Hi, Forum members. I hope everyone is enjoying the spring weather (if it's spring in your part of the world), and that you're having more luck than I am getting therapy. I just found out that the OPTIMIST trial (Sovaldi + Olysio for treatment-naive genotype 1) is no longer recruiting. I've been follo...
Hello! I'm tgcd78. I'm on day 8 of the clinical trial OPTIMIST taking once a day Sovaldi (400mg) and Simeprevir (150mg). I feel so fortunate to be on this trial. I found out I was Hep C positive when I was pregnant with my first baby in 2008. I may have had Hep C all my life but never tested until then. ...
Today is day 5 of Siol/Riba and the headache has started. First 4 days were easy breezy. Also feeling a bit tired but that could be the nagging headache. Drinking tons of war almost 1 gal per day. Hopefully it will pass. My Drs nurse is off today so couldn't call to see if I could take anything.
Today i went to my primary for my yearly, got my blood taken for test,2 Liver function, cholesterol, and viral load. He wonts me to start tracking my BP. and I will go back to see him after treatment in 10 weeks. As for how the Tx is going, I am looking like Calf. Chrome at the Ky Derby. Way out in front in th...
It's my 3rd day and I feel surprisingly good, but today I have been highly irritated at some people I work with. It's really hard to say whether this is the meds or not though because these people are just naturally annoying...throwing people under the bus in meetings and so forth. I think it's going t...
Well friends i am coming to a close with my tx Sovald/ Olysio with just.... actually 3 days left of meds...Latest results were Undetected will all my Liver functions and levels normal.going for an Mri in 2 weeks and for more Labs. I am Grateful to my maker for giving wisdom to those involved in the proces...
Hi All, I took my first dose of Sovaldi/Olysio today and two hours later experienced some crazy tingling and an achy sensation in my right leg and foot. It really worried me at first but after talking to a couple of you, I'm pretty sure it's from the Olysio. Throughout the day, it's still here and I'm real...
This is my 8th day ....I have had some nausea a slight headache some foggy moments....but all in all feel pretty good. I even hit the tanning bed yesterday and all is well ....Thanks for the support will do blood work on July 1st....Praying to be UND
Hi everyone, hubby's been traveling along well since end of treatment getting stronger and feeling much better overall. He is actually heading to Europe in a week to visit family, so he has definitely regained a lot of strength. I do have a question though - he had some routine blood tests and they cam...
Hello to all the members on this site It was a the last leap year we had in 2012 my hubby had his liver transplant, what a journey, it took him 18 months to get back to some normality. The new treatment Sofosbuvir has come to trials in our hospital just now but are treating Geno Type 3. Have been advised Geno...
SIX MONTHS TODAY ! LIVER TRANSPLANT ANNIVERSARY STILL HAVE HCV genotype 1B WHAT DO I DO NEXT ?? Does anyone have experience/advice on Hepatitis C / Near Death / Liver Transplant injury? GammaGuard contamination I contend my HEPATITIS C (HCV) story and all started approx 16 years ago with a medic...
The Scottish Medicines Consortium (SMC) has today published its advice on the use of the drug sofosbuvir on the NHS in Scotland. The body of experts have "accepted sofosbuvir for restricted use in patients with genotypes 1 to 6."The SMC go on to make the following specific restrictions:Use in treat...
Hi, I'm a health-care reporter with Bloomberg News, and am working on a story about Sovaldi, examining how the drug's price may be an impediment to access. I'm looking for someone who is unable to get access to Sovaldi because their insurer/government won't pay for it. If that's you and you'd like to h...
Hope this is not breakin the rules. These surveys help the drug companies. They are interviewing between now and Tuesday so call ASAP if you are interested. They called me right back BUT cutoff age is 70. You will receive $100. I have done many of these over the years and have always gotten PAID! I...
I was pondering my long association with hep C. I have had it since the early 70s and known I had it since the early 90s. For many years there was very little evidence of it other than certain liver enzymes and blood anomalies likely due to liberal use of alcohol. My Dr would feel my liver, we did ultrasound...
Hi, all! I'm new to this forum so posting first in the New Members section. I'm a 70-year-old New Yorker, diagnosed HCV+ in 2008 with genotype 1b. I had a biopsy then that gave F1/A2, and have been followed since then with blood tests, ultrasound scans, and a few Fibroscans and Fibrotests. I'm currentl...
Hello, my name is Sarah and I'm from Australia and I am 22. ive been diagnosed for 6-8 months but have apparently had HEPC for 4 years (long story short I had some terrible doctors) I have started treatments and am finding some things really hard. I guess I'm here to find people like me, going through wha...
I cannot get medical approval for solvaldi and olysio from Blue Cross :( (Horizon PA) The doctor is recommending that I do just the solvaldi and riba. Having failed prior treatments of peg interferon and riba; infergen and riba; and also incivik, peg and riba..I am wondering how successful that wo...
Forgive my ignorance I should probably know this. Is there a regimen available now that is interferon free? Riba free? I am hearing about Sovaldi and Olysis. From what I understand it is for anyone who is not a candidate for interferon...and that could mean I dont wan to take it....that makes me not a c...
Heptologist just ordered another liver scan (echo) 16 weeks into 24 week treatment - any experience or protocol here? Wonder if it is because I am being closely monitored due to being one of the first kidney transplants on Sovaldi?
I had my dr appointment yesterday to initiate treatment with sovaldi/olysio/riba. We did labs, meds were ordered, and paperwork is being submitted to Cigna today. - Riba 600mg twice daily (1200mg) - simeprevir 150mg once daily - sofosbuvir 400mg once daily Next step is to starting pestering Cign...
When I was sick last week, twice I threw up my Sovaldi about 7 or 8 hours after I had taken it. I had my blood drawn on Tuesday which was2 days into week 5 and my numbers didn't change. I'm still at less than 43. Should I be concerned? Could , my throwing up those 2 pills truly have an effect? Thanks for your resp...
Anyone have suggestions for the awful itching? I have tried lotions, creams, cool showers and antihistamines and still scratch myself raw in my sleep:( Willing to try anything at this point Thanks for advice Ro
I was reading the many posts today and thinking of how it was just a year ago. I had just gotten my first biopsy since 2000 and was denied a Gilead trial because I had cirrhosis. There were a few posts concerning trials, but not many. Most related to the old SOC. Today, the posts are full of people start...
I don't know how many from this forum are from Europe and need compassionate use, but it is now available in the Netherlands, and other European countries: http://clinicaltrials.gov/ct2/show/NCT02097966
Dear All, I am in week 24 of my p-interferon / ribavarin treatment. I underwent a CBC and ESR test today. My ESR levels came at 20 (it was 2 before starting treatment). I also have persistent cough that refuses to go away. What could be the reason for this elevation in ESR? Could anyone help? -- Edited by m...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
