I most likely acquired HCV in the late 60's, early 70's, from ex husband (deceased). First clue was in the early 70's when I tried to give blood, then later in 80's was told I had liver disease of unknown origin. In the late 90's I was experiencing early neurological difficulties, blood tests came back w...
Hi People, It's been a while since I have had any news to post, I've been in training for my second bout in the ring with our favorite opponent, but that's not going to happen for awhile at this stage. Had all my tests done except my VL but will get one done soon. So bottom line is I can wait it out and see if 7977...
Can't even spell the name of the drug which I hope will save my life. At last the UK is doing widespread trials for geno3 - lobby your consultant. Dragonfly xxx
Hey all. It's been a long 11 months since I've posted here... (that doesn't mean I haven't been watching **wink**) My doctor called me at the end of November, over the moon about Sofosbuvir + Ribavirin and so I've got myself an appointment 1/30 to discuss. I have never treated before (+ since birth in 1...
Hi, My mother has been diagnosed with HCV positive. She had some pain in her abdomen. We went to the doctor and then HCV was diagnosed. She also had black stools. The doctor told us that there is internal bleeding. This happened on 4th Jan, 2014. Now the doctor has done endoscopy but they are saying not s...
I just got a call from my nurse. The end of my third week bloodwork. She said my ALTs, ASTs and Billiruben are all normal so yea! Don't remember my ALTs and ASTs being normal for years. Taking that as a sign I'm killing this dragon... BUT platelets are low 70 but not dangerously, but my darn hemoglobin is 98...
OLYSIO: THERE ARE AFFORDABLE OPTIONS AVAILABLE. There are several options for helping you reduce out-of-pocket costs of treatment, whether you have commercial insurance or government insurance, or you are uninsured. Find the option below that best applies to you.I Have Commercial Insurance...
I have often had bouts of jaundice and was told by my family doctors in my 20's it was from an enlarged spleen. In my mid 30's I was told it was from a higher level of Bilirubin and that was diagnosed as Gilberts syndrome ( three or more years with the same bilirubin levels is considered okay ?). Most recent...
I read in a lot of post that the VL is anywhere between 200,000 and 8,000,000. Also read that under 15 is good. What I cant seem to grasp is how the VL measures success. What is the connection to having less then 15 VL and achieving UND SVR and having 16 or more stating detected and start or continuing tx ?...
Just wondering if anybody has done any research on foods, drinks etc. That can help with hemoglobin levels. Since this is something most of us deal with, would be great to help it along as much as possible with diet.
Gilead today announced that the European Commission has granted marketing authorization for Sovaldi® (sofosbuvir) 400 mg tablets, a once-daily oral nucleotide analogue polymerase inhibitor for the treatment of chronic hepatitis C (CHC) infection in adults, in combination with other antivi...
Another Drug Company has posted plans for their new clinical trials for 2014. Just more and more good news!!! SuziQ Achillion 2014 Milestones -- ACH-3422: HCV Nucleotide NS5B Polymerase Inhibitor - To date, all of the Company's preclinical studies support the advancement of ACH-3422 into cl...
Found This article today. There will be more clinical trials in the coming year.SuziQ2014-Daclatasvir Accelerated Review By European RegulatorsSubmission includes EUs first all-oral and ribavirin-free investigational regimen for use in treatment naïve genotype 1, 2, 3 patients and prote...
Acetaminophen/Paracetamol has long been known to be liver toxic. The FDA is recommending health care professionals change their prescribing habits. The link is to a Fox report on the subject. Best to be cautious whenever taking this medication, especially us. http://www.foxnews.com/health/...
Hi guys I am wondering if anybody has any advice on getting through the mental weariness (not depressed just feel frustrated). Im at week 10 and am struggling to find a way to accept that I am now in this for the full 48 weeks due to being detected at 4 weeks. Im a former nurse so understand what is going on....
could somebody please help me with how you found out? My liver enzyme alt spgt is 63 other liver test normal could i have hep c? doctor dont think hep c and didnt test for it is this right? i worked in an environment where lots have it any thoughts thank you in advance! what was your alt when you found out?
Hi, could some one tell me where I click to find private messages I have sent to another member and cannot find it anywhere.I am new to this. cheers liamc
Another announcement about new clinical trials.SuziQ Simeprevir and Samatasvir (IDX719) for the treatment of hepatitis C STOCKHOLM, Sweden--(BUSINESS WIRE)--January 13, 2014-- Regulatory News: Sweden--Medivir AB (STO:MVIR-B), announces that Idenix Pharmaceuticals, Inc. today rele...
Hi new friends, I am new to this forum, but have gained a lot of information just looking through everything. I have an appointment with a dr tomorrow in hopes to begin the new treatment. Just a little background: Geno 1a. I haven't checked the viral load in about a year, but when I checked it was over 5 mi...
Hi all,Sorry to be a bore, but my doc told me my liver enzymes would probably never be normal. The dental surgeon inserting the 3 titanium screws for my implants wanted some recent labs, so another blood test yesterday. The guy was worried I would bleed to death on him, as one of the screws will just go int...
My Vitamin D levels a re very low (10). Normal is above 40. I have pushed my Dr. into giving me a Vitamin D supplement. It is 60000 IU of Vitamin D per sachet to be taken for 8 weeks. The Dr. had advised me not to take Vitamin D supplement for longer that the period that he has prescribed. On the other hand, a...
It took a while to get the results but my doctor made a special phone call to me at home to say I'm UND! What a relief as my ALT-AST were high. Deep down I knew I would be, but I had some doubts. The waiting was killing me; they aren't supposed to tell you over the phone. I screamed with joy! (after I hung up!) No...
Just got the good news 6 months post TX..SVR ALT 40 ALT 40 Platelets 174 Treatment was tough but certainly worth it, hang in there all and thanks again to this forum.
Hello All, I just discovered that a family member has Hepatitis C. She does not like her current doctor and is reaching out for help. She is in the Northeastern U.S., and wants to find the best doctor she can. I don't know where to start looking, but The Cleveland Clinic, Johns Hopkins, and various Ne...
While looking for information on fibrosis I came across this website/article. It mentions "an increasing number of studies suggesting that the consumption of caffeine may reduce liver inflammation in people with chronic liver disease." Makes me wonder if there was any chance of that...
Is there any correlation between side effects and treatment results? Does anybody know what the ratios are or if there is any difference between those that get the rash, butt burn, etc against those that don't? I am feeling pretty good today and am worried that means theI treatment isn't working (sho...
Hi Folks, Number 2 of my Hep C / Liver Traansplant Video Diary! Just thought I'd share my morning routine with you, including the medication I'm taking and my progress so far. Plus my plea to ask you to join the organ donation register, follo...
Hi, My name is Sona and i was looking for some help. My hubby is 28 yrs old diagnosed hepc geno1A about an year ago. he is waiting for the fibroscan test at whipps cross hospital. I see him on pain everyday and it makes me feel helpless. He gets severe headache, hip joint pain and tummy pain almost everyday....
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