Hello, I'm not sure if anyone cares but I thought I would update anyone who does. I have found it very useful, most times encouraging, to read about other peoples experiences. I am on day 11 of the Optimist Clinical trial. It involves taking Sofosbusvir and Simeprevir (Olyosio) 150 mg Once daily wit...
I have a AMAZING doctor so I know i'm in great hands... but couldn't help but be mildly disappointed to find out I still am not UD even though nearly everyone in this forum seems UD on this protocol by the 4 week mark. In just two weeks I went from 14 million to just 28. not 28 million, just the number 28. And in...
I have had HCV since 1981 blood trans and got the Sovaldi/ RIBA and my DR is old school gave me RIBA eeeekkkk so on the 17th PS already approved for Olysio 3.50 for 4,000.00 and onto fighting the dragon !! ran a HCV group on msn for about 10 yrs .. was didi in hepatitis neighborhood so if ya all remember me say...
Okay, I am about to take my last ribavirin. Already done with the sovaldi. Thank you to everyone, especially Jimbob, for the encouragement to keep going when I felt like quitting. Next labs in 3 weeks and will post the results once I know them. Thank you so much for all the help. I plan on sticking around t...
I sometimes have random pain in the liver region but I've noticed the discomfort can get super bad if I eat the wrong foods or too much food. Here is a youtube video I found helpful if this happens to you too: www.youtube.com/watch?v=lPipZlRVzGc
Ok, so this is complicated but, I am in week 19 treatment for hep c genotype 3. The third blood results came back negative, still have the 5 more weeks to go. Last week my roommates father moved here from nova scotia, and i had no idea he was a junky, one night i had extreme anxiety and he was using infront o...
Hi my name is Roger and I just joined the forume. have been stalking the board for about a month and it seems like a good site.I just took my first dose of sovaldi and ribavirin about 30 minutes ago so just started the journy. Thanks Roger
They are going to do a full report at the tumor meeting next Tuesday - but they were not worried about it - does anyone know if the lesion hasn't changed size in 6 months that is good or bad?
I started experiencing terrible side stickers in my liver.....they just about knock me to my knees....I get the extreme pain when I change positions ....when I stand and lie down or roll on my side.....I also have an ache in my liver and sometimes I find my self walking bent over from the ache.... I fee...
I have hep c, and am 1a. I had major problems it's ribo and interferon and had to stop after 4 months in 2005. i started the olysio and sovaldi on April 14th. I feel really good and am so happy to be on these drugs. i am a grandmother with 5 little girls and will be able to live out my life enjoying and sharing m...
i did the sovaldi dosage at 5:30 am along with the riba so i know i did not lose them. this is the first time that i threw my guts up at work. so sick. did my so called co worker friend who is right next to bathroom ask if i were ok? hell no.. god please give me lottery money so i can go home & do the many things i c...
Hi there Just completed a week ago 12 week triple therapy with interferon, ribavirin, and Sovaldi. First time treatment Gen type 1a, had HCV for 32 years. early cirrhosis. Started treatment 1/31/14 with first interferon shot. Undetectable within 21 days of start. Side effects were anemia an...
Today I am starting sovaldi and ribavirin and I am also doing a chewable b12 and Garden of life blood vitamin. I am a geno type 1a and have had HEP C for over 25 years and many of those years I was a heavy drinker. I have read about side affects and will keep you all informed on my progress .....GOD IS MY ROCK
Priority Review by INESSS Provides Recommendation to Treat Patients with Genotypes 1 and 4 HCV Infection Regardless of Fibrosis LevelMontreal, June 2, 2014 /CNW/ - "Gilead Sciences Canada, Inc. is pleased to announce that the Health and Social Services Ministry has placed Sovaldi® (s...
I had an appointment with Dr. Paul Martin at the University of Miami Department of Hepatology on the 29th of May. After reviewing my lab work Dr. Martin thinks I might have the beginning stages of cirrhosis. My local doctor in Fort Myers, FL also thought I had cirrhosis based on my lab work. I had a biopsy...
i did shot 6 last friday, so i almost halfway into this thing. but when putting on my mascara (which is not alot, not feelin it) one of my eyes is yellow. i have always called that eye my sick eye. it would be the tired droopy one. so maybe stressed & tired?
There is a So. Cal based company that tracks safety info on new drugs. Its clients are primarily hospitals, docs, insurance providers, and pharma companies. Their website is AdverseEvents.com. They completed a report about Sovaldi's safety for the period ending on April 25, 2014. The report i...
Pretty interesting article about new clinical trial involving one injection of TT-034. SYDNEY, May 29, 2014 /PRNewswire/ -- RNAi-based therapeutics company, Benitec Biopharma Limited (ASX: BLT) announced that it has dosed the first patient in its 'first in man', Phase I/IIa clinical tria...
Yet another reason my GI people are worthless: Lying in bed this a.m.because fatigue and apathy have hit me especially hard this week. Phone rings, it's my GI nurse. Says she got urgent call from CuraScrip stating I haven't reordered meds for next month. Although they called me twice, I forgot to retu...
Been a while. It's been about 6 months since I finished treatment. Feeling better, but in January I went into a-fib with RVR that I do contribute to the treatment. DCCV fixed that. Otherwise feeling good. One big thing I have noticed is that my upper right quad pains are no longer there. Just getting on w...
Are there people here on olysio and solvaldi? If so, how much are you able to be in sunlight or ultra violet light? I have not burned because I stay out of both kinds of light, either causes my skin to itch badly, even a little exposure. Otherwise, I cannot even tell I am on treatment. We were told sun exposu...
You take a ribavirin 2x a day, and once, am or pm a Sovoldi . What would happen if you broke the Sovoldi in half and took it 2x like the ribavirin? With the rivavirin. Does anyone know what kind of affect this will have? just wondering I haven't tyred it. .
Hi All, Just wondering what everyone's experience has been with labs while taking the Sovaldi/Olysio combo and if insurance is covering them at regular intervals once Tx begins? I'm curious about what's considered excessive labs as I'm trying to learn about all the newest protocols with the new...
I received my Meds today (Solvadi/Riba) and the Solvadi was packed on ice. My pharmacy said to store at room temp. Has anyone else received their Solvadi on ice. Should I be refrigerating? Should start TX within the week. Gulp
Hi, this is my first post here and I have a few questions around treatment. I am genotype 1a and have been treated twice before. First time in 1995 with straight interferon. Second time in 1998 with interferon (This was before peg interferon) and Ribaviron. On this second occasion my ALT dropped to t...
The battle between medicaid/insurance companies and Gilead rages on. This article was recently published in MedPage Today. Not only are Gilead's prices being questioned, but efficacy and safety concerns about Sovaldi are beginning to surface: Medicaid Directors Question Need for $1,000 H...
Hello and greetings. New here, a brief bio of my adventures with HCV. Infected 1970 while in military. HCC in 1998, transplant 1999. I have done well with the transplant but the HCV has pretty well destroyed the new liver. Stage 4 cirrhosis and now have edema I am guessing from portal vein hyperte...
I'm on day 19 of treatment with Sovaldi and Ribavirin. I am genotype 4c. After 2 weeks of treatment, my doc says my VL went from 600,000 to 43...AMAZING...my ALT from 99 to 31 and AST from 114 to 29. I am feeling so alive and energetic. My only side effect is insomnia and the doc says to take my second dose of...
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