Hi All!! I wanted to give a shout out to all my friends on here! I know I have been MIA/Absent for damned near a year and I am sorry for that; life got busy and I get distracted easily (even when I wasn't on TX ). I just wanted to say to Jill and Shep, Alan & Kiwi, Mallan...
I know the liver can repair itself to a degree....but I'm wondering how much. I don't expect it be like a healthy non hep person...but are we still at risk of cirrhosis?...and even worse, cancer?
I will eventualy make a signature thingy thing..... Anyway gota call from the gastro office Biopsy for July 30th at 7am so the can dope me up and yada yada they say hold your breath when they stab you I say ya ill remember that .... sure theyll tell me again... gota get another blood draw from my FNP here i...
Hi All, I was hoping someone may have some research data they have read or seen that shows that 24 weeks on the Sovaldi/Olysio had higher SRV24 rates than the 12 week protocol. My doctor has agreed to extend my tx up to the 24 weeks, but he said we would have a hard time convincing my insurance company. I ha...
Hi everyone; Today was my last day of taking my pills. It actually flew by. I'm taking my whole liver panel blood work tomorrow and was wondering if anyone knows with absolute certainty if I need to take the blood on an empty stomach or not? I heard it doesn't matter but then I've heard it does. Does anyone...
Well I have not posted for some time as I waited for the results from my 24 week tests. I just gave blood for my second to last test and received the 24 week ones and everything seemed really good. BUT the part that had me concerned was the fact that I also had a Fibro Scan done and my results from that were no...
may as well since im here as i pa-rOOse the forum for insight once a day or more ....... um so you get a biopsy then im guessin you wait a week or two for results..... what will the biopsy reveal ??? whther thers cirrosis or not ..scarring .... can they tell if theres any fibrosis or at what level ???? b...
A Jim Morrison would say "This is the end" I say the end my friend.. 3 more sovaldi. 13 or 13 riba. woooohoooooo... damn i will glad to get this crap out of my system jsut for nerves sakes.. lol
7 weeks post treatment....... Undetected < 15. Next test will be EOT+ 24 weeks. Held my breath while Quest result page came up on the comp. Yahoooooo!!!!!!!!! all the test to do with red blood are still a little low right at the high end of the low range. Thank God and all the well wishes from the peeps h...
Tom has an appt with his oncolcologist Friday and with his gastro dr next week to begin the process of hopefully stopping the oral chemo and beginning the new treatment in November. Is the name of the treatment which is set to be approved in Oct ABT-450? Hope you all are well and thanks for the help.
Just got my labs results back. Still Undetected 4 weeks after treatment stopped on Sovaldi/Olysio. Keeping my fingers crossed for SVR 12. Relapsed 6 months after treatment with Peg Interferon and Rib in 2006. Praying I lick it this time Gary
Not a question, but just an update on the FibroScan technology in the US which is a non-invasive method to measure fibrosis staging (replacing the needle biopsy). In 2013 the FDA approved the FibroScan technology and in 2014 the AASLD endorsed the FibroScan technology. The FibroScan is technicall...
Metavir and Ishak Im half tempted to call my Gastro office or Gastro doctor lady and say ... do you guys have access to a fibroscan ?from what im readin from you gurus / oracles you say the fibro is better then a biopsy or<----- can they be translated like Farenheight to celcius .....as you say i...
Hi all,I just heard a video, where an annoying US female said '......we can finally say goodbye to Interferon forever' .These are just some SVR figures, for those in countries who may have years to wait for the new DAA's.Between Feb 2012 and Jul 2013, my doc and one of his partners treated 109 patients w...
I just started this trial and I have been taking the medication for one week. The medication is daclatasvir (NS5A inhibitor) 30 mg, asunaprevir (NS3 inhibitor) 30 mg and BMS-791325 (NS5B inhibitor) 75 mg all in one tablet taken twice a day. So far I feel no side effects. In addition, I FEEL BETTER. For e...
Hi everyone, I initially posted this question as part of a different post but I thought it would be better to ask it on its own. I was looking over the results from my liver biopsy, and I wonder if some of you may help me decipher it. Here are the scores I was given: ISHAK score: Fibrosis stage 5-6/6 Grade 6/...
Any thoughts, facts on how long we can live with chirrhosis? i achieved SVR, I don't drink alcohol. I am 55 and always had abdunbant energy. I struggle with extreme fatigue. I was wondering if anyone else going thru this? i have started taking vitamins, I don't smoke and have loss the desire to be in the s...
Hi, I was taking my oily bath and noticed that my legs have changed , They are SO white. I only have 6 weeks left. I take this as meaning what little jaundice I had is leaving,My big Toe nails have had a awful riot on the nail but they too are starting to heal. I be leave this Toe Nail fungi riot thing is a extrah...
Taking care of my mother when she was sick, as a 12 year old I thought it was my duty.I wonted my mom well and I set out to find a cure,I began reading my sisters "not the nurse , middle sisters," text books. and found a book at the boys club called The Human Body. So I kept reading , not relay under...
I finish up with this nasty mess next Thursday. I get labs then & I guess will find out the next week. prayers please. I don't think my body would hold up for a 5th try. but I got my faith in this sovaldi. I been thru the most stressful 12 weeks of my life literally. from the meds to my son's nut wife & co...
Hi all, I've just finished up with a 12 week course of Sovaldi and Olysio. I have had cirrhosis for about eight years and the HCV for about 45 years. My viral load was below 45 at 4 weeks and UND at 8 weeks and is now UND at 12 weeks. So on that front all is good! The problem I am having is with the actual hospital w...
Hi, all. Just a few questions about treatment with Sovaldi + Olysio that hopefully some knowledgable people here will be able to answer: - Why shouldn't the meds be stored in a refrigerator? I was told this by the specialty pharmacies. I understand that there can be a lot of humidity in refrigerators,...
One of our members who doesn`t wish to be mentioned by name sent me this poem recently and asked if I could post it on their behalf. It was written 3 days into treatment and expresses a deep desire to beat the virus. I believe that sometimes expressing our feelings in words can reinforce our determinat...
A couple of articles caught my eye today on this website. It posts to my email daily. Transmission of HCV after SVR Regeneration of liver after SVR. Guess they caught my eye as I just got my notification of SVR. Although I am not happy with the use of animal testing for the first article, the informat...
Hello everyone- I was made aware that I am HCV positive in September 2013. I will start treatment in August of 2014. I will get Interferon,Ribavarin and Solvaldi for 3 months. I have likely been infected since the early 70's. I have bad joint pain and fatigue which rises and falls in severity. Nobody se...
I'm a little disappointed with the news I got today. At 2 weeks my viral load was <15 DETECTED. At 4 weeks it's the same. Since I had such a quick response I was expecting to see UND this time and now I'm starting to get really concerned that there are some that aren't going to die. I have good reason t...
Hey lovely heppers, I just got back from the hospital, some good and not so great news today. The news I hate is now I have 17 million copies of virus, so I jumped a lot (1 - 17) although I know that is not too significant, but I don't like having such a high jump. I am very sensitive to Riba, I went last time from...
I've heard some heartbreaking news on this site that some people relapse after the meds stop, and I was wondering if that's a minority or a rare case that an be worked through, or is that unusual? I'm just wondering how many of those with Genotype Ia on only solvaldi/olysio have still remained UD after 1...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
). I just wanted to say to Jill and Shep, Alan & Kiwi, Mallan...