Hi everyone, hubby's been traveling along well since end of treatment getting stronger and feeling much better overall. He is actually heading to Europe in a week to visit family, so he has definitely regained a lot of strength. I do have a question though - he had some routine blood tests and they cam...
Hello to all the members on this site It was a the last leap year we had in 2012 my hubby had his liver transplant, what a journey, it took him 18 months to get back to some normality. The new treatment Sofosbuvir has come to trials in our hospital just now but are treating Geno Type 3. Have been advised Geno...
SIX MONTHS TODAY ! LIVER TRANSPLANT ANNIVERSARY STILL HAVE HCV genotype 1B WHAT DO I DO NEXT ?? Does anyone have experience/advice on Hepatitis C / Near Death / Liver Transplant injury? GammaGuard contamination I contend my HEPATITIS C (HCV) story and all started approx 16 years ago with a medic...
The Scottish Medicines Consortium (SMC) has today published its advice on the use of the drug sofosbuvir on the NHS in Scotland. The body of experts have "accepted sofosbuvir for restricted use in patients with genotypes 1 to 6."The SMC go on to make the following specific restrictions:Use in treat...
Hi, I'm a health-care reporter with Bloomberg News, and am working on a story about Sovaldi, examining how the drug's price may be an impediment to access. I'm looking for someone who is unable to get access to Sovaldi because their insurer/government won't pay for it. If that's you and you'd like to h...
Hope this is not breakin the rules. These surveys help the drug companies. They are interviewing between now and Tuesday so call ASAP if you are interested. They called me right back BUT cutoff age is 70. You will receive $100. I have done many of these over the years and have always gotten PAID! I...
I was pondering my long association with hep C. I have had it since the early 70s and known I had it since the early 90s. For many years there was very little evidence of it other than certain liver enzymes and blood anomalies likely due to liberal use of alcohol. My Dr would feel my liver, we did ultrasound...
Hi, all! I'm new to this forum so posting first in the New Members section. I'm a 70-year-old New Yorker, diagnosed HCV+ in 2008 with genotype 1b. I had a biopsy then that gave F1/A2, and have been followed since then with blood tests, ultrasound scans, and a few Fibroscans and Fibrotests. I'm currentl...
Hello, my name is Sarah and I'm from Australia and I am 22. ive been diagnosed for 6-8 months but have apparently had HEPC for 4 years (long story short I had some terrible doctors) I have started treatments and am finding some things really hard. I guess I'm here to find people like me, going through wha...
I cannot get medical approval for solvaldi and olysio from Blue Cross :( (Horizon PA) The doctor is recommending that I do just the solvaldi and riba. Having failed prior treatments of peg interferon and riba; infergen and riba; and also incivik, peg and riba..I am wondering how successful that wo...
Forgive my ignorance I should probably know this. Is there a regimen available now that is interferon free? Riba free? I am hearing about Sovaldi and Olysis. From what I understand it is for anyone who is not a candidate for interferon...and that could mean I dont wan to take it....that makes me not a c...
Heptologist just ordered another liver scan (echo) 16 weeks into 24 week treatment - any experience or protocol here? Wonder if it is because I am being closely monitored due to being one of the first kidney transplants on Sovaldi?
I had my dr appointment yesterday to initiate treatment with sovaldi/olysio/riba. We did labs, meds were ordered, and paperwork is being submitted to Cigna today. - Riba 600mg twice daily (1200mg) - simeprevir 150mg once daily - sofosbuvir 400mg once daily Next step is to starting pestering Cign...
When I was sick last week, twice I threw up my Sovaldi about 7 or 8 hours after I had taken it. I had my blood drawn on Tuesday which was2 days into week 5 and my numbers didn't change. I'm still at less than 43. Should I be concerned? Could , my throwing up those 2 pills truly have an effect? Thanks for your resp...
Anyone have suggestions for the awful itching? I have tried lotions, creams, cool showers and antihistamines and still scratch myself raw in my sleep:( Willing to try anything at this point Thanks for advice Ro
I was reading the many posts today and thinking of how it was just a year ago. I had just gotten my first biopsy since 2000 and was denied a Gilead trial because I had cirrhosis. There were a few posts concerning trials, but not many. Most related to the old SOC. Today, the posts are full of people start...
I don't know how many from this forum are from Europe and need compassionate use, but it is now available in the Netherlands, and other European countries: http://clinicaltrials.gov/ct2/show/NCT02097966
Dear All, I am in week 24 of my p-interferon / ribavarin treatment. I underwent a CBC and ESR test today. My ESR levels came at 20 (it was 2 before starting treatment). I also have persistent cough that refuses to go away. What could be the reason for this elevation in ESR? Could anyone help? -- Edited by m...
Hi All I know that my husband should eat food when taking the medications. But he usually is not hungry in the morning, and waits an hour or so. Should this be taken with food to help with absorption (like the high fat diet with Incivek) or is this to reduce upset stomach? Also, are there other restricti...
Hi all Just after some advice or other people's experiences. I found out I was HCV+ in May 2013, which my body cleared over the course of the rest of the year. My last bloods in March 14 confirmed that I was undetectable and I had been for 6 months so I was effectively free from Hep C I am still getting an unc...
I have noticed a few times that there will be a post that is not underlined in the message feeds. There is a posting now by julia1065 that I cannot get to open. What am I doing wrong? Thanks for the help. Mary
Hi folks, haven't been here for awhile. I was here during triple treatment with Victrelis. Relapsed six months post treatment. I was with Kaiser then. Now I am with a different provider and my doctor has prescribed Olysis and Sovaldi. They have refused coverage initially and just refused again aft...
I am from omaha ne and just started treatment today .....savoldi and ribavirin my faith is strong and I am using GODS POWER to carry me through ...GOD BLESS TO ALL
Hi all I'm new and will start treatment of Sovaldi and Olysio Can anyone tell me what kind of side effects there experiencing If any I. Was told by the doctors there we're NONE buy I don't believe them
Took my last shot 5/25/14 and my last 3 riba pills 6/1/14 at 7:15 p.m. Was never so glad to swallow 3 pills in my life. I'm so relieved that it's over- too tired to celebrate -but relieved. Went for my 12 week labs yesterday, and have an appointment with my NP tomorrow, so obviousl, won't have results for a f...
Hi all,Every 6 months I do a post about the effect of HCV on teeth. Chronic HepC causes decreased, acidic saliva. This promotes tooth decay. For those patients who are put on Interferon, the problem gets worse. Interferon has a direct effect on tooth enamel, and further reduces saliva production. A...
I got my 2ed to last shipment of drugs, last time it came in one pack both meds, the time before one in one pack the other in another pack but delivered together well this time it came one in a pack one day and the other in a cooler the next day. I guess expecting any kind of consistency from them is too much to...
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