus! (Preview) I leave tomorrow for Italy as the circus begins in Turin in 3 days. The only test I have not done yet is the last VL.( for svr ) and all were excellent. Ast and Alt the best ever. There was some discussion about the VL lab, , doing it at my home, or elsewhere., it is less than 2 weeks until scheduled...	Brian1412	21	1940	Aug 15, 2015 by Brian1412
	Cirrhotics in UK, new draft guidelines (Preview) The UK has decided not to offer a 24 weeks course of Harvoni, Viekira or any other expensive DAA under any circumstance. It has also decided that instead, they will offer 12 weeks Harvoni + Ribavirin only to TX-naive cirrhotics. TX-experienced cirrhotics will not get treatment (not even the 12 weeks...	SickPuppy	12	2592	Aug 15, 2015 by Gracie
	Blood work weirdness (Preview) So I just got my more extensive blood panels back, yay! Some things are really good. AST is 24, ALT 36, all the rest of liver panel, and INR are within range. That's good news. However some stuff is just strange... -Borderline hyperkalemia. I had actual hyperkalemia and dealt with this issue for a month...	freesoul	2	1466	Aug 14, 2015 by Tig
	Mt Sinai (Preview) Hi all, Hope to find everyone well. Today is a huge day. It is Tom's last day of harvoni. He is very excited. This last treatment has been a breeze compared to his previous five. Just wanted to share our excitement. We go back to NYC in September for his MRI and he will get his blood work completed too. ...	tomyboy	7	1319	Aug 12, 2015 by Groupergetter
	Denver area doctors or hospitals (Preview) Can anyone suggest a dr. in the Denver area for hep c treatment. I just moved here and I'm interested in taking the new drugs on the market. I discovered I had hep in 1999 and have been through all the interferon treatments with no success. I'm now cirrhotic with genotype 3. I've read the latest tx seems t...	titus321	3	1078	Aug 12, 2015 by Tig
	Gator Man (Preview) Haven't seen Gator Man on the forums. Does anybody know how hes doing?	drexelpbp	2	1006	Aug 11, 2015 by drexelpbp
	An interesting blog (Preview) I've been getting updates from this blog, authored by Greg Jeffreys. He's the guy that documented his travels to India in search of new treatments and DAA's. Very interesting and I know you'll find his journal fascinating. There are a lot of different topics. He's a great advocate for all with this di...	Tig	2	1221	Aug 9, 2015 by basser
	More info! yes! (Preview) I went to my dr's office today and demanded to see my test results and to keep a copy. They made me see one of the walk-in clinic doctors, since he wasn't there. Not sure why all the fuss. I said I wanted to know my genotype- she didn't know what I meant... Finally I said I just wanted to see a copy of the test r...	freesoul	5	1426	Aug 1, 2015 by Cinnamon Girl
	To all who make this site. happen (Preview) My great Dr sent me an email that he visited this site. He said he found it be be fantastic and informative. So i wanted to pass that on. I did my labs today and should have results. By the end of the week. I. Am now 23. Pills to the end and by just how i feel i am confident i am in a great spot. Onve again i am very t...	Brian1412	14	1769	Aug 1, 2015 by fourlocos
	Can I re-infect mself using my own razor? (Preview) I just finished week 1 Viek/Riba, so I'm assuming I have less virus than a week ago. So I'm using a styptic pencil to staunch a little shaving nick; same pencil I used a week ago and just rinsed off after use like the package says. Did I just give myself a fresh dose of HCV from my own pretreatment blood?...	Penelope PePod	17	2039	Jul 27, 2015 by Penelope PePod
	What do people eat and drink ? that will help their liver regenerate (Preview) OR,,,,what people should not eat or drink ? to help their liver regenerate	KPB	8	1809	Jul 23, 2015 by Brian1412
	Generic Solvadi (closed) (Preview) Hi can any one suggest,which is the best Indian version Sovaldi available @ lessprice and where to buy....??	saravanan	5	1818	Jul 22, 2015 by Cinnamon Girl
	Pegasys interferon ****tail DROPOUT (Preview) Hey everybody, its actually been 4 years or more since I posted. Hepc geno1 . So I was very positive about the treatment and in the spring of 2010 or maybe end of 2010, started peg interferon with Victrillis. First let me say I had almost 9 years as a recovering addict. 3 months in, coming up negative, b...	cayohueso1	7	2632	Jul 21, 2015 by Tig
	HepC-quality of life (Preview) Hi all, This article from the latest 'Journal of Hepatology', shows that some interest is now being placed on assessing quality of life (QOL) after SVR. http://www.journal-of-hepatology.eu/article/S0168-8278%2815%2900326-8/fulltext The whole topic of symptoms of HepC (physical, mental...	mallani	4	1614	Jul 20, 2015 by Tess
	Mount Sinai (Preview) Hi All, It's been a while since I have lurked these pages. I hope to find everyone here having good results. Tom is still on harvoni and doing very well. His count is still 0. We went back to Mt Sinai 6/11 for what was to be his last liver CT scan. From there he would begin to go every six months for an MRI o...	tomyboy	11	2107	Jul 16, 2015 by mallani
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