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New member/Just diagnosed last month
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I just found out that I had Hep C last month. July 20th. I am not sure the reality of the diagnosis has hit me yet. I went to my regular doctor because my ankles were a little swollen ( one more than the other) and one hurt to walk on it. She went crazy on the blood work, ordered all kinds of different things. Tur...
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Phoenix17
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38
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1481
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Looking for more help
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I just found out that I have type 3 hep c. I am still waiting to see the specialist. I haven't done any research yet, I decided before I start flooding my head with useless information I would bring it to the pros on here first. Can you guys suggest any useful readings/websites or anything you feel helpful...
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derek
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12
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1684
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fibroscan
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Hi got fibro scan score of 15.1 kpa cap 353 large fatty liver on US Ct scan mri scan does mean mild cirrhosis due to fibroscan ? -- Edited by Tiger on Monday 5th of September 2016 01:33:17 PM
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Tiger
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17
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1771
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Waiting at the starting gate
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It is so uplifting and encouraging to read all the positive posts and the sharing of everyone's journey. Thank you! I haven't posted in a while because I was waiting for approval of Sol/Dak, which did happen on August 9th. I was happy and a little anxious at the same time. I believe the anxiety is a re...
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Ruby Red
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14
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1417
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curious
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First of all, I want to thank everyone who welcomed me to this forum. I know I said this already, but you people brought me the comfort and understanding that my Dr. cannot provide. I am still waiting on blood work and ultrasound results for more info. I was reading about natural ways to this disease and c...
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derek
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9
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1077
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hello im 48 found out that id hepc last January.
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i was a drug user but turned things around guess i was lucky.Have a family now with a great women and three daughters.so the hepc caught me up from the past,thank god i didnt pass it on to them all tested.got type 1a on abbvie 3d treatment 24weeks undetected at one month.So looking good but fibro scan lsm 1...
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Tiger
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14
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1438
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I'm new to this- hello.
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Like I said,I'm new to this online stuff and fairly new to the world of HCV. Tested positive the end of January 2016. Also diagnosed with high blood pressure, stage3 CKD, cirrhosis, portal hypertension, ascites... I'm 56 yrs old and thought I wasn't in too bad of shape till all this hit like a Mack truck...
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Lchris1
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37
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3583
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Confused
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Hello all, I have recently found out that i have hep c. It seems the more i read the less I understand. If anyone can help me understand my blood work results, I would be forever grateful. INR 1, Albumin 44, Gamma Glutamyl 123, Aianine Amino 238, Aspartate Amino 85. Please dont hold anything back, I would...
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derek
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14
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1862
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New Member
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Hi there I am new to this post and wanted to share my experience with viekira pa so far. I am 44 years old, and have had the virus since I got a blood transfusion from my mother at the age of 6. I am now on week 6 (12 week treatment) of viekira pak, no cirrosis and mild scarring on my liver...genotype 1b. I´m happ...
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joaquin
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5
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928
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New sufferer from side effects!
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Hello everybody! Hepatitis C genotype 3Discovered in 1996Treatment beginning in early June of this year. protocol 24 week -2 tablets ribavirin and one tablet daklinza in the morning and 2-2 tablets ribavirin and one tabletsovaldi evening. A month ago I had to interrupt treatment because it...
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Katya
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15
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1887
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Hello, I'm John
(
1 2
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Hey y'all, I'm John from Alabama. I recently found out I have genotype 3 hc. I thought I was diabetic and feeling bad for awhile. Buttttttt, it's not diabetes but hc. So, I've been approved for treatment and received my ribovarin and sovaldi. I think I spelled that right.haha now I'm just getting my n...
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Ivery
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64
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5051
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Thank you for the warm welcome Linux!
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Thank you for the warm welcome. Well, basically to sum my life up briefly. Got married at 18 to a soldier (that was 21). He got "alerted" on our honeymoon (about two hours after getting hotel) and the next time I seen him was 14 months later. He got out of military in Sep 02. I was diagnosed with Hodgkin's ly...
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Diamond in the sky
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3
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814
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Have Epclusa Script -not accepted by Insurance
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Hi-I am Hep c 2b -found out after 9/11/2001 when I donated blood. My ALT and AST are high I just got Fibroscan Compensated cirrhosis. I do not understand if Epclusa is highly tolerated without side effects and all genotypes -why it is not available. Also see that there are people taking it maybe trials?...
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MommaT
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19
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3551
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One left
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I will arive @ my destination in one hour. It's been a very smooth ride for me. Thanks to all the support on the train. It was all of you who who makes the ride go fast and easily. Go tomorrow for labs. Mike
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gojuman
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13
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1033
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1st week of Harvoni - rash
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Hi! I'm on my first week of Harvoni. So thankful i got insurance approval & copay assistance from Gilead!! I experienced the expected increased headaches and fatigue. Having a tough time - but of course, if I stop & make myself compare it to IFN, it's a "walk in the park." I took 1/2 Advil or 1/2...
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awaw5
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17
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2605
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ALT has soared
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hello newly diagnosed at the beginning of July and still don't know my genotype yet. Initial viral load was 10 million going up to 12m on the 2nd test. The problem is the ALT reading. results of 4 tests to date are; 1st test - 153 2nd test - 93 3rd test - 1000+ 4th test - 1300+ Since diagnosis i haven't been d...
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newlondon
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34
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2923
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Endoscopy Approaching
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Hi Everyone, The moment I've been dreading all month is close at hand - my endoscopy is scheduled for Wednesday morning. Please keep me in your thoughts and prayers - I just want it to be done with the least amount of discomfort and I really hope he doesn't find any problems. I wish my partner was here to go...
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humbled
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10
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894
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Need Feedback on Daklinza/Sofosbuvir
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So since my husband's endoscopies for banding of varices have had him on a higher dose omeprazole (for the healing), we have had to postpone Harvoni (at least 3 more weeks), which I'm not comfortable doing. Really want to get going! We also have the option of Daklinza/Sofosbuvir combo but I was feelin...
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Susie1
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4
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2346
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Hi Everyone
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Hi Everyone, I was diagnosed with Hep C in April and the whole experience has been pretty tough. I've only told my partner and one other person, and am still adjusting. To compound things, my recent Fibroscan was surprisingly high (13.6), considering that my GP said that my liver enzymes were normal a...
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humbled
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23
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1493
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anxiety about starting Sovaldi and Ribavirin
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Hello, I received my first month treatment of sovaldi and ribavirin, I was going to start it this morning at 10 am and I talked myself out of it, I know I shouldn't be so scared but I am terrified!!!! I am genotype 2b viral load is 4080377/6.61. This past year has been EXTREMELY stressful for me, I went thro...
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Mitch71
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16
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2264
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Anxiety About Starting Harvoni
(
1 2 3
)
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Hi everyone. I have been lurking these message boards for a few months now as I wait to begin my eight weeks of treatment on Harvoni. You all seem like lovely folk and I could sure use some emotional support right now as I'm a bit of a mess. I picked up my bottle of Harvoni two days ago, and it is sitting .....
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nightowl
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112
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5489
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Patiently waiting at the starting Gate
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Hi Everyone :) I am currently waiting to see which therapy I will be going on. According to Momentum and Claire Program I have been verbally approved for Sovaldi and Daclatasvir (Daklinza) All my paper work is in, now just waiting for my medical info to reach my insurance company and/or other hands...
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Ruby Red
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13
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1096
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Another (new) Canuck eh !
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I'm on the 24 week Harvoni train and I just now took my 31st pill. The only side effect has been the odd slight headache. A cup of coffee seems to fix it. I just got my 4 week blood results back. Your list of abbreviations is coming in handy. Thank you for the company
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Re-Buy
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32
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3204
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Liver Pain and Swelling after Successful Viekira Treatment?
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Hello, I've never been part of a forum before, but thought I'd give it a try. I don't have anyone to talk to about this. Maybe it will help with anxiety and to gain some knowledge. I was diagnosed with hep c 1a awhile back. I was told my fibroscan showed I was at level 4 (I believe) and towards the end of the las...
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brooke
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7
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1779
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Beginning treatment with Viekira pak Sunday.
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Hello all, This is my first post. I will be starting treatment on Sunday July 3rd. I'm not real sure about the dosages of the Viekira pak the box has three pills in the morning and one at night. I will also be taking ribavirin 3 200mg pills in the morning and 3 200mg pills at night. One thing I'm really worri...
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pbr35586
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15
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1235
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Harvoni and Hot Drinks
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Hi just a quick question - and perhaps some helpful info to newcomers regarding Harvoni and body temperature . When I last saw my liver specialist to begin my Harvoni a few weeks ago, he told me NOT to take my tablet with a hot drink (tea or coffee/soup etc). He told me that Harvoni is destroyed at t...
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nightowl
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6
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1138
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New here and started Harvoni 28 days ago. I have questions.
(Preview)
I am 58, male, hep C for 16+ years. I was put on pills and weekly shot back 15 yrs ago. No good results. Recently diagnosed with cirrhosis and started Harvoni 28 days ago. I've been clean and sober 5 yrs. I am having side effects mainly after meals. Reflux / heartburn severe.This is my one shot to get better...
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boxerfan13
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9
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1154
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'Bout to board the Train
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I'm new here but have been reading a lot of info in here. Seems like a bunch of really nice folks in here. Really nervous about this whole Tx thing. Just went for my first physical in many years back in Feb. and one test result lead to another and before I knew it I was being subjected to one major test (MRI, So...
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GrayEagle
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25
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1564
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New Member - Hep C 1a w/cirrhosis -Many questions!
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I am new to this forum. My sister referred me as she found it very helpful during her Hep C treatment with Harvoni, which is now cured. My husband is a 54 year old male with Hep C and cirrhosis. He received only natural therapies in the past 20 years. With cirrhosis getting worse including portal hyperten...
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Susie1
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25
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2849
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Travandrum India
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Hi everyone, I have just returned to UK from KIMS hospital Travandrum, I am 57 geno type 1a for 22 years, My liver stiffness Kpa is 12.4. I have returned with Generic HEPCVIR L (Ledipasvir Sofosbuvir)+ribavirin) Total cost of round trip was £3,500 for 24 weeks treatment.or £2,700 for 12 weeks. This i...
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sunbeam
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29
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1403
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