Hey Guys: I just met with my hepc doc at the Liver Center at Virginia Mason in Seattle. She informed me that not only is their team expecting to begin prescribing the S/L combo immediately after its Oct 10 approval (and it should be on the shelves almost immediately too) but also she fully expects the AB...
Not really sure I'm gonna do cartwheels yet.. But the doc called and said the results from my VL test at end of treatment was still undetected. I'm thinking that would be a given because I had just finished my last dose of S/O the day before. But I'll wait for another 2 months or so and ask for another VL test...
Hello everyone. I'm feeling like I made the wrong choice of GI. Here's what's happening. Either the dr or the nurse prescribed the 1st Pegasus/Ribosphere/Sovaldi script about 1 week ago. The problems are as follows; They sent it to the wrong specialty pharmacy & my insurance did not approve P...
Hi! I donated blood recently and received a letter yesterday from the Red Cross stating #you most likely are infected with Hepatitis C". Their results state I was Reactive for Hep C Virus Antibodies and Positive for HCV Supplemental Test. They refer to the supplemental test later on in the pape...
Well I just swallowed my first dose of Sovaldi and Olysis...so DAY 1. I am super nervous cause I have lived with this virus like the rest of us here for around 35+ years. It is hard to even image life without it, but I am hoping for the best. If anyone has any advice or side effects that they experienced, I wo...
The people who run the IRS, Post Office, VA, ACA, Medicare are now involved - I feel so much better that this is going to be resolved SOON! longld The $84,000 Price Tag On Gilead's Hepatitis C Treatment Sovaldi Has Evoked Sharp Criticism From Several Quarters. The drug was released in January and sin...
Getting ready to start taking the new Hep C drugs. My doctor has me taking both Sovaldi and Olysio which has me confused along with Ribavirin. I cannot take the Interferon because my Biopsy shows Sarcoidosis in my liver which also has caused cirrhosis. So I will be taking the combination of these ne...
Hi all, just wanted to let you know I am still NEGATIVE for the virus eight weeks after ending Sovaldi/Olysio. I am thrilled. One more test in a few weeks to see if SVR12. I posted this in the "on tx" section too where all those on S/O post just to let them know its working for me so far.
Started olysio/sovaldi off label 5/6/14. 6 week labs undetected! I have 30 some days left and cant imagine what it would have been like if i had not decided to wait for off label approval and had to do the year long treatment with ribavarin, etc. i feel so sorry for those who have to go through the sickness...
Today we got Joel's viral load after four weeks. He is still detected at 86. That's compared to his starting viral load of 2,707,000. I guess we should be excited that it has dropped that much, but we were hoping for undetected. Given that he has cirrhosis, and has had previous treatments, the doct...
during this treatment of sovaldi/riba/interferon.. some other things were lower than normal. like red blood count etc. I know someone had mentioned problay b4 but I have brain fog.. lol
31 y/o Male Geno 1A (since birth) I did Peg/Riba in 2005 and was a partial responder. (18 months of treatment) Pre-treatment my VL was around 88 million, but thankfully I am type 1 stage 1. A few questions: 1) My whole life I have had some strange memory issues and sleeping problems. Mainly I have a hor...
Hi, I am experiencing some mild pain that is unexplainable, I am wondering if it is a Cysts of some-kind, I once had a tapeworm and this too can be a factor as I have found in my research into it so far. hoping someone has some insight to this along with the HCV as a complication
interferon shot? it feels as tho someone has their hand in there & pulling really hard. hurts like heck.. when I get up I can barely straighten up. & I feel like I have the flu 5 times over. I have been on this stuff for 8 weeks now.. why now? so uncomfortable!!!!!! -- Edited by TazKat on Saturday 14...
Hi. My new insurance and a grant has covered everything. Thank you Obamacare! I'm attempting to wait patiently for the meds to get shipped. The dr prescribed the wrong brand of interferon. So I've been on the phone all week trying to no avail to reach the dr's office (leaving messages). Also the specia...
I remain UND @ 4 weeks post. Most lab values are well within normal range, the exceptions being ALP (marginally high) and platelets remaining well below normal. Not unusual for cirrhotics, I believe, but looking forward to future improvements. This is a huge hurdle for all on the journey to SVR and I'...
(Reuters) - European regulators have validated AbbVie's application for an experimental all-oral regimen for patients infected with the most common genotype of hepatitis C virus and the therapy is now under accelerated assessment. The U.S. drugmaker said on Tuesday the move by the European Med...
June 13, 2014 AbbVie announced today that the New Drug Application (NDA) for its investigational, all-oral, interferon-free regimen for the treatment of adult patients with chronic genotype 1 (GT1) hepatitis C virus (HCV) infection has been accepted by the U.S. Food and Drug Administration (F...
Hey everyone, I started doing a little cardiovascular exercise (hiking and light jogging) on some hilly trails and then I became concerned that maybe I was pushing too much blood through my cirrhotic liver. But I need the exercise to keep other potential problems (diabetes, cholesterol, triglyce...
n the race to find a faster cure for hepatitis C, Bristol-Myers Squibb Co said it will test its experimental antiviral drug combination with Gilead Sciences Inc's blockbuster drug Sovaldi, hoping to cut treatment time to four weeks. Bristol-Myers disclosed plans for the exploratory 30-patient t...
Good morning everyone, Today is a good day for me!!!! As each European country has their own governing bodies, the Zorginstituut has approved Solvadi WITHOUT restriction with Riba at a cost of 98.584 Euro for a 24 week course. The hospital also called yesterday for a new appointment so I suspect I'm...
Hello all I'm looking for some help understanding labs. Husband went for four week labs and we are waiting for viral load. But in the meantime, we got these results today. I assume this is good news, right? ALT - Before Tx: 156 Currently: 31 AST- Before Tx: 164 Currently: 40 We are so nervo...
Hello everyone. I have my results from a CT scan from the EPIC medical record system (I have not heard from Dr. Martin's office yet). I would like to get some feedback on the results: (Note: In the past, one radiologist believed I had hemangioma and another argued against it). I was wondering if anythin...
I am G4, currently on week 7 of 24 week treatment with Ribavirin and Sovaldi. I am interferon intolerant. I am interested in knowing how your treatment is going and if you've reached UND. At 4 weeks I was still at <43, the same place I was at on day 16. Share your thoughts and experiences. Have a great da...
I was set up for the Sobosovir / peg /rib by my liver Dr and found the Idenix trial ... I dont know if this is a very small trial or just not being done by a big co but I very seldom see anything about it. I am Starting my 5 th week of the Helix 2 trial because of the weather I didnt get blood results past day7 til...
Today is day 28 of the six month regimen with sovaldi and ribavirin. Today I am feeling fantastic. Last week was the week from HELL. I had so many digestive issues and I had no energy and constantly felt like I was going to faint. Many times I walk from 2nd st to 9th street and back, but last week I had to make s...
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