Hep C Discussion Forum

Hello everyone! So great to be here! I was diagnosed with Hep C Genotype 1 and a viral load of 51,000 in 2012 after going through a procedure for a lung condition. I have to be honest and i say i had no clue what Hep C was. After a lot of research i decided to start treatment as soon as i could, as i could just visu...

I just had 2 units of blood 4 weeks ago. My hemoglobin has already dropped from 96 to 84 inside of 2 weeks, & my platelets are at an all-time low of 60. Blood pressure is 100/58 and I am having flashes of dizzyness. The hepa just returned my call and ordered more blood and to reduce my ribavirin to 1 pill t...

I know I haven't been around in a while. Just wanted to thank everyone here for all your support and wish a Merry Christmas. My insurance runs out the 31st of December and it will be a couple of months at the least before the insurance picks up on my new job so I called my Hepatologist and asked for testing be...

hi kids, it seems i had insurance all the way up until yesterday, so i took the opportunity to have one more vl test at the official 12 week eot mark. this is the email I got last night from my NP: "Kellie, HCV RNA undetectable. Congratulations! Cured! Happy New Year! Andi" I just wanted to shar...

I`m happy to announce that Tig (Tig56) has agreed to join us on the Admin team and from today is now a Forum Moderator! As you all know, Tig has been a hard working and dedicated member of the forum for quite a while now and has become very well respected for the friendship and support he gives to everyone he...

Since I am being followed for liver cancer (surgery 7-2012) as well as having finished the 48-week triple therapy (Peg, Riba, Vict) on 11-29-13, I have sometimes almost overlapping blood tests. The following are tests given for the end of treatment (11-29), in preparation for another liver scan (...

I was diagnosed out of the blue and started treatment and now after 9 months I have completed my treatment and am now clear so if anyone needs any advice or reassurance then please get in touch

Hello All, I am 1a, previously treated 13 years ago, non responder.Started Incevik, Copeg, Peg last Saturday (this is day 3).So far not too bad. Feeling a bit "off" but not real sick.I actually took today off thinking I'd need it, but was up taking my incevik at 7 and stayed up and went to wo...

I have likely had HCV since about 1972. Family Dr originally was just watching it doing regular blood tests. I don't know or understand the numbers but about a year ago he said it was becoming more active and I should look into treatment. Originally it was going to be a biopsy but ended up getting fibros...

My name is Kathy. I am 55 years old and have genotype1. It is difficult to understand, I just do what they tell me to. I started triple therapy (Ribovarin, Victrellis, and the Pegasus shots). My health hasn't been so good to begin with. my white blood count went down to .300. So now I also have to take...

If you are still detected at week 4, do you automatically stop treatment? I'm noticing some have detected at week 4 and yet go on to SVR. How do they decide who stops and who continues?

Hi, My name is Candace and my husband has Hep C. He's 59 and has had it for probably 40 years. He was tested for it in July and it was positive. It took 5 months for me to get him back to the doctor for the test to determine if it was chronic or not. He was tested for that last week, the doctor called today and s...

I was searching for some information and came across this website of liver function test descriptions. It may be of benefit to you and another place here that you can refer a member to that has a question regarding these tests. I'd also like to suggest that anyone with questions regarding their person...

Hey All Here goes first time here. Well I'm post Liver Transplant 3 yr treated pre transplant Inter and Rib 22 months of hell. Lasted a few months being und. short lived. Now I just started trial Sofasbuvir/Ledipasvir Rib 24 week trial. I am now on week 5 so far VL pre treatment 800 k week 4 und VL don't kno...

Hi, everybody! I'm new. I was diagnosed with Genotype 3a in 1994 and have always had just slightly elevated labs...but occasionally even normal. However, extreme fatigue and other symptoms are what led to my diagnosis. In 1995 I went through a year of pure hell of daily Interferon injections; even t...

I am new to the forum and have been off Hep C triple therapy for close to 10 months. I am experiencing severe pain in my left hip, left thigh and lower back. The worse pain is that sharp pain in the middle of my left thigh. The doc says it is arthritis in my hip. I went to physical therapy and that helps some....

I tested positive for hepatitis c antibodies in jan and my s/co was 4.85, wasn't told to get additional test and think anything of it. Dec I had to be tested for work and of course I'm positive for the antibodies again and this time my signal to cut off is 4.04. My (AST ALT) are normal (19 20). I am so terrifie...

Hello everyone. From my bio. Im 63, gt 1a, F2, VL 5m, F2. Last checkup 7/13 and all numbers were normal. First diag. 1996. Had this since 1970. Been reading this board for a couple of years. I waited a lotta years for a better treatment to come along. I thought Incivek was it-had followed its progress for...

Hey All Names Gig post Liver Trasplt 3 yr peg and rib 6 yr ago non responder. Got Liver Cancer moved me up on Transplant List got Tranplt was home in 3 days was like being born again. Went from feeling so bad for so long told the Dr. as soon as I woke up after surgery I feel better couldn't believe the differenc...

Hello all. My name is Kathleen and I just turned 24. When I was 22 I was diagnosed with Hep C and started the triple drug therapy a few months later. I had a really rough time with treatment, as I'm sure most of you did. My red and white blood cells bottomed out very early in treatment and I was bed bound for mos...

Just had to share this and don't know anyone who might understand but you all. I called the Sheriff yesterday as a new "druggie" in the neighborhood stole things from a rental property I own. She (the druggie) got very confrontational and I apparently got confrontational back.(verbally...

Between April 2006 and September 2007 just over 500 respondents completed the survey. All of these respondents were more than 6 months post treatment.http://www.hepctrust.org.uk/treatment/Post+Treatment+Survey+Report.htm#headingAnchor1

I have been way too long since I have checked in on the forum. My life has been a bit nutso but all in all I am doing pretty well. My husband and I are still separated and have filed for divorceL. This is very hard on both of us. I am now over 120 days post treatment, happy to say my energy level has returned to nor...

Hi everyone, Andi here, SVR ten years following 48 weeks of interferon/ribavarin for 1A. First of all, while tx was Hell, I would definitely do it again. And yes, while I do have significant post-tx issues, I live a good life. It's not the life I thought I would be living but I am useful. My dr has downpla...

i found out the other day i am losing my medical insurance tonight at midnight so i asked my np if we could do my 12 week eot labs a little early. i'll have my vl results in a few days. i asked her to throw a thyroid panel in there too, along with the other tests.i think if it's going to come back, it will show up no...

Returned home from shopping today to get voice message from specialist that 6 month psst treatment blood tests showed virus still active. Guess my battle not over yet.

Hi all, Tom and I go back to Mt Sinai tomorrow for his second liver CT scan (6 mos). Keep us in your prayers that the cancer hasn't returned. Heard the new treatment for hep c has been approved. If all goes well for Tom, the doctors want him to stop chemo and try to beat his hep c using the new treatment. Has...

I am about to start treatment of nterferon, ribavirin and sofosbuvir. Can someone explain to me what to expect on my first treatment day.

Hi all, My post-Rx story is getting like a soap opera. Since returning to golf, I've had R. forefoot pain after walking, usually starting after 6-10 holes. The pain is quite severe, and is relieved by taking off my shoe and walking without a shoe for 5 minutes. The pain usually returned after a few hole...

Because I am done! At least with Interferon. Six more days of riba and I am in the waiting mode. I must say as difficult as it was, it feels like it went by quickly. I will miss having a readily handy excuse available, but am looking forward to exercise, working in the yard this spring, and reconnect...

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